Professional Documents
Culture Documents
Adolescents (13-17)
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Sources: The Siblings Support Project of the Arc of the United States; ARCH (National Resource Center for Respite and Crisis
Care Services; Derenda Timmons Schubert, Ph.D. (2004); Meyer and Vadasy (1994); Steinberg (2004)
Department of Genetics
Ideas
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Worry about bringing friends home
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More considerations
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Maintain an honest dialogue with your unaffected child about their siblings disability.
Use age-appropriate language with younger children, but be as honest as possible.
Arrange for your unaffected child to meet other siblings of special needs children to
begin to appreciate that they are not alone with their feelings and experiences.
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Sources: The Siblings Support Project of the Arc of the United States; ARCH (National Resource Center for Respite and Crisis
Care Services; Derenda Timmons Schubert, Ph.D. (2004); Meyer and Vadasy (1994); Steinberg (2004)
Department of Genetics
Plan for the future of your special needs child, and share this with your unaffected child.
Express to your child your permission and blessing for him/her to pursue his/her
dreams. This way any future involvement with siblings is a choice and not an obligation.
Avoid using siblings as caregivers. Treat your unaffected child as a child, not another
adult caretaker. Dont expect her to take on responsibilities for which she is unprepared.
Give siblings choices and involve them in decision making. Discuss family matters with
your children, especially if it affects them personally. Ask and value their opinion.
Sibling Rivalry
Certain amount of conflict (teasing, name-calling, arguing) between siblings can be a beneficial
part of normal social development. For example, a child with Down syndrome who grows up
sometimes fighting with her siblings may be better prepared to face life than a child with Down
syndrome who grows up being sheltered. However, siblings may feel jealous about the extra
attention their disabled sibling receives, and may misbehave to get the parents attention.
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Sources: The Siblings Support Project of the Arc of the United States; ARCH (National Resource Center for Respite and Crisis
Care Services; Derenda Timmons Schubert, Ph.D. (2004); Meyer and Vadasy (1994); Steinberg (2004)
Department of Genetics
Resources
Books for parents on sibling issues
Sibshops: Workshops for Siblings of Children with Special Needs by Donald J. Meyer and
Patricia F. Vadasay (1994)
Brothers, Sisters, and Special Needs: Information and Activities for Helping Young Siblings of
Children with Chronic Illnesses and Developmental Disabilities by Debra Lobato (1990)
Brothers & Sisters-A Special Part of Exceptional Families by Thomas Powell & Peggy
Gallagher (1993)
Listening to SiblingsThe Experiences of Children and Young People who have a Brother or
Sister with a Severe Disability by Janet Ratcliff (2003)
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Sources: The Siblings Support Project of the Arc of the United States; ARCH (National Resource Center for Respite and Crisis
Care Services; Derenda Timmons Schubert, Ph.D. (2004); Meyer and Vadasy (1994); Steinberg (2004)
Department of Genetics
Websites
http://www.sibs.org.uk
http://www.sibspace.org
http:///www.thearc.org/siblingsupport
http://www.siblink.org
Newsletters
NASP (National Association of Sibling Programs) Newsletter. Published by the Sibling
Support Project, Childrens Hospital and Medical Center, P.O. Box 5371, CL-09, Seattle,
WA 98105-0371
The Sibling Information Network Newsletter. Published by the A.J. Pappanikou Center,
University of Connecticut, 1776 Ellington Road, South Windsor, CT 06074
Organizations
The Sibling Support Project. The goal of this project is to increase peer support and
education programs for brothers and sisters of children with special health and
developmental needs. Contact The Sibling Support Project, Childrens Hospital and
Medical Center, P.O. Box 5371, CL-09, Seattle, WA 98105-0371
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Sources: The Siblings Support Project of the Arc of the United States; ARCH (National Resource Center for Respite and Crisis
Care Services; Derenda Timmons Schubert, Ph.D. (2004); Meyer and Vadasy (1994); Steinberg (2004)