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Nine adults who had been reared by mothers diagnosed with psychosis reported
on their childhood experiences. Analysis of the retrospective data revealed the
five common themes of abuse and neglect, isolation, guilt and loyalty, grievances
about mental health services, and social supports. The resilience and coping
strategies of the participants are examined, and implications for therapeutic
interventions with .such families are discussed.
A revised version of a paper submitted to the Journal in April 1992. The author is at the Woodburn Center for
Community Mental Health, Annandale, VA.
177
178
Subjects
Nine adults who grew up with a psychotic parent participated in this study. Four
men and five women, all Caucasian and
ranging in age from 2 1 to 4 1, were interviewed. One was a journalist, one an engineer, one owned a small business, three
were students, one was in human services,
one was a market analyst, and one (who
had also been diagnosed with schizophrenia) was unemployed.
Study participants comprised a selfselected, purposive sample solicited through
classified ads placed in newspapers, notices in newsletters of the Alliance for the
Mentally Ill, and referrals by mental-health
providers. The criteria used to select subjects were that a parent had been diagnosed
with psychosis, that the subject lived with
that parent during the early childhood years,
and that the subject no longer lived with
that parent.
Twenty people conforming to the study
criteria responded to the notices; 18 had a
mother diagnosed with psychosis and two
had a psychotic father. In view of the small
number with a psychotic father, it was decided to limit the study variables by interviewing only those who had grown up with
a psychotic mother. It was also decided to
include only those respondents who could
179
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be interviewed in a timely manner and were
within a one-hour drive; this reduced the
size of the final sample from 18 to nine
subjects.
Although schizophrenia is equally common among men and women, there are many
reasons for the significant difference in the
number of respondents with a psychotic
mother versus those with a psychotic father. The known ratio of schizophrenic
mothers to fathers is two to one. Because
onset for schizophrenia is generally later in
women than in men, and marriage and procreation occur earlier for women, women
have a greater chance of finding a mate and
bearing children before their first psychotic
episode (Gottesman, 1991). In addition,
children usually remain with the mother
when the parents do not live together, even
in cases in which the mother is severely
mentally ill. Thus, psychotic women are
more likely than are psychotic men to be
caregiving parents. It would be important
to explore, in future studies, more about
the consequences of having a father with a
psychosis.
Four of the mothers of study participants
had been diagnosed with schizophrenia,two
with bipolar disorder, and three with multiple disorders that included either schizophrenia or bipolar disorder.
Procedure
Information was obtained through use of
a three-part semistructuredinterview. In Part
One, participants were asked about their
family structure and history, parental diag- Abuse and Neglect
All participants spontaneously described
noses, hospitalizations, and treatments, as
the
abuse or neglect they experienced due
well as about any mental-health treatment
to
their
mothers mental illness, ranging
they received as children and other contacts
from
maternal
withdrawal to extensive physwith mental-health providers. In Part Two,
ical,
and
in
one
case sexual, abuse. The
questions addressed participants childhood
mothers
distorted
sense of reality had a
relationships with their mentally ill mother
profound
effect
on
her ability to provide
and with other family members and friends.
consistently
for
her
childs
basic needs. One
Participants were asked to identify what their
young
man
in
the
study,
a
college student
needs were at the time and how those needs
were or were not met. They were also asked whose father was a respected professional
for their opinions about contacts with men- in his community and whose mother had
tal health professionals. In Part Three, sub- been diagnosed with paranoid schizophre-
180
As is evident in these accounts, surprisingly little effort was made to protect the
children from the abusiveness of the psychotic parent. Three participants spoke of
occasional support from their fathers, and
one father won custody of the children from
their bipolar mother, but fathers were generally seen by these children as physically
or emotionally unavailable to them. Four of
the fathers were alcoholics, and three left
their families when the children were very
young (after the mother had had her first
psychotic episode). Participants described
a childhood in which they received little
consistent attention from either parent and
where abuse or neglect were common.
Isolation
Participants spoke of feeling isolated from
their peers, their communities, and their own
families, and of being confused by these
feelings. Eight of the participants reported
that their mothers mental illness was not
discussed in any real way with them when
they were children:
Everybody pretended like nothing was going on. My
mother would go off and be hospitalized, and nobody
would tell us where she was, nobody would tell us
when shed be back-my father included. . . . Once,
they took my mother off to a mental hospital, and they
left my brother and me [aged six and eight] by ourselves. I recall this very vividly. We were alone in the
house until the next morning. Nobody ever said anything.
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My mom [a paranoid schizophrenic] used to always
think someone was in the house. She always thought
it was my fathers mother, and she would send [me
and my sister] upstairs to go look . . . and give us toast
and sandwiches to bring up to Grammy. And my sister
and I would go up and look, and come back down and
say, Grammys not here-and then wed get the
belt. So we learned to adapt. Wed run upstairs, [eat]
the sandwich, come down and say, Grammy said
thank you very much. . . . But my sister and I never
talked about it.
In addition to feeling isolated from family members, study participants also described a sense of alienation from the community and their peers. Although most
reached out to others at some time, whether
it was to a friend, a friends family, or a
teacher, they described feeling different from
these other, normal people, almost as if
they had two lives, each with its own reality. One man described his awareness of
never quite belonging, even while actively
seeking the company of a neighborhood family that welcomed him:
They had a nice home; I was comfortable and temfied
at the same time, because I knew I was differentthere was always a time when I was going to have to
go home. . . . I was always an outsider there, even
though I was always very glad to go over. I used to
have to limit myself to the times Id go over, because
I was pestering them-I knew I was pestering them.
181
Feeling isolated and different was a common experience for the participants in this
study. Several individuals described the confusing consequences of having a parent
whose reality was different from the one
experienced outside the family, and they
detailed the feelings of alienation that resulted. One woman described her sense of
being different due to her mothers distorted sense of reality:
I remember being embarrassed because my mother
would use words to describe things that I found out
later were not what things were. I remember Show and
Tell in school, and bringing something that was normal in my house, and the kids really laughed-they
thought it was really funny. Kids would laugh; teachers would whisper. I thought it was me-that there
was something wrong with me.
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to be negative. (The exception was a young
woman who, as an adolescent, went into a
psychoeducational treatment with her mother
and learned different ways to deal with
schizophrenia. However, an earlier experience with therapy had left this same girl
temfied when the therapist encouraged her
mother to describe her delusions, which seriously frightened her young daughter.) As
children, they often witnessed their mother
being taken away to be hospitalized, but
rarely received explanations of what had
happened or what to expect. Visits with
their hospitalized mother were recalled as
terrifying experiences that caused them much
pain and guilt. Often these children felt that
they were to blame for their mothers hospitalization. Many suspect that their mother
was mistreated or abused while hospitalized:
It felt like animals. The smells, the sounds, the screams,
the cold, sterile beds that barely had covers on them.
I couldnt imagine anything worse-to see your parent
in a place like that was temble.
Dont ever throw your mother in a state institution.
Thats one of the hardest periods I ever went through.
It was a cruel place. I think my mother was sexually
abused there . . . when she came out, she was very,
very frightened.
While contacts with the mental-health system in general were perceived negatively
by study participants, direct contacts with
mental health providers were described even
more strongly as unpleasant, guilt-provoking, or even harmful. One young man recalled a family-therapy session when he was
in seventh grade in which the therapist told
the family that his schizophrenic mothers
bizarre behavior was the familys fault. His
initial feeling of guilt was later expressed
with anger:
They try to peg what is a medical problem as something else . . . its just reprehensible to tell a bunch of
kids its their fault, but its still going on. . . . Its like
treating a cancer in the Stone Age.
concrete.
184
In therapy, participants were able to discuss their fears for their own sanity, very
common among children of psychotic parents, and reported working on setting limits, both emotional and physical, with their
mother. Some emphasized the relative safety
of the therapeutic setting; it was a place
where they could begin to explore their relationship with their mother, who had so
often seemed omnipresent and omnipotent
to them:
BONNIE DUNN
membered, however, that the small size of
the study sample limits the generalizability
of its findings, however informative.
The burden described by many families
of the mentally ill (Anthony, 1969; Hatfield, 1978) was experienced by all the participants in this study, particularly the neglect and the fear of physical harm they
lived with as a child of a psychotic mother.
The pervasiveness of the neglect is an indication of the devastating effect that the
mental illness of one family member has on
the entire family.
These participants confirmed previous
findings (Hatjeld, 1978; Hill & Balk, 1987;
Scottish Schizophrenia Research Group,
1987) that families of the mentally ill experience social isolation and alienation. They
described their neighbors and extended familys treatment of their mentally ill mother
as an outcast; further exploration found that
some children thought it was because of
something they themselves had done. In
part, the isolation was self-imposed because they would not talk about what went
on in the family out of a sense of loyalty to
their mother, or from a sense of humiliation
or shame about their situation.
Adding to their isolation was the confusion felt by these children when confronted
with the two separate worlds-that of their
family, dominated by their psychotic mother,
and that outside their family, represented
by school and peers. Acknowledging these
separate realities, usually in adolescence or
young adulthood, was accompanied by the
pain of having to acknowledge their mothers mental illness, and this caused participants to feel disloyal and guilty.
Feelings of guilt and loyalty, rarely mentioned in the literature regarding children of
mentally ill parents, emerged regularly during these interviews, pervading their childhood memories and continuing to touch their
adult lives. Separation guilt (Friedman,
1985; Weiss, Sampson, & the Mount Zion
PsychotherapyResearch Group, 1986),the
belief that pursuing ones individual goals
and striving independentlyfor personal well-
185
being is harmful to a loved one, was expressed by many of the studys participants
in their statementsthat they somehow caused
or exacerbated their mothers illness by leaving or by wanting to leave home. Survivor
guilt (Friedman, 1985; Weiss etal., 1986),
the belief that only a finite amount of good
things is available to each family, and that
the achievements of one member diminish
the possibilities for the others, was universally experienced. Even though the interview protocol did not include questions on
the subject, all the participants expressed
some form of separation and/or survivor
guilt, both as children and as adults. This is
significant, and is generally overlooked in
the literature regarding children of the mentally ill.
Contacts with mental health professionals and the mental health services were remembered as unhelpful and sometimes
harmful by study participants. They recalled feeling blamed for their mothers illness. Perhaps once-popular (but since discredited) family-systems theories that
attributed a childs schizophrenia to certain
parental behavior (Bateson, Jackson, Haley, & Weakland, 1956; Fromm-Reichmann, 1948; Lidz, Fleck, & Cornelison,
1966;Sullivan, 1927; Wynne,Ryckoff, Day,
& Hirsch, 1958; Wynne & Singer, 1963)
were generalized by some mental health providers into a belief that family behavior
could cause schizophrenia in any family
member. When social workers and welfare
agencies intervened, the childs negative
feelings about the actions of adults reflected a keen sense of loyalty to and responsibility for their mentally ill mother.
Guilt resulted when they felt they were being disloyal by leaving, or by speaking up
about the conditions in which they were
living. Thus, their perceptions of contacts
with mental health professionals as conflictridden and negative may have been influenced by feelings of guilt and loyalty. The
prevalence and strength of these emotions
have implications for therapeutic interven-
their resilience and ability to cope, particularly in tolerating contradiction and conflict in the service of mental health.
It is known that one study participant
entered therapy after having a breakdown,
and that one was treated for schizophrenia,
but questions remain as to why the others
entered treatment and how that affected
outcome. Did they enter treatment because
of unresolved traumas? What are the
differences, if any, between those who
enter treatment and those who do not?
What is the general outcome for those who
receive treatment as opposed to those who
do not? The interviews, while revealing
the seeming contradiction of seeking therapy after earlier negative experiences, did
not address these complex issues. Future
research oriented toward exploring these
questions could add greatly to our understanding of resilience and coping, and
could help to refine our understanding of
the therapeutic process with people who
have grown up with a seriously mentally ill
parent.
All participants reported having supports
of varying degrees outside the home. Research has emphasized the need for supports for children of the mentally ill (Gut?man, 1989;Rice, Ekdahl, & Miller, 1971;
Rurrer, 1975),but the support found by participants in this study was informal, from
teachers, other family members, and friends,
rather than the more organized socialservice supports recommended in the literature. Many participants, mostly the women,
described actively and aggressively seeking
out individuals and families who would welcome them and with whom they felt comfortable and safe. The men described themselves as less aggressive in seeking out these
supports as children, and reported that, while
they were aware of help when it was offered to them, they sometimes had difficulty accepting it.
In their research on resilient children,
Felsman and Vaillant (I987)noted the ability of some children to draw others to them
for support, a strategy reported by several
BONNIE DUNN
researchers who have studied children of
mentally ill parents (Fisher, Kokes, Cole,
Perkins, & Wynne,1987; Kaufman, Gruneh u m , Cohler, & Gamer, 1979; Kringlen,
1978). In these outside contacts, study participants never discussed their familys situation; rather, they seemed to use the relative normality and safety of these interactions to sustain them in their difficult family life, and to ground them in a reality
different from the one experienced at home.
It is not possible from the present data to
define the specific quality and nature of the
supports the participants received as children or to compare these supports to the
supportive relationships enjoyed by most
children. It is very important, however, that
these relationships were perceived by this
studys participants as critical to their development. Participants told of their supporters being major changing-pointsin their
lives and described them as rescuers, saviors, and people who kept them from growing up crazy like their mother. Further research into the quality and nature of the
supports that can sustain these children, as
well as the propensity of such children to
take the most possible sustenance from ordinary supports, may be useful.
This was a very small, self-selectedgroup;
that they chose to respond to solicitations
raises the possibility that they differ in some
ways from those who did not respond. They
may possess certain characteristics not
shared by some other children of parents
with psychosis, such as curiosity about the
subject, a willingness to share painful memories for the greater good, or a certain objectivity about the parents mental illness.
In his research on invulnerable children,
Anthony (1974) found that the more resilient children in his study were among the
most collaborative, supporting the possibility that the participants in this study may be
more resilient than others.
Eight of the nine participants of this study
were working and all described relationships of varying degrees of satisfaction in
which they were involved. Despite the small
187
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For reprints: Bonnie P. Dunn. M.S.W.. 3916 Brentwwd Coun. Fairfax, VA 22031