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7/19/12

#hpm - Healthcare Social Media Transcript

#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Jul 18 18:00:00 PDT 2012 Wed Jul 18 19:15:00 PDT 2012 change time period

New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project

rfberry

Hi & Welcome to the #hpm TweetChat about #hospice & #palliative care, please take a minute to introduce yourself & where youre from
Wed Jul 18 18:00:07 PDT 2012

rfberry

Rene Berry here, hosting tonight in Menlo Park, CA @goBeMoRe, passionate about early #palliative care & advance care planning #hpm
Wed Jul 18 18:01:34 PDT 2012

Roaaary

@rfberry Hi I'm Rory a palliative care nurse in the UK #hpm


Wed Jul 18 18:01:52 PDT 2012

JenLBose

Hi! Jen here- marketing coordinator @aahpm. All tweets are my own #Hpm
Wed Jul 18 18:02:23 PDT 2012

BillPfohl

Hello #hpm-ers I'm Bill Communications Officer at Hospice of Central New York... #hpm
Wed Jul 18 18:02:26 PDT 2012

rfberry

welcome, thanks for joining! We're going to wait a few minutes before T1 RT @Roaaary: Hi Im Rory a palliative care nurse in the UK #hpm
Wed Jul 18 18:02:56 PDT 2012

aliciabloom

for the next hour, i'll be participating in the weekly #hpm tweetchat and therefore flooding your twitter feed :)
Wed Jul 18 18:03:08 PDT 2012

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rfberry

Great to have you Bill! RT @BillPfohl: Hello #hpm-ers Im Bill Communications Officer at Hospice of Central New York... #hpm
Wed Jul 18 18:03:16 PDT 2012

rfberry

great to see you Jen! RT @JenLBose: Hi! Jen here- marketing coordinator @aahpm. All tweets are my own #hpm
Wed Jul 18 18:03:31 PDT 2012

rfberry

RT @aliciabloom: for the next hour, i'll be participating in the weekly #hpm tweetchat and therefore flooding your twitter feed :)
Wed Jul 18 18:03:44 PDT 2012

aliciabloom

hi all! alicia bloom, msw lsw from philadelphia (via upstate NY) practicing in #hpm. passionate about improving patient access #hpm
Wed Jul 18 18:04:06 PDT 2012

_lizzy_

Hi! Lizzy Miles, MSW, researcher, advocate, volunteer. hosting 1st death cafe in US tomorrow night #Hpm
Wed Jul 18 18:04:23 PDT 2012

rfberry

We'll get started with T1 in just a few minutes! Excited about our topics tonight! #hpm
Wed Jul 18 18:04:42 PDT 2012

IM4PBS

Hi Deb Boyce, palliative care champion #hpm


Wed Jul 18 18:05:02 PDT 2012

aliciabloom

RT @rfberry: Well get started with T1 in just a few minutes! Excited about our topics tonight! <-- me too! glad you're hosting! #hpm
Wed Jul 18 18:05:24 PDT 2012

aliciabloom

RT @IM4PBS: Hi Deb Boyce, palliative care champion <-- yay! we need more of these in the world :) #hpm
Wed Jul 18 18:05:41 PDT 2012

pamressler

Hi all, I am Pam Ressler,faculty member at Tufts -- just finished teaching our first blended learning course on Palliative and EOL #hpm
Wed Jul 18 18:05:43 PDT 2012

kilani19

@aliciabloom: for the next hour, i'll be participating in the weekly #hpm tweetchat and therefore flooding your twitter feed :) ditto :)
Wed Jul 18 18:05:52 PDT 2012

SteveBednarski

#hpm. Hey there crew. Steve B, clinical liaison for hospital and health systems for SE Michigan.
Wed Jul 18 18:06:07 PDT 2012

NHPCO_news

#NowHiring Hospice Physician | The Washington Home & Community Hospices: US DC - Washington, The W... http://t.co/yS0CIZx8 #hpm #jobs
Wed Jul 18 18:06:15 PDT 2012

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rfberry

@IM4PBS Hi Deb & Hello Lizzy!! @_Lizzy_, great to see you tonight @PamRessler! #hpm
Wed Jul 18 18:06:21 PDT 2012

IM4PBS

:-) agreed! RT @aliciabloom: RT @IM4PBS: Hi Deb Boyce, palliative care champion <-- yay! we need more of these in the world :) #hpm
Wed Jul 18 18:06:35 PDT 2012

pamressler

I will be participating in #HPM chat for the next hour -- sorry for the number of tweets.!
Wed Jul 18 18:06:42 PDT 2012

kilani19

Hey there! #hpm


Wed Jul 18 18:06:53 PDT 2012

_lizzy_

@BillPfohl yay! You are a regular now! #Hpm


Wed Jul 18 18:06:54 PDT 2012

rfberry

Hi Stev & @Kilani19 RT @SteveBednarski Hey there crew. Steve B, clinical liaison for hospital & health systems for SE Michigan #hpm
Wed Jul 18 18:06:56 PDT 2012

jfclearywisc

jim cleary, @uwhealth Pallivaitve care and PPSG (@painpolicy) joining #hpm chat for the next hour
Wed Jul 18 18:06:57 PDT 2012

rfberry

@NHPCO_news Hello! Are you just sharing a link or are you joining in tonight? :) #hpm
Wed Jul 18 18:07:23 PDT 2012

monicapauline19

RT @Gilchrist_News: "We cannot change the situation, but we can be there and help them through it". The Gilchrist Blog #hospice #hpm htt ...
Wed Jul 18 18:07:25 PDT 2012

rfberry

@jfclearywisc Hey Jim, we're just getting started with T1 right now! Great timing! #hpm
Wed Jul 18 18:07:41 PDT 2012

BillPfohl

Ooops good idea Renee...Hey you birds I'm doing a tweet chat...sorry for the noise! #hpm
Wed Jul 18 18:07:46 PDT 2012

rfberry

T1 How would you answer the question, Why should you demand palliative care? (I may quote you next week) http://t.co/Tt4b8qbn #hpm
Wed Jul 18 18:08:06 PDT 2012

jfclearywisc

@pamressler Hi pam. Reduce no of tweets non-#HPM tweeters see by @ replying; include #hpm. Only that person, mutual followers & #Hpm see it
Wed Jul 18 18:08:50 PDT 2012

equijada

earl. hospice and palliative car physician in Southern CA #hpm


Wed Jul 18 18:09:03 PDT 2012

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JenLBose

Because every moment of your life is worth living to its fullest #Hpm
Wed Jul 18 18:09:30 PDT 2012

jfclearywisc

@rfberry: T1 Why should you demand palliative care? because when I demand it, it will be the care I need!! #hpm #hpmglobal
Wed Jul 18 18:10:24 PDT 2012

rfberry

@equijada hi Earl, we just started with T1, how do you answer the question "Why should you demand palliative care" #hpm
Wed Jul 18 18:10:26 PDT 2012

SteveBednarski

@rfberry #hpm the moment a physician dx's with an incurable ds or pt refuses treatment.
Wed Jul 18 18:10:35 PDT 2012

rfberry

RT RT @JenLBose Because every moment of your life is worth living to its fullest #hpm
Wed Jul 18 18:10:37 PDT 2012

pamressler

@jfclearywisc Thanks, Jim -- great tip #hpm


Wed Jul 18 18:10:39 PDT 2012

IM4PBS

@rfberry T1 Its your right to determine the type of care you choose and your guardian/advocate's responsibility is to ensure that care #hpm
Wed Jul 18 18:10:42 PDT 2012

aliciabloom

Answer the question with a question- why SHOULDN'T you demand palliative care? I can't think of a single reason! #hpm
Wed Jul 18 18:10:50 PDT 2012

equijada

@rfberry perhaps the question before the question is who should demand.. as palliative care is broad and unscaled. #hpm
Wed Jul 18 18:11:11 PDT 2012

aliciabloom

people should demand #palliative care because everyone deserves to have symptom control, quality of life & self-determination #hpm
Wed Jul 18 18:11:34 PDT 2012

rfberry

@aliciabloom haha well, lets take this opportunity to produce a great list of all the reasons! #hpm
Wed Jul 18 18:12:21 PDT 2012

equijada

@equijada (if you're thinking in terms of product) #hpm


Wed Jul 18 18:12:23 PDT 2012

kilani19

@rfberry pc will allow augmentation of medical care for those w serious illness, focusing on qol, psych-soc & spiritual healing #hpm
Wed Jul 18 18:12:30 PDT 2012

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_lizzy_

T1. I would demand palliative care because #hpm MDs, nurses, & pharm are specialists in pain control. I don't like pain. #Hpm
Wed Jul 18 18:12:34 PDT 2012

rfberry

@equijada go for it! I'd like this to be time for clarifying, simple language, & help people understand why/how to access --> #hpm
Wed Jul 18 18:12:56 PDT 2012

aliciabloom

;) RT @rfberry: @aliciabloom haha well, lets take this opportunity to produce a great list of all the reasons! #hpm
Wed Jul 18 18:13:18 PDT 2012

kilani19

@IM4PBS @rfberry yes! Self determination! Self advocacy! #hpm


Wed Jul 18 18:13:36 PDT 2012

rfberry

RT @_lizzy_: T1. I would demand palliative care because #hpm MDs, nurses, & pharm are specialists in pain control. I don't like pain. #Hpm
Wed Jul 18 18:13:43 PDT 2012

aliciabloom

#palliative care is about making sure the plan of care aligns with the person's wishes #hpm
Wed Jul 18 18:14:09 PDT 2012

JenLBose

agreed! MT @_lizzy_: T1. demand palliative care because #hpm MDs, nurses, & pharm are specialists in pain control. I dont like pain. #Hpm
Wed Jul 18 18:14:38 PDT 2012

rfberry

T1 I want palliative care for myself & family so that a team is there to advocate for my goals at all phases of my illness #hpm
Wed Jul 18 18:14:44 PDT 2012

doctatum

@rfberry @JenLBose @aahpm phone dying but please look at aahpm website about #PCHETA bill and send letter to your rep and senators for #hpm
Wed Jul 18 18:14:49 PDT 2012

kilani19

@rfberry and not to mention the team approach proves to be effective and beneficial. #hpm
Wed Jul 18 18:15:08 PDT 2012

jfclearywisc

@rfberry: T1 "Why should you demand palliative care?" Shouldn't have to demand. Skills should be integrated into all health care. #hpm
Wed Jul 18 18:15:15 PDT 2012

pamressler

@rfberry I think it is important to define palliative care as comprehensive team centered care #hpm
Wed Jul 18 18:15:16 PDT 2012

aliciabloom

people with serious illness should demand #palliative care because all deserve symptom control, quality of life & self-determination #hpm
Wed Jul 18 18:15:17 PDT 2012

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equijada

@rfberry trying to put self in pt's shoes. What would I want when first dx with a serious illness? #hpm
Wed Jul 18 18:15:17 PDT 2012

rfberry

@aliciabloom I'm going to play devil's advocate for a second & say, does all healthcare do that? ;) #hpm
Wed Jul 18 18:15:27 PDT 2012

SteveBednarski

@_lizzy_ #hpm T1 and to Lizzy's pt, we should advocate for our pt's to seek out experts in sx control, incl'd pain mgmt.
Wed Jul 18 18:15:32 PDT 2012

equijada

@jfclearywisc yes! agree. #hpm


Wed Jul 18 18:15:50 PDT 2012

pamressler

@doctatum I have contacted my representative and senators to sign on to PCHETA and encourage others to do the same #hpm
Wed Jul 18 18:16:36 PDT 2012

JenLBose

I'd demand it for my family so I don't have to see them suffer #Hpm
Wed Jul 18 18:16:54 PDT 2012

kilani19

@rfberry @aliciabloom no. #hpm the rest of healthcare is focused on their area of specialty. No big picture approach.
Wed Jul 18 18:17:04 PDT 2012

aliciabloom

@rfberry i think it wants to, but doesn't always know how. palliative care steps away from numbers & disease to look at the patient #hpm
Wed Jul 18 18:17:04 PDT 2012

jfclearywisc

@equijada But I don't want #palliative care specialist tomorrow when I have an MI tomorrow. Skils yes. Specialist no!!! Honest. .... #hpm
Wed Jul 18 18:17:08 PDT 2012

rfberry

T1 Sometimes people assume pain will be naturally taken care of, it's not always clear about the need until you experience it #hpm
Wed Jul 18 18:17:21 PDT 2012

jfclearywisc

RT @kilani19: @rfberry @aliciabloom no. #hpm the rest of healthcare is focused on their area of specialty. No big picture approach.
Wed Jul 18 18:17:22 PDT 2012

equijada

@equijada @rfberry the thing I want most when I'm dx with a serious illness is the thing I'll demand. #hpm
Wed Jul 18 18:17:49 PDT 2012

equijada

@jfclearywisc agree. #hpm


Wed Jul 18 18:18:04 PDT 2012

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rfberry

@kilani19 agree :) #hpm


Wed Jul 18 18:18:05 PDT 2012

rfberry

RT @JenLBose Id demand it for my family so I dont have to see them suffer #hpm
Wed Jul 18 18:18:12 PDT 2012

sethholman

RT @c_hol3221: The first Dumbledollars being spent on #HPM 2 Callback #: 419348-3811 http://t.co/m52hMUjz
Wed Jul 18 18:18:23 PDT 2012

IM4PBS

good pt @pamressler! @rfberry @aliciabloom but team-centered healthcare is not mainstream standard of care in my area of the country #hpm
Wed Jul 18 18:18:25 PDT 2012

aliciabloom

need to remember that #palliative care is about more than just pain & symptom control. it addresses psychosocial needs & distress, too! #hpm
Wed Jul 18 18:18:33 PDT 2012

kilani19

@rfberry and that's what #hpm folks do is process the big pix to allow pt/family understanding of what to expect and how to heal.
Wed Jul 18 18:18:45 PDT 2012

hospiceman

RT @_lizzy_: Hi! Lizzy Miles, MSW, researcher, advocate, volunteer. hosting 1st death cafe in US tomorrow night #Hpm
Wed Jul 18 18:18:46 PDT 2012

rfberry

@equijada but you're a MD, you're very aware of what you'd want most, how can you translate that to someone w/no clinical knowledge #hpm
Wed Jul 18 18:18:59 PDT 2012

rfberry

@IM4PBS I think in many areas of the country! :) #hpm


Wed Jul 18 18:19:25 PDT 2012

aliciabloom

i'll demand palliative care for me/loved ones in the face of serious illness because i can have it WITH disease directed treatment #hpm
Wed Jul 18 18:19:56 PDT 2012

SteveBednarski

@rfberry #hpm. I thin pt's expect sx's to be controlled by their physician. The PCP or attending needs to make the consult. #hpm
Wed Jul 18 18:20:00 PDT 2012

BillPfohl

@rfberry why am I demanding this? Why do I have to demand it? #hpm


Wed Jul 18 18:20:15 PDT 2012

rfberry

@jfclearywisc it "Should" (key word) be integrated in all healthcare, but what about now? #hpm
Wed Jul 18 18:20:28 PDT 2012

equijada

@rfberry i haven't been seriously ill so I'm not sure what I would want...I can only assume #hpm
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Wed Jul 18 18:21:40 PDT 2012

rfberry

@BillPfohl maybe you don't. Do all the healthcare systems in your area make a referral to palliative care at onset of serious illness? #hpm
Wed Jul 18 18:21:46 PDT 2012

kilani19

@aliciabloom yes & that's nice bc #hpm can run parallel or transition into pure hospice once it's more terminal and eol. Help along the way!
Wed Jul 18 18:22:05 PDT 2012

pamressler

We haven't done a great job in educating public: all palliative care is NOT hospice care but all hospice care IS palliative care #hpm
Wed Jul 18 18:22:16 PDT 2012

aliciabloom

in a very specialized medical world, it helps to have a team of palliative care clinicians who don't miss the forest for the trees #hpm
Wed Jul 18 18:22:58 PDT 2012

_lizzy_

@aliciabloom yes, of course the psychosocial, but for me, pain comes before brain #Hpm
Wed Jul 18 18:22:59 PDT 2012

rfberry

@equijada true, if one of your frnds is dx'd with a serious illness tmr, would you assume they would want to be aware of palliative cr? #hpm
Wed Jul 18 18:23:14 PDT 2012

IM4PBS

Gr8 pt! MT @pamressler: We need to educate public: all palliative care is NOT hospice care but all hospice care IS palliative care #hpm
Wed Jul 18 18:23:38 PDT 2012

aliciabloom

@_lizzy_ i appreciate that, but i think we forget there are many domains of suffering outside of physical pain. #hpm
Wed Jul 18 18:23:53 PDT 2012

kilani19

@pamressler yes that's the biggest thing I contend w in hospital setting - educating fellow MDs and staff! #hpm
Wed Jul 18 18:23:59 PDT 2012

SteveBednarski

@kilani19 @aliciabloom #hpm I agree Kilani, and we need to provide our pt's an opportunity to bridge to hospice as a part of the POC. #Hpm
Wed Jul 18 18:24:20 PDT 2012

rfberry

We're going to move to T2, which is actually very related to T1, please share any closing thoughts about demanding palliative care. #hpm
Wed Jul 18 18:24:21 PDT 2012

BillPfohl

@rfberry Does serious illness automatically demand palliative treatment? #hpm


Wed Jul 18 18:24:42 PDT 2012

aliciabloom

i often say: #hospice is a way that we can provide #palliative care to people in the very advanced stages of their illness #hpm
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Wed Jul 18 18:24:43 PDT 2012

equijada

@rfberry If I was diagnosed with a life threatening illness, the thing I would want most is to live no matter what (just being honest) #hpm
Wed Jul 18 18:25:13 PDT 2012

kilani19

@SteveBednarski @aliciabloom I think pall care bridges nicely Steve! ;) #hpm thanks!
Wed Jul 18 18:25:48 PDT 2012

aliciabloom

@BillPfohl i think people living with serious illness can often benefit from #palliative care intervention regardless of plan of care #hpm
Wed Jul 18 18:25:56 PDT 2012

equijada

Paul Rosseau, a PC physician who I have tons of respect for, describes his experience on the patient end http://t.co/V2gOq8mw #hpm
Wed Jul 18 18:26:00 PDT 2012

pamressler

@_lizzy_ As we learn more about pain, it is not only a biological process but very related to psychosocial as well #hpm
Wed Jul 18 18:26:04 PDT 2012

kilani19

@BillPfohl @rfberry I agree w bill, I wish our pts didn't have to "demand" palliative care! #hpm
Wed Jul 18 18:26:31 PDT 2012

IM4PBS

@aliciabloom many choose #hospice too late at #eol and may have suffered needlessly for far too long #hpm
Wed Jul 18 18:27:06 PDT 2012

Kamiyamay

@equijada @rfberry #hpm Different desires for different people, I would want to finish up some things and live comfortably for time left
Wed Jul 18 18:27:12 PDT 2012

Kamiyamay

RT @kilani19: @BillPfohl @rfberry I agree w bill, I wish our pts didn't have to "demand" palliative care! #hpm
Wed Jul 18 18:27:24 PDT 2012

rfberry

@kilani19 totally agree, but want to give people language to advocate until it becomes normal/mainstream #hpm
Wed Jul 18 18:27:33 PDT 2012

BillPfohl

@aliciabloom I'm looking at this thru the consumer lens...give me options. let me choose. #hpm
Wed Jul 18 18:27:37 PDT 2012

rfberry

T2 What are ways individuals can advocate to receive palliative care (if they want it) for themselves or family early in their illness? #hpm
Wed Jul 18 18:27:42 PDT 2012

kilani19

@equijada @rfberry and that's what a proper palliative care team should support! #hpm how is it u want to live!
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Wed Jul 18 18:28:02 PDT 2012

jfclearywisc

@rfberry If we create system to correct the now, we risk creating a system that is not the best for the future......But we need change #hpm
Wed Jul 18 18:28:07 PDT 2012

rfberry

@jfclearywisc what do you think is the best system for the future? How do we need to change hpm? #hpm
Wed Jul 18 18:29:07 PDT 2012

aliciabloom

@BillPfohl and that's what palliative care clinicians do. empower patients to understand treatment options so that they can choose. #hpm
Wed Jul 18 18:29:07 PDT 2012

Kamiyamay

@rfberry #hpm Advance directives- but family, physicians etc need to have these as well as patient
Wed Jul 18 18:29:18 PDT 2012

BillPfohl

@rfberry What healthcare gulag are you from? "Demand" - "advocate"? #hpm
Wed Jul 18 18:29:35 PDT 2012

Roaaary

Is palliative care not automatically offered when someone is diagnosed with a terminal illness? #hpm
Wed Jul 18 18:30:06 PDT 2012

JenLBose

T2 Ask for it, demand it, don't take no for an answer! Talk about it so that everyone knows that it's available. #Hpm
Wed Jul 18 18:30:36 PDT 2012

aliciabloom

not in the US, sadly. RT @Roaaary: Is palliative care not automatically offered when someone is diagnosed with a terminal illness? #hpm
Wed Jul 18 18:30:37 PDT 2012

kilani19

@rfberry very simply, I would have pts ask their primary MDs to refer to a pall care team. If md says no, well, that's another story! #hpm
Wed Jul 18 18:30:40 PDT 2012

rfberry

@BillPfohl I've personally experienced on more than one occasion clinicians putting up roadblocks to accessing the palliative care team #hpm
Wed Jul 18 18:30:59 PDT 2012

rfberry

@BillPfohl so those words feel very relevant to me. #hpm


Wed Jul 18 18:31:14 PDT 2012

equijada

@BillPfohl good point. hear hear. #hpm


Wed Jul 18 18:31:18 PDT 2012

pamressler

@Roaaary No, it is not in the United States..what about in the UK? #hpm
Wed Jul 18 18:31:27 PDT 2012

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jfclearywisc

@rfberry In USA Integration of #palliative care into Universal Health care with unbundlling of hospice Medicare benefit. #hpm
Wed Jul 18 18:31:45 PDT 2012

equijada

@rfberry good point. hear hear. #hpm


Wed Jul 18 18:31:59 PDT 2012

kilani19

@Roaaary nope so sad! #hpm


Wed Jul 18 18:32:06 PDT 2012

aliciabloom

patients should be empowered to ask. sometimes physicians/healthcare providers hesitate to offer #palliative care for fear of reaction #hpm
Wed Jul 18 18:33:04 PDT 2012

Kamiyamay

#hpm T2- Self advocate. hmmm Speak up, have advance directives on file
Wed Jul 18 18:33:44 PDT 2012

pamressler

We also need to remember that palliative care teams are not available to many patients in smaller hospitals #hpm
Wed Jul 18 18:33:45 PDT 2012

kilani19

@rfberry @billpfohl me too. It's really pathetic. "oh they're not ready for pall care"! #hpm
Wed Jul 18 18:33:51 PDT 2012

equijada

@jfclearywisc what do you mean by unbundling hospice medicare benefit? does that mean reforming it? #hpm
Wed Jul 18 18:33:53 PDT 2012

IM4PBS

@equijada @BillPfohl I've witnessed families having to repeatedly reiterate/advocate/demand of HC team "comfort care only!" no heroics #hpm
Wed Jul 18 18:34:21 PDT 2012

rfberry

true RT @pamressler We also need to remember that palliative care teams are not available to many patients in smaller hospitals #hpm
Wed Jul 18 18:34:40 PDT 2012

BillPfohl

@rfberry I believe we have to educate pts about choices. Once MD's realize pts are making informed choices hurdles will come down #hpm
Wed Jul 18 18:34:41 PDT 2012

JenLBose

@aliciabloom Agreed! We have to get rid of the stigma associated with palliative care #Hpm
Wed Jul 18 18:34:49 PDT 2012

kilani19

@pamressler very true. It will come! Just as it was found that having a diab educ is important. #hpm
Wed Jul 18 18:35:03 PDT 2012

SteveBednarski

@BillPfohl @rfberry #hpm re: Bill's question on demands, etc. Many clinicians don't
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believe pt's want hospice/ PC as an option, only cures.


Wed Jul 18 18:35:07 PDT 2012

rfberry

RT RT @JenLBose @aliciabloom Agreed! We have to get rid of the stigma associated with palliative care #hpm
Wed Jul 18 18:35:39 PDT 2012

Kamiyamay

@pamressler #hpm shouldn't case managers be able to inform, or yet a consult called for "education only" on palliative -been there & done it
Wed Jul 18 18:35:44 PDT 2012

kilani19

@JenLBose @aliciabloom Jen, at our health system we are trying to work on that. #hpm
Wed Jul 18 18:36:14 PDT 2012

rfberry

@SteveBednarski I think there's much confusion there though, you can have #palliative care & pursue curative treatments. #hpm
Wed Jul 18 18:36:18 PDT 2012

equijada

@rfberry PC needs to be moved way upstream. Might have to mortage hospice for that - but hospice benefit is archaic and needs reform #hpm
Wed Jul 18 18:36:19 PDT 2012

BillPfohl

RT @rfberry: RT RT @JenLBose @aliciabloom Agreed! We have to get rid of the stigma associated with palliative care AND HOSPICE #hpm
Wed Jul 18 18:36:26 PDT 2012

aliciabloom

sharing T2 again, i think it got lost in the shuffle of excitement of T1. . . #hpm
Wed Jul 18 18:36:30 PDT 2012

Kamiyamay

@SteveBednarski @BillPfohl @rfberry #hpm True Steve "well the family...


Wed Jul 18 18:36:34 PDT 2012

jfclearywisc

@equijada YEs. Reform. Not prognosis related. In Australia, govt supports the services and those who need it, get it. #hpm
Wed Jul 18 18:36:50 PDT 2012

rfberry

@BillPfohl agree though I believe the MD's should help facilitate informed decisions, if not all options are on the table, that's hard #hpm
Wed Jul 18 18:36:58 PDT 2012

aliciabloom

T2 What are ways individuals can advocate to receive palliative care (if they want) for themselves/family early in their illness? #hpm #hpm
Wed Jul 18 18:36:59 PDT 2012

kilani19

@Kamiyamay @pamressler oh I like that - info session only! Not necessarily a full evaluation. #hpm
Wed Jul 18 18:37:09 PDT 2012

pamressler

@kilani19 Agreed, it may also change w/ shift away from fee for service reimbursement and toward ACO (accountable care organizations) #hpm
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7/19/12

#hpm - Healthcare Social Media Transcript


Wed Jul 18 18:37:43 PDT 2012

JenLBose

@kilani19 That's great! It's something we all should be doing. 4 years ago I had no idea this field existed. #Hpm
Wed Jul 18 18:37:53 PDT 2012

aliciabloom

#hospice & #palliative care are like peanut butter & jelly-- often associated with one another, but don't always have to go together #hpm
Wed Jul 18 18:38:01 PDT 2012

Kamiyamay

@kilani19 @pamressler #hpm Absolutely - just there to educate not to admit or sign
Wed Jul 18 18:38:22 PDT 2012

Roaaary

@pamressler it's always offered... patients can opt to be nursed at home or in Hospices. Do hospices run as charities in the US? #hpm
Wed Jul 18 18:38:26 PDT 2012

equijada

@jfclearywisc yes, agree. US has to move in that direction. I don't think we have a choice but to change #hpm
Wed Jul 18 18:38:28 PDT 2012

rfberry

T2 I think if people ask about palliative care they open a lot of doors (though I am curious MD's thoughts about when MD's say not yet) #hpm
Wed Jul 18 18:38:30 PDT 2012

_lizzy_

Last week I heard aide say she wanted to send pt to hospital against his wishes. He said, "I am dying. Let me die." & he did. #Hpm
Wed Jul 18 18:38:33 PDT 2012

kilani19

@aliciabloom I love #pbj! #hpm


Wed Jul 18 18:39:20 PDT 2012

BillPfohl

The problem maybe short lived. Pall Care will see tremendous growth in the next 15 years. #hpm
Wed Jul 18 18:39:22 PDT 2012

Kamiyamay

@Kamiyamay @kilani19 @pamressler #hpm and most hospices happy to oblige because keeps good relations with referral sources and paitents
Wed Jul 18 18:39:35 PDT 2012

kilani19

@Roaaary @pamressler they can as a nonprofit. Not too many though where I live. #hpm
Wed Jul 18 18:40:07 PDT 2012

aliciabloom

in my experience, physicians say "not yet" because they assume palliative care intervention will lead to hospice (teachable moment!) #hpm
Wed Jul 18 18:40:15 PDT 2012

rfberry

agree, though I feel it's so urgent RT @BillPfohl The problem maybe short lived. Pall Care will see tremendous growth in the nxt 15 yrs #hpm
Wed Jul 18 18:40:21 PDT 2012

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#hpm - Healthcare Social Media Transcript

jfclearywisc

@equijada I worry when you and I are agreeing :-) #hpm


Wed Jul 18 18:40:29 PDT 2012

_lizzy_

sadly, he only was referred to hospice in last few days. Seems like guardians need education too. #Hpm
Wed Jul 18 18:40:41 PDT 2012

doctatum

Need to build workforce see PCHETA http://t.co/PnMuUF9h include NP PAs MT @pamressler pallcare not available in smaller hospitals #hpm
Wed Jul 18 18:40:49 PDT 2012

Kamiyamay

@_lizzy_ #hpm I deal with this constantly - aides or caregivers making decisions that are theres to make based on emotion and lack of edu
Wed Jul 18 18:40:54 PDT 2012

aliciabloom

@kilani19 me too! but sometimes, just pb on a cracker or jelly on toast is the right thing ;) #hpm
Wed Jul 18 18:40:55 PDT 2012

pamressler

@Roaaary Hopices in the U.S. are both non-profit and for-profit, also our term hospice also refers to having care at home #hpm
Wed Jul 18 18:40:58 PDT 2012

aliciabloom

RT @jfclearywisc: @equijada I worry when you and I are agreeing :-) #hpm
Wed Jul 18 18:41:03 PDT 2012

equijada

@jfclearywisc haha. Come to the dark side. #hpm


Wed Jul 18 18:41:34 PDT 2012

SteveBednarski

@Kamiyamay @kilani19 @pamressler #hpm I find if I can meet with pt's!family, they are more open to #hospice or #palliative care.
Wed Jul 18 18:41:45 PDT 2012

Kamiyamay

@Kamiyamay @_lizzy_ #hpm are "not" theirs to make - long day!


Wed Jul 18 18:41:48 PDT 2012

kilani19

@aliciabloom I love when I can prove them wrong - we get the pt comfy and sign off! #hpm that way hospice isn't nec part of plan!
Wed Jul 18 18:41:54 PDT 2012

rfberry

@doctatum (you're getting to a pre-t3 :) #hpm


Wed Jul 18 18:42:05 PDT 2012

aliciabloom

RT @equijada: @jfclearywisc haha. Come to the dark side. <-- wait, which one of you is the dark side? :) #hpm
Wed Jul 18 18:42:37 PDT 2012

BillPfohl

@pamressler There is a questionI'd like answered: What's the difference between a for
14/22

hashtags.symplur.com/healthcare-hashtag-transcript.php?hashtag=hpm&fdate=07-18-2012&shour=1

7/19/12

#hpm - Healthcare Social Media Transcript

profit & non-profit Hospice? #hpm


Wed Jul 18 18:42:53 PDT 2012

_lizzy_

@Kamiyamay Yes! For the aide it was personal...she cared for him. We need to think about all staff when we talk about education #Hpm
Wed Jul 18 18:42:56 PDT 2012

aliciabloom

amen! RT @kilani19: @aliciabloom love when I can prove them wrong - we get pt comfy & sign off! that way hospice isnt nec part of plan! #hpm
Wed Jul 18 18:43:05 PDT 2012

Roaaary

@pamressler the idea of a for-profit hospice is new to me! #hpm


Wed Jul 18 18:43:14 PDT 2012

SteveBednarski

@_lizzy_ #Hpm This is a good example that we need to educate all care givers and support them and pt's for a peaceful EOL. #hpm
Wed Jul 18 18:43:25 PDT 2012

doctatum

@aliciabloom T2 build regional pall care education centers. Train mid career providers. Its in #PCHETA for #hpm. 2 B Introduced tomorrow
Wed Jul 18 18:43:40 PDT 2012

rfberry

very common in US, I think both models can learn from each other RT @Roaaary @pamressler the idea of a for-profit hospice is new to me! #hpm
Wed Jul 18 18:43:54 PDT 2012

kilani19

@BillPfohl @pamressler I guess just purely the business model. Kind of like a hospital can be. #hpm
Wed Jul 18 18:43:57 PDT 2012

equijada

@aliciabloom haha :) #hpm


Wed Jul 18 18:44:10 PDT 2012

rfberry

We're about to move to T3, please share final thoughts on ways individuals can access palliative care early. #hpm
Wed Jul 18 18:44:33 PDT 2012

BillPfohl

AMEN RT @SteveBednarski:@_lizzy_ This is a good example that we need to educate all care givers & support them & pts for a peaceful EOL #hpm
Wed Jul 18 18:44:59 PDT 2012

kilani19

@rfberry unfortunately docs feel that once pall care involved that we either want to comp extubated or send to hospice. #hpm
Wed Jul 18 18:44:59 PDT 2012

_lizzy_

@SteveBednarski yes, because if residence is nursing home then majority of care comes from nh aides. Prob not lot of eol training #Hpm
Wed Jul 18 18:45:02 PDT 2012

aliciabloom

really just tax status RT @kilani19: @BillPfohl @pamressler I guess just purely the business model. Kind of like a hospital can be. #hpm
15/22

hashtags.symplur.com/healthcare-hashtag-transcript.php?hashtag=hpm&fdate=07-18-2012&shour=1

7/19/12

#hpm - Healthcare Social Media Transcript


Wed Jul 18 18:45:04 PDT 2012

pamressler

@BillPfohl similar to how other healthcare institutions function -- mainly in how they are organized and who the stakeholders are #hpm
Wed Jul 18 18:45:16 PDT 2012

Kamiyamay

#hpm Sometimes wish we could do away with word hospice all together - and call palliative. Peeps believe hospice last 3 days & miss Pall
Wed Jul 18 18:45:24 PDT 2012

rfberry

@kilani19 agree, though I think it's because they're not introducing palliative care early enough to know the full extent of the team #hpm
Wed Jul 18 18:46:29 PDT 2012

jfclearywisc

RT @LDMatters: @pamressler So true. So we need to teac generalist to integrate a #palliative approach, and request consult as needed. #hpm
Wed Jul 18 18:46:43 PDT 2012

equijada

@rfberry t3 make palliative care more accessible. Remove language barriers. Sell attending to illness not disease. #hpm
Wed Jul 18 18:46:45 PDT 2012

BillPfohl

@aliciabloom I would say for profit answers to investors. Non profits answer to the community they serve. Where would you go? #hpm
Wed Jul 18 18:47:08 PDT 2012

rfberry

RT @equijada: @rfberry t3 make palliative care more accessible. Remove language barriers. Sell attending to illness not disease. #hpm
Wed Jul 18 18:47:29 PDT 2012

rfberry

T3 How are you going to help advocate for the #Palliative Care & #Hospice Education & Training Act (PCHETA)? http://t.co/s99Klplq #hpm
Wed Jul 18 18:47:49 PDT 2012

aliciabloom

@BillPfohl i actually think that's a common misconception. remember, for a non-profit: no margin, no mission. #hpm
Wed Jul 18 18:48:34 PDT 2012

rfberry

(side note) that @AAHPM advocate for #PCHETA is (newly) on Twitter @PCHermes #hpm
Wed Jul 18 18:49:35 PDT 2012

pamressler

@rfberry T3 I have contacted my legislators but I would like to see the final bill expanded to include training and ed for RNs as well #hpm
Wed Jul 18 18:49:42 PDT 2012

rfberry

@pamressler You're on it Pam, that's awesome, I am going to write & make phone calls tomorrow! #hpm
Wed Jul 18 18:50:19 PDT 2012

kilani19

@rfberry I would like to forward the information to all that I know in the healthcare
16/22

hashtags.symplur.com/healthcare-hashtag-transcript.php?hashtag=hpm&fdate=07-18-2012&shour=1

7/19/12

#hpm - Healthcare Social Media Transcript

setting. I hope they would advocate for us! #hpm


Wed Jul 18 18:50:28 PDT 2012

aliciabloom

RT @rfberry: How are you going to help advocate for #Palliative Care & #Hospice Education & Training Act (PCHETA)? http://t.co/em9c2Zb2 #hpm
Wed Jul 18 18:50:29 PDT 2012

SteveBednarski

@BillPfohl @aliciabloom #hpm I've worked for both profit and non. The profit could afford to take pts with increased needs more freely.
Wed Jul 18 18:50:58 PDT 2012

doctatum

Ask local rep and senators to be cosponsors! RT @rfberry T3 How are you going to help advocate for #PCHETA ? http://t.co/OzMzlSf9 #hpm
Wed Jul 18 18:51:19 PDT 2012

rfberry

@kilani19 that's amazing!! I agree, this is such a huge step, education is key, & helping others understand is huge! #hpm
Wed Jul 18 18:51:28 PDT 2012

IM4PBS

@pamressler excellent! Hope RNs are included in #Palliative Care & #Hospice Education & Training Act (PCHETA)? http://t.co/bPprfhna #hpm
Wed Jul 18 18:51:41 PDT 2012

BillPfohl

@aliciabloom That depends on where the margin is coming from. #hpm


Wed Jul 18 18:51:44 PDT 2012

Kamiyamay

@pamressler @rfberry #hpm T3 so therefore not only contact legislators but the groups that move them ANA, TNA, AMA etc etc.
Wed Jul 18 18:51:57 PDT 2012

_lizzy_

t3 Time to hit the social networks and ask people to tell their stories about #hospice. I know i've got some too! #Hpm
Wed Jul 18 18:51:58 PDT 2012

kilani19

@doctatum @rfberry can we get a form email or letter to send to our local medical associations as well!? #hpm
Wed Jul 18 18:52:23 PDT 2012

aliciabloom

RT @SteveBednarski: I've worked for both profit and non. The profit could afford to take pts with increased needs more freely. <--agree #hpm
Wed Jul 18 18:52:35 PDT 2012

SteveBednarski

@pamressler @rfberry #hpm agreed in traing RN's needs to be added.


Wed Jul 18 18:52:35 PDT 2012

equijada

@_lizzy_ yes. change can only occur from the ground up. cc: @deathcafe #hpm
Wed Jul 18 18:52:52 PDT 2012

rfberry

@_lizzy_ great, people can find their direct people to contact here: http://t.co/OySLFaML via @AAHPM #hpm
Wed Jul 18 18:53:17 PDT 2012

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#hpm - Healthcare Social Media Transcript

BillPfohl

@SteveBednarski I hope that's the norm and not the exception. #hpm
Wed Jul 18 18:53:24 PDT 2012

_lizzy_

@BillPfohl @aliciaboom I have worked at both... IMHO differences were more for staff than for pts. #Hpm
Wed Jul 18 18:53:55 PDT 2012

rfberry

@kilani19 AAHPM has a letter here: http://t.co/OySLFaML maybe you could use that as a starting point to send to other associations. #hpm
Wed Jul 18 18:53:59 PDT 2012

kilani19

@rfberry nice! Thanks! #hpm


Wed Jul 18 18:54:47 PDT 2012

aliciabloom

@BillPfohl it's important to do research on individual providers & understand how they operate, not assume based on for profit or not #hpm
Wed Jul 18 18:55:20 PDT 2012

SteveBednarski

@BillPfohl #hpm I wish I could say that, but there are some for simply don't want pt's that will live more than a week. Very sad.
Wed Jul 18 18:55:40 PDT 2012

doctatum

RT contact others #hpm thx 4 great letters of support already 4 Pcheta from @AmerGeriatrics @AmericanCancer and hospice pall med coalition!
Wed Jul 18 18:55:53 PDT 2012

rfberry

We're getting up to our last 5minutes, please share any closing thoughts about any topics from tonight's chat #hpm
Wed Jul 18 18:56:14 PDT 2012

kilani19

@aliciabloom @billpfohl I think it's important to match the pt up with the appropriate hospice too. #hpm each has something special to offer
Wed Jul 18 18:56:48 PDT 2012

doctatum

Good idea. @aahpm RT @kilani19 @doctatum @rfberry can we get a form email or letter to send to our local medical associations as well!? #hpm
Wed Jul 18 18:57:29 PDT 2012

rfberry

@doctatum would be awesome if @AmerGeriatrics & @AmericanCancer & @AmerMedicalAssn supported @AAHPM's advocacy http://t.co/OySLFaML #hpm
Wed Jul 18 18:57:36 PDT 2012

aliciabloom

yes! RT @kilani19: I think its important to match the pt up with the appropriate hospice too. #hpm each has something special to offer #hpm
Wed Jul 18 18:57:45 PDT 2012

_lizzy_

@equijada Change is what I am hoping for! "Talking about sex wont get you pregnant, and talking about death wont kill you." #Hpm
Wed Jul 18 18:57:49 PDT 2012

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7/19/12

#hpm - Healthcare Social Media Transcript

jgrennan

RT @CompAndChoices: With palliative care, you have more time with patient to address the patient's holistic health #HPM #pallitive... http://t.co/n1FDWOxm
Wed Jul 18 18:57:53 PDT 2012

BillPfohl

Compare your database with Representatives funders...if they have been served by HPM have them write the letter or make the call... #hpm
Wed Jul 18 18:58:11 PDT 2012

doctatum

Contact patrick @aahpm too RT @rfberry @kilani19 AAHPM letter here: http://t.co/hmsneIbx starting point to send to other associations. #hpm
Wed Jul 18 18:58:32 PDT 2012

kilani19

@rfberry what an excellent discussion! Let's share this info w as many people as possible. #hpm
Wed Jul 18 18:58:35 PDT 2012

IM4PBS

@rfberry #hpm education is key! pts/caregivers/HC team need to be aware of options and not see choices as being mutually exclusive.
Wed Jul 18 18:58:49 PDT 2012

equijada

Thinking of the word "demand". Demand what you really want, top priority. Is PC a top priority for a newly dx seriously ill person? #hpm
Wed Jul 18 18:58:58 PDT 2012

pamressler

@rfberry Take away point,don't assume that MDs or RNs are aware of what palliative care is...need to educate is not just for the public #hpm
Wed Jul 18 18:58:59 PDT 2012

kilani19

@BillPfohl oh that's excellent! Will let our hospice folks know! #hpm
Wed Jul 18 18:59:23 PDT 2012

equijada

@_lizzy_ yup. I hear you. #hpm


Wed Jul 18 18:59:25 PDT 2012

aliciabloom

RT @_lizzy_ Change is what I am hoping for! "Talking about sex wont get you pregnant, and talking about death wont kill you." <-love! #hpm
Wed Jul 18 18:59:34 PDT 2012

SteveBednarski

@rfberry #hpm Great info as always. I'm going to discuss PACHETA with the Palliative Care teams to get their feel. Good Night
Wed Jul 18 18:59:41 PDT 2012

equijada

From a patients perspective, what is their top priority? That is what to demand. #hpm
Wed Jul 18 18:59:57 PDT 2012

rfberry

Thanks for joining the chat tonight! We're talking every Wednesday 6p PST about #hospice & #palliative care http://t.co/skP2wAFI #hpm
Wed Jul 18 19:00:07 PDT 2012

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7/19/12

#hpm - Healthcare Social Media Transcript

kilani19

@doctatum @aahpm @rfberry I know our calif med assoc is very active (cma). #hpm I know a rep from there.
Wed Jul 18 19:00:15 PDT 2012

aliciabloom

thanks to @rfberry for facilitating a really great discussion! #hpm


Wed Jul 18 19:00:16 PDT 2012

rfberry

@equijada (for me) to be pain free & have the highest quality of life possible for as long as possible. #hpm
Wed Jul 18 19:00:44 PDT 2012

JenLBose

RT @aliciabloom: thanks to @rfberry for facilitating a really great discussion! #Hpm


Wed Jul 18 19:00:55 PDT 2012

pamressler

@rfberry Thanks for hosting a wonderful discussion tonight! Thanks to everyone for a great chat...good night all. #hpm
Wed Jul 18 19:01:03 PDT 2012

IM4PBS

+1 RT @aliciabloom: thanks to @rfberry for facilitating a really great discussion! #hpm


Wed Jul 18 19:01:11 PDT 2012

rfberry

@aliciabloom was super fun, great chat, appreciated everyone's perspective!! Cold some of you help me spread the word about... #hpm
Wed Jul 18 19:01:39 PDT 2012

doctatum

Local letters/connections matter. Please contact your legislators for #PCHETA #hpm
Wed Jul 18 19:01:45 PDT 2012

rfberry

Why You Should Demand Palliative Care (Next Wednesday in #SanFrancisco ) http://t.co/Tt4b8qbn #sf #hpm
Wed Jul 18 19:01:56 PDT 2012

BillPfohl

@rfberry Great job...And thanks for putting up with me! #hpm


Wed Jul 18 19:02:01 PDT 2012

equijada

@rfberry Devils advocate: are you sure? If you were dx with colon CA stage 2 tomorrow, what would you want? #hpm
Wed Jul 18 19:02:35 PDT 2012

kilani19

@rfberry @pamressler @BillPfohl @doctatum @aliciabloom @jfclearywisc thanks you guys! This is always fun! #hpm
Wed Jul 18 19:02:39 PDT 2012

scottyoung6

@OrtizAndrew Looks like I'm going to be come back to Wakonda for at least 1 week this summer. #familycamp2 #HPM
Wed Jul 18 19:02:47 PDT 2012

rfberry

@BillPfohl absolutely! Different perspectives make for GREAT discussions! You're welcome any time! #hpm
Wed Jul 18 19:02:53 PDT 2012

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7/19/12

#hpm - Healthcare Social Media Transcript

rfberry

RT @doctatum Local letters/connections matter. Please contact your legislators for #PCHETA http://t.co/OySLFaML via @AAHPM #hpm
Wed Jul 18 19:02:56 PDT 2012

rfberry

@equijada palliative care. Immediately! #hpm


Wed Jul 18 19:03:15 PDT 2012

equijada

I think when we talk about terminal illness, we can frame it with pain free and best possible QOL. #hpm
Wed Jul 18 19:03:34 PDT 2012

rfberry

@equijada (be sure to notice I'm not saying hospice immediately :) #hpm
Wed Jul 18 19:03:42 PDT 2012

melee_me

RT @equijada: I think when we talk about terminal illness, we can frame it with pain free and best possible QOL. #hpm
Wed Jul 18 19:03:47 PDT 2012

equijada

but...with a serious illness, I'll exchange pain for cure. #hpm


Wed Jul 18 19:04:12 PDT 2012

rfberry

agree (&serious illness) RT @equijada I think when we talk abt terminal illness, we can frame it with pain free and best possible QOL. #hpm
Wed Jul 18 19:04:19 PDT 2012

rfberry

why do you have to choose, palliative care you can have both. RT @equijada but...with a serious illness, Ill exchange pain for cure #hpm
Wed Jul 18 19:04:51 PDT 2012

aliciabloom

@rfberry @equijada me too! i'd want palliative care to help navigate options, provide support & symptom control; wouldn't want hospice #hpm
Wed Jul 18 19:05:12 PDT 2012

IM4PBS

@rfberry exactly! the choices are not mutually exclusive! RT @equijada but...with a serious illness, Ill exchange pain for cure #hpm
Wed Jul 18 19:05:34 PDT 2012

equijada

at my age, with 3 kids, i'll take lousy QOL for length. I'll just reframe lousy QOL over time. #hpm
Wed Jul 18 19:05:59 PDT 2012

aliciabloom

+1! RT @kilani19: @rfberry @pamressler @BillPfohl @doctatum @aliciabloom @jfclearywisc thanks you guys! This is always fun! #hpm
Wed Jul 18 19:06:47 PDT 2012

equijada

i can't reframe time. #hpm


Wed Jul 18 19:06:54 PDT 2012

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7/19/12

#hpm - Healthcare Social Media Transcript

BillPfohl

Quote of the night! RT @_lizzy_: "Talking about sex wont get you pregnant, and talking about death wont kill you." #Hpm
Wed Jul 18 19:07:06 PDT 2012

rfberry

@equijada & that is your choice... ESPECIALLy as someone that understands fully what your options are! #hpm
Wed Jul 18 19:07:10 PDT 2012

hpmmsudo

RT @doctatum: Local letters/connections matter. Please contact your legislators for #PCHETA #hpm
Wed Jul 18 19:07:38 PDT 2012

equijada

Thanks for hosting @rfberry Great job!!! #hpm


Wed Jul 18 19:07:40 PDT 2012

JenLBose

@doctatum I contacted my reps this evening! #Hpm


Wed Jul 18 19:09:38 PDT 2012

equijada

@rfberry agree so we have to define PC as something different than pain free and best QOL. Perhaps calling it "giving best options" #hpm
Wed Jul 18 19:09:40 PDT 2012

JoanneKenen

#hpm and #palliative tweeps, this one for you too RT @ezraklein: This, from @EbertChicago, is beautiful: http://t.co/cFH0Rg51
Wed Jul 18 19:14:32 PDT 2012

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