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Cognitive-Behavioral Therapy for Children

and Adolescents with Obsessive-Compulsive


Disorder

Aureen Pinto Wagner, PhD

Selected by experts as the treatment of choice for youngsters, cognitive-behavioral


therapy (CBT) has emerged as a safe, viable, and effective treatment for obsessive-
compulsive disorder (OCD) among children and adolescents. Yet, most children with
OCD do not receive CBT, at least in part due to the shortage of clinicians who are well
versed in managing the unique challenges that arise in the treatment of children. This
paper reviews developmental factors that complicate the diagnosis and treatment of
OCD in youngsters; it discusses appropriate adaptations of CBT protocols for children;
and it presents the application of CBT for children and adolescents, using a
developmentally sensitive protocol that is flexible and feasible in clinical settings: RIDE Up
and Down the Worry Hill. Illustrated is the use of this protocol with a 15-year-old girl
with forbidden thoughts and praying rituals, and a 6-year-old boy with fears of harm and
reassurance-seeking rituals. Future directions for making CBT available and accessible to
children with OCD are discussed. [Brief Treatment and Crisis Intervention 3:291306
(2003)]

KEY WORDS: obsessive-compulsive disorder, cognitive-behavioral therapy, children


and adolescents, exposure and response prevention, Worry Hill metaphor.

Obsessive-compulsive disorder (OCD) is more behavioral problems, and family dysfunction


common in children and adolescents than once (Albano, March, & Piacentini, 1999).
believed, with a lifetime prevalence estimated at A substantial body of literature supports
2% to 3% (Zohar, 1999). Childhood OCD is often cognitive-behavioral therapy (CBT), specifi-
associated with severe disruption in social and cally exposure plus response prevention (ERP),
academic functioning, comorbid emotional and as the key therapy for OCD among adults (see
Marks, 1997, for a review). Exposure involves
purposeful and conscious confrontation of ob-
From the Division of Cognitive and Behavioral Neurology,
Department of Neurology, University of Rochester School of jects or situations that trigger obsessive fears;
Medicine and Dentistry. response prevention involves refraining from
Contact author: Aureen P. Wagner, OCD and Anxiety
Disorder Consultancy, 35 Ryans Run, Rochester, NY 14624-
the rituals that relieve the anxiety generated
1160. E-mail: awagner5@rochester.rr.com. by obsessions. Exposure and response preven-
2003 Oxford University Press tion must occur simultaneously for maximum

291
WAGNER

benefit. The most commonly proposed mecha- ognize, label, or articulate their obsessions or
nism for the eectiveness of ERP is that the fear triggers. A typical response of I just have to
process of habituation leads to the dissipation do it or I dont know may mislead unin-
of anxiety when exposure is sustained and fre- formed adults into believing the childs behav-
quent. Additionally, the realization that obses- iors are willful. Primary presenting complaints
sive fears do not materialize during ERP ap- of irritability, agitation, aggression, withdrawal,
pears to reduce the potency of the obsessions. or decline in school functioning may mask
ERP for OCD was developed for adults and ini- OCD and may be mistaken for depression, other
tially considered neither possible nor desirable anxiety disorders, or even attention deficit/
for children and adolescents. Since the mid- hyperactivity disorders. Children may keep their
1990s, several open-trial and single-case studies OCD a secret, and parents may be unaware of the
have led to the emergence of CBT as a viable, presence or severity or OCD (Rapoport et al.,
safe, and eective treatment for OCD in children 2000). Sensitive but direct interviewing by the
and adolescents (see March, Franklin, Nelson, & clinician may be necessary to uncover obsessions
Foa, 2001, for a review). These studies have and rituals that may underlie initial complaints.
yielded impressive and durable response rates, True OCD must also be dierentiated from nor-
ranging from 60 to 100%; mean symptom re- mal developmental rituals and fears that are com-
duction rates of 50 to 67%; and maintenance of monplace in childhood. The childs lack of abil-
treatment benefits for up to 18 months. ity to introspect or give specific examples of
Although the results of rigorous controlled symptoms or triggers also limits the therapists
studies are awaited, empirical and clinical re- ability to design eective treatment.
ports thus far indicate that children and adoles- Diagnosis is also confounded by the fact that
cents can utilize CBT as successfully as adults. OCD in children is a highly comorbid condition.
Based on these findings, CBT is recommended Up to 80% of youngsters meet criteria for an ad-
by experts as the first-line treatment of choice ditional DSM-IV disorder, and up to 50% dis-
for OCD in children and adolescents (March, play multiple comorbidities, most commonly in
Frances, Kahn, & Carpenter, 1997). However, it the form of other anxiety disorders (26%75%),
is believed that many, if not most, children and depressive disorders (25%62%), behavioral
adolescents with OCD do not receive CBT for disorders (18%33%), and tic disorders (20%
a variety of reasons. Many clinicians are not 30%; Rapoport, et al., 2000; Zohar, 1999).
trained in CBT for OCD and may not be familiar Dierentiation of tics from rituals can be sur-
with the unique developmental challenges that prisingly dicult. Depression is more common
arise in the treatment of children. In addition, among adolescents with OCD than in children,
clinicians often find that research-driven treat- and it may be reactive because it often occurs af-
ment protocols are neither practical nor realistic ter the onset of OCD. Comorbidity complicates
in clinical settings. course of illness in OCD, as well as treatment
Although OCD in children is quite similar in outcome (Albano, March, & Piacentini, 1999).
presentation to OCD in adults, developmental Second, regarding what they bring to CBT,
dierences between children and adults arising children and adolescents vary tremendously in
from age, maturity, conceptual ability, and lan- their level of future orientation, ability to delay
guage development may complicate the applica- gratification, self-reliance, maturity, and inter-
tion of CBT for children. First, OCD in children nal motivation. Children rarely seek treatment
may be dicult to detect and diagnose for a va- for themselves and are usually in the clinicians
riety of reasons. Children may not be able to rec- oce at the behest of a parent. In fact, they may

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Treatment of Children with OCD

be more motivated to get help to avoid their ment leads them to doubt its ecacy. Carefully
fears than to overcome them. Young children are assessing developmental issues, devising appro-
generally present-oriented and therefore less priate adaptations, and building a child and fam-
likely to appreciate the prospect of future im- ilys treatment readiness prior to the initiation
provement. Consequently, they may be reluc- of treatment are therefore vital to success.
tant to tolerate the potential anxiety of ERP to Recent manualized CBT protocols for children
achieve future rewards. Compliance with ERP have included developmental adaptations such
homework exercises can be particularly chal- as psychoeducation, age-appropriate language,
lenging because, naturally, most children dis- cognitive strategies for dealing with anxiety,
like and avoid homework. As a result, children use of graded exposure, rewards, and family in-
may require substantial structure, supervision, volvement in treatment (March, Mulle, & Her-
and assistance from the therapist and parents to bel, 1994; Piacentini, Gitow, Jaer, Graae, &
participate eectively in CBT. Whitaker, 1994). Clinical experience and recent
Other issues that aect accurate diagnosis and studies indicate that active parent involvement
motivation for treatment include the fact that in the childs treatment may increase ecacy
children often do not understand the nature of and long-term gains from treatment (Piacentini,
OCD and have misconceptions or worries about et al., 1994; Waters, Barrett, & March, 2001).
being crazy. They are less likely than adults to The purpose of this paper is to describe the
realize that their symptoms are senseless and ex- application of CBT for childhood OCD using a
cessive. Although older children may have good developmentally sensitive protocol that is flex-
insight, their shame may lead them to minimize ible and feasible for clinicians in primarily clin-
their symptoms. Children are more likely to pas- ical settings: RIDE Up and Down the Worry Hill
sively succumb to obsessions and rituals, and (Wagner, 2002; 2003). The steps of the RIDE pro-
may fear treatment because ERP can be counter- tocol are described as follows and illustrated via
intuitive and daunting at first glance. a 15-year-old girl with forbidden thoughts and
Third, children live in the context of a family, mental rituals. A comprehensive assessment and
and parents are an integral part of their lives. treatment strategy for childhood OCD that in-
OCD can quickly become a family illness be- volves four phases, including the RIDE proto-
cause children commonly involve family mem- col, is described later in this paper, along with
bers in their OCD through participation in ritu- its application for a 6-year-old boy with fears of
als, provision of reassurance, and assistance in harm and reassurance-seeking rituals.
avoiding fear triggers. Rage attacks may ensue
if family members fail to comply. Families of
children with OCD may exhibit more criti- RIDE Up and Down the Worry Hill:
cism, parentchild conflict, and parental OCD, A CBT Treatment Protocol for
which may predict a worse outcome (Hibbs, Children and Adolescents
Hamburger, & Lenane, 1991).
Clinicians who do not recognize and address Understanding and accepting the vital concepts
these developmental issues may make the mis- of exposure, habituation, and anticipatory anx-
take of rushing into treatment precipitously in iety, as well as the ability to tolerate anxiety dur-
response to the sense of urgency elicited by the ing ERP, may be crucial to motivation and com-
childs symptoms. Children, parents, and even pliance. A childs success in treatment might
clinicians may abandon treatment prematurely hinge on this understanding; yet these are not
when lack of progress from hastily applied treat- intuitive concepts. The RIDE acronym and the

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WAGNER

metaphor of riding a bicycle Up and Down the modeling, behavioral rehearsal, frequent prac-
Worry Hill were developed to explain CBT in tice, and reinforcement, until the child masters
child-friendly language (Wagner, 2000; Wagner, the steps. In addition to the auditory mnemonic
2002). aid of the RIDE acronym, the Worry Hill Mem-
The Worry Hill depicts the relationship be- ory Card (see Figure 1) provides a visual mne-
tween exposure and habituation. The bell- monic aid to the child. In essence, the RIDE
shaped curve of the Worry Hill (see Figure 1) il- teaches youngsters to stop, think, take control,
lustrates the rise in anxiety when exposure to a and respond assertively to OCD, rather than de-
feared situation takes place. Anxiety increases fault to an automatic reflexive compliance with
steadily as exposure continues and may reach a obsessions and rituals.
peak. If the child persists with exposure, auto- The RIDE steps, as applied to 15-year-old
nomic habituation sets in, and anxiety automat- Marias uncontrollable images of dying babies
ically begins to decline. If, on the other hand, and her prayer rituals, are described as follows.
the child succumbs to rituals or avoids the fear Maria had begun to experience intrusive images
trigger, habituation is interrupted, and obses- when she was 13. A soft-spoken teenager, she re-
sions are inadvertently strengthened by nega- counted with anguish that she had seen a preg-
tive reinforcement (i.e., escape from an aversive nant woman walk past her at the mall and that
situation). The Worry Hill is explained to chil- she suddenly wished that the womans baby
dren as follows: would die. Horrified by the repugnant thought,
Maria attempted to cleanse the image out of her
Learning how to stop OCD is like riding your mind by conjuring up the image of the pregnant
bicycle up and down a hill. At first, facing your woman walking by again and canceling the in-
fears and stopping your rituals feels like riding trusive thought by fervently praying that the
up a big Worry Hill, because its tough and baby would be healthy. On another occasion,
you have to work very hard. If you keep going Maria was baby-sitting and suddenly had the
and dont give up, you get to the top of the urge to put the baby in the microwave along with
Worry Hill. Once you get to the top, its easy to his bottle. Panic-stricken, she checked the mi-
coast down the hill. But you can only coast crowave and the babys crib repeatedly to ensure
down the hill if you first get to the top. that she had not carried out the urge. Although
she was relieved each time to find the baby sleep-
The four-step RIDE acronym (Rename, Insist, ing contentedly, the doubt was relentless and
Defy, Enjoy) encompasses the steps that the tormenting. Maria was so distraught by the epi-
child or adolescent must take to successfully sode that she stopped baby-sitting altogether.
tackle the Worry Hill. A step-by-step descrip- By the time she sought treatment, Maria went
tion of this treatment protocol is available in to inordinate lengths to avoid eye contact or in-
Wagner (2003). The RIDE was designed to sim- teraction with pregnant women and babies. On
plify ERP for children and adolescents, enhance some days, she refused to leave the house. The
preparedness for treatment, and foster endur- four steps of the RIDE are as follows.
ance of anxiety until habituation takes place. It
includes both cognitive and behavioral tech-
R: Rename the Thought
niques, such as externalizing; distancing; and
taking control of OCD thoughts, exposure, and The first step involves recognizing OCD
self-reinforcement. Coaching or instruction in thoughts as unrealistic and distinct from the
each of the four steps is followed by therapist childs rational self. Young children may find it

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Treatment of Children with OCD

FIGURE 1
The Worry Hill. 2002 Aureen P. Wagner, PhD. Reprinted with permission. From Wagner (2002).
R: Rename the thought. Thats OCD talking, not me.
I: Insist that YOU are in charge! Im in charge. I choose not to believe OCD.
D: Defy OCD. I will ride up the Worry Hill and stick it out until I can coast down.
E: Enjoy your success, reward yourself. I did it! I beat OCD. I can do it again.

helpful to personify OCD as the Worry Mon- on my mind helped Maria build the self-
ster or Mr. Right, whereas adolescents usu- confidence and endurance she needed to em-
ally prefer to refer to OCD by its name. The tech- bark on exposure.
nique of externalizing OCD has been used by
Schwartz (1996) with adults and March et al.
D: Defy OCDDo the OPPOSITE of
(1994) with children. When Maria recognized
What It Wants
and accepted that her obsessive thoughts were
not volitional or enjoyable, she distanced herself The third step involves ERP, which requires a
from them by saying, Thats OCD talking, not change in behavior. Exposures in Marias case
me. In doing so, she felt absolved of deep shame entailed purposefully encountering pregnant
and guilt. women and babies by going to public places
such as the mall and by taking on baby-sitting
assignments. Response prevention involved re-
I: Insist That YOU Are in Charge!
fraining from canceling bad thoughts or say-
The second step fosters a shift in attitude from ing prayers when intrusive images of dying ba-
passive acquiescence to active assertion. It helps bies assailed her. Maria talked herself through
the child recognize and utilize the power of ERP by saying, Im going to ride up the Worry
choice. Instead of readily succumbing to OCDs Hill now. Its going to be tough going up the hill,
injunctions, Maria chose to take active control but if I stick it out, Ill get to the top of the hill.
over her thoughts and actions. Statements such Once Im at the top, it will be easy to coast down
as I am in charge, not OCD and Im going to the hill. I wont quit until the bad feeling passes.
choose not to believe the tricks that OCD plays I wont give in to the rituals. As Maria encoun-

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WAGNER

tered pregnant women and babies, her anxiety preparation for treatment, as described in the
escalated and peaked, then automatically began following section, must precede the implemen-
to decline because habituation set in. Maria rode tation of the RIDE.
to the top of the Worry Hill and enjoyed the
coast down the other side. The thoughts of dy-
ing babies seemed meaningless and eventually Four Phases in the Implementation
faded away. She was surprised that exposure of CBT for Children and
wasnt as upsetting as she had expected. Ma- Adolescents
rias thoughts were far less troublesome with re-
peated exposures, and her anxiety habituated The overall treatment strategy for children and
faster with practice. adolescents may be conceptualized as occurring
in four sequential phases. Each phase is focused
on completing specific goals or building on
E: Enjoy Your SuccessReward
skills that have been mastered in the previous
Yourself
phase. The number of sessions in each phase is
The final step allows the child to review her suc- flexible to allow customization to the childs
cess and take due credit for eort and courage. and familys unique needs. The average treat-
Maria learned to give herself positive feedback ment extends from 10 to 20 sessions, depend-
and internalize success. I did it! I can do it ing on the severity and complexity of the case.
again. Now I deserve to be good to myself. Straightforward cases of OCD may be treated
The Worry Hill represents a universal in as few as 6 sessions.
metaphor because children as young as four,
adolescents, and even adults can relate to the
Phase 1: Biopsychosocial Assessment
idea of riding a bicycle up a hill. Parents, sib-
and Treatment Plan
lings, and teachers find the metaphor equally
helpful in understanding how CBT works. The Phase 1 lays the essential foundation for suc-
easy acronym, logical steps, and visual features cessful treatment and may extend from one to
of the Worry Hill, as well as the RIDE acronym, three sessions (one session equals the 50-minute
are simple to grasp, remember, and recall, even hour typical of clinical practice). A biopsycho-
in the midst of anxiety, thereby reducing social assessment focuses on a complete and sen-
chances of premature termination of exposure sitive understanding of the childs OCD symp-
and habituation. Moreover, the metaphor is toms in the context of the childs personal at-
comprehensive and readily lends itself to a de- tributes, physical health, family, social, and
scription of most elements of treatment and re- school functioning. Rather than merely assess
covery. For example, graded exposure is de- OCD, it is geared toward the larger issue of the
scribed as riding up little hills before tackling childs overall health, adaptation, strengths and
the big one; preparation for treatment is simi- limitations; and it allows for customized treat-
lar to finding a good helmet, the right pair of ment that may help avert treatment failures.
sneakers and having a bottle of water on hand; Biopsychosocial evaluation involves collabora-
the use of medication is portrayed as training tion among physician, therapist, parent, child,
wheels on the bicycle; and relapse is depicted school, and other relevant players. In addition,
as you may fall o your bicycle even after it utilizes a variety of methods: clinical inter-
youve learned how to ride. views; clinician, parent, and child ratings; self-
Systematic and thorough assessment and report inventories; and behavioral observations.

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Treatment of Children with OCD

Initial diagnosis is followed by OCD symptom Clinical Interview of Parent(s). Interviewing par-
analysis and a treatment plan. ents is very important because children may not
be reliable informants. In addition to describ-
Initial Evaluation and Diagnosis The first step ing the childs symptoms, parents are valuable
in the evaluation is to establish a diagnosis of in providing a chronology of events, develop-
OCD, assess baseline severity and impairment, mental history, comorbid symptoms, family his-
and identify potentially dicult areas for treat- tory, and functioning, of which children might
ment. The assessment should target current and not be aware.
past fears; rituals and triggers; events surround-
ing the onset of symptoms; frequency and con- Self-Report and Parent Ratings. In addition to
text of symptoms; degree of distress and im- the clinical interview, several other measures
pairment; comorbid conditions; medical and with established psychometric properties yield
developmental history; family history; social clinically useful pre- and posttreatment data
relationships; and functioning at home and and can be ecient and time-saving in the clin-
school (Pinto & Francis, 1993). Although several ical setting. They can be administered, scored,
structured diagnostic interviews for children are and reviewed prior to the first appointment,
available, time and resource constraints make thereby allowing the clinician to target areas for
them infeasible in most clinical settings. closer assessment during the initial visits. The
Child Behavior Checklist (CBCL; Achenbach &
Interview with the Child. Although the child Edelbrock, 1991), an 118-item parent-report
may not be the best historian, it is important for measure, allows clinicians to assess a broad
the clinician to gauge the childs insight and ex- range of symptoms that may be clues to both
perience of symptoms, level of distress, and mo- OCD and comorbid conditions. The childs over-
tivation for treatment. The clinician must be em- all anxiety can be assessed on the Multidi-
pathic and resourceful in order to engage chil- mensional Anxiety Scale for Children (MASC;
dren of various ages and levels of maturity; elicit March, Parker, Sullivan, Stallings, & Conners,
trust; and query thoughts and rituals with the 1997). The Child OCD Impact Scale (COIS; Pia-
level of detail necessary for eective treatment. centini, Jaer, Bergman, McCracken, & Keller,
Interview of the child is geared toward obtain- 2001), completed by parent and child, provides
ing answers to many questions: information on the impact of OCD on the childs
school, social, and family/home functioning.
Does the child perform rituals to relieve
anxiety or prevent bad outcomes? Clinician Ratings. Several single-item clinician
How is each fear connected with each ritual? rating scales, which take about a minute each
What would happen if he did not do a ritual? to complete, are highly practical in clinical
How does the child know when hes done settings. The NIMH Global OCD Scale rates
enough? OCD severity and impairment. A score of 7 indi-
What makes him feel better, and what cates clinically meaningful OCD symptoms, and
makes the thoughts dissipate? scores of 13 to 15 indicate very severe symp-
Does she believe she can overcome her toms. The NIMH Clinical Global Impairment
fears? Scale provides an overall judgment of impair-
Is she hopeful and optimistic, or does she ment from 1 (not ill) to 7 (extremely ill). The
feel defeated and dispirited? NIMH Clinical Global Improvement Scale allows
How does she feel about herself as a person? ratings of improvement during and after treat-

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WAGNER

ment on a scale of 1 (very much improved) to 7 commitment will be required of parents and
(very much worse). child, the possible duration of treatment, and
when results may be expected. Families who
OCD Symptom Analysis A close examination opt for medication should be referred to a child
of specific obsessions, compulsions, triggers, the psychiatrist.
nature and frequency of parental participation,
and assistance with rituals helps the clinician de-
Phase 2: Building Treatment
sign targeted and eective exposures. The Chil-
Readiness
drens Yale-Brown Obsessive-Compulsive Scale
(CY-BOCS; Scahill et al., 1997) is often the starting Phase 2 is focused on planned and active prepa-
point for this information. The CY-BOCS assesses ration for treatment. This phase is critical but of-
obsessions and compulsions in terms of time ten overlooked, which jeopardizes the chances
consumed, interference, distress, resistance, and of success in treatment. Devoting one to three
control. Scores of 09 are considered subclinical, sessions to cultivate treatment readiness in the
1018 mild, 1829 moderate, and 30 or above in- child and parent is a worthwhile investment that
dicative of severe OCD. enhances participation, compliance, and the ease
of implementation of ERP. The four steps in
Biopsychosocial Treatment Plan The thera- building treatment readiness are stabilization,
pist must use the information derived from the communication, persuasion, and collaboration.
assessment to develop a treatment plan that is
designed to improve the well-being of the Stabilization of the Child and Family Crisis
child, not just his obsessions and compulsions. Families seeking help for a childs OCD fre-
The child may need treatment to help rebuild quently present in a state of crisis. They feel a
social skills and improve self-esteem, family re- sense of urgency for immediate relief, and par-
lationships, and academic functioning. OCD ents may be at their wits end. A child who is
symptoms should generally be treated first, un- overwhelmed and struggling to function does not
less other issues interfere with the treatment. have the wherewithal to consider CBT. Over-
For example, severe depression or family con- zealous implementation of CBT in these circum-
flict may need to be treated before a child can stances merely adds to the childs sense of bur-
engage in CBT. den and can therefore backfire. Stabilization in-
volves providing the child with respite from
Feedback and Education. The nature, course, the dual challenges of OCD and everyday liv-
prognosis, and contributing factors involved in ing through flexible expectations and temporary
OCD should be discussed with the child and accommodations at home and at school. In se-
parents. Blame and shame from misunderstand- vere situations, the child may need medication
ing OCD as a character weakness or the result of to reduce the severity of symptoms prior to en-
poor parenting should be eliminated. The child gaging in CBT. Parents who are highly distressed
and parents should be oered all viable treat- also need support, stress management, and
ment optionsincluding CBT, medication, or a conflict-resolution techniques to regain equilib-
combination of both (see March et al., 1997) rium before embarking on CBT with their child.
and assistance in making the optimal choices
for the child. The therapist should explicitly Effective Communication Perhaps the most
discuss the pros and cons of each option, what critical part of treatment readiness is helping
each treatment involves, what sort of focus and thechild and parents understand the concepts

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Treatment of Children with OCD

of exposure, habituation, and anticipatory has the power to change is usually a liberating
anxiety. When children dont understand CBT, experience.
they are unnecessarily intimidated and conse-
quently unmotivated. The language of CBT Collaboration between Parent, Child, and
must be accessible to children. The metaphor Therapist The child, parent, and therapist
of the Worry Hill was developed to communi- have dierent but complementary roles to play
cate CBT concepts eectively in child-friendly in the childs treatment. Clearly defining each of
language. these roles before treatment begins can expe-
Most parents and children are not aware that dite progress in treatment by preempting the
habituation of anxiety is an automatic physio- conflict and frustration that can ensue from
logic process and that it takes place naturally if misunderstanding. The therapists role is to
anxiety is endured for a reasonable length of guide the childs treatment; the childs role is to
time. It is this lack of awareness and inability to RIDE; and the parents role is to RALLY for the
tolerate increasing anxiety that leads them to child:
give in to rituals to escape the anxiety. When a
child understands the metaphor of the Worry R: Recognize OCD episodes.
Hill, it is often an aha! experience. Parents and A: Ally with your child.
children who are educated about the Worry Hill L: Lead your child to the RIDE.
prior to beginning treatment appear to be less L: Let go, so your child can RIDE on his own.
anxious and more motivated to engage in treat- Y: Yes, you did it! Reward and praise.
ment. They are often surprised to find that the
anxiety they feel during exposure is far less than The metaphor of the Worry Hill is extended to
anticipated. help children and parents clearly understand
their respective roles in treatment. The childs
Effective Persuasion Persuasion involves role is described as follows:
helping children see the necessity for change,
the possibility for change, and the power to No one else can ride a bicycle for you. You
change. Children are more readily persuaded have to do it for yourself. In the same way,
once they have an accurate understanding of only you can face your fears and make them go
OCD and CBT. The child must be helped to see away. No one else can do it for you.
the benefits of overcoming OCD; this convinces
her of the necessity for change. When she The parents role is conveyed as follows:
learns that OCD can be successfully overcome
and that many others have done it, she sees the You can help your child get ready for the ride
possibility for change. The child must learn to by selecting the right bicycle and gear and by
rely on the therapists word that confronting holding on to the seat if hes unsteady. Even-
her fears will assuage them; she must believe in tually, you must let go and let your child ride
the RIDE for herself. She must experience no by for himself. Your child cannot ride on his
coercion and no surprises, because the childs own until you let go of the seat.
trust in the therapist is imperative. Finally, the
child must know that she has the power to With the therapists guidance, the child must
change. She must understand that she herself be involved in setting goals and deciding the
can take charge and control of OCD, instead of pace of treatment, as is suitable to his age and
letting it control her. The recognition that she maturity. The child is more likely to be invested

Brief Treatment and Crisis Intervention / 3:3 Fall 2003 299


WAGNER

in his recovery when he perceives that he has con- child and parents. During this phase, the child
trol over it. It is a good rule of thumb not to begin participates in ERP.
ERP until the child voluntarily expresses willing-
ness to proceed. Children rarely refuse to partici- Graded Exposure Graded exposure involves
pate in treatment when they are well informed progressing in small sequential steps from the
and given the choice. When a child declines to least feared to the most feared situations. It must
participate despite proper preparation, it may be be used with children almost without exception,
a good indicator that the child is truly not ready as children may not be able to participate in ERP
for CBT and therefore unlikely to benefit from it. if they become overwhelmed by anxiety. The rel-
Additional preparation may be necessary, or other atively easy success experienced during graded
options such as medication may need to be con- exposure provides positive reinforcement and
sidered. For some children, CBT may have to be boosts the childs self-confidence and willing-
deferred temporarily and attempted later when ness to attempt subsequent exposures. A graded
they are older, more mature, or more willing. exposure hierarchy must be constructed prior to
Treatment reluctance in a child is generally a beginning ERP.
perplexing and frustrating situation for parents
and therapists alike, who either instinctively in- Symptom Monitoring. Symptom monitoring pro-
crease pressure on the child or abandon treat- vides targets for the graded exposure hierarchy, as
ment prematurely. However, coercion and ulti- well as data for ongoing evaluation of treatment
matums do not address the underlying reasons response. The child and parents list all OCD symp-
for reluctance, which usually stem from miscon- toms and record their frequency on easy-to-use
ceptions or misunderstanding of the treatment. monitoring sheets known as the OCD Tracking
Most children have the desire to be rid of OCD Diary and Tracking Diary for Parents. Parents
because OCD is not enjoyable; however, some may assist younger children or record for them.
children have diculty in channeling the desire
to get well into the action to get well. A thought- Fear Temperature. The Fear Temperature is
ful, sensitive approach is more likely to earn a analogous to the Subjective Units of Distress
childs participation than disapproval or pres- (SUDS) used in the treatment of adults, and it al-
sure. As described in Wagner (2002; 2003), a lows children to rank exposure targets from least
strategic five-step plan for handling treatment to most dicult for graded exposure. Children
reluctance recommends that parents and thera- rate their Fear Temperature on a Fear Thermome-
pists slow down and go through the PACES: ter, a graduated scale from 1 (no anxiety) to 10
(out of control) that teaches children how to
P: Plan a strategy. dierentiate, quantify, and communicate levels
A: Ascertain reasons for reluctance. of anxiety to the therapist and parents.
C: Correct and remove obstacles to treatment.
E: Empower to succeed. Cognitive Strategies The first two steps of the
S: Stop assisting. RIDE (Rename and Insist) are aimed at preparing
the childs belief system in anticipation of expo-
sure. They include perspective-taking, refram-
Phase 3: The RIDE Up and Down the
ing, and distancing from OCD, as well as em-
Worry Hill
powerment to take back control. The therapist
Phase 3 may extend between 4 to 15 sessions. It may introduce other cognitive techniques as
consists of separate plus joint sessions with the needed for each child.

300 Brief Treatment and Crisis Intervention / 3:3 Fall 2003


Treatment of Children with OCD

Exposure and Response Prevention The order to reduce the chances that assignments are
Defy step of the RIDE signals the beginning of forgotten or misunderstood. Incomplete assign-
ERP. The therapist first instructs the child in the ments are usually a sign that there is some ob-
steps of the RIDE, then models the procedure stacle to the childs participation. Sometimes,
and asks the child to follow suit. For instance, the child is willing and enthusiastic in the ther-
the therapist eats a snack with unwashed hands apists oce, but she gets cold feet when she
to model exposure to germs. Modeling allows the gets home. Parents may not be able to provide the
child to see that the therapist is willing to assume supervision or structure that allows the child
the same risks that are asked of her. to focus on completing ERP exercises. Exer-
cises may not be working as expected because
Rewards Rewards bridge the gap of delayed the child quits the RIDE prematurely before ha-
gain from treatment and provide children with bituation has taken place, or she replaces overt
the immediate incentive to participate and rituals with silent mental rituals. Success in CBT
maintain motivation. The child must be re- will be severely limited until all barriers to full
warded for eort, rather than success, because participation are removed. Maintaining daily
eort reflects the desired behavior. Praise and phone contact with patients during the early
attention are preferable to material rewards, stages of the RIDE can preempt many of these
although young children often need tangible problems. Parents and children are asked to
rewards. leave a message every day, letting the therapist
know how the practice is proceeding. Doing so
The Parents Role to RALLY Specific parental not only increases accountability but also allows
behaviors that support and reinforce the childs the therapist to intervene quickly if things are
RIDE are discussed in each session, along with not proceeding as expected.
instruction and the therapists modeling of steps
to eliminate participation in rituals. The RALLY
Phase 4: After the RIDE
steps are tailored and put into action as per the
specific circumstances for each child and fam- Phase 4 signals the end of treatment. It should
ily, including the childs age, maturity, specific begin when the child has mastered the RIDE,
symptoms, degree of parental involvement in when parents RALLY eectively, and when the
symptoms, and the nature of the parentchild childs OCD symptoms have decreased.
relationship. Targets for working with parents
include helping them take care of themselves so Preparation for Slips and Relapses Parents
that they can take better care of their children; and children need to be prepared for the reality
reducing parental assistance and participation that OCD slips, or relapses, can happen either
in the childs symptoms; and increasing positive unexpectedly or at times of stress and transi-
family interactions, communication, problem tion. When prepared, they are more likely to
solving, and child management skills. have an organized and productive response, and
less likely to become demoralized. Relapse re-
Frequent Practice Frequent and diligent prac- covery training involves having realistic expec-
tice of ERP is crucial for mastery of anxiety. tations, recognizing the early signs of relapses,
Weekly graphs of progress and Fear Tempera- keeping things in perspective, and intervening
ture ratings give the child and family tangible immediately. The metaphor of falling o a bicy-
evidence of progress. The therapist assigns a cle is used to suggest that when a slip occurs,
daily practice, in writing, after each session in OCD should be confronted head on by doing

Brief Treatment and Crisis Intervention / 3:3 Fall 2003 301


WAGNER

ERP exercises even more vigorously. When you to get through ERP. The RIDE protocol places
fall o your bicycle, you pick yourself up. If you greater emphasis on the childs comprehension
made no attempt to get up, you wouldnt get and acceptance of the key concepts of treat-
anywhere. If you want to move on, you get up, mentexposure, anticipatory anxiety, and ha-
dust yourself o, survey the damage, attend to bituation. It is the understanding of these con-
it, and get right back on that bicycle. It is im- cepts that makes ERP easier for the child. What
portant that the child and parents not fall into is crucial is helping the child understand and
the trap of avoiding the feared situation. experience the temporal relationship among
these three critical elements in treatment. The
Treatment Completion and Booster child is trained to become acutely aware of and
Sessions When treatment is completed, the experienceon cognitive, behavioral, and phys-
child must receive significant recognition for iological dimensionsthe process whereby anx-
her eorts and success. Treatment outcome is as- iety escalates during exposure and dissipates
sessed via CY-BOCS posttreatment scores, NIMH during habituation. This experiential learning,
clinician ratings of improvement, changes in aided by the auditory and visual features of the
Fear Temperature, and parent and child ratings Worry Hill, provides the child with powerful
of percentage improvement. Periodic booster tangible feedback about the process, where fears
sessions after treatment enhance the mainte- can either be cemented or extinguished. The
nance of treatment gains. Booster sessions aha! experience that typically ensues allows the
should be scheduled prior to completion of child to see the perfectly logical sense behind
treatment to reduce the rate of attrition. ERP. Clinical experience indicates that once chil-
The RIDE Up and Down the Worry Hill CBT dren understand the metaphor of the Worry
protocol shares many elements with March et Hill, they often begin to view ERP as a stim-
al.s (1994) groundbreaking CBT protocol for ulating challenge and are eager to rise to the
children entitled How I Ran OCD o My occasion.
Land. Although no empirical data exists to In addition, the Worry Hill protocol clearly
compare these two protocols or their relative and proactively delineates the roles of parent,
ecacy, they nevertheless share common fea- child, and therapist in the treatment, and
tures. Both protocols are grounded in ERP as places strong emphasis on treatment readi-
the core technique for overcoming OCD, and ness as a precursor to beginning ERP. It also
both include developmental adaptations de- oers a systematic step-by-step approach to
signed to optimize the childs chances at suc- dismantling the childs treatment reluctance in
cess by making ERP child-friendly and less order to reduce the chances of premature aban-
anxiety provoking. Other shared features in- donment of treatment. The application of the
clude the use of metaphors, externalizing, and four phases in the Worry Hill protocol is illus-
constructive self-talk strategies to help the trated as follows.
child prepare for, and cope with, ERP, graded
exposure, provision of rewards to reinforce
eort, and structured parental involvement in Case Description
treatment.
March et al.s (1994) protocol focuses on cog- Daniel, a 6-year-old first grader who had been
nitive resistance and constructive self-talk diagnosed with Tourettes syndrome at the age
(such as bossing back OCD), otherwise of 4, was referred by his neurologist for inces-
known as the tool kit that children can use sant checking and reassurance seeking.

302 Brief Treatment and Crisis Intervention / 3:3 Fall 2003


Treatment of Children with OCD

shrugs, reportedly caused minimal distress or


Phase 1: Biopsychosocial Assessment
interference.
and Treatment Plan (Three Sessions)
Daniels symptoms met criteria for a DSM-IV
Biopsychosocial assessment consisted of an in- diagnosis of OCD as well as for Tourettes syn-
terview with Daniel and his parents, a phone drome. His score on the CY-BOCS was 29, sug-
interview with his school teacher, a review of gesting notable distress and functional impair-
medical records, and administration of self- ment. Daniels symptoms merited a score of 10
report measures and rating scales. Daniel had on the Global OCD Scale and a 5 on the Clinical
demonstrated many ritualistic behaviors since Global Impairment Scale. Daniel was restless
he was a toddler, including extremely rigid and hyperactive, and he had many negative
bedtime rituals and reassurance seeking. Six attention-seeking behaviors, including frequent
months prior to referral, Daniels fears of harm interruption of conversations. He acknowl-
and danger had escalated dramatically. He fre- edged that he didnt like being afraid, and he
quently checked for blood and bugs in his expressed motivation to overcome his fears.
food, and he sought repeated reassurance from With regard to family history, Daniels mother
his parents that his food did not contain these had experienced anxious preoccupations and
substances. He refused to eat spaghetti sauce or rituals as a child and suered from panic attacks
ketchup for fear that they were blood. Family in her late teenage years.
members were vigilant not to use the word
blood in any conversation for fear of upset-
Phase 2: Building Treatment
ting Daniel. Daniel made his parents check his
Readiness (Two Sessions)
closets and under his bed every night to make
sure there were no bad things and bad luck. The diagnosis of OCD was described to the fam-
When in bed, his toys and stued animals had ily, along with information about its course,
to be arranged just so, and his covers had to risk factors, prognosis, and treatment options.
be tucked in tightly by his parents. Daniel re- Daniels parents were reluctant to consider med-
peated nonsense phrases such as Pete teasing ication for him and opted for CBT. The metaphor
and how now to avert bad luck. He checked of the Worry Hill was presented, and the roles of
his underwear at least 20 times a day to ensure therapist, child, and parent were discussed at
that he had not accidentally soiled them, and the outset. The importance of compliance and
he also asked his parents and teacher to check. willingness to change were emphasized. Daniel
He insisted on his parents participation in clearly understood the Worry Hill and the RIDE,
good-bye rituals that involved saying a se- and was able to explain them to his parents. The
ries of words in sequence and taking turns realization that he could exercise control over
repeating them, as many as 10 times each day. his OCD appeared to increase his motivation.
At school, Daniel was noted to seek frequent Daniels parents were enthusiastic in their com-
reassurance from the teacher, to be highly mitment to RALLY for him.
distractible, and to need frequent redirec-
tion. Daniel reportedly had severe outbursts of
Phase 3: The RIDE Up and Down the
anger if his parents or teacher did not comply
Worry Hill (Six Sessions)
with his demands. He had frequent nighttime
awakenings and was unable to complete school Daniel and his parents completed the daily diary
work or homework. Daniels tics, which con- and parent diary to monitor the nature, context,
sisted of sning, coughing, and shoulder and frequency of obsessions and rituals. Daniel

Brief Treatment and Crisis Intervention / 3:3 Fall 2003 303


WAGNER

was able to dierentiate between realistic and seeking was gradually weaned by preparing
silly obsessive worries and to rate his Fear Daniel ahead of time for a change in parental re-
Temperature on the Fear Thermometer. He sponse, by redirecting Daniel to consider if it
joined the therapist in constructing an exposure was him or OCD asking for reassurance (and to
hierarchy with the following items: answer the questions himself), and by gradually
decreasing the number of reassurances down to
3: Having toys in disarray one. These steps were role-played during the
5: Wearing damp underwear therapy session before the parents implemented
6: Having bed covers messed up them at home. Daily practice of ERP was as-
7: Hearing the word blood signed after each session and reviewed at the be-
8: Saying blood ginning of the following session.
8: Eating spaghetti sauce or ketchup
10: Seeing blood
Phase 4: After the RIDE (Four Sessions)
After coaching in the RIDE steps, gradual ex- At the end of 6 sessions of ERP, Daniel and his
posure to each situation on the hierarchy was parents reported 80% improvement in his
conducted both in the oce and at home with symptoms and overall functioning. CY-BOCS
the parents help. Corresponding response pre- score was 4; Global OCD Scale score was 2; and
vention involved refraining from urges to re- Clinical Global Improvement Scale score was 1.
arrange his toys, say Pete teasing, check un- Bedtime, good-bye, and reassurance-seeking
derwear, ask for reassurance, or have his parents rituals were eliminated completely within three
fix his bed covers or check his closets and sessions. Fears of blood and soiling accidentally
room for bad luck. Daniel used the Worry Hill were eliminated by the end of six sessions of
Memory Card as a reminder of the RIDE steps, treatment. Daniels parents reported feeling
and the Fear Thermometer to rate changes in more confident about helping him manage his
his anxiety from beginning to end of each ex- OCD, and his teacher reported a significant de-
posure. As expected, his anxiety followed the crease in reassurance seeking at school.
curve of the Worry Hill, and habituation oc- Booster sessions were scheduled at 4, 8, 14,
curred within 2 to 10 minutes. Daniel received and 22 weeks, and every 12 weeks thereafter for
frequent praise and rewards for his eort. 2 years. They were focused on review of pro-
Daniels parents learned how to RALLY for gress, identification of areas of diculty, reca-
him by reinforcing the message of the Worry pitulation of strategies, social skills training,
Hill and the steps of the RIDE, providing sup- and ongoing child management issues. Daniel
port during exposure exercises and gradually experienced a minor relapse four months after
withdrawing participation in his rituals. They treatment was completed, when the approach of
received guidance in child management strate- Halloween triggered fears of blood and mon-
gies, such as consistent parental responses, struc- sters. Relapse recovery steps were reviewed and
ture, eective redirection, and dierential re- implemented, and Daniel successfully overcame
inforcement of positive behaviors. Strategies to the resurgence of fears within two days. As
help Daniel express frustration appropriately, Daniel got older, he was coached in cognitive
contain angry outbursts, and channel negative strategies that allowed him to test the evidence
attention seeking into positive behaviors were for his fears, estimate the probability that his
presented. Daniels parents learned stress man- fears would come true, and develop problem-
agement strategies for themselves. Reassurance solving skills. At two years posttreatment,

304 Brief Treatment and Crisis Intervention / 3:3 Fall 2003


Treatment of Children with OCD

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