;+",+%<+9 62 3456 7 =$ <+ >''$0'#+? Note: Meetings are held at 7:30pm, the first Thursday of each month at the Belcher Pavilion at Anne Arundel Medical Center in Annapolis. From the 2 nd floor of the parking garage take the entrance into the Belcher Pavilion and once inside take the elevator to the 7th floor and check with the 7 th floor desk for the room number. If AA County Schools are closed due to inclement weather, there will be no meeting.
!"# %&&# %'(&)#* +,(&-./ 01'.*1&)/ 23-,4. %33,561-6,&/ 7&58 (AAC0A) is a non-piofit, volunteei-baseu oiganization ueuicateu to pioviuing ieassuiance anu emotional suppoit foi people who have hau oi will have some kinu of ostomy suigeiy, such as a colostomy, ileostomy, uiostomy (uiinaiy uiveision) oi a continent pioceuuie. The goal of the AAC0A is to pioviue moial suppoit, infoimation, anu euucation to people with ostomies anu theii families anu fiienus. Nembeis ieceive The Rambling Rosebuu newslettei monthly. 9:;< 1'# =>? please make check out to AAC0A anu mail to Stan Bakei, 9S8 Fall Riuge Way, uambiills NB 21uS4-14S4 0#4@#'3"6A %AA*651-6,& !"#$%# !'()* Full Name _______________________________________________________________________________________________________________________________ "#$% &'($% )*+* Auuiess: _____________________________________________________________________________________________________________________ ,%(--% .//(-$$ .0#(%1-2%342'% 5 _____________________________________________________________________________________________________________________ 6'%7 ,%#%- 8'0 69/- Phone: ( ) Bate of Biith: uenuei: Email Auuiess _____________________________________________________________________________________________________________ Reason foi suigeiy: ____ Ciohn's ____0lceiative Colitis _____ Cancei _____ 0thei__________________________ Emeigency contact if we aie unable to ieach you: ______________________________________________________________________ +,$* *-.# /0 %1'2#'- ,$3# -/1 ,$45 Colostomy 0iostomy SpouseFamily Nembei Ileostomy Paient of chilu with 0thei (please specify) 6 7/1"4 "(8# */ ,#". 7(*, *,# 0/""/7()2 9/::(**##;%< /' $9*(3(*(#%= Finance Bospitality Nembeiship Newslettei Piogiam Refieshments Sunshine visiting >/7 4(4 -/1 ,#$' $?/1* 1%5 Inteinet Seaich ETW0CN Nuise 0thei Bospital Physician
A WORD OF THANKS for their constant support of our Chapter to: The American Cancer Society, especially the office in Gambrills, for essential help with our newsletter; and Anne Arundel Medical Center for providing rooms for our regular meetings and special events. We appreciate their support and assistance. +%-1$ :(91 %;'$ 2-<$=-%%-( 1#7 >- (-0('2%-/ '2 9%;-( 9$%917 2-<$=-%%-($? 0(9@'/-/ 0(90-( A(-/'% '$ B'@-2 #$ %9 $9C(A- 9: 1#%-('#= REMEMBER!!! The entrance to the Belcher Pavilion is FROM THE SECOND FLOOR OF THE PARKING GARAGE. Once inside the building you will be on its second floor take the elevators inside up to the 7 th floor. When leaving, take the elevator the second floor and go through the doors onto the 2nd floor of the parking garage.
OSTOMY ADVISORS FOR STOMA HELP To consult with one of the ETs below, a physicians referral is necessary and a fee will be charged. Call for an appointment. BALTIMORE WASHINGTON HOSPITAL Carol Canada RN, BSN, CWOCN 410-787-4578 ANNE ARUNDEL MEDICAL CENTER Michelle Perkins, RN, BS, CWON Email: mperkins@aahs.org Laura Alberico-Klug, RN, BSN, CWON Email: lalbericok@aahs.org 443-481-5508 / 442-481-5187 Fax: 443-481-5198 Private Consultants Joan M. Sullivan, MAS, RN, CNA, CWOCN 410-932-7312 Foi those seiving on the boaiu, the next boaiu meeting is Septembei 1Sth at 7:Supm BC>DEBC>F
9BE *?AA 0S6S B '?AA TS6S %04 *?AA 0S6S B )?AA TS6S !"##$$% '()*+"% ,'-. /-. !01-
Hello Everyone,
Is the dry, summer heat doing a number on your skin? Did you know that Austin Pharmacy & Medical Supplies carries a superior line of barrier creams, ointments, lotions and moisturizers to address all of your skin heath needs?
From protective barrier pastes lined with Calamine, Zinc, or Dimethecone to Ammonium Lactate creams to hydrate severely flaking skin. In addition, we have the right products to combat your skin fold rashes and fungal rashes too.
If you have questions about skin care or would like to obtain product samples, please call me at 410- 773-0300. Come by to see what's in store, we have the products right for you!
Best of health, Colleen
August 2014 The Rambling Rosebud
4 PRESIDENTS MESSAGE We have always been very grateful for the support of the American Cancer Society office in Crofton who allowed us to use their copy machines and provided the paper for us to produce our newsletter. However we were sad to learn that their Crofton office will be closing this summer. Printing the newsletter is a significant expense and we are currently investigating other avenues to fund it other than our dues. Which reminds me, it is almost time for our annual dues to be collected. We will be including a renewal notice in the near future so look out for that! Paul
GENERAL STOMA HINTS From the Anne Arundel County Ostomy Association Publication, A Little Help from Our Friends. Dont allow yourself to get caught short on ostomy supplies. Always have some on hand when you reorder. Keep a list of equipment you use, with number, size, and manufacturer; let a family member know where that list is. If you happen to puncture your appliance, brown plastic tape used for sealing boxes can provide a quick patch job until you can change your appliance. To remove abdominal hair from the area around the stoma, shave the area with an electric razor. Rather than risk a cut with a safety razor, you may be safer if you trimmed with scissors. Again, never use commercial hair removers. When first applying a skin barrier, gently rub the barrier with a finger which will generate friction and thereby help the ostomy barrier adhere more quickly to the skin by melting in onto the skin. Although alcohol is effective in removing soap film from the skin, it is extremely drying to the skin. Aging skin, which naturally contains less moisture, is especially susceptible to the drying affects of alcohol. Instead of alcohol, use a greaseless soap to clean the area around the stoma. Polident and Efferdent are very effective for soaking you're your pouch (if using a two piece system). They deodorize, remove stains and clean. Never use a sun lamp to dry skin around the stoma. The lamp produces ultraviolet light which will burn the skin. A hair dryer on LOW heat can help dry the skin around the stoma IF necessary. Do not expect the pouch wear times in the summer to be as long as those you experience in the fall, winter and spring. You may have to change more frequently. IF the wear time is very poor, discuss the possible problems with your ET. The barrier may or may not be some of the problem. If you use a two piece system and participate very actively in sports, use a belt designed for your set up or use a 10 inch strip of 2 or 3 inch tape to secure the pouch and the barrier to your abdomen to prevent the pouch from popping off the barrier. To save money and give added comfort, make your own appliance covers. Use an old T shirt or slip. To make a quick pouch cover to fit between the pouch and your skin, simply cut a barrier from one of the super absorbent paper towels following the shape of your pouch.
It may be true that there are two sides to every question, but it is also true that there are two sides to a sheet of flypaper, and it makes a big difference to the fly which side he chooses. CMS Journal THE MI D-ATLANTI CS LARGEST OSTOMY DEALER We have a dedicated group of Ostomy Supply Consultants that are committed to keeping you in your active lifestyle. Northern Pharmacy and Medical Equipment has an attentive staff that cares about your quality of life. Make us your first step in getting back to life as it was meant to be. After all
Weve been here for over 75 years, there must be a reason! Our Ostomy Department provides a full range of comprehensive services and quality products from trusted brands you can rely on. WE OFFER: Delivery anywhere in the United States Free delivery available Next day delivery is available Large inventory of ostomy & wound care supplies in stock (we stock an inventory of over 5,000 boxes of supplies) Customized hospital and clinic service plans available In-house Medicare and insurance billing specialists Personalized pharmacy/medical supply specialist available Easy ordering by fax, phone, online, or in-person. Toll Free 24 hour hotline Acceptance of all major credit cards Northern Pharmacy and Medical Equipment 6701 Harford Rd, Baltimore, MD 21234 Harford Rd & Northern Parkway www.NorthernPharmacy.com SPEAK DIRECTLY TO OUR OSTOMY SUPPLY CONSULTANT: KEITH CAPPS Phone: (410) 254 2055 x249 Fax: (443) 740 9297 kcapps@northernpharmacy.com August 2014 The Rambling Rosebud
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B12 DEFICIENCY IN THE OSTOMATE Lyn Rowell
Shortly after having ostomy surgery, I read a few articles about the need for some ostomates to have B12 supplements. Apparently B12 is absorbed at the lower end of the small intestine, so individuals who either have impaired small bowel function or part of their small bowel removed, will most likely have a deficiency. So what is B12 and why do we need it? According to the National Institutes of Health (NIH), Vitamin B12 is a nutrient that helps keep the body's nerve and blood cells healthy and helps prevent a type of anemia. B12 is found in fish, meat, poultry, and dairy products which is why vegetarians or vegans need to take B12 supplements. It is also found in some fortified cereals. Why is B12 so important? A B12 deficiency can have some serious health effects and so should not be ignored. From the NIH website Vitamin B12 deficiency causes tiredness, weakness, constipation, loss of appetite, weight loss, and megaloblastic anemia. Nerve problems, such as numbness and tingling in the hands and feet, can also occur. Other symptoms of vitamin B12 deficiency include problems with balance, depression, confusion, dementia, poor memory, and soreness of the mouth or tongue. Vitamin B12 deficiency can damage the nervous system even in people who don't have anemia, so it is important to treat a deficiency as soon as possible. How will you know if you have a deficiency? The only way to know for sure is to have your doctor do a blood test. It may take a few months before B12 levels drop so it should be checked a year or so after ostomy surgery. However if you feel tired and weak or have any of the symptoms listed above, you should talk to your doctor about whether or not you have a shortage of B12 in your body.
How is it treated? The good news is that it is easily corrected. However, if your deficiency is caused by absorption issues, then the over-the-counter B12 supplements will probably not be of any help. Most often this is treated with a series of B12 shots, usually beginning with a few weekly shots to bring the levels up and then maintained by monthly shots. Most often these are administered at the doctors office but some individuals give the shots to themselves. The aim is to keep the levels constant although I have found that a few days before the next shot was due, I began to feel tired until I got the next shot. There is another way to take B12 though recently there was a shortage of injectable B12 which led to my discovery of sublingual B12 drops and pills. These are dissolved under the tongue and while the NIH website states that there is no evidence that sublingual forms are better absorbed than pills that are swallowed, I have found that there is a difference. Another bonus is that by taking a daily dose I am able to keep the levels constant. Check with your doctor about dosage.
INFECTION IN UROSTOMIES Via: Johnstown UOA Newsletter
Germs are all over the world, but when they are in the urinary tract, either in the conduit, the urethras or the kidneys, theyre in an abnormal location and that is what promotes an infection. What causes the infection? The reasons are sometimes unclear. Why do some people get more colds than others? Infections can be caused by an obstruction, kidney stones, tumors, cysts or scar tissues. Almost synonymous with obstructions is infection and then too often comes stone formation. You cant get rid of the infection. Its kind of a cycle that goes around and around. Everyone has a photographic memory. Some just dont have film. August 2014 The Rambling Rosebud
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Infection can be caused by urine being forced back to the kidneys through the conduit. This could be done by falling asleep with the appliance full of urine and accidentally rolling over on the pouch, causing urine to be forced back into the stoma, through the urinary tract with tremendous pressure. Invariably the urine in the appliance will be contaminated. In general, to prevent and treat infections, you need a good flow of urine much like a stream. This means DRINK fluids (water is best)! Extra fluid not only dilutes the bacteria in the urine, but also helps wash out the bacteria. Two and one half quarts of liquids daily is required for the average adult.
FOOD CHALLENGES: From ConvaTecs Health & Vitality, Fall 2003, Via: Hemet-San Jacinto If people living with an ostomy have deficiencies, its because theyre afraid to eat, and they impose too many restrictions on themselves, says Claudia Mueller, RD, a colorectal dietician at the Cleveland Clinic Foundation in Ohio. Trying to help each other, people with an ostomy often share war stories about the foods that bother them, creating a do not eat list of foods that can limit nutrient intake and compromise health. But its important to try out these foods for yourself, since each digestive system reacts differently.
Keep a food diary, testing one suspected food every 3 days. A registered dietician can help expand your food choices. Following are the two most common food concerns: Fear of Fiber Fear of a fiber- clogging stoma is big. But fiber is usually only an issue for people who dont chew their food very well, Mueller contends, although corn, popcorn, and nuts may always may always be a problem for someone with an ileostomy. The solution: Take your time, and chew, chew, chewat least 25 times with each bite of food you take.
Fear of Odor The challenge: Six to 12 months out, most people with an ostomy have achieved a good comfort level, says Leslie J. Bonci, RD, author of the American Dietetic Association Guide to Better Digestion, and theyre more concerned with odor. Fish, coffee, onions, garlic, chives, asparagus, and sometimes even poultry are the culprits. The solution: Try smaller portions, suggests Bonci, and include buttermilk or yogurt at the same meal to counter the odor-causing foods. Fresh parsley and spearmint help tooa reason to eat your garnishes. ********************* It is very easy to become dehydrated in the summer heat so make sure you drink plenty of fluids. If you are involved in strenuous activity in the heat, then it is important that you maintain your electrolytes. OSTOADE Solano Ostomy News If you dislike Gatorade and you want to restore your electrolytes, you may find this brew more to your liking:
1 tsp salt 1 tsp baking soda 1 TBSP White Karo Syrup 6 oz can frozen orange juice concentrate
Mix ingredients together and add enough water to make up to 1 quart. Sip throughout the day.