Professional Documents
Culture Documents
copyright 2004 by
TASH
opment of a sense of humor in people often is attributed therapeutic qualities (Chapman & ChapmanSantana, 1995). Also the use ofa humorous "self," as an
integrated personality, is frequently mentioned
(Hampes, 1992, 1999; Kirsh & Kuiper, 2003; Martin &
Kuiper, 1999; Martin, Puhlik-Doris, Larsen, Gray, &
Weir, 2003).
Existential philosophers and spiritual writers have
also acknowledged the importance of humor in one's
hfe and survival. Dixon (1980), for instance, incorporated humor into existential philosophy and suggested
that humor might be used to initiate cognitive shifts and
changes in one's purpose, meaning, and quality of life.
Welliver (1986) considered a humorous approach as "a
flexible way of experiencing life" (p. 5). And Morreall
(1983) defined humor as a way of approaching life with
a merry spirit. Humor has its place in even the most
life-threatening circumstances. According to Lipman
(1991), for instance, jokes were the most popular form
of mocking every facet of life and death in the Nazi
camps. "Humor cropped up in many guises, on many
subjects, during the Nazi era. It was conveyed in many
formssituational quips, art, poetry, classical music,
and work songsbut jokes were the most common medium" (p. 17).
Although some researchers have acknowledged the
value of humor and studied it extensively, defining the
concept itself has been a challenge. In other words, in
the past two centuries, a great deal of humor research
was centered on the question of just what constitutes
humor (Chapman, 1976; Martin, 2001; McGhee &
Goldstein, 1983), and it would seem that the issue is still
far from resolved. Ostrover (2003) pointed to the fact
that theorists continue to debate the conceptual and
operational distinctions between humor and laughter.
Lyttle (2003) argued that efforts to define humor remain elusive:
There is no general theory of humor or even an
agreed definition . . . What is humor, exactly? The
question seems pointlessbecause we can all
think of examples of humor, and we all 'know it
when we see it.' However, when we try to define
exactly what does and what does not count as hu-
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the illness, it was as a means to communicate how family members felt about the illness, as a way to monitor
the severity of the illness, a tool for changing moods, or
an encouragement for illness management" (p. 156).
Rao (1996) studied the perspectives of Bengali families of children with disabilities on the issues of inclusion and found that a sense of humor, particularly when
expressed as joking or teasing, was an effective coping
mechanism. He wrote:
While closeness and affection was one dimension
of some relationships, others were characterized
by humor . . . Humor was seen as an integral part
of relationships. Being able to tease and get teased
was considered an important aspect of affectionate
ties. (p. 190)
Jarzab (2004) conducted a qualitative inquiry on humor in three families of children with disabilities and
found that humor was not only looked upon as a valuable coping tool, but also was openly acknowledged as
a decidedly positive human trait. Specifically, the families' perceptions of humor involved both relationships
that were accepting and empowerment to move from
situations perceived as negative to situations perceived
more positively to "become greater than the situation"
itself. Families also acknowledged the need for studying
humor as a valuable coping mechanism. Adam, a parent of a child with Rett's syndrome, put it most succinctly when he said:
Humor is an important area that I don't think has
been explored to any depth, and yet I think it could
be one of the most important pieces in terms of
hopes for the families, in terms of the ability to
help others to accept their children with disabilities, accept them without their disability, in terms
of the ways of empowerment. Look for humor; go
through the steps of denial and then go forward,
(p. 40)
The use of humor in families with members with disabilities is an area of inquiry that has not obtained
enough attention to date. The purpose of this study was
to learn more about the perspectives on humor of families with members who have disabilities by asking:
1. How do families that include at least one member
with disabilities understand the concept of humor
itself?
2. What connections do the families make between
humor and disability?
3. What are the functions of humor in family's lives?
Method
Participants
Thirty members of six families participated in this
research. Among these were 12 adults (7 women, 5
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men). Their ages ranged from 33 to 85. Eighteen participants (7 girls and 11 boys) were the children in these
families. The children's ages ranged from 2 to 21.
Twelve of the children had disabilities: autism (3), mental retardation (1), cerebral palsy (1), traumatic brain
injury (1), attention deficit disorder (1), emotional disorder (1), sickle-cell disease (1), hearing impairment
(1), and multiple disabilities (2) (Table 1).
The families' structures demonstrated various elements of "jointness" (Gore, as cited in DeVault, 1991).
Gore explained "jointness" as the differing degrees of
closeness a family shares with its members. In this
study, this closeness was reflected in the structure of the
families, which varied from a "nuclear" family, to a
single-parent family, and to a foster care household.
One of these families included an extended family
member (i.e., a grandmother). In another family, the
foster care parent still kept in touch with her exhusband, who hved in close proximity to her household,
and he was considered a "father figure" for the
children. Thus, the families differed not only in the family structure but also in the levels of "jointness" (see
Table 1).
The families' ethnic backgrounds also varied. Four
families reported Caucasian for race. Among these
Families/ethnicity
Family 1
Caucasian
Family
structure
Nuclear family
Table 1
Participant Demographic Information
Geographic Family members'
Age
location
status
Suburban
mother
father
son
Asian
Family 2
AfricanAmerican
Family 3
Caucasian
Nuclear family
Suburban
Family 4
Caucasian
Nuclear family
Suburban
Family 5
LatinoAmerican
(Brazialian)
Family 6
Caucasian
Nuclear family
Suburban
adopted daughter
grandmother
foster mother
ex-husband
adopted daughter
foster child
foster child
adopted son
foster child
adopted daughter
mother
father
son
son
son
mother
father
son
Single mother
Suburban
mother
father
daughter
daughter
mother
son
son
twin son
twin daughter
45
46
8
3
85
61
64
21
17
14
13
4
2
51
47
19
16
8
43
47
10
47
59
17
14
33
10
8
6
6
Level of
education
Bachelor's degree
Bachelor's degree
Elementary school
Preschool
High school
Junior high
Elementary school
Elementary school
Elementary school
Elementary school
Elementary school
Preschool
Preschool
Master's degree
Master's degree
Elementary school
High school
Elementary school
Bachelor's degree
Bachelor's degree
Elementary school
Master's degree
Doctoral degree
High school
Junior high school
Associate degree
Elementary school
Elementary school
Kindergarten
Kindergarten
Disability
in family
Autism
Mental retardation
Cerebral palsy
Traumatic brain injury
ADD
Emotional disorder
Sickle-cell blood disease
Autism
Autism
Mild hearing loss
Profound hearing loss
Multiple disability
Multiple disability
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Table 2
Individual Participants' Contribution to the Data Collection Information
Families
Total
Individual
family members
mother
father
son
adopted daughter
grandmother
foster mother
ex-husband
adopted daughter
foster child
foster child
adopted son
foster child
adopted daughter
mother
father
son
son
son
mother
father
son
mother
father
daughter
daughter
mother
son
son
twin son
twin daughter
30
Observed
Interviewed
individually
Jointly
interviewed
20
-I-
30
Data Cottection
The data for this study were collected using two types
of activities. First, in-depth interviews were conducted.
Interviews were guided by an open-ended interview
protocol (Table 3). The interview protocol was used to
facilitate the first series of interviews rather than to
direct the interview (Creswell, 1994; Krueger, 1994).
Participants were encouraged to talk about their experiences with humor more freely during subsequent interviews, when the purpose was to clarify and elaborate
on the information previously shared by the participants. The interviews were conducted at the families'
homes and around their schedules. Booth and Booth
(1994, p. 30) suggest that "Good depth interviewing
means allowing the informant to feel in control." With
this in mind, the participants' home was used. In total,
35 interviews were conducted.
Interviews initially were discussed so they would be
conducted on a one-on-one basis to ensure privacy and
confidentiality (Sales & Folkman, 2002). At the request
of the families, however, some interviews involved
more than one family member (Maanen, 1988). Most of
these joint interviews included the family member with
disabilities and either a parent or another adult family
Table 3
Interview Protocol
1. What do you sense when you hear a word humor?
2. How would you define it?
3. Have you ever thought of yourself as having sense of
humor?
4. Why? Why not?
5. Can you recall some moments, stories, jokes or things
that made you and your family laugh?
6. What do you think was the role of these moments,
stories, jokes, and etc., in helping you to get through
embarrassing situations, major disappointments, fears
or upsets?
7. What do you think about your family-like a sense of
humor?
8. How do you feel when you are around people/family
members who make you laugh?
9. How do you feel about the experience of talking about
humor in the context of your family?
10. What connections do you make between humor and
disability?
11. Who initiates humorous interactions in context of
disability?
12. How do you draw boundaries between what is
'laughable' and what is not?
13. What are the functions of humor in your family's lives?
14. What are your individual preferences and perspectives
on humor?
member. All interviews were audiotaped and transcribed. Transcriptions were accompanied by commentaries, which served as vehicles for the first microanalysis to reflect about the data collected (Rudestam &
Newton, 2001; Strauss & Corbin, 1998). The commentaries were accompanied by frequent memos, which
discussed emerging questions for clarification; as such,
they allowed a constant comparative approach to data
analysis. In other words, coded categories were compared constantly with each other to get the bigger picture that emerged from the data and to ensure that the
emerging data were interpreted properly (Johnson &
Turner, 2003).
The second major data collection strategy involved
participant observation. Settings and activities during
which observations were conducted included shopping
trips, parent support meetings, schools or day care centers, lunch in the community, and family trips for leisure activities (e.g., amusement parks, museums, the
symphony, swimming, and dance calling). These shared
experiences provided opportunities to observe and
document the families' use of humor in settings different than their own households. In total, 30 observation
sessions were conducted in a period of 12 months. The
data from the observations were transcribed into field
notes. In total, 1,006 pages of notes were gathered both
from the interviews and the observations.
Trustworthiness of Findings
Several techniques were used to ensure the trustworthiness of the findings. First, the research was based on
contact over 12 months with the same group of people.
Second, a number of methods and sources were used to
triangulate information (Patton, 2002; Sales & Folkman, 2002; Shadish, Cook, & Campbell, 2002). For example, participants were interviewed on a number of
occasions, issues from one interview were rephrased in
later interviews, interviews were conducted across family members, and observations were conducted so that
they reflected the real-world experiences of the participants. Third, the audiotapes were listened to and the
artifacts were examined numerous times. This repeated
exposure to the same data allowed multiple review of
the data, as a whole, for each family. Finally, a "thick"
description of context (Geertz, 1973; Wolcott, 2001)
was developed in the findings. This allowed participants
to speak for themselves with the help of a large number
of direct quotes, which are critical in qualitative research.
Results
Defining Humor
Families in this study had no one agreed-upon definition of humor. Rather, humor was seen in many ways
across and within families. For instance, they sometimes related humor to the experiences of smiling and
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Tahle 4
Summary of the Families' Function of Humor
Function
Humor as a means of releasing negative emotions
and a natural stress remedy
Humor as a means of learning
Humor as a form of problem solving
Humor as a means of connecting
Humor as a form of communication
Definition
To release tension, dispel worry, and relax
To modify moods
To fight negative and aggressive behaviors
To teach functional skills
To teach good manners and mathematics
To talk about things that bother you
To cook pork chops
To solve children's conflicts
To create a bond among family members
To connect with other families having children with
disabilities
To tease each other about daily matters
To laugh with family members with disabilities
To laugh around disability
To create positive humor
To laugh about not-so-funny things
To keep others from laughing at you
To deal with disabilities and increase resilience and coping
mechanisms of children with disabilities
To improve self-esteem
To experience freedom from embodied social constraints and
experiences
To feel in control and secure
To promote positive experiences
To gain a perspective on what really matters in life
To deal with family mishaps
To act silly and be goofy
To discover your inner playfulness
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of a daughter with a profound hearing impairment articulated most clearly the principle of using humor
when she said, "Either they [individuals with disabilities] are part of the humor, or there is no point in doing
it."
Humor as a Means of Preventing Ottiers From
Engaging in a Putdown
The families believed that the qualities you might not
particularly like about yourself or situations you perceive as disadvantageous become less uncomfortable
when you can laugh at them before others laugh at
them. For instance, a foster care parent stated, "I laugh
at myself, and I laugh at myself to keep you from laughing at me." Another mother echoed this sentiment
when she said, "I think that it is important to be able to
laugh at yourself. You have to laugh at yourself when
you have a child with special needs."
Interestingly, families in this study saw the need to
talk about disability and their own process of gradual
acceptance of disability as a step forward in their ability
to laugh more freely about it, thus preventing others
from laughing at them. More specifically, families in
this study did not believe that their children's disabilities always needed to be considered a serious matter.
One family member stated, "It is the time and the manner which are decisive factors, not the subject of humor
itself." Families described how, as they moved toward
acceptance of a family member having a disability, they
began to see more and more the absurdity and humor
of the same disability-related situations about which
they used to be very sensitive. The mother of a child
with autism described one of her bedtime conversations
with her husband. Lying in bed, she realized that she
had not locked the back door and that somebody could
kidnap her disabled son. Here is her recollection of that
conversation:
I said to him, "Did you lock the back door?" He
said, "No, I don't know." I said, "Well, will you
check?" He said, "Why?" I said, getting more and
more concerned, "Our son is back there!" He
rolled over and said, "So what?" I said, "So someone can come in and steal him!" He turned over
and grunted, "But they will bring him back!" We
both got into laughter as we realized that we were
poking fun at ourselves because we know the situation. Who would want to steal a child with a disability? [laughing]
Humor helped the families deal with disabilities by
looking straight at them and laughing. Families felt that
being serious about disabilities all of the time would be
destructive. As one foster care parent said, "If 1 didn't
have a sense of humor, I would have been dead a long
time ago [laughing]. Because if you cannot laugh at
yourself and laugh at things through life, you're not
going to make it. That's how I feel."
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noted, there were times that some of her family members' "little habits" drove her nuts. Whenever this happened, she used cartoon characters to poke fun at them
and thus free herself from the expectations to be a "perfect" family. She said:
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Discussion
The exploration of humor has shown it to be a highly
important phenomenon among the families in this
study. The families enjoyed and engaged in a broad
spectrum of humor-related events and behaviors. Humor manifested itself as everything from a quiet seraphic smile to raucous laughter. Indeed, humor was an
integral part of their daily lives. The families shared
precious moments in which humor solidified them as a
family.
Furthermore, families in this study demonstrated a
situational and functional approach to humor. They put
special emphasis on what humor did for them and those
around them, especially in moments of stress and when
they experienced negative emotions. They gave examples of how to learn to solve problems with a bit of
a sense of humor. They appreciated the great value of
humor as a communication tool and as a way of con-
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recommended them. However, tbe fact that tbe referring professionals might have excluded families who
were less articulate or less open cannot be ignored. As
such, these families cannot be considered representative of families everywhere.
Second, tbe families who chose to participate in this
study had a strong ideological stance toward inclusion.
Moreover, they were people who had reached a level of
comfort with having a family member with disabilities
and had made efforts to move beyond them. These
factors might have given the families in this study a
stronger predisposition to engage themselves in humorous interactions, as well as to engage in this kind of
research.
Finally, most family members in this study were
highly educated, had varied interests, and led financially secure lives. Families who are more economically
vulnerable might have contrasting interests and family
relationships and less stable resource bases. Thus, tbey
might have perspectives on the matter of humor varying from those of the families in this study.
Suggestions for Further Research
Further investigations of functional humor within
families that have a member with disabilities need to be
conducted. For instance, the views of children with disabilities should be further solicited whenever feasible to
include their voices more actively. In this study, attempts were made to include the perspectives of all
family members; in retrospect, however, it is clear tbat
most of the humor accounts came from the parents.
These represent adult perspectives. It is necessary in
future researcb, therefore, to study more directly tbe
perceptions of cbildren witb disabilities and tbeir understanding of the role of humor within tbeir lives.
Research is also needed on families' perceptions of
humor across their life cycles, since families of children
with disabilities change over time. Just as individuals
develop and change through different phases of life, so
might the families and the role of humor in them. At
every stage of life, family members have different tasks
to accomplish and different needs to be fulfilled. For
example, in the first stage of forming a couple, two
individuals need to build a relationship and to learn to
live together. The arrival of a child with a disability
must cbange these patterns of interactions. Later in life,
when cbildren are going to school and then leaving
home, parents must adapt to these changes and adjust
their sense of humor. Further research would allow us
to follow such families to answer questions such as (a)
when does humor emerge in families? and (b) do families change or experience differently tbeir senses of humor over time?
References
Albrecht, G. L. (1999). Disability humor: What's in a joke?
Body and Society, 5(4), 67-.74.
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