10/18/12

#hpm Healthcare Social Media Transcript

#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Oct 17 18:00:00 PDT 2012 Wed Oct 17 19:15:00 PDT 2012 change time period

New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Analytics Learn more about #hpm at The Healthcare Hashtag Project

rfberry

Hello & Welcome to the #hpm TweetChat, please take the next few minutes to introduce yourself, say hello & where you're from.
Wed Oct 17 18:00:09 PDT 2012

hollyby

Hi there! Holly Yang, doc from @SanDiegoHospice. All tweets are my own. #hpm
Wed Oct 17 18:01:34 PDT 2012

rfberry

I'm hosting tonight, my name's Renee Berry, in Menlo Park, working @goBeMoRe, passionate about hospice & palliative care! #hpm
Wed Oct 17 18:02:06 PDT 2012

WaywardChad

Pardon the tweet flurry about #hospice and #palliative medicine as I join #hpm tweetchat for the next hour. http://t.co/dAW1vLm7. Join in!
Wed Oct 17 18:03:19 PDT 2012

rfberry

Hi @Hollyby & @WaywardChad! I've got some good topics tonight, looking forward to the discussion, thanks for joining! #hpm
Wed Oct 17 18:04:16 PDT 2012

HDayLum

Hi - It's my first TweetChat. I'm Hillary Lum. Fellow in windy Denver, CO #hpm
Wed Oct 17 18:04:43 PDT 2012

rfberry

I believe @ctsinclair is joining us tonight, @aliciabloom may be in and out & @afternoonnapper, are you joining tonight? #hpm
Wed Oct 17 18:04:58 PDT 2012

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hollyby

For the next hour, lots of tweets from the #hospice and #palliative medicine tweetchat! Join us! #hpm
Wed Oct 17 18:04:59 PDT 2012

WaywardChad

Hi, all....Chad from Maryland. Social worker and #thanatology grad student. Tweeting from my phone tonight, so I'm slower than normal. #hpm
Wed Oct 17 18:05:52 PDT 2012

rfberry

Wohoo! Great to have you Hillary! A big #hpm welcome to you! RT @HDayLum: Hi - Its my first TweetChat. Im Hillary Lum. Fellow in Denver CO
Wed Oct 17 18:06:12 PDT 2012

TexasKidDoc

Hello! Pediatric resident in Houston, TX! Interested in #pedpc, especially in the #NICU #hpm
Wed Oct 17 18:06:16 PDT 2012

ctsinclair

Hey everyone! Christian Sinclair, hospice and palliative care doc in Kansas City #HPM
Wed Oct 17 18:07:22 PDT 2012

rfberry

Hello, thanks for joining, we'll be getting started with T1 in just a minute. RT @TexasKidDoc Pediatric resident in Houston, TX! #hpm
Wed Oct 17 18:07:52 PDT 2012

aliciabloom

RT @hollyby: For the next hour, lots of tweets from the #hospice and #palliative medicine tweetchat! Join us! #hpm
Wed Oct 17 18:08:05 PDT 2012

rfberry

@ctsinclair hey CT, just in time for T1! #hpm

Wed Oct 17 18:08:08 PDT 2012

rfberry

T1 If you were at the presidential #debates last night & got to stand up w/the mic, what #hpm question would you ask the candidates?
Wed Oct 17 18:08:30 PDT 2012

aliciabloom

welcome to #hpm chat @hdaylum!

Wed Oct 17 18:08:37 PDT 2012

aliciabloom

RT @rfberry: T1 If you were at the presidential #debates last night & got to stand up w/the mic, what #hpm question would you ask th ...
Wed Oct 17 18:08:53 PDT 2012

doctatum

@rfberry paul from columbia mo joining #hpm chat ( and waiting on cardinals to resume)
Wed Oct 17 18:08:58 PDT 2012

enBloomMedia

Hi everyone! Alisa --- patient advocate in Washington, DC #hpm

Wed Oct 17 18:09:07 PDT 2012

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TexasKidDoc

Watching @maddow and #HPM tweetchat. What a way to spend a Wednesday evening. #hpm
Wed Oct 17 18:09:25 PDT 2012

WaywardChad

MT @rfberry: T1 If you were at the presidential #debates & got to stand up w/the mic, what #hpm question would you ask the candidates? #hpm
Wed Oct 17 18:09:46 PDT 2012

rfberry

@enBloomMedia welcome Alisia, and hi Paul @doctatum! #hpm

Wed Oct 17 18:10:10 PDT 2012

enBloomMedia

@rfberry: T1 If you were at the presidential #debates last night & got 2 stand up w/the mic what question would you ask the candidates? #hpm
Wed Oct 17 18:10:28 PDT 2012

aliciabloom

T1- I would have asked POTUS & Romney about their opinion on reimbursing clinicians to have discussions about advance care planning. . .#hpm
Wed Oct 17 18:10:52 PDT 2012

rfberry

T1 I often think about, if the President (or pres candidate) even walked by me, what would I ask?! I find it hard to choose! #hpm
Wed Oct 17 18:11:03 PDT 2012

WaywardChad

This! MT @aliciabloom: T1- Would have asked opinion on reimbursing clinicians to have discussions about advance care planning. #hpm
Wed Oct 17 18:12:25 PDT 2012

rfberry

T1 I might ask: Why is hospice important to you? Please describe why you think #hospice is an important American issue. #hpm
Wed Oct 17 18:12:48 PDT 2012

doctatum

How can access to #palliative care be improved?RT @rfberry T1 at the presidential #debates what #hpm question would you ask the candidates?
Wed Oct 17 18:12:49 PDT 2012

WaywardChad

RT @rfberry: T1 I might ask: Why is hospice important to you? Please describe why you think #hospice is an important American issue. #hpm
Wed Oct 17 18:13:15 PDT 2012

Kamiyamay

T1 - Candidates can you please discuss your take on Palliative care and how do you see it affecting healthcare during the next 4 yrs. #hpm
Wed Oct 17 18:13:19 PDT 2012

MalindaAnnHill

RT @hollyby: For the next hour, lots of tweets from the #hospice and #palliative medicine tweetchat! Join us! #hpm
Wed Oct 17 18:13:30 PDT 2012

enBloomMedia

@WaywardChad @aliciabloom That's a good suggestion since behavior oft follows incentives #hpm
Wed Oct 17 18:13:51 PDT 2012

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Kamiyamay

RT @MalindaAnnHill: RT @hollyby: For the next hour, lots of tweets from the #hospice and #palliative medicine tweetchat! Join us! #hpm
Wed Oct 17 18:14:01 PDT 2012

WaywardChad

MT @doctatum: How can access to #palliative care be improved? #hpm

Wed Oct 17 18:14:01 PDT 2012

rfberry

@doctatum nice! I think we need some hpm'ers to get access to one of these rooms as an 'undecided voter' with a question! #hpm
Wed Oct 17 18:14:20 PDT 2012

aliciabloom

T1- I would asked their opinion on improving #hospice access through concurrent care laws for patients with prognosis <6 months #hpm
Wed Oct 17 18:14:26 PDT 2012

TexasKidDoc

Questions for Romney are bigger. Is healthcare a human right? Cannot talk about #HPM without discussing healthcare overall #hpm
Wed Oct 17 18:14:34 PDT 2012

equijada

t1: how would you define value of hospice/palliative medicine in context of creating jobs. #hpm
Wed Oct 17 18:14:38 PDT 2012

WaywardChad

MT @Kamiyamay: T1 - Please discuss your take on Palliative care and how do you see it affecting healthcare during the next 4 yrs. #hpm
Wed Oct 17 18:14:40 PDT 2012

ctsinclair

RT @rfberry: T1 If you were at the presidential #debates last night & got to stand up w/the mic, what #hpm question would you ask? #HPM
Wed Oct 17 18:15:02 PDT 2012

WaywardChad

MT @aliciabloom: T1 Would ask opinion on improving #hospice access through concurrent care laws for patients with prognosis <6 months #hpm
Wed Oct 17 18:15:30 PDT 2012

Kamiyamay

RT @equijada: t1: how would you define value of hospice/palliative medicine in context of creating jobs. #hpm
Wed Oct 17 18:15:33 PDT 2012

rfberry

@MalindaAnnHill & @Kamiyamay welcome, thanks for joining! We just got discussing T1 http://t.co/zRJ9sCic #hpm
Wed Oct 17 18:15:37 PDT 2012

enBloomMedia

Regarding T1 are there any new provisions in #ACA for #palliative and #hospice care #hpm
Wed Oct 17 18:15:45 PDT 2012

ctsinclair

RT @aliciabloom: T1- I would asked their opinion on improving #hospice access through concurrent care for patients w/ prognosis <6 mos #HPM
Wed Oct 17 18:15:54 PDT 2012

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HDayLum

T1: How would Obama/Romney answer this? What matters to me at the end of my life is ... @convoproject #hpm
Wed Oct 17 18:16:09 PDT 2012

WaywardChad

RT @equijada: t1: how would you define value of hospice/palliative medicine in context of creating jobs. #hpm
Wed Oct 17 18:16:32 PDT 2012

rfberry

nice! They like talking j-o-b-s! RT @equijada T1 How would you define value of hospice/palliative medicine in context of creating jobs? #hpm
Wed Oct 17 18:16:42 PDT 2012

WaywardChad

RT @HDayLum: T1: How would Obama/Romney answer this? What matters to me at the end of my life is ... @convoproject #hpm
Wed Oct 17 18:16:46 PDT 2012

MalindaAnnHill

RT @rfberry: About thirty minutes until the #hpm TweetChat, Don't know what it's about? We're open to new perspectives! Learn more http://t.co/bpVlMM6e
Wed Oct 17 18:17:26 PDT 2012

doctatum

Good one! RT @oliverdr @rfberry I would have loved to give Obama a chance to address the "death panel" myth #hpm
Wed Oct 17 18:17:32 PDT 2012

rfberry

@ctsinclair interesting. I think hospice as concurrent care definitely needs advocacy. Congress (currently) seems confused though w/LOS #hpm
Wed Oct 17 18:17:54 PDT 2012

rfberry

RT @HDayLum: T1: How would Obama/Romney answer this? What matters to me at the end of my life is ... @convoproject #hpm
Wed Oct 17 18:18:03 PDT 2012

jfclearywisc

Jim Cleary @UWHealth #palliative care MD & DIrector PPSG (@painpolicy) joining #hpm chat (late) for the next 45 minutes
Wed Oct 17 18:18:09 PDT 2012

Kamiyamay

@rfberry We need trained clinicians - hospices already short on clinicians (nurses esp.) #hpm
Wed Oct 17 18:18:37 PDT 2012

rfberry

@oliverdr agree, I would love to see end of life conversations discussed as a human issue rather than a political issue. #hpm
Wed Oct 17 18:19:16 PDT 2012

kilani19

I would like to hear how Romney can justify that folks don't die without insurance. #hpm @rfberry
Wed Oct 17 18:19:29 PDT 2012

Kamiyamay

RT @rfberry: @oliverdr agree, I would love to see end of life conversations discussed as a human issue rather than a political issue. #hpm
Wed Oct 17 18:20:02 PDT 2012

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jfclearywisc

Taught Med 2 class of social Media advocacy 2day using #hpm as eg. Please say hello to @uwsmph students following #uwsmphic #hpmglobal
Wed Oct 17 18:20:23 PDT 2012

aliciabloom

@rfberry @ctsinclair i think there's so many misperceptions about #hospice out there, it's no surprise Congress is confused #hpm
Wed Oct 17 18:20:23 PDT 2012

rfberry

@Kamiyamay absolutely. I'm really passionate about generating early (at a young age) interest in pursuing a career in #hpm
Wed Oct 17 18:20:35 PDT 2012

rfberry

@aliciabloom agree! (teaser, confusion topic on it's way :) #hpm

Wed Oct 17 18:21:11 PDT 2012

TexasKidDoc

Does Romney feel CPR in an emergency room is his ideal #HPM program for the un(der)insured in this country if he repeals obamacare #hpm
Wed Oct 17 18:21:32 PDT 2012

aliciabloom

@rfberry fun! #hpm

Wed Oct 17 18:21:57 PDT 2012

aliciabloom

RT @TexasKidDoc: Does Romney feel CPR in an emergency room is his ideal #HPM program for the un(der)insured in this country if he repeal ...
Wed Oct 17 18:22:06 PDT 2012

Kamiyamay

@jfclearywisc Thanks for bringing the class along! #hpm

Wed Oct 17 18:22:12 PDT 2012

kilani19

RT @TexasKidDoc: Does Romney feel CPR in an emergency room is his ideal #HPM program for the un(der)insured in this country if he repeal ...
Wed Oct 17 18:22:16 PDT 2012

rfberry

hi! RT @jfclearywisc Taught Med2 class of social Media advocacy w/ #hpm as eg. Please say hello @uwsmph students #uwsmphic #hpmglobal #hpm
Wed Oct 17 18:22:32 PDT 2012

kilani19

@TexasKidDoc you mean a mock code or a real code?! #hpm

Wed Oct 17 18:22:36 PDT 2012

enBloomMedia

Glad to see next gen of clinicians integrating SM RT @jfclearywisc: Taught Med 2 class of social Media advocacy 2day using #hpm as eg. #hpm
Wed Oct 17 18:22:51 PDT 2012

HDayLum

Hi! I was UW 2000, MSTP. RT @jfclearywisc:"Taught Med 2 class of social Media advocacy 2day using #hpm". @uwsmph #uwsmphic #hpmglobal. #hpm
Wed Oct 17 18:22:52 PDT 2012

oliverdr

@jfclearywisc @uwsmph Hello what a great way to teach students great class! #hpmglobal #hpm
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Wed Oct 17 18:22:53 PDT 2012

jfclearywisc

T1: Referernce economy. Healthcare: a huge drain. Much of it: inappropriate services at #EOL> WHat will u do 2 change this? #Hpm
Wed Oct 17 18:23:33 PDT 2012

TwinsRun

RT @kilani19: I would like to hear how Romney can justify that folks don't die without insurance. #hpm @rfberry
Wed Oct 17 18:24:09 PDT 2012

rfberry

We're about to move to T2, please share any last thoughts on questions you'd ask presidential candidates if you had the mic at a debate #hpm
Wed Oct 17 18:24:17 PDT 2012

hollyby

Hey, sorry, something came up. Have to jet. Have a great chat!!! I'll check the transcript later. Hugs to all! #hpm
Wed Oct 17 18:24:47 PDT 2012

TexasKidDoc

No choices or planning without healthcare! ER as only care = aggressive care at end of life. Romney says "uninsured should go to ER" #hpm
Wed Oct 17 18:24:48 PDT 2012

WaywardChad

MT @jfclearywisc T1: Ref economy. Healthcare: a huge drain. Much of it: inappropriate services at #EOL> WHat will u do 2 change this? #hpm
Wed Oct 17 18:25:00 PDT 2012

kilani19

@Kamiyamay: @jfclearywisc Thanks for bringing the class along! #hpm I know great practical approach to social media!
Wed Oct 17 18:25:12 PDT 2012

doctatum

T1 Dea focus on rx abuse may lead to drug supply problems for #hpm if policy not done right. See nytimes in last post
Wed Oct 17 18:25:33 PDT 2012

jfclearywisc

RT @kilani19: @Kamiyamay: @jfclearywisc Thx for bringing the class along! #hpm I know great practical approach to social media! #uwsmphic
Wed Oct 17 18:25:46 PDT 2012

rfberry

@hollyby bye! #hpm

Wed Oct 17 18:25:49 PDT 2012

enBloomMedia

T1 initiating a national convo around #EOL may take some of the mystery & politics out of #hpm
Wed Oct 17 18:25:58 PDT 2012

Kamiyamay

T1 - Candidates have you had anyone in your family receive the benefit of Hospice/palliative care? #hpm
Wed Oct 17 18:26:00 PDT 2012

jfclearywisc

RT @oliverdr: @jfclearywisc @uwsmph Hello what a great way to teach students great class! #hpmglobal #hpm #uwsmphic
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Wed Oct 17 18:26:09 PDT 2012

equijada

@Kamiyamay good one! #hpm

Wed Oct 17 18:26:41 PDT 2012

WaywardChad

Yes! RT @enBloomMedia: T1 initiating a national convo around #EOL may take some of the mystery & politics out of #hpm
Wed Oct 17 18:26:57 PDT 2012

AlfredLam

@rfberry Wow, what a great topic! I'll definitely be looking through the transcript later. Clinicals in the morn so no chat for me :( #hpm
Wed Oct 17 18:26:57 PDT 2012

WaywardChad

RT @Kamiyamay: T1 - Candidates have you had anyone in your family receive the benefit of Hospice/palliative care? #hpm
Wed Oct 17 18:27:14 PDT 2012

rfberry

RT @doctatum T1 Avoid cutting off #hpm med RT @nytimes To Fight Prescription Painkiller Abuse DEA Targets Distributors http://t.co/zIZP1eUB
Wed Oct 17 18:27:19 PDT 2012

jfclearywisc

@doctatum Great questions on the RX prescription issue!! #hpm

Wed Oct 17 18:27:26 PDT 2012

rfberry

@AlfredLam thanks for saying hi! Maybe another time! Transcript will be up at http://t.co/Bg0wQMWd #hpm
Wed Oct 17 18:27:56 PDT 2012

rfberry

T2: When #hospice is in the headlines, the importance of language becomes amplified, thoughts on these today http://t.co/tWeNzDpo ? #hpm
Wed Oct 17 18:27:59 PDT 2012

UWSMPHMedEdWork

RT @jfclearywisc: Taught Med 2 class of social Media advocacy 2day using #hpm as eg. Please say hello to @uwsmph students following #uws ...
Wed Oct 17 18:28:27 PDT 2012

WaywardChad

RT @rfberry: T2: When #hospice is in the headlines, importance of language amplified, thoughts on these today http://t.co/5K0JsVyy ? #hpm
Wed Oct 17 18:28:58 PDT 2012

enBloomMedia

RT @doctatum T1 Avoid cutting off #hpm med @nytimes 2 Fight Prescription Painkiller Abuse DEA Targets Distributors http://t.co/dtznYoPS #hpm
Wed Oct 17 18:29:05 PDT 2012

kilani19

@rfberry yup happens all the time. Important for the media to portray the good and bad about hospice not just bad. #hpm
Wed Oct 17 18:29:31 PDT 2012

kilani19

@rfberry remember barbaric?! #hpm

Wed Oct 17 18:29:47 PDT 2012

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WaywardChad

RT @kilani19: @rfberry yup happens all the time. Important for the media to portray the good and bad about hospice not just bad. #hpm
Wed Oct 17 18:30:02 PDT 2012

TexasKidDoc

Makes you wonder what they think "on life support" means #hpm
Wed Oct 17 18:30:40 PDT 2012

rfberry

Topic 2: "George McGovern, 90, on life support in hospice" Is this a confusing title? #hpm
Wed Oct 17 18:30:50 PDT 2012

jfclearywisc

@rfberry T2: Language so interesting; if opioids are writen abt at #EOL "morphine" if abuse & diversion "oxycodone" #hospice #hpm
Wed Oct 17 18:31:01 PDT 2012

kilani19

@rfberry: Topic 2: "George McGovern, 90, on life support in hospice" Is this a confusing title? #hpm obviously contradictory!
Wed Oct 17 18:31:34 PDT 2012

aliciabloom

@rfberry: Topic 2: "George McGovern, 90, on life support in hospice" Is this a confusing title? #hpm yes, yes it is.
Wed Oct 17 18:31:36 PDT 2012

enBloomMedia

@rfberry media must give balanced portrayal and help public understand states of consciousness and types of life support #hpm
Wed Oct 17 18:31:39 PDT 2012

GroundSwellAus

apologies I'm late - glad to be here! #hpm

Wed Oct 17 18:31:46 PDT 2012

rfberry

@jfclearywisc right? Very interesting "distinction" by media. #hpm

Wed Oct 17 18:31:51 PDT 2012

Kamiyamay

@rfberry Yes confusing--life support (think ventilators and ICU) #hpm

Wed Oct 17 18:32:07 PDT 2012

jfclearywisc

@GroundSwellAus Hi Kerry. Missed you Monday with #hpmglobal. But now 11 pm in OZ! #hpm
Wed Oct 17 18:32:25 PDT 2012

rfberry

Can't help but think that's confusing to the public. RT @TexasKidDoc Makes you wonder what they think "on life support" #hpm
Wed Oct 17 18:32:26 PDT 2012

GroundSwellAus

RT @Kamiyamay: @rfberry Yes confusing--life support (think ventilators and ICU) #hpm
Wed Oct 17 18:32:52 PDT 2012

doctatum

How about hospice supports life !!RT @rfberry Topic 2: "George McGovern, 90,
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on life support in hospice" Is this a confusing title? #hpm

Wed Oct 17 18:32:59 PDT 2012

Kamiyamay

MT @enBloomMedia: @rfberry media Needs to balance portrayal & help public understand states of consciousness and types of life support #hpm
Wed Oct 17 18:33:08 PDT 2012

WaywardChad

T2: The copy editor and social worker in me both cringed at the "on life support" headline... #hpm
Wed Oct 17 18:33:14 PDT 2012

TexasKidDoc

Not sure they understand the distinction, "on life support" = "very sick" and "hospice" = "very sick" - all they want to say is "sick" #hpm
Wed Oct 17 18:33:25 PDT 2012

GroundSwellAus

@jfclearywisc Hi Jim, yes I've been in the middel of some big projects - things are slowing down a little now though #hpm
Wed Oct 17 18:33:25 PDT 2012

enBloomMedia

@rfberry T2: headline may suggest the life support is due to McGovern being in hospice #hpm
Wed Oct 17 18:33:29 PDT 2012

rfberry

@GroundSwellAus Thanks for joining! We're just getting into a discussion on T2 http://t.co/0PjvZZqE #hpm
Wed Oct 17 18:33:37 PDT 2012

aliciabloom

T2- wish it said: "McGovern, 90, placed on life support with no clinical benefit, admitted to hospice for dignified end of life care" #hpm
Wed Oct 17 18:33:41 PDT 2012

jfclearywisc

@rfberry T2 In this political envt, US #hospice can B "toxic" Single payer system with rationing!" Bring on the death panels! #hpm
Wed Oct 17 18:34:28 PDT 2012

GroundSwellAus

@rfberry wow that is some headline... very confusing #hpm

Wed Oct 17 18:34:48 PDT 2012

GroundSwellAus

makes "hospice" sounds like an ICU #hpm

Wed Oct 17 18:35:14 PDT 2012

rfberry

@aliciabloom definitely more clinically clear, though I have to say I giggle that it sounds super clinical :) #hpm
Wed Oct 17 18:35:17 PDT 2012

equijada

t2: I think the general public will interpret headline that McGovern is think and about ready to die. I don't think it will confuse. #hpm
Wed Oct 17 18:35:56 PDT 2012

Kamiyamay

@jfclearywisc You are right - already so many toxic feelings and fear out there
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and two schools of thought!! #hpm

Wed Oct 17 18:36:09 PDT 2012

rfberry

on life support in hospice - sounds like a good blog post title, because if we take away what we know 'life support' is.. it could work #hpm
Wed Oct 17 18:36:10 PDT 2012

fischmd

RT @rhalvarez1: A New Painkiller Crackdown Targets Drug Distributors http://t.co/jJxHBASL #hpm

Wed Oct 17 18:36:11 PDT 2012

enBloomMedia

YES @aliciabloom edit: "McGovern, 90, placed on life support with no clinical benefit, admitted to hospice for dignified end of life #hpm
Wed Oct 17 18:36:13 PDT 2012

equijada

errr *sick* not *think* #hpm

Wed Oct 17 18:36:31 PDT 2012

TexasKidDoc

I agree with @equijada - headline is oxymoronic to us, not confusing to average reader. Still conveys that he is likely to die soon #hpm
Wed Oct 17 18:37:13 PDT 2012

WaywardChad

@aliciabloom. Love it....though my copy desk boss woulda strung me up for being that verbose! :) #hpm
Wed Oct 17 18:37:17 PDT 2012

GroundSwellAus

what if it just said "x is having end of life care" or "x is dying" #hpm
Wed Oct 17 18:37:32 PDT 2012

rfberry

@equijada I agree that's what they'll think, but do you think it may confuse what "life support" typically means? #hpm
Wed Oct 17 18:37:47 PDT 2012

TexasKidDoc

Headline expresses overwhelming confusion on end of life in general that most people don't understand #hpm
Wed Oct 17 18:37:49 PDT 2012

equijada

@TexasKidDoc agree. #hpm

Wed Oct 17 18:38:02 PDT 2012

aliciabloom

@WaywardChad: @aliciabloom. Love it....though my copy desk boss woulda strung me up for being that verbose! :) #hpm <-- story of my life!
Wed Oct 17 18:38:05 PDT 2012

jfclearywisc

@Kamiyamay T2: Language v impt: Need to talk abt excess services at #EOL, no excess care. Rare to have too much care! #hpm
Wed Oct 17 18:38:07 PDT 2012

rfberry

agree. RT @GroundSwellAus makes "hospice" sounds like an ICU #hpm

Wed Oct 17 18:38:27 PDT 2012

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enBloomMedia

Indeed! RT @TexasKidDoc: Headline expresses overwhelming confusion on end of life in general that most people dont understand #hpm
Wed Oct 17 18:38:37 PDT 2012

GingerBreggin

RT @ScottIrwinMD: RT @DianeEMeier: Hospital #Chaplains improve Outcomes - http://t.co/7Q5v4pq6 #palliative #hpm

Wed Oct 17 18:38:47 PDT 2012

rfberry

@GingerBreggin hey, we're doing a live discussion on #hpm topics, about to start our third one, you're welome to join!
Wed Oct 17 18:39:37 PDT 2012

WaywardChad

Yes it does. RT @GroundSwellAus makes "hospice" sounds like an ICU #hpm

Wed Oct 17 18:39:47 PDT 2012

Kamiyamay

Tomorrow wonder if patients going to insist on life support? HPM is about life about making quality time of life that exists!!! #hpm
Wed Oct 17 18:40:27 PDT 2012

kilani19

@GroundSwellAus: what if it just said "x is having end of life care" or "x is dying" #hpm Yes! Sounds better and appropriate.
Wed Oct 17 18:40:30 PDT 2012

rfberry

T3 on it's way, please share any final thoughts on T2 about language in the media "on life support in hospice" http://t.co/0PjvZZqE #hpm
Wed Oct 17 18:41:04 PDT 2012

equijada

@rfberry maybe...but death is pretty visceral. First think I did was read McGovern's bio. #hpm
Wed Oct 17 18:41:08 PDT 2012

PKBaldwin

RT @rfberry: Can't help but think that's confusing to the public. RT @TexasKidDoc Makes you wonder what they think "on life support" #hpm
Wed Oct 17 18:41:15 PDT 2012

oliverdr

@rfberry maybe we start a new ICU- the hpmICU- after all intensive care is what we do! #hpm #hpmglobal
Wed Oct 17 18:41:38 PDT 2012

equijada

errrr *thing* not *think* #hpm

Wed Oct 17 18:41:48 PDT 2012

Kamiyamay

@kilani19 That is why I urge clinicians to embrace supportive care terminology! #hpm
Wed Oct 17 18:42:09 PDT 2012

rfberry

T3 Agree or Disagree & Why: "When a public figure receives hospice, the public often hears about it." Amy Tucci http://t.co/5jl9nvJp #hpm
Wed Oct 17 18:42:28 PDT 2012

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jfclearywisc

@rfberry T3: I would love to see Headline saying xxx has elected #palliative care with home #hospice support! #hpm
Wed Oct 17 18:42:48 PDT 2012

WaywardChad

MT @kilani19 @GroundSwellAus: what if it said "x is having end of life care" or "x is dying" #hpm Yes! Sounds better and appropriate. #hpm
Wed Oct 17 18:43:03 PDT 2012

oliverdr

RT @jfclearywisc: @rfberry T3: I would love to see Headline saying xxx has elected #palliative care with home #hospice support! #hpm
Wed Oct 17 18:43:10 PDT 2012

kilani19

@Kamiyamay doubt it! He has the rolls Royce policy right?! #hpm
Wed Oct 17 18:43:11 PDT 2012

TexasKidDoc

Disagree. Most public figures die privately no matter how exposed we are in this culture. We hear when people have prolonged ICU stays. #hpm
Wed Oct 17 18:43:45 PDT 2012

rfberry

MT @jfclearywisc T3: I would love to see Headline saying ___ has elected #palliative care with home #hospice support! #hpm
Wed Oct 17 18:43:50 PDT 2012

GroundSwellAus

@Kamiyamay "supportive care" always sounds like an euphemism to me #hpm

Wed Oct 17 18:44:02 PDT 2012

Kamiyamay

@rfberry When a public figure does anything..the public hear about it. The more political/popular the more public! #hpm
Wed Oct 17 18:44:07 PDT 2012

GroundSwellAus

nice RT @jfclearywisc: @rfberry T3: I would love to see Headline saying xxx has elected #palliative care with home #hospice support! #hpm
Wed Oct 17 18:44:15 PDT 2012

jfclearywisc

@rfberry T3: Not surprising. We follow lives & deaths of public figures. I admire those who make public their acceptance! #hpm
Wed Oct 17 18:44:18 PDT 2012

kilani19

@GroundSwellAus @kamiyamay I have to agree because we provide supportive care on every patient. #hpm
Wed Oct 17 18:45:11 PDT 2012

WaywardChad

MT @rfberry T3 Agree or Disagree & Why: "When a public figure receives hospice, the public often hears." Amy Tucci http://t.co/kEwDn1NA #hpm
Wed Oct 17 18:45:27 PDT 2012

rfberry

T3 I hear '___ died peacefully at home' more often than I hear '_____ received the support at hospice care & died peacefully at home' #hpm
Wed Oct 17 18:45:44 PDT 2012

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TexasKidDoc

How often do you hear about so and so who died in home after a prolonged illness? Does that mean hospice? For average joe prob yes #hpm
Wed Oct 17 18:46:03 PDT 2012

TexasKidDoc

YEs! MT @rfberry: T3 I hear X died peacefully at home more than I hear X received the support at hospice care & died peacefully at home #hpm
Wed Oct 17 18:46:35 PDT 2012

kilani19

@rfberry #hpm celebrities have a huge impact on the beginning of life making it a glamorous experience. They should embrace eol too!
Wed Oct 17 18:46:37 PDT 2012

rfberry

@TexasKidDoc exactly, but I feel like the % I hear a mention of hospice in the article is far less than I hear 'at home' #hpm
Wed Oct 17 18:46:51 PDT 2012

WaywardChad

MT @rfberry: T3 I hear ___ died peacefully at home more often than _____ received the support at hospice care & died peacefully at home #hpm
Wed Oct 17 18:47:22 PDT 2012

kilani19

@TexasKidDoc likely hospice but some w the care of private docs that visit at home. #hpm
Wed Oct 17 18:47:28 PDT 2012

TexasKidDoc

@rfberry exactly! that is why Tucci's statement is prob false. We don't hear about the hospice that is probably there. #hpm
Wed Oct 17 18:47:58 PDT 2012

WaywardChad

MT @kilani19: @rfberry celebrities have a huge impact on the beginning of life making it a glamorous experience. Should embrace eol too #hpm
Wed Oct 17 18:48:28 PDT 2012

GroundSwellAus

I think here in Oz we would we just say "died at home" we wouldn't mention that care involved... hmm interesting #hpm
Wed Oct 17 18:48:32 PDT 2012

doctatum

Agree also respect those who need privacy RT @jfclearywisc @rfberry T3: I admire public figures who make public their acceptance! #hpm
Wed Oct 17 18:48:37 PDT 2012

rfberry

@kilani19 I think it's a shame when 'hospice' detail is left out of 'died peacefully at home' bc it's often what makes home possible #hpm
Wed Oct 17 18:48:37 PDT 2012

JoanneKenen

@ctsinclair @aliciabloom there's a concurrent care pilot in health law - not set up yet - may still be (if no repeal) #hospice #HPM
Wed Oct 17 18:48:40 PDT 2012

Kamiyamay

@TexasKidDoc Often not there until the last hours though! #hpm
Wed Oct 17 18:48:48 PDT 2012

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TexasKidDoc

@kilani19 Agree that much of this home care may not be through Hospice organizations per se, may be private docs, private nursing #hpm
Wed Oct 17 18:48:55 PDT 2012

jfclearywisc

agree RT @GroundSwellAus: I think in Oz we would we just say "died at home" we wouldn't mention that care involved... hmm interesting #hpm
Wed Oct 17 18:49:14 PDT 2012

rfberry

@JoanneKenen interesting, my understanding is repeal probability is very low (but this sounds like a good chat topic) host some time? #hpm
Wed Oct 17 18:50:01 PDT 2012

rfberry

Unfortunately true. RT @Kamiyamay: @TexasKidDoc Often not there until the last hours though! #hpm
Wed Oct 17 18:50:29 PDT 2012

kilani19

@rfberry but what is the shame in associating w hospice? Does it really have any impact or how it's perceived by lay folk? Weird. #hpm
Wed Oct 17 18:51:12 PDT 2012

rfberry

@GroundSwellAus I think we should do a chat where we discuss "supportive care" v "palliative care" v "hospice" :) differences etc. #hpm
Wed Oct 17 18:51:29 PDT 2012

GroundSwellAus

@rfberry definitely oh and don't forget "end of life care" #hpm

Wed Oct 17 18:52:32 PDT 2012

jfclearywisc

@rfberry: "supportive care" v "palliative care" was recent topic at Euro Soc Med Onc. (hospice v much US issue) #hpm
Wed Oct 17 18:52:44 PDT 2012

rfberry

@kilani19 I don't think so, I just think it's often left out as an unimportant detail, I'd argue including the #hpm detail has impact.
Wed Oct 17 18:53:01 PDT 2012

kilani19

@GroundSwellAus @rfberry and comfort care #hpm

Wed Oct 17 18:53:03 PDT 2012

Kamiyamay

@kilani19 Lay folk have accused me of showing up at door to put "pappa to sleep". Much education needed: Press,Public,Society,Medicine #hpm
Wed Oct 17 18:53:29 PDT 2012

HDayLum

@rfberry A friend also mentioned pre-palliative care. Wasn't sure what she meant... #hpm #hpm
Wed Oct 17 18:53:58 PDT 2012

GroundSwellAus

:) RT @kilani19: @GroundSwellAus @rfberry and comfort care #hpm

Wed Oct 17 18:54:01 PDT 2012

jfclearywisc

@kilani19 "shame" may be part of issue. WHy do 25+% die within a week of referral to #hospice. V late!! #hpm
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Wed Oct 17 18:54:19 PDT 2012

TexasKidDoc

@rfberry the disease they had is often also left out of obits, people want privacy. Naming disease could also have big impact. #hpm
Wed Oct 17 18:54:26 PDT 2012

kilani19

@Kamiyamay yeah so sad. Pappa just is getting checked on to make sure he's comfy. Not to admin meds that aren't warranted. #hpm
Wed Oct 17 18:54:40 PDT 2012

rfberry

maybe early palliative care/ pre-hospice? RT @HDayLum A friend also mentioned pre-palliative care. Wasnt sure what she meant. #hpm
Wed Oct 17 18:54:52 PDT 2012

kilani19

@HDayLum: @rfberry A friend also mentioned pre-palliative care. Wasn't sure what she meant... #hpm Not sure if that connotation exists.
Wed Oct 17 18:55:19 PDT 2012

rfberry

OK, we're getting to the last five minutes of our discussion on hospice & palliative care topics tonight! Any wrap up thoughts? #hpm
Wed Oct 17 18:55:50 PDT 2012

kilani19

@jfclearywisc I just don't get it. #hpm

Wed Oct 17 18:55:55 PDT 2012

GroundSwellAus

I'm not sure stigma is the reason for not mentioning pallcare here in Oz, but that is an interesting question #hpm
Wed Oct 17 18:56:16 PDT 2012

Kamiyamay

@kilani19 So true, tell them goal is helping them enjoy time with pappa and doing all that I can to make sure he is comfortable too! #hpm
Wed Oct 17 18:56:23 PDT 2012

enBloomMedia

RT @rfberry: OK, getting to the last five minutes of our discussion on hospice & palliative care topics tonight! Any wrap up thoughts? #hpm
Wed Oct 17 18:56:36 PDT 2012

JoanneKenen

@rfberry health law repeal depends on election - presidential & senate (house likely stay R) yes maybe host #hpm chat after elections #hcr
Wed Oct 17 18:56:48 PDT 2012

jfclearywisc

@kilani19 Agree very complex. Really need to turn around culture that death is not a failure. Part of life!! #hpm
Wed Oct 17 18:57:15 PDT 2012

kilani19

@rfberry there's a need for continued exposure of what #hpm is and how effective it can be for patients either chronic or terminal.
Wed Oct 17 18:57:20 PDT 2012

Kamiyamay

RT @jfclearywisc: @kilani19 Agree very complex. Really need to turn around

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culture that death is not a failure. Part of life!! #hpm

Wed Oct 17 18:57:44 PDT 2012

rfberry

Do you get how & why there's a public stigma, except you see why that's a misperception? RT @kilani19 @jfclearywisc I just dont get it. #hpm
Wed Oct 17 18:57:47 PDT 2012

WaywardChad

MT @rfberry OK, getting to the last five minutes of our discussion on hospice & palliative care topics tonight! Any wrap up thoughts? #hpm
Wed Oct 17 18:57:53 PDT 2012

rfberry

RT @kilani19: @rfberry there's a need for continued exposure of what #hpm is and how effective it can be for patients either chronic or terminal.
Wed Oct 17 18:58:05 PDT 2012

kilani19

@jfclearywisc: Agree very complex. Really need to turn around culture that death is not a failure. Part of life!! #hpm " start w the docs!
Wed Oct 17 18:58:42 PDT 2012

GroundSwellAus

RT @jfclearywisc: @kilani19 Agree very complex. Really need to turn around culture that death is not a failure. Part of life!! #hpm
Wed Oct 17 18:58:44 PDT 2012

WaywardChad

MT @kilani19: theres a need for continued exposure of what #hpm is and how effective it can be for patients either chronic or terminal. #hpm
Wed Oct 17 18:59:08 PDT 2012

rfberry

Great discussion! I feel like there were so many great perspectives, I'll have to read the transcript to think about everything more! #hpm
Wed Oct 17 18:59:10 PDT 2012

rfberry

#hpm TweetChat Homework: Listen to @NPR's Debate: Should We Ration End-Of-Life Care? http://t.co/bePf8KAE
Wed Oct 17 18:59:52 PDT 2012

kilani19

@rfberry #hpm thanks again friends for a wonderful discussion and thought provoking hour!
Wed Oct 17 18:59:57 PDT 2012

enBloomMedia

Thanks 4 hosting RT @rfberry: Great discussion! I feel like there were so many great perspectives, Ill have to read the transcript... #hpm
Wed Oct 17 19:00:14 PDT 2012

jfclearywisc

@rfberry Thx rachel #hpm

Wed Oct 17 19:00:42 PDT 2012

GroundSwellAus

RT @rfberry: #hpm TweetChat Homework: Listen to @NPRs Debate: Should We Ration End-Of-Life Care? http://t.co/7vRpJksn #hpm
Wed Oct 17 19:00:48 PDT 2012

Kamiyamay

Lth: People fear what they don't know, keep hosp/pall 'alive', early referral,
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Educate the masses that quality of life for end-of-life! #hpm

Wed Oct 17 19:01:29 PDT 2012

GroundSwellAus

@rfberry thanks for #hpm chat, I've missed joining in! #hpm
Wed Oct 17 19:01:33 PDT 2012

rfberry

it's Renee ;) good to see you tonight Jim! RT @jfclearywisc: @rfberry Thx rachel #hpm
Wed Oct 17 19:02:27 PDT 2012

Kamiyamay

RT @kilani19: @rfberry #hpm thanks again friends for a wonderful discussion and thought provoking hour! #hpm
Wed Oct 17 19:02:39 PDT 2012

enBloomMedia

@Kamiyamay @rfberry @WaywardChad Thanks for convo and RT during tonights #hpm chat
Wed Oct 17 19:02:52 PDT 2012

rfberry

@GroundSwellAus so glad you could make it, what time is it in Australia? #hpm
Wed Oct 17 19:03:06 PDT 2012

GroundSwellAus

@rfberry it is 1pm #hpm

Wed Oct 17 19:03:38 PDT 2012

doctatum

Can u resend audio link? RT @rfberry #hpm TweetChat Homework: Listen to @NPR's Debate: Ration End-Of-Life Care? http://t.co/DbSm0rLC
Wed Oct 17 19:05:33 PDT 2012

Kamiyamay

(Thx-thought provoking) RT@enBloomMedia @Kamiyamay @rfberry @WaywardChad Thanks for convo and RT during tonights #hpm chat
Wed Oct 17 19:08:15 PDT 2012

rfberry

@doctatum @NPR Debate: Ration End-Of-Life Care? http://t.co/yAfsrJyw #hpm

Wed Oct 17 19:09:25 PDT 2012

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