Professional Documents
Culture Documents
26
Early Childhood Stuttering 27
parents usually are reliable in diagnosing stuttering in
their child....the identification of early stuttering in clini-
cal settings is seldom difficult. We wonder why several
authors...have expressed a different opinion, emphasiz-
ing the great overlap and possible confusion between
early stuttering and normal disfluency, and cautioning
clinicians of the difficult task.51
Onset
Stuttering typically begins suddenly. Unlike other communication
disorders, stuttering begins after the development of normal
speech. Other communication disorders occur because normal
speech fails to develop, for various reasons.52 But stuttering chil-
dren first developed normal speech, or, typically, better than
normal speech and language skills. Then one day, one week, or
over a few weeks, the child starts to stutter.
Approximately 30% of stuttering children started stuttering in
one day, 40% started in three days or less, almost 50% in on week
or less, and almost 75% in two weeks or less.53
85% of parents reported that at the onset of stuttering, their
child repeated syllables and words three to five times per instance
of stuttering. In addition, 36% reported sound prolongations, and
23% reported conspicuous silent intervals during speech, 14%
reported blocks, 18% reported facial contortions, and 18% reported
respiratory irregularities. 36% reported moderate to severe tension
or force during speech. In contrast, only 32% of parents reported
that their child started stuttering with only easy, effortless repeti-
tions.54
Within one year of onset, most parents (53%) reported secon-
dary physical symptoms, including tension or strain in the face,
eyes, lips, tongue, jaw, and neck; respiratory irregularities, and
tense movements (jerks) of the head or limbs.55
The onset of stuttering was associated with illnesses or excessive
fatigue (14%), emotionally upsetting events (40%), and “develop-
ment stress,” e.g., toilet training (36%), for a combined total of
more than 50% of parents associating one or more of these stressful
28 No Miracle Cures
Recovery
In the Illinois Longitudinal Study of 89 stuttering children, most
children recovered from stuttering, without treatment or therapy,
within three years of the onset of stuttering (around age six).
The greatest period of recover was 31 to 36 months after onset
(five to six years old). Four years (48 months) after onset, approxi-
mately 75% of children recovered; and five years (60 months) after
onset 80% had recovered. None of the 19 children (20%) who
stuttered more than five years (i.e., were still stuttering after around
age eight) recovered, even though 17 of these 19 children received
speech therapy.59
Early Childhood Stuttering 29
Phonological Development
Phonological development is the ability to both perceive and
produce speech sounds (phonemes), many of which are subtly
different. It encompasses articulation disorders, which are an
inability to produce specific speech sounds. Either way the result is
a child producing unintelligible speech.63
The Illinois study found that soon after onset, children who
stutter are behind their peers in phonological development. Within
two years, the stuttering children catch up to their peers in
phonological development. The children who rapidly recovered
from stuttering also rapidly caught up with their peers in
phonological development. The children who persisted in stutter-
ing were slower to catch up in their phonological development.64
Language Development
The language abilities of young children who stutter has been the
subject of many studies. The “longstanding view” in the field has
been that young children who stutter have language learning
30 No Miracle Cures
expression (speaking).67
The children who went on to rapid recoveries (the black dia-
monds and squares in Figure 7.1) scored especially high. The
children whose stuttering persisted (the black circles and triangles
in Figure 7.1) had lower language scores, but still better than
normal. Over two years the stuttering children lost most their high
scores compared to their peers, i.e., their peers caught up to them
in language development.
Language is complex, integrating many areas of the brain, and
generalizations about language abilities may be inappropriate. For
example, I enjoy slowly composing and rewriting e-mails (and
books), but I dislike fast-paced online chatting or text messaging. I
can read and write Spanish, but I can’t understand spoken Spanish.
I was good at a job writing computer manuals, but I can’t write
poetry. My puns are infamous among my friends. Rap artists make
millions of dollars solely on their language skills, but rap songs all
sound the same to me.
Making the issue more complex, the ages between two and four
are when children rapidly expand their abilities to hear and speak
language.68 I have no doubt that some children develop some
language skills faster than other language skills, and this has some
relationship to stuttering, but the exact relationship is unclear.
Genetics
When a preschool stuttering child has several family members who
stuttered into adulthood, there is a greater chance that the child’s
stuttering will persist. If the child has family members who stut-
tered as children and then recovered, there is a greater chance that
the child will follow this pattern.77
A study of persons with Tourette’s syndrome and their families
linked three genes controlling dopamine levels to five disorders:
Tourette’s, stuttering obsessive-compulsive disorder (OCD), tics,
and attention deficit hyperactive disorder (ADHD).78 In other
words, high dopamine levels correlated with these five disorders.
Another study genetically associated stuttering to Specific Lan-
guage Impairment, autism, and Tourette’s.79
Autoimmune Dysfunction
Tourette’s syndrome is similar to stuttering in many ways. Persons
with Tourette’s syndrome have repetitive, semi-voluntary move-
ments (tics) such as eye blinking, throat clearing, coughing, neck
stretching, and shoulder shrugging. The tics are semi-voluntary in
that tics can be consciously controlled, but this typically exacer-
bates the tics. Touretters often control the disorder by substituting
more-acceptable tics. Different types of stress can set off or prevent
bouts of tics. Tourette’s has been described as “stuttering with
one’s hands and feet.”
In a subgroup of individuals with Tourette’s, a childhood auto-
immune “trigger” led to Tourette’s. A childhood streptococcal
infection caused the child’s immune system to attack brain cells in
the putamen area. When the child recovered from the fever, he or
she had Tourette’s. The putamen controls gross (large) muscle
movements. Abnormally high dopamine levels in the putamen area
Early Childhood Stuttering 33
Indirect Therapy
The Iowa treatment for early childhood stuttering is indirect
therapy. The aim is reduce a child’s fears and anxieties about
stuttering by altering the parents’ behavior.
34 No Miracle Cures
Direct Therapy
In contrast, direct therapy changes the child’s speech and behav-
iors. Typically these speech-language pathologists advocate treating
all stuttering children, as soon as possible after the onset of stutter-
ing. They believe that early treatment is more effective with less
time and cost than later therapy.106
However, little or no research supports these beliefs. One pro-
gram claimed 100% effectiveness for all the children who
completed the program—but only about half the children who
started the program completed it.107 Other programs make effec-
tiveness claims without presenting data.108 Still other programs
have good research but failed to use a control group.
Different studies use different methods to measure stuttering.
Different studies have different time frames (e.g., measuring
fluency one year post-therapy vs. three years post-therapy). Recov-
38 No Miracle Cures
bell. They then look through a picture book or look out a window.
This game is easy for a parent to play while driving with the child.
When the child says a word fluently, the parent says that that was
the magic word, and rewards the child. If the child stutters, he isn’t
rewarded. The parent doesn’t think of any word, but rather listens
for the child to say fluent words.
In the game “Can’t Catch Me,” one person gets a peanut when
the other person asks a question. You then quietly eat your peanut
before answering the question. If you answer the question before
eating your peanut, you must put your peanut back. The parent
should lose more peanuts than the child, by answering too quickly.
This reduces the time pressure the child feels about quickly an-
swering questions.
Modeling
Caitlyn, a four-year-old female who began to stutter in
the midst of her parents’ divorce, was exhibiting signifi-
cant struggle and tension behavior as well as secondary
behaviors. Of most concern was her head-banging be-
havior during difficult moments of stuttering. After many
sessions in which I attempted to eliminate this behavior
through fluency-shaping principles, I saw no change.
One day, shortly after Caitlyn banged her forehead on
the table to interrupt a block, I modeled the same be-
havior. Caitlyn was shocked and ignored me. After I did
this several times she asked me, “Why did you do that?
Didn’t that hurt?” I responded, “I don’t know why I did it.
But it sure didn’t help me get my word out!” Caitlyn
never again banged her head to help her talk. She has
been out of therapy for six years and remains fluent.121
Modeling only works when the clinician and/or the client know
how to replace the undesirable behavior with a target (good)
behavior. For example, it’s OK for your speech-language patholo-
gist to model your stuttering because she can then show you how
to speak fluently. It was OK for my Romantic Disaster of 1996
(page 117) to make me aware that I was stuttering, because I knew
what to do to talk fluently. It’s not OK to point out a problem to
someone if they have no idea what to do about it.