Professional Documents
Culture Documents
Contents
Contents.......................................................................... 1
Brief description of the organization .............................. 2
Mission & Vision ............................................................. 2
The Governing Body........................................................ 3
Inaugural Program ......................................................... 4
Observance of World Autism Awareness Day 2015 ....... 6
Membership at National Level: ...................................... 8
Our Short Term Goal:...................................................... 9
Our Long Term Goal: ...................................................... 9
Summary of Achievements: ............................................ 9
Failures ......................................................................... 10
To function as a Parents Support Group collectively by extending moral support and advice to
the parents of persons with Autism Spectrum Disorder (ASD)
To increase public awareness on the unique condition faced by children & adults with ASD.
To make the parents aware about the disorder and help them to understand the needs of
their children.
To share the information on all aspects of ASD.
To undertake necessary projects and schemes for their development and rights.
To work towards their skill training and maintenance of those skills for their future
rehabilitation and meaningful occupation.
To ensure a secure & dignified living condition (e.g. Community Living Centre) for PwA when
the parents are no more.
To network with other parent associations, organisations all over India and abroad, stand
united for the development and welfare of such persons and ensure their rights through
appropriate legislations.
To organise seminars & workshops for updating knowledge, for the training and education of
PwA and their parents and well-wishers.
To publish a Newsletter on recent research & developments in this field for circulation among
members and similar organisations.
To organise Awareness Campaigns through Cultural programmes etc. for the public in
general.
To sensitise the Government, Politicians and eminent Personalities of the society for the right
of the Persons with Autism Spectrum Disorder (PwA)
To establish Leisure Club for the Parents of PwA.
To establish Self-help Group for their livelihood opportunities of the PwA at the grass root
level.
Designation
President
Working President
Vice President
Vice President
General Secretary
Assistant Secretary
Assistant Secretary
Treasurer
Asst. Treasurer
Inaugural Program
After completion of the registration formalities with Registrar of Societies, West Bengal we have
organized the Inaugural Program of APPA on 28th February 2015 at Turyananda Hall, The
Ramakrishna Mission Institute of Culture, Golpark in collaboration with The Ramakrishna Mission
Institute of Culture. Inaugural Program consisted of a short cultural function by the children with ASD
and their parents and a seminar on Coping strategies for Persons with ASD & their Parents.
We had Ms Merry Barua (Director, Action for Autism, New Delhi) as our chief guest along with our
special guests like Mr Ajin Sen (Immediate past-President of PARIVAAR NCPO), Dr Aniruddha Deb
(Renowned Psychiatrist) and Mr Achyutanal Guha (Person with ASD, Accounts Manager at AFA)
made this event so memorable.
We got 91.9 Friend FM as our radio partner for the event. Along with this we would like to mention
that following dignitaries has attended the program and appreciate our effort Shampa Sengupta
(Disability Activist), Supriya Sengupta (NIHH) and representatives from various organisations in the
field of mental disability.
We have got an overwhelming response in the program and all the seats were full more than 125
people attended the event along with their children with ASD. Peoples from Murshidabad, Durgapur,
Asansol, Bankura, Medinipur, Hoogly, Howrah, both 24 Parganas and Kolkata came to join the unique
event. We were bound to say no to lots of peoples as we had limited seats (only 130). There was no
entry fee collected for the event although we managed to provide very nice welcome kit with
conference stationaries and a decent lunch. We would like convey our gratitude to our Sponsors and
donors. All the members volunteers, Advisor and family members were helped us a lot to make the
event successful.
The Welcome kit with conference stationaries, Dias backdrop, Flex/Banner has been sponsored by
Hindusthan Petroleum & their Distributors. We are grateful to Ramakrishna Mission Institute of
Culture, Golpark for providing us their TURIYANADA HALL to host the program without any cost.
Peoples from different corner extended their help by donation of funds or any other help. All our
members themselves also donated funds for the event.
The cultural program was short & crisp and the secret of recipe with the mothers of the participating
children, they did a splendid job to make it successful. They have taken the entire load to prepare the
schedule & rehears with kids and finally present it in the stage. Feedback from the audience was
superb. The cultural Program was anchored by Subhasri & Beladhi, without having previous anchoring
experience and very less rehearsal they did it nicely.
The entire program was covered by DD Bangla News, Camera Cholche on DD Bangla,
Bartaman Patrika, and All India Radio.
We had distributed leaflets about Autism among general peoples during and after the walk the walk
to enhance public awareness towards Autism.
Autism Awareness walk organized by our association has been in the news of DD Bangla, exclusive
coverage in Camera Cholche and Sangbad Pratidin.
We participated in the program organized by honorable Disability Commissioner of West Bengal on
2nd April 2015 to observe World Autism Awareness Day.
As April is the Autism Awareness month we had arranged Awareness workshop in association with
our fellow organizations like Barjora Ashar Alo, Navodit, Asansol Anandam and Antaranga
Mahila Manashik Pratibandhi Vidyaniketan.
A team consisting Soumen Upadhyay, Ritusree Mukherjee, Sudeshna Chowdury and Arunasis Adhikari
was representing APPA during the Awareness workshop hosted at Barjora Ashar Alo and Asansol
Anandamon 18th & 19th April 2015. Sudeshna & Ritusree has explained the need of structural
teaching and how to train Daily Living Skills by role play and hands on training to the parents &
teachers. Mr Upadhyay delivered a speech on Introduction to Autism and Arunasis spoke on
Vocational training & rehabilitation.
Association of Parents of Persons with Autism Spectrum Disorder, West Bengal
Mr Upadhyay delivered a speech on Introduction to Autism, Mrs Bhaduri discussed about Behavior
management and Arunasis spoke on Vocational training & rehabilitation
What is PARIVAAR?
PARIVAAR is a National Confederation of Parent Associations (of Persons with Intellectual and
Developmental Disability), formed by Parents of PwIDD all over the country, initiated by NIMH.
PARIVAAR is working towards the wellbeing and rights of the Persons with Intellectual and
Developmental Delay (which includes Autism as well).
National Trust
The National Trust is an autonomous organization of the Ministry of Social Justice and Empowerment,
Government of India, set up under the "National Trust for the Welfare of Persons with Autism,
Cerebral Palsy, Mental Retardation and Multiple Disabilities" Act (Act 44 of 1999)
Summary of Achievements:
While preparing for the registration of our Association we attended the National Parents
Meet 2014 at Ranchi Jharkhand. Arunasis, Beladhi, Ritusree & Sudeshna were representing
the Association.
Just before our Inaugural program we also attended the 7th Regional Parents Meet at Hind
Motor, Hooghly and this time Soumen Upadhyay, Beladhi Mukherjee, Arunasis Adhikari,
Jhuma Sengupta and Bijaylaxmi Aich were representing the Association. We are sure they
have enriched by attending this event.
Successful Inaugural Program of APPA on 28th February 2015.
We have our own website www.appawb.weebly.com
http://appawb.blogspot.in
We have our google group for internal communication & discussion among members :
appa_info@googlegroups.com
We had organized an Awareness Walk on 2nd April from Golpark to Madhusudan Mancha,
where more than 100 persons walked with us. PARIVAAR-Bengal and its member
organizations like South Kolkata Parashmani, Mentaid actively supported and participated
the walk.
We participated in the program organized by honorable Disability Commissioner of West
Bengal on 1st & 2nd April 2015 to observe World Autism Awareness Day.
As April is the Autism Awareness month we had arranged Awareness workshop in association
with our fellow organizations like Barjora Ashar Alo, Navodit, Asansol Anandam and
Antaranga Mahila Manashik Pratibandhi Vidyaniketan Budge budge.
After several meetings & sensitization we are able to make a tie up with Garia Srirampur
Kalyan Samity and they have arranged a special swimming batch for our kids (with
ASD/IDD) under 10 years of age.
We had another tie-up with Bhasoman (a swimming club) and they have arranged special
swimming batch for Persons with IDD.
Our Association was invited by PARIVAAR to attend State level review meeting of National
Trust held at IICP, Taratala on 8th May 2015. Our Association accepted the invite and took
part positively in the discussion about problems of PwIDD facing in large and means to
overcome.
We are proud to tell you that Rashbehari Shailushik arranged a special show of their drama
Tanchak Prabanchak for Persons with ASD & their parents on 28th June 2015 at Uttam
Mancha. We extended our help as much as possible to make the event successful. Most of our
members were there and enjoyed the show. We had extended our help as volunteers as well.
The program was a big success. Famous actors Prasenjit and Soumitra Chatterjee were
present during the show as guests of honour.
Failures
Lack of initiative among members. Although everyone want to do something but waiting for
someone to start.
Could not able to arrange office of the Association yet.
After Autism Awareness Activities in April 2015 there was no such activity.
10
We would like to request all members to take active initiative & participate more in the activities of
the Association.
This association is yours and cannot touch success without your initiative and involvement.
Arunasis Adhikari
General Secretary
11