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World Health Organization High-Level Meeting on Disability and Development September 23, 2013 1:15 p.m.

EDT United Nations New York, NY CART Provider: Annamarie D. Jones, CBC-CCP-RPR

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(This text is being provided in a ROUGHLY EDITED format. Communication Access Realtime Translation [CART] is provided in order to facilitate communication accessibility and may not be a totally verbatim record of the proceedings.)

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2 High-Level Meeting on Disability and Development September 23, 2013 >> Welcome, everybody. Welcome. I am the director for the World Health Organization, director for violence and injury prevention and disability. Welcome to this assistive technology open doors side event to this high level meeting. I'll do my best to scream. I refuse to do this because I know I will fail but I was obliged to. Without any further ado, I would like to give the floor to the two persons who make it an honor to be here with us to open the event. The Under-Secretary of the department of justice from the Republic of the Philippines, Lea Armamento, and Dr. Shin Young-Soo. Please. >> Thank you. On behalf of the Republic of the Philippines, head of our delegation, secretary, permanent representative of the Philippines of the United Nations, and department of social welfare and development secretary Corazon Juliano-Soliman, who is scheduled to address the side event, allow me to extend to everyone our Philippino greetings. Today's side event is a milestone and manifestation of the Philippine commitment to fulfill its obligation to the United Nations convention for the rights of persons with disabilities or CRPD. This is reflective of the significance that we give to the individual person with disabilities or PWD. Our recognition that they are major actors in the country's development, an acknowledgement that they have the ability to be enhanced for assistive technology. The Philippines recognizes the fact that over one billion people in the world today live with disability. They are the world's largest and most disadvantaged group. Aggravated by the fact that more are from the low income bracket resulting to their marginalization to their lack of equal access to lack of resources like education, employment, transportation, health care, social and legal support system. Thus assistive technology or AT becomes a necessity. AT will break barriers for children to access education and for adults to earn income. This is the first step of opportunity and independence with the consequential reduction of poverty. It will bridge the gap

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thank you. This was due to the international cooperation and strong partnership with a civil societies. John Risk. I would like to thank the Philippines government and UN department of economic and social affairs for co-hosting this important event and all of you for attending today. the International Disability Alliance represented by Mr. increased support is long overdue for more than one billion people www. a non-government organization. Again. affordable AT in the field of prosthetics and orthotics. undertaken with Cambodia Trust and Nippon Foundation. 2013 between exclusion and inclusion. international society for prosthetics and orthotics. (Applause) >> Ladies and gentlemen I'm pleased to join Under-Secretary Armamento in welcoming you here today. Dr. Dr. the Cambodia Trust represented by the chair of board of trustees. UNICEF represented by Ms. USAID represented by Mr. At this point my friends. Hamilton Twp. UNDESA. Rosangela Berman-Bieler. World Health Organization in Geneva. Indeed.c2ccaptioning. started by physicians for peace. walking free missions and global networking activities. We call on all member states to unify for full implementation of the UN CRPD. 866-828-1822 Toll Free ROUGHLY EDITED . join me and let us acknowledge our indispensable partners. On behalf of World Health Organization it is my honor to be here to speak on how assistive technology opens doors.. there is a huge disparity between AT need and access. In the last ten years the Philippines has gained tremendous grounds towards accessible. NJ 08610. chief executive and party. Disabilities is gaining the importance it deserves on global development agenda.3 High-Level Meeting on Disability and Development September 23. Rob Horvath. 85 to 95 percent of PWD's do not have access to assistive devices with the problem most acute in low and mid income countries like the Philippines. Chapal.com 418 Rowan Avenue. Yannis Vardakastanis. Shin Young-Soo and Mr. the prime movement of this event together with the Philippines mission and Philippines delegation. the Nippon Foundation represented by Suichi Ohno. ladies and gentlemen.

orthotics. hearing aids and eyeglasses. And we cannot accept that all the people isolated without access to basic information because they cannot get hearing aids or eyeglasses. From a human development standpoint all these doors lead away from isolation and poverty. Assistive technology can enable people with disabilities to lead the lives they want.com 418 Rowan Avenue. The global plan is intended to improve access to health care services and strengthen and expend rehabilitation services including access to assistive technology. and to community participation and other opportunities. www. And we need more action. We need more constructive collaboration to tailor support to member state needs and abilities.. We cannot accept that person with a spinal injury becomes a prisoner in his or her home and dies early just because they could not afford a wheelchair.c2ccaptioning.4 High-Level Meeting on Disability and Development September 23. 866-828-1822 Toll Free ROUGHLY EDITED . In every sense assistive technologies opens doors. The ratio has already increased effort to expand access to high quality and affordable assistive technology including wheelchairs. 2013 who experiences disabilities worldwide. NJ 08610. The member states recognize disabilities are a global public health concern. It opens doors to education. World Health Organization is developing a comprehensive global action plan on disability 2014 to 2021. But for many people especially in low and middle income countries. We must take the lead and increase collaborations to open these doors in communities worldwide. Member states encouraged to ensure that health services are inclusive of people with disabilities and provide timely access to rehabilitative services. The convention on the rights of persons with disabilities specifically calls for international corporations like today's meeting to improve access to assistive technology. prosthetics. employment. We cannot accept that children with disabilities do not go to school because they lack mobility devices. To address these concerns. But we need more leadership and commitment. these doors stay closed and because assistive technologies are not available or not affordable. Earlier this year in world house assembly adopted resolutions calling for better health care for people with a disability. Hamilton Twp.

So we have a big issue today and we can expect the needs to continue to grow because the prevalence of disability is growing. I'm trying. very much. >> Sorry. 2013 People with disabilities must be given the resources to contribute to development of their communities and their countries.c2ccaptioning. Thank you. This is one in seven persons in the world. One billion people live with disability. and some types of injuries are also increasing. These are just two examples that we could continue with other types of assistive devices. for describing the issue as well as some of the important contributions assistive devices can make. Next slide. please. I will continue with a very brief PowerPoint presentation to try to complement that with a few facts that come mainly from the world report on disability. We expect two billion people over 60 and older by 2015 and we know with age the need for assistive devices grows. 866-828-1822 Toll Free ROUGHLY EDITED . Hamilton Twp. However. Indeed technology can unlock many doors but many hands starting with yours and mine still must help push the doors open. Next slide. Chronic health conditions are on the rise. production of hearing aids only meets ten percent of global need and that is only three percent in developing countries. Under-Secretary Armamento. however. Our population is aging all over the world. most of them need assistive diseases and can't access them.com 418 Rowan Avenue.. www. For example. please. NJ 08610. Next slide. For example. I hope this event will lead to open and fruitful discussions which pave the way to further collaborative action. 70 million people today need a wheelchair in the world and only 5 to 15 percent of those have access to one. 360 million people suffer moderate or profound hearing loss today in the world.5 High-Level Meeting on Disability and Development September 23. (Applause) Thank you. >> Okay. please. (Laughter) >> Over one billion people live globally with disability.

when a tragic accident happened. It shouldn't be like that because we know what works. NJ 08610. et cetera.. What we need to do is assess better the need and of course the unmet needs to be able to plan and face them.I will never be able to walk again using my own feet but I told myself at least I would still become a lawyer.c2ccaptioning. and believe it was a sign from him that I will be never -. When I was in my second year in law school I was standing outside McDonald's waiting for my friends. It was a painful decision for my bad to sign the form to amputate both of my legs. My parents were thinking how will I accept www. And establish the partnership. 866-828-1822 Toll Free ROUGHLY EDITED . Increase the production and supply all over the world including in the poorest countries and societies.com 418 Rowan Avenue. rehabilitations. The services in many places are inadequate and production is too low and we also lack the human resources that have the capacity to support that production. We need to provide more adequate funding for production and improve affordability of assistive devices. >> I'm 26 year old and I currently live in Manila with my husband. Unexpectedly something exploded. I was fighting for my life. Police say it was a hand grenade. They said that at that time I had 20 percent chance of survival due to blood loss. I'd like to start by hearing from Raissa Laurel to understand better from her personal experience what assistive technologies means. Hamilton Twp. We need to educate and train personnel and health services. I lost both my legs.6 High-Level Meeting on Disability and Development September 23. I was an ordinary girl who wanted to be someone who could change the world. 2013 Why is it that the needs of those who are desperately needing those assistive devices are not met? There is insufficient funding for production and insufficient financial support for those to who need to acquire assistive devices. I was lying on the floor when I saw a vision from God and I was entering a court room on the wheelchair. Strengthen the services that provide those assistive devices and services that help people learn how to use them. I would like to ask all speakers to be short and focused so to be sure that your main messages come across. You can see my pictures there during my therapy.

Raissa. My goal was to be able to stand again.com 418 Rowan Avenue.7 High-Level Meeting on Disability and Development September 23. But I believe I have a purpose in this world. There. That's why I'm so excited to stand here at the UN and ask you all. that's why I'm still alive and sitting here in front of you. and second. Hamilton Twp. to never give up on life but to continue living with it. With assistive technology I'm doing everything I want to do. very much. a friend. to go to rehab. I'd like to turn to Venus Ilagan. With the use of assistive technology in my case my -. Good afternoon. I believe that everything is possible. >> Let's further explore the need and benefit of assistive technology. there's the picture of me running. let's make this possible not just in the Philippines but in every country in the world. It was baby steps. boxing and working out. It was really hard to train. NJ 08610. I was successful with the help of my doctor here. (Applause) >> Thanks. for sharing your personal experience and congratulations on your wedding. www. This week I will celebrate my third week as a person with a disability. I have to say. Let's wait for my pictures. Let us make it happen that assistive technology will be available and affordable to everyone to help people to restore their confidence. First is my belief that I have a purpose. used my prosthesis and walked again like nothing was happening. And then back in my physical activity such as running. >> You have a beautiful dress.c2ccaptioning. That was the first time I tried my prosthesis.wait. my prosthesis. in less than six months I was out of my wheelchair. You don't know where your center of gravity was.. >> Thank. Thank you. that was our wedding last December. I'm really blessed because with the efforts of Cambodia Trust. 866-828-1822 Toll Free ROUGHLY EDITED . You have the experience of using assistive technology. 2013 it? I woke up knowing I lost both my legs but I never gave up. And onto my next goal which is to be able to walk again. It is my hope that every Philippino with disability who needs assistive device can afford a well-fitted and functional device.

So when insensitive and untrained airline ground crew say our wheelchairs are messed up during transit. especially those living in developing countries where resources are lacking or all together non-existent. you know. When the wheelchair is broken. And I would like to tell you as well that Rehabilitation International considers assistive technology as one of the three projects that under the precedence we are really going to work into.com 418 Rowan Avenue.8 High-Level Meeting on Disability and Development September 23. and my boss is here. the user feels as if he or she similarly is broken. 866-828-1822 Toll Free ROUGHLY EDITED . going to work. speak to us about the needs and benefits of assistive technology. That said. shopping. Venus. Hamilton Twp. going to church. let me start by saying that. Who www. doing the things I enjoy most and without any complaints.. (Laughter) I'm saying these thanks so friends and colleagues without disability appreciate how important assistive devices are to people with disabilities. users just freak out and react vehemently or sometimes even violently. (Laughter) >> And why not? I spend half of every day riding my chair. NJ 08610. Well. It has always be a pleasure working with World Health Organization and our partners. It's my trusted partner in everything I do. They are part of our being. it remains however that not every person with a disability is able to have access or is able to afford the cost of an assistive device. Sometimes even more important than my husband. All of us have been broken. I would like to thank everyone on behalf of Rehabilitation International.c2ccaptioning. for the opportunity to join you today. It enables me to accomplish things that I want and I need to do. some years back my friend and mentor of the World Health Organization that really intrigued when some years back I told him my power will cherish the most important thing in my life. That's how much emotional attachment users have with their assistive devices. 2013 Can you please. >> Thank you.

I have this experience. there remains so much to be desired in the quality of products provided to persons with disabilities. But impact is limited because resources are not enough to address the needs. 866-828-1822 Toll Free ROUGHLY EDITED . Often quality is not seen as an important issue both among donors and recipients and it's the least of the concerns of many. Where assistive devices are given as the nations from well-meaning groups and charities. People with disabilities who have suffered decades of untold misery. discrimination and oppression simply have developed some kind of a coping mechanism. And I hope my friend Rob Horvath of the USAID agrees because I said this many years ago and I hope. of accepting whatever is provided to them. Hamilton Twp.9 High-Level Meeting on Disability and Development September 23. whether good or bad products and services for as long as they are given for free. that things have changed since then. www. And what about substandard devices? I have one minute. chances are that he or she will never be able to participate in the activities.c2ccaptioning. 2013 provides assistive devices for those who can't afford them? By the way.. Rob.com 418 Rowan Avenue. There is a big disconnect between actual demand and what is available in terms of funding. If one does not have an assistive device. when we were starting. I also came from the Philippines just like Raissa. What is important is to have something that will address their more immediate need for mobility. is something people are going to be grateful for. it is often said that beggars cannot be choosers. especially in regard to assistive devices. Often quality is not seen as an important issue both among donors and recipients and it's the least of the concerns of many. From my interactions with leaders of disabled peoples organizations and people who work with them. My former colleagues in the organization I used to work for in the Philippines often said that bad quality service or product is better than not having any service or product at all. Many of the services in disabilities are provided by non-government organizations. never mind if the quality is below standard. NJ 08610. It's better now that the convention has been in place.

the user is the expert of his own situation. (Applause) Thank you. NJ 08610. very much. not to the one providing it. Another important thing is that the setting out of minimum criteria for quality assurance and to ensure continuous improvement must be insured.c2ccaptioning. policy makers. one. it does more damage than good for the user. Quality is a complex issue.10 High-Level Meeting on Disability and Development September 23. of course. Well. health care managers and products. In three. thought it was important to define what is good quality as it relates to persons with disabilities. I would like to provide you with some recommendation. On that note I thank you for my participation here.they were called wheelchairs but actually they were garden chairs. focus should be on what is important to the user. Some important things to remember. I just would like to give some recommendations. Hamilton Twp. the quality framework should be a quality framework should be used to measure both manufacturer's capacity and the impact on users. Just like so many other things quality applies to service provided to persons with disabilities. for us. Venus. After all. I think that will help very much into the discussion.com 418 Rowan Avenue. We stay in the Philippines for one more speaker but we move from personal www. It is a complex multi-perspective and multi-dimensional concept whose meaning depends on the perceptions and values of the person defining the term. Thanks. work together at some extent. 2013 (Laughter) One concrete example of this where the wheelchairs of some years back -. They were made out of plastic. But they can. Manufacturers are supposed to meet but also aim to ensure that continuous improvement becomes key objective. and no cushion that goes with them. Understandably program developer. 866-828-1822 Toll Free ROUGHLY EDITED .. This is a nice testimony but also very important recommendations you just made. no footrest. It means different things the different people with different circumstances and different disabilities.

social welfare and local government. 2013 experience into what can be done and the Philippines as an important example of what can be done to improve in lower middle income country context. This time the timing was right and the logistics was right. private partnerships for three prosthetic orthotic www.11 High-Level Meeting on Disability and Development September 23. NJ 08610. Amputee screening through cellar networking is a tool. Hamilton Twp. The second opportunity occurred in 2005 when physicians for peace initiated walking with Philippines.com 418 Rowan Avenue. We would like to hear from Josephine Bundoc. it serves as an encore for development and upgrade of prosthetics and services in medical and allied health training. In public. >> The partnership did not prosper because timing and logistics were not right and ripe. local sources and training. Three years into implementation walking free failed to reach the finish line because recipients were going to school and worked in non-productive and joining mountain climbing. Collaborating with other providers that are in partnership with the department of health. The missions contacted by workshops with local technicians.. A ten year old map was developed where phase one revealed the four challenges of cost. 866-828-1822 Toll Free ROUGHLY EDITED . The most difficult strategy was collaborative innovation and adaptation by doing screening and prosthetic missions. The Philippines school of prosthetics and orthotics opened its door in 2010. rehabilitation prosthesis health package.c2ccaptioning. This is the first ever benefit package for persons with disabilities in the country. aligned with WHO and SBO guidelines. disability. But they were jolted back to the realization that what we need that was a victory rose into new problems and we were stuck with the fact that what we really need was professional training to make it truly sustainable. They sent me to attend conferences and one faithful day. The mobility. Aligned with the UN CRPD it was inclusive with members of the advisor board that insures disability in underserved areas. Only two years after its inception the Philippines school has made us achieve what we have been trying to achieve in the past 20 years.

NJ 08610. Assistive technology is something Nippon Foundation takes very seriously. for the description of what is happening in the Philippines showing that it is possible even in low income contexts to make progress. As an example of good practice.12 High-Level Meeting on Disability and Development September 23. Mr. of course. two multi-national and three local companies are negotiating and more importantly our local government units are already actively enrolling persons with disabilities into the field and collaborating with NGO's and GO's. We are. accessible information standard. the Nippon Foundation is the largest private donor foundation with a special emphasis on supporting persons with disability. (Applause) >> Thank you. collaboration and linkages. The Article 32 which calls for international cooperation for the objectives regarding access to assistive technology made all this happen in the Philippines. Excellencies. 2013 workshops. We have been working closely with the Republic of the Philippines to www. Hamilton Twp. As a low income country. But the best way to keep the gears going is global and local cooperation.c2ccaptioning. And we have supported the supply of prosthetics and orthotics for the past 20 years. Chairman. Programs associated with promotion of Daisy. And. very much. Mr. and as you may have noticed today the documentation package for this high level meeting has been published in accessible format facilitated by our financial support. screen reader development for the blind. therefore. very much. pleased to be asked to speak as an example of good practice at this important side event today. the primary responsibility for the development of assistive technology programs lays with governments with the governments of the countries in the lower and middle income countries but development agencies can play an important role so we are going to hear now from two development agencies and first the Nippon Foundation about your activities. Suichi Ohno. Thanks you.. 866-828-1822 Toll Free ROUGHLY EDITED . having the right heart and mind is ideal scenario to jump start assistive technology. ladies and gentleman.com 418 Rowan Avenue. >> Thank you.

866-828-1822 Toll Free ROUGHLY EDITED . then followed by Thailand.com 418 Rowan Avenue. especially Article 32 which calls for access international collaboration technology transfer and high standards in support of persons with disabilities through assistive technology. a flashlight to read my notes. Sri Lanka.c2ccaptioning. who is here today. NJ 08610. Thank you. The Nippon Foundation has been proud to support the Philippines government. In the countries we work we are supporting an international advisory board to support the schools and to allow realistic and valued input from all stakeholders. 2013 develop a Bachelor of Science course in prosthetics and orthotics in Manila. Key to our strategy. These documents of set the standards and have given us as a donor the confidence in the work we have knowing that the international implementers are doing a good job. This is one of our six schools of prosthetics and orthotics currently supported by the Nippon Foundation. other international training standards. especially the end users persons with disabilities themselves. where technology transfer is not just bilateral but also triangular. But luckily I know by heart that the next speaker is Rob Horvath from USAID. Working in partnership with the Cambodia Trust we have taken the many lessons learned internationally and specifically in Cambodia and with our partner.. very much. The first Cambodia. If we stay in the dark I'm going to need assistive technology to read. 12 years ago. We believe our ongoing work with our partners brings a reality to their aspirations of the UN convention of rights of persons with disability. Hamilton Twp. laid out in documents published by WHO and the international society for the prosthetic and orthotics and audited regularly by ISBO. Sri Lanka. (Applause) >> Thank you. but active and fruitful collaboration from Cambodia. We have seen not just collaboration from the north to south. www.13 High-Level Meeting on Disability and Development September 23. UNDESA and WHO in the fulfillment of this side event and fully support the call for global movement on assistive technology accessible to all. very much.

I'm proud of the leadership that USAID has demonstrated in this area. >> At USAID my job focuses on preventing. Madam Under-Secretary and other guests. So it's quite marvelous. my glasses for an iPod where I can increase the font size and not have to worry about it. people with disabilities have access to social. USAID is proud of the association with the World Health Organization. Proudly two of those initiatives that I manage.14 High-Level Meeting on Disability and Development September 23. We often find that people with disabilities are more vulnerable in comparison to others. especially in trying to ensure that disability ace cross all of our broad development objectives from democracy and government to economic growth and security to education and of course in health. promoting and protecting the human rights of vulnerable populations. 2013 >> Thank you. there is also a great scarcity of appropriately trained human resources who can ensure quality service provision especially in low income countries.c2ccaptioning. My children told me to get into the 21st century so I've traded my old assistive devices. it's not about the technology. I'm slowly becoming attached to it and I can't do anything without it. economic. especially in crisis or conflict situations. I'm proud of the strong USAID-WHO relationship and I believe that it is the World Health Organization www. development human resources. capacity building much training institutes and trained personnel to improve service provision related to AT with one goal.com 418 Rowan Avenue. As a result. the product. it's about the person. very much. The world report on disability reinforces this fact. the war victims fund and the wheelchair program.. Thank you very much for inviting me to speak here today. Hamilton Twp. cultural and political equality. are supporters of many of the activities related to this side event. we have invested heavily over the past 15 years positive to facilitate consensus conferences. After all. Like Venus. with the international society for prosthetics and orthotics and others to promote access to assistive technology. We recognize that assistive technology has two equally important components. NJ 08610. but also the service provision. 866-828-1822 Toll Free ROUGHLY EDITED . And we realize that besides the non-availability of assistive devices. the devices themselves.

NJ 08610.com 418 Rowan Avenue. very much. >> Thank you. 2013 who can bring various stakeholders together like this event. I'd like now to move to our last speaker on the program who was going to be Yannis Vardakastanis. Several articles of the convention on the rights of persons with disabilities ask that member states ensure greater access to assistive devices and the 134 countries that have ratified the convention are no morally and legally obligated to insure access to assistive devices as a fundamental right but to realize this the member states especially low and mid-income countries need support from the international community. their families and organization increasing access to assistive technology. very much. Thank you. Article 32 of the convention specifically notes the importance of international cooperation to improve access to assistive technology and I think this event is an ideal platform to lay the foundation for more global cooperation. Our contribution will be read by my interpreter. so we will replace him.c2ccaptioning. 866-828-1822 Toll Free ROUGHLY EDITED .. I understand that insuring the availability of high quality affordable technology health technology is one of WHO's key priority areas in the coming years so we are at the right place at the right time. But he couldn't be with us right now on behalf of IDA. Hamilton Twp. Rob. Already the UN www. Assistive technology is full participation of people with disabilities.15 High-Level Meeting on Disability and Development September 23. Perhaps it's a bit presumptuous but I believe that WHO has the proven leadership to spearhead such global cooperation and I'd like to say that USAID stands beside you and will do all we can to help or realize a world where everyone as access to needed assistive technology. IDA is a key player in the field and I'd like to ask you to talk a little bit about the role of persons with disabilities. and influence and support member states to insure greater access to high quality affordable assistive technology. (Applause) >> Thanks. something like that. sorry. It is my great privilege and honor to be here at this event and I believe that we need to development a global initiative to improve access to assistive technology.

data collection about needs and insuring access to affordable and quality devices that facilitate access to communication. The CRPD adopted in 2006 and ratified by 134 countries signed by 156 formalized states dues to insure universal access to assistive technology which means all persons with disabilities including poor people and people living in rural and remote areas should have the access to affordable and quality assistive technology that they need. and very often recycled AT. NJ 08610. simple things such as adaptive spoon which can increase autonomy of many people with disabilities is ignored by most. In the large number of low and middle income countries there is a combination of absence of production and very limited public finances and delivery mechanisms both in range of devices and geographic coverage. Some key issues faced by countries in insuring access includes availability and high costs of AT. Quality of AT is a major concern.. 866-828-1822 Toll Free ROUGHLY EDITED . Often AT available are limited to some mobility devices while other types of AT for access information or daily living activities are not available. With limited and poor www. This makes people with disabilities dependent on well-intended but random and uncoordinated NGO's. mobile and overall personal autonomy. 2013 standard rules of equalization in 1988 recognize assistive technology as a precondition for participation yet even after 15 years according to the WHO only 5 to 15 percent of people who require AT actually have access to AT. on the other hand many do not have standards. In these situations the reach is very limited and most people with disabilities do not get what is best suited for them.com 418 Rowan Avenue. The diverse needs create a fragmented market demand which appears unattractive for manufacturers who do not see a business case. Hamilton Twp. raising awareness of assisting assistive technology. Duties include promoting research.c2ccaptioning. Low production brings costs high. While on one hand some manufacturer as controls the market globally by monopolizing. As smart phones are reaching a growing part of the world's population. At the end the majority of persons with disabilities have to self-finance. This demand could only be consolidated by an adequate national policy.16 High-Level Meeting on Disability and Development September 23.

The areas of incorporations are numerous. We need to learn more for universal health coverages www..17 High-Level Meeting on Disability and Development September 23. regional and public private cooperation to boost overall availability as well as to insure universal coverage. Hamilton Twp. Those stakeholders should create a global alliance to support access to AT. Like for access to essential medicine.c2ccaptioning. 2013 quality attracting buyers who suffer from the adverse effects of it. While a number of countries would make sincere efforts to fulfill their obligations the challenges that block access to quality and affordable AT require international cooperation in line with Article 32 of the CRPD. Disabled people’s organizations as well as international NGO's which have experience in underserved areas and difficult environments.com 418 Rowan Avenue. Not only low and middle income countries are having these challenges. and World Bank standard setting organization. The rise in the number of elderly people globally should be a huge incentive to rethink globally what states to have do to insure access to AT. For instance we need further data on these for AT to give the overview of an aggregated demand that can trigger more investments by both public and private stakeholders. companies to see what would motivate them to produce more at lower costs. All countries would have significant gains in supporting the development of low cost quality assistive technology for all people with disability and elderly people. We believe that this cooperation must be going beyond north/south cooperation. This global effort should include governments. building on lessons learned from the global fight against HIV and AIDS or access to essential medicines and fostering fruitful public private partnerships as well as South South Corporation. UN agency. The cooperation should be framed by the principals and provisions of the CRPD and support plans and priorities geared to guarantee access to AT by all persons with disabilities in need. 866-828-1822 Toll Free ROUGHLY EDITED . NJ 08610. access to AT requires global. We need to engage with private sectors. both in the developed as well as in the developing countries. Increasing co-payments for outrageously expensive devices.

We should encourage regional corporation between countries. 866-828-1822 Toll Free ROUGHLY EDITED ..18 High-Level Meeting on Disability and Development September 23.com 418 Rowan Avenue. Hamilton Twp. www. 2013 and experience on design of delivery mechanisms to ensure universal coverage. and health global fund. rehab international. to both of you and to IDA in general for the fantastic work which brings us to the end of our program of speakers and we are going to open now for discussion. too and we have about 12 minutes left. either you all speed for one or two minutes or only the first three or so will be able to speak. tax levy. ISBO. Not of them is out of reach. We need to access the proven mechanism to ensure medicine to be adaptive to AT as well as simplified rules of trading including tariffs and intellectual properties. the chair of the Papa New Guinea and disability forum. (Laughter) So an important decision to take. very much. Ensuring access to AT globally must be a prior to entire irrespective of what the post 2015 agenda highlights to enable people with disability to benefit equally from development agenda and sharing access to assisting technology it's a very concrete and achievable relevant goal that could have tremendous impact on lives of millions of people with disabilities. It's crucial to set standards both to insure minimal quality and safety in assistive technology as well as to insure accessibilities of mainstream devices such as smart phones that can be great assistive technology. wheelchairs and hearing aids.c2ccaptioning. Those are only a few issues. I do already have a long list of people who want to participate in the discussion. the Cambodia Trust. Katie. NJ 08610. AT such as prosthetics. Thank you. (Applause) >> Thank you. you. what do we do? >> One or two minutes? >> One minute each. Did you want to say something? >> I already have the association for tad advancement of assistive technology in Europe. Air travel.

provide access to markets by stimulating the product and independent advice centers. So you allow me then to make a little sign when one and a half minutes is past. >> Thank you. 866-828-1822 Toll Free ROUGHLY EDITED . (Applause) >> Thanks. very much. >> Yes.. 2013 >> One minute each? Is that okay? Is that acceptable to you? It's your decision.there is a policy framework on disability and development. among stakeholders including end users. As networks use to international collaboration we confirm or support and active participation in all these initiatives. for giving me this opportunity to speak on behalf of people with www. and you find the logo and the key message we have left for members of the assembly. NJ 08610. I look forward to working with you. Happy to represent not only that organization but also sister organizations in Japan and Australian. I move straight to chair of the Papa New Guinea association of persons with disabilities. One minute. 53 seconds. locally with a bottom up approach highlighting the role years can have in this. Upon having such a framework actions can be undertaken to increase awareness on all aspects of technology. I'll skip everything just to mention that we would like to -. investigate the role of AT for emergent pathologies and aging societies. We will start with the association of advancement of assistive technology in Europe. In our view these are all activities that have to be implemented. chairman. for the opportunity.com 418 Rowan Avenue. >> One and a half minutes. increase understanding of political socioeconomic and social factors that impact on AT.c2ccaptioning. And to support research and innovation to which is reliable and affordable assistive technology solutions including interactions with mainstream IT devices. thank you. Perfect.19 High-Level Meeting on Disability and Development September 23. At the international level following up on Article 32 of the convention that calls for international collaboration we should continue increase the space on the interactive processes. Hamilton Twp. facilitate knowledge sharing.

In the pacific is for access for people with disabilities in what can be called essential assistive technologies. those devices or technologies that are essential for living just as essential medicines are to maintaining the health of citizens of every country. the availability and affordability and choice of assistive devices. (Applause) >> Thank you. how well it fits them and how well it meets their needs. What is currently available is for the most part an appropriate and expensive and of poor quality. 866-828-1822 Toll Free ROUGHLY EDITED . very much. Hamilton Twp. This means hearing aids and essential visual aids. Wheelchairs maybe provided in a limited way however no prosthetic limbs. hearing aid. people with disabilities and their representative organizations need to be more involved and must be consulted in the decisions regarding what assistive devices are to be provided and made available in our country. the www. In Fiji a new very low cost technology has been introduced however there has been no formal evaluation to see whether the devices are working.20 High-Level Meeting on Disability and Development September 23. Where they are included in budgets there are serious limits. >> Thank you. very much. assistive technology is extremely limited. The vast majority of people who receive a device do so as recipients of donors of service providers with limited say in the choice of device. For people with disabilities living in the pacific region. Most importantly. Thank you. et cetera. the devices are distributed. An essential assistive device list would be a very useful tool to provide guidance for governments regarding what assistive diseases or technologies should be available.com 418 Rowan Avenue. 2013 disabilities in the pacific. which is the role of international NGO's related to this issue. Very much governments in the region include assistive technology in their budgets. We continue with Rehabilitation International.. I will use my 90 seconds to address what WHO has asked me to address. And I will start out by saying that without civil society and civil society working. This is the case whether the device is a wheelchair. There is often very little oversight regarding the quality.c2ccaptioning. Overall. NJ 08610.

NJ 08610. Hamilton Twp. >> You'll be pleased to know I don't want three minutes I want one minute because the presentation made by the International Disability Alliance really stole my thunder and took everything I wanted to say. I would just like to add one thought that had occurred during that presentation.c2ccaptioning. As we have all acknowledged the need for higher standards in those professionals who apply and use assistive technology with people with disability. WHO as soon as possible should ask for a world summit on this issue inviting civil society. But let's move to Cambodia Trust. I had planned to speak for three minutes. Both nationally and internationally.but I will finalize my speech by only saying one thing. inviting disabled people's organization.com 418 Rowan Avenue. (Applause) >> I'm glad you told you 90 seconds because it was almost three minutes. And while we are able to do that is due to commitment. 2013 world will not move forward. Karlson. I'll only now speak for 90 seconds which means that I will drop all the rest I had planned to say which was of course very brilliant but -. (Laughter) We can talk afterwards because I'm curious about that summit to discuss more what is the real objective of the summit. The role of the civil society is to move the world in the right direction.. to hard work and innovative approaches. inviting governments. I think that to move this issue forward.(laughter) -. Period.21 High-Level Meeting on Disability and Development September 23. No UN country would really have been able to portray this issue without this strong commitment and hard work and wise decisions and advice from the disability movement and other civil society as associations. There's been no such thing as CRPD without civil society. 866-828-1822 Toll Free ROUGHLY EDITED . And I think most of us in this room would agree was an excellent presentation. and also as we look for greater investment in new technologies and better technologies and more affordable technologies. to strategic lobbying. inviting private corporation. inviting all good forces that can move this obvious question forward because not investing in assistive technology for people with disability is stupid. I would just like to add one www.

The user involvement is so natural. Use involvement. ISBO. And I have three points and three answers to that. very much. That is also highly important. (Applause) >> Thanks. 2013 thing to this room. And actually that's the only three points I have.c2ccaptioning. which I have not heard discussed. which we said many times today. 866-828-1822 Toll Free ROUGHLY EDITED . Thank. At least as we say in Britain.. Hamilton Twp. I just want to say something about setting global standards. And again. And recognize the profession and the professionals. If we set the global standards. NJ 08610.22 High-Level Meeting on Disability and Development September 23. we must also do something similar in assistive technology and try to develop strategies that work with the private sector. And these partnerships are working all over the world and are working well and certainly if we are going for some kind of world congress on assistive technology. But the last point is follow-up. I kept it down to one minute. the not-for-profit sector and the government sector. So as we move forward and developing strategies towards assistive technology. very much. very much. I would really like to see the private companies there as well. it's highly important that the local government also certify and recognize this standard. the local government needs to support and enforce the need of follow-ups. and that is creating a market. The thing think is setting global standards which we all already do. follow up. How we can insure that assistive technology is appropriate and useful to the user. Thank you. washes its own face. the public sector. And as number three. I think as the pharmaceutical companies and the pharmaceutical researchers did during the movement towards anti-retro virals in the HIV high level meetings. >> Thank you. I was asked to answer a question and the question was more practical. because I think we all accept that sustainability can often be hand in hand with something that looks profitable. so I don't need to say anything more about that. Huh? (Laughter) (Applause) www.com 418 Rowan Avenue.

23 High-Level Meeting on Disability and Development September 23. We need to insure that we have that or induction loops around the world. 2013 >> Thank you.com 418 Rowan Avenue. I would just like to say it's a great honor to be here today as port of such an important event. museums. very much. Just so you know who I am since I know this is unorthodox. >> As a former intern. Hearing aids alone are not sufficient. 866-828-1822 Toll Free ROUGHLY EDITED . This is Katie from Michigan State University. For me assistive technology as paved this world of opportunity for participating to higher education and economic and social constraints. inclusion. good health and poor health. >> We need to discuss assistive technology not just at the poverty level but for the entire economic spectrum. I'll give the floor very briefly to Janis from hearing access program and finish with Katie before we wrap up. please? Sorry. >> Thanks.c2ccaptioning.. >> Can you move one chair. Assistive technology for people with hearing loss is more than hearing aids. dependent. Just as in this room there's an assistive listening system such as I believe an FM or infrared. very much. I'd like to move to our last speaker from the floor and very happy this can be somebody who actually uses assistive technology. NJ 08610. As I enter into my senior year at Michigan State University I realize that my personal academic success would not have been possible in the absence of specialized products and services which have allowed me to effectively and successfully compete in the sighted world. >> Thank you for agreeing to give me a minute. theaters and my organization is the one that did it all over New York. Hamilton Twp. These systems are critical for effective access for people who are hard of hearing especially in employment. Katie. Thank you. >> Sorry. >> Which leaves us time for our two last speakers. For persons with disabilities access to the necessary and proper assistive technology tools with mean the difference to independent. As my independence is my most www. If we do not. assistive technology will always be about charity rather affective access.

also on behalf of the director general. (Applause) >> Thanks. Thank you.c2ccaptioning. Hamilton Twp. From a personal standpoint I can honestly say I'm one of the privileged few who have been given the opportunity to be successful in independent by means of access to higher education made possible by the availability of assistive technology tools. And I never thought it would be possible but we more or less are going to be finishing on time so I want to thank all of you because I know I pressed you hard to stick to a short time frame. Was downright heart-breaking and clearly needs to change. www. Therefore we must all commit to providing essential assistive technology products and services to persons with disability under around the world to turn distant dreams to reality. I have seen firsthand this is not necessarily the case for all persons with disabilities around the world. NJ 08610.24 High-Level Meeting on Disability and Development September 23. I know we can continue for hours and hours because there's so much wealth and experience in the room so thanks and forgive me if I was too harsh on me. We are fortunate to have her here with us. 2013 important thing my life I'm important to have been born in the right time and right place having access to most advanced products and services known to man. She's WHO assistive director for health and information which means he oversees all of our activities. not a right for the many this. 866-828-1822 Toll Free ROUGHLY EDITED . acknowledging and acting upon the notion that assistive technology bridges the gap between inclusion and exclusion and should know longer be viewed as a privilege for the view but as an essential right for the many. Keeny. After spending an afternoon with a group of high school students at the institute nor the blind in Brazil it became painfully clear to me that assistive technology was a mere privilege for few. Katie.com 418 Rowan Avenue. I want to make sure we will have a few minutes left for Dr. very much. While efforts must continue to be made in both the developing and even more so in the developing world 124 this cannot be achieved without recognizing..

NJ 08610. we have listened to ideas and commitment contributed by many of the speakers including from my own agency in WHO we are firmly committed to scale up our efforts in the area of AT. I thank all the participants to this important side event. Actually I'm assistive director for health systems and innovation. AT is a great enabler and a game changer. 2013 >> Thank you. all the supporting organizations and individuals who made this side event a success. Thanks a lot. Hamilton Twp. very much.) www. This side event is definitely an important complement to the high level meetings. which is more relevant to this meeting. Shin to thank our co-hosts. the Philippines governments. 866-828-1822 Toll Free ROUGHLY EDITED . It resonates and should need to new global collaborations and initiatives of the lives of one billion people. (Applause) (Meeting concludes at 2:30 p. And finally. work and plans and finally. Today we have heard important messages about the importance of assistive technology. based on personal accounts as well as on global and national statistics.c2ccaptioning. importantly.com 418 Rowan Avenue. I would also like to especially thank the Nippon Foundation and USAID for supporting these events. The gaps in access and quality of AT as well as a potential for improvements. But have a potential to make great progress in the coming years. The obstacles faced by people with disability when they do not have access to AT as well as the again benefits when they do.25 High-Level Meeting on Disability and Development September 23.m. Ladies and gentleman.. We have to insure that everybody has access to assistive technology I'd like to join Dr. The efforts that development agencies are making and will be making in the future. I'm honored to be here to deliver closing remarks on behalf of World Health Organization. the speakers who have shared with us their experience.