The Big Qs (thinking about the future)

Where will the co-production happen?

Why is the only democratically elected forum for people with
Learning Disabilities being dispended?
The regional forums wont work without the National Forum. The
regional Forums feedback to the National Forum feedback to the
Learning Disability Board.
Do the Department or Health even care about people with
Learning Disability? How are they showing this? We feel
abandoned.
We have done so much work the group is strong, self-advocates
and family carers, sharing their knowledge and experiences, this
will all be lost.
Hearing local voices nationally, valuing people with a Learning
Disability in the real world locally.
What happens when the next big crises happens in the Learning
Disability community. How will they hear out voices? Who will the
Department of Health talk to?
Who is going to reply from the National Forum to the Department
of Health?
The person left on the NLDB with a learning disability is an
employee from Mencap. How do they bring the voices of people?
They are not elected by their peers.
They dont work with people from the whole country.
How could the forum become something new? E.g. Community
interest company.
Who would lead on the change?
Where would the money come from?
Questions to Department of Health
o How will the National Board hear the voice of people with
learning disabilities and covers them?
o Have Dept. of Health done An Equality Impact Assessment.
o A campaign.
Have they given us notice that its in the contract. Have they
broken, how they will tell people?

 We want to have a plan by the end of today that can be shared

wider.
Why do the people most needed of a voice always targeted?
Have you thought about the impact on people (experts by
experience people with learning disabilities) not being nurtured
and given opportunities to be leaders.
The National and Regional gives people the experience to do
bigger things? And grow killing of the next Generation of Leaders.
The decision makers receive information from the National Forum
about leaving disability issues. This wont happen in future so they
wont know what we think.
Cant we bring everyone involved together.
Previous London Reps Richard Walker, Pat Charlesworth and
Dean Beach