Professional Documents
Culture Documents
NATIONAL
SLEEP
AWARENESS
MONTH
INFERTILITY
Awareness PCOS AND
Surviving Multiple Miscarriages EATING DISORDERS
4 Infertility Awareness:
Surviving Multiple Miscarriages
By Christina Ohler
10 14
PCOS and the Battle of the Bulge:
14 Tips for a Healthy Waistline
By Maria Horstmann, MBA, CPT, PNL1, IRC
W
elcome to the
Editor-in-Chief
second issue of
Sasha Ottey, MHA the new PCOS
Challenge magazine. In
the following pages, we
Graphic Design and Image Selection
celebrate the strength
Olena Lykova; William R. Patterson; and diversity of women
Amy Nguyen and girls with polycystic
ovary syndrome. You will
read interesting perspec-
Writers tives from both promi-
Renetta DuBose; Danielle DeUrso nent PCOS experts and
women with PCOS.
Contributors
In this issue, we recognize some of the national health ob-
Ricardo Azziz, MD; Julie D. Dillon, RD;
servances and awareness initiatives for March and April
Maria Horstmann, CPT; Christina Ohler;
which are relevant to those of us living with PCOS. Some of
Desire McCarthy Keith, MD; these observances include Electrolysis Awareness; Infertili-
Mary Spivey Just, CPE; Hillary Wright, RD ty Awareness; Sleep Awareness; Endometriosis Awareness
and National Nutrition Month.
Special Thanks
Join Us as an Advocate for PCOS Awareness and Change
David Ehrmann, MD; Keshena Patterson
This year, PCOS Challenge will be expanding its legisla-
tive advocacy efforts as part of our mission to help raise
Sponsorship/Advertising Inquiries awareness and increase public support for those living with
Call (404) 855-7244 or visit polycystic ovary syndrome. On March 20th, we will join The
PCOSChallenge.org/pcos-contact White Dress Project at the Georgia State Capitol to make a
case for uterine health. If you are in Atlanta, please join us!
Disclaimer
The contents of PCOS Challenge maga- For PCOS Awareness month in September, PCOS Chal-
zine are for informational purposes only. lenge will bring together hundreds of women from all over
The contents are not intended to be a the United States and throughout the world for the PCOS
substitute for professional medical advice, Awareness Weekend. This weekend is where we will all
diagnosis or treatment. Always seek the come together in unison to spread awareness about poly-
advice of your physician or other qualified cystic ovary syndrome, walk or run the Bolt for PCOS 5K,
healthcare provider with any questions you attend the PCOS Awareness Symposium and join initiatives
may have regarding a medical condition. to promote PCOS research and healthcare. We encourage
you to sign up as a volunteer or team leader.
No part of this publication may be repro-
duced or utilized in any form or by any Thank you for supporting PCOS Challenge and our vision to
means, electronically or mechanically, with- make PCOS a public health priority!
out written permission from the publisher.
In good health,
Copyright 2017 PCOS Challenge, Inc.
All rights reserved.
Sasha Ottey
Executive Director
PCOS Challenge, Inc.
A
fter years of living on hope and leaving it
in Gods hands, my husband and I found
out we were having a baby. We never
believed it would be our reality because
doctors told us I was unable to get pregnant. But
we soon realized that not even PCOS exempts you
from getting pregnant. It was a surreal moment.
SoulCysterCreations.com
P
olycystic ovary syndrome (PCOS) is a can cause diabetes, infertility and unpleasant skin
hormone disorder that affects six to 12 changes like acne and facial hair growth.
percent of women of all ethnicities. It is
very likely that you or someone you know With PCOS, a womans ovaries are filled with tiny
have been affected by PCOS. Typical features of egg-containing cysts called follicles. Normally, one
PCOS include 1) high testosterone levels or male follicle fully develops each month, and ovulation is
hormone effects 2) irregular or absent menstrual the release of an egg from the follicle. For wom-
cycles and 3) ovaries that contain multiple small en with PCOS, even though there are many fol-
cysts. A woman is considered to have PCOS if licles in the ovary, ovulations do not occur regu-
she has two out of these three features. PCOS larly. When ovulations dont occur, then menstrual
IVF.com
W
omen with PCOS are at very high Often times women with PCOS have to torture
risk for developing an eating disor- their bodies with diets and over exercise just to see
der. One of the main reasons comes a scale budge. This is not ok. We are giving that
from the frequent recommendation hunk of metal too much power! Why must some-
to focus primarily on weight loss to treat the condi- one in a bigger body do the same things we refer
tion. Not only do diets not work, they are the great- to as an eating disorder in a smaller person? Why
est predictor for weight gain and eating disorders. must one torture herself in the name of health?
Instead, I encourage women with PCOS to focus You shouldnt. Over-exercising or under-eating are
on respecting their bodies without pursuing weight still eating disorder behaviors even if you live in a
loss. This focus prevents eating disorders and pro- fat body. They are not healthy or justifiable. They
motes long-term health. can still be deadly.
It can be tough to respect a body that
feels abnormal due to symptoms such So how does one with PCOS experience
as facial hair, abnormal periods, male
pattern baldness or rapid weight gain. good health and respect her body?
High insulin levels will make it darn
near impossible to walk past a plate of She responds compassionately to what
brownies without eating them all. Hav-
ing PCOS also often includes more de-
her body is saying.
pression and anxiety.
When your cravings feel out of control or you
But fighting your body will not make it healthier. feel fatigued to the core, use this as a message
Punishing your body with painful diet fixes will only that your body needs you to change course. This
make you feel worse emotionally and physically in may mean eating breakfast, getting more sleep
the long run. or changing medication. It also may mean that fo-
cusing on that scale isnt helping things. Instead,
focus on healthy behaviors. Starting with healthy
sleeping and eating habits can increase your en-
ergy and give you a boost to become more physi-
cally active. Another good place to start is getting
into a routine consistently taking medication and
supplements as directed by your doctor and dieti-
tian. Doing all of these will help you work with your
body to feel more energized, empowered and at
home in your own skin.
March April
National Endometriosis Electrolysis Awareness Month
Awareness Month
National Minority Health
National Kidney Month Month
National Nutrition Month National Public Health Week
(April 3-9)
Sleep Awareness Month
Week of National Infertility
Womens History Month Awareness
(April 23-29)
World Health Day
(April 7)
E
lectrology was discovered by Dr. Charles When seeking treatment, prospective clients are
E. Michel, an ophthalmologist, more than given detailed counsel during their initial visit with
130 years ago; and in the 21st century it an electrologist. A modality is chosen based on a
remains the only proven method of perma- thorough consultation and a discussion of treat-
nent hair removal approved by the FDA. In today's ment to ensure every hair growth cycle is cap-
industry, with the use of innovative technology and tured and all the hairs in that cycle are destroyed
state of the art equipment, the process and treat- as quickly as possible. A series of treatments are
ment has tremendously improved to better serve needed to see effectiveness and good results.
in eradicating unwanted hair.
Electrolysis is a very personable ser-
The original modalities used in electrolysis treat- vice; and the confidentiality of each
ments have evolved over the years. The galvanic
(true electrolysis) modality causes a chemical de- client is highly respected. It is a trust
composition of the hair follicle cells; the thermoly- that is dear to the heart of electrolo-
sis (high frequency, shortwave) modality destroys gists.
the hair growing cells with heat; and the blend
modality combines galvanic and high frequency We now know that excessive hair growth, known
to disable and destroy regenerative growth in the as hirsutism, can range from fine vellus hair, to
hair follicle. The blend method is said to be more dark coarse hair on the face and body. Deep,
effective and the regrowth rate is lower. coarse hairs cannot always be eliminated with one
TIPS
FOR A HEALTHY
WAISTLINE
By Maria Horstmann, MBA, CPT, PNL1, IRC
GLUCOSE, INSULIN, FAT AND ENERGY Maria spent most of her life
compromising her health un-
til she realized her ticket to
Insulin is a fat storage hormone and essential to survival. It brings reaching full potential in life
glucose from bloodstream into cells for energy production. Energy was a healthy lifestyle. She
you need for: turned her lifestyle 180; over-
came pre-diabetes and chron-
Gland and organ function ic digestive and gastrointesti-
Mental clarity and focus nal.
Cellular growth and repair
Maria creates personalized
Success and fun experiences and programs for
single clients, families, groups,
Insulin resistance (IR) in PCOS is believed to be developed and organizations. Her cus-
through two mechanisms: increased insulin production and insu- tom programs, including a In-
sulin Resistance and Blood
lin binding defects in peripheral insulin receptors. When receptors
Sugar Program, help people
on the cell surface are not binding to insulin effectively, chaos is struggling with PCOS, weight,
happening. fatigue, brain fog, blood sug-
ar and hormonal imbalanc-
IR is also associated with adiponectin, a hormone that regulates es, digestion, depression, and
lipid and glucose levels. Women with PCOS are found to have more.
lower adiponectin levels than women without PCOS, which
Visit BeFabBeYou.com to
puts them at high risk for elevated cholesterol levels, obesity learn more about Marias jour-
and cardiovascular diseases. As the insulin level increases, the ney, services and credentials.
internal inflammation also increases. This causes changes in fat
deposits where fat is stored by the body instead of being burned.
BeFabBeYou.com
Continued on page 16...
When you MOVE YOUR BODY consistently, you can improve symptoms of PCOS,
insulin sensitivity and your waistline. You can also balance hormones and lower risk
of metabolic and chronic diseases.
In this new encyclopedic handbook for women with PCOS, Dr. Fiona McCulloch dives
deep into the science underlying the mysteries of the condition, offering the newest
research and discoveries and a detailed array of treatment options. 8 Steps to
Reverse your PCOS gives you the knowledge to take charge of your PCOS-related
health concerns addressing hair loss, acne, hirsutism, irregular menstrual cycles,
weight gain, and infertility.
FionaMcND
DrFionaND
Available on
PCOS and Sleep
Disorders
Featuring David A. Ehrmann, MD
Professor of Medicine
Endocrinology, Diabetes and Metabolism
University of Chicago
By Renetta DuBose
SLEEP
work. They should be aware that shift work can
have an impact on the quality of their sleep. Peo-
How do you know if you are not sleeping
ple who are sleep deprived for whatever reason
properly?
tend to have increased levels of hunger and appe-
Patients often dont know. Some of the signs would tite and they tend to gravitate toward less healthy
be daytime somnolence or fatigue during the day- food choices. Sleep disruption or sleep shortening
time thats disproportionate to their activity level. can have an impact on health as well.
Waking up in the morning with headaches, is an-
other sign of disruptive sleep. SLEEP DISORDERS
What is a sleep disorder?
How essential is getting a good nights rest
in terms of avoiding a sleep disorder, and is There are many different types of sleep disorders.
there a specific number of hours that a person The one that is pertinent to PCOS is obstructive
should sleep? sleep apnea. Overweight and obese individuals
are more likely to have this disorder. With obstruc-
There isnt really a one-size-fits-all recommen- tive sleep apnea, during sleep there are episodic
dation, but generally individuals should try to get periods where breathing ceases for a short inter-
six to eight hours of sleep per night, the minimum val of time. The oxygen level in the blood drifts
would be six. Its not only the duration of sleep, down and that sends a signal to the brain to take
but its the quality of that sleep that impacts the in a breath. It usually lasts several seconds, and
effects of normal sleep and the repercussions of its not unusual to have about three to four of those
abnormal sleep. types of events per hour of sleep. But, with ob-
structive sleep apnea what typically happens is
What do you mean by quality of sleep? that the airway closes and its usually for a longer
period of time with a more profound decrease in
Im referring to the medical quality of sleep. Sleep oxygen level in the blood. The individual takes in a
disruption, sleep disordered breathing, restless deep breath and thats what the snoring actually is.
leg syndrome and obstructive sleep apnea. All of What happens when this gets repeated through-
these things can have a major impact on the qual- out the night is that sleep is decreased, not in a
ity of sleep. Also, there are people who do shift conscious awakening way but through what we
quality. However, the main factor in PCOS that is not true for all individuals. Some individuals ac-
modifiable and that would improve sleep apnea tually get better sleep when they exercise in the
would be a reduction in body weight, which is also evening. Lifestyle changes can have an impact as
the most difficult thing to achieve in PCOS or prob- well.
ably in any population.
SLEEP AND HORMONES
Talk about the significance of sleep apnea for What is the relationship between hormone
women with PCOS. interference and poor sleep hygiene?
Sleep apnea is one of the key factors in women Most people thought going into this area of re-
with PCOS that has an impact on their sense of search that the excess testosterone that wom-
well-being and their cardio-metabolic health. Sleep en with PCOS have was going to be the culprit
apnea has implications for both cardiac function, hormone causing sleep apnea. Testosterone for
risk of sudden death and risk of heart disease, as many reasons would seem the logical hormone
well as metabolic abnormalities, primarily insulin on which to focus. Men have higher risk of sleep
resistance and increased risk for diabetes. Be- apnea than do women and one of the major hor-
cause about half of women with PCOS have sleep monal differences between men and women is the
apnea, its recommended that when there is any testosterone level, which is higher in men. Wom-
suspicion of the presence of sleep apnea in wom- en with PCOS have testosterone levels that are
en with PCOS that they should be tested by hav- higher than women without PCOS, but certainly
ing a sleep study and then treated appropriately if not as high as men. However, testosterone does
they do have sleep apnea. Its far more common not appear to be the culprit hormone. In all of the
than people realize. studies that weve done, and others have done,
testosterone levels do not seem to have a major
FOOD AND EXERCISE impact or really any impact on the risk of sleep
Do foods and exercise impact sleep quality? apnea or the severity of sleep apnea. There may
be a role for progesterone. Women with PCOS
Exercise and nutrition in general do have an effect tend to be progesterone deficient because they
on sleep. Obvious things like caffeinated beverag- dont ovulate regularly, if at all. When they dont
es should be avoided. Some people recommend ovulate, their progesterone levels are low and pro-
not working out close to the time of sleep because gesterone is something that does have an impact
it may make sleep more difficult. However, thats on sleep more central than mechanical. It doesnt
T
oday we know that PCOS is the single be confirmed so fast in similar studies conducted
most common endocrine, metabolic and around the world.
reproductive disorder of the human fe-
male, affecting anywhere between 1 in Three of Stein and Leventhals seven patients in
12 to 1 in 7 women worldwide, depending on defi- their original 1935 report were obese (43 percent if
nition. But it was not always so. In fact, even Dr. you are keeping count). Subsequent observations
Irving F. Stein, he of the famed Stein-Leventhal suggested that many, even the majority of women
Syndrome, felt it was a rare disorder going so far with PCOS, were overweight or obese. This is un-
as to state in his 1958 review that the syndrome fortunate because its not true.
... plays but a small part in the overall picture of
female sterility .... In fact, less than 20 years ago How can this be the case? Lets look at the evi-
we simply did not know how common PCOS was. dence. Firstly, we know from quality of life studies
When our team decided in 1994 to assess for the that women with PCOS tend to go see physicians
first time the prevalence of PCOS in a medical- or seek care primarily for complaints of excess
ly unbiased population, we were not expecting to male-like hair growth (called hirsutism), male-like
find the high percentage that we eventually found. balding (i.e., androgenic alopecia) and obesity.
We were certainly not expecting our estimates to So to try and understand the true appearance of
A
s a nutritionist for a fertility clinic, I fre- tance, a condition which in its most advanced form
quently counsel women trying to manage causes type 2 diabetes, a disease now considered
PCOS while also dealing with the stress epidemic in our population. Insulin is a hormone
of infertility treatment. As glucose testing produced by the pancreas, its main job being to
is a common part of that process, Im often the first "unlock" cells to move glucose (blood sugar) out of
person to address the fact that they may now also the blood and into the cells after eating. In insulin
have prediabetes, a state that precedes diabetes resistance, the cells become numb to the action
where blood sugar levels are starting to rise but of insulin, forcing the pancreas to work harder to
not yet to the level of diabetes. What both PCOS make more to get the job done.
and prediabetes have in common is insulin resis-
2017
PCOS EVENTS ATTEND THE BIGGEST
PCOS EVENTS OF THE YEAR
Sometimes, theres nothing you can do about the condition you have,
Keshena says. You could diet, you could exercise, you could take all of
the pills in the world, but its not going to change the fact that you still have
it. If I cant change having PCOS, I might as well smile.
nology products. that she decided to write a book. There are many
Another hobby that books out there about PCOS, but Keshena nev-
helps Keshena man- er saw one written by someone who had been
age her PCOS is writ- through the PCOS journey like she had. Keshena
ing. She highly recom- hopes that her book will help other cysters cope
mends keeping a journal with PCOS by providing another perspective, and
and stresses that whatever also by serving as an information resource. Her
you put in your journal, whether book is called I Kept My Smile: From a Girl to
its good times, bad times or sad a Woman with PCOS, and the title underscores
times, its all necessary. Keshena her secret to managing the condition.
started writing about her PCOS so much
PCOSChalleng
32 PCOS CHALLENGE MAR - APR 2017 VOLUME 2 ISSUE 2
D THE FREE
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PCOS CHALLENGE MAR - APR 2017 VOLUME 2 ISSUE 2 33
Featured
PCOS CHALLENGE
Radio Shows and Videos
RADIO SHOW
ENDOMETRIOSIS AWARENESS Mary Lou Ballweg
Mary Lou Ballweg, founder, President and Executive Director of
the Endometriosis Association speaks about endometriosis and
the importance of advocating for your health.
PCOS.tv/endometriosis-awareness
Video
INFERTILITY AWARENESS VIDEO Beth Heller
Beth Heller, Co-founder of Pulling Down the Moon,
shares her personal story about dealing with infertility.
PCOS.tv/pcos-infertility-awareness
RADIO SHOW
ELECTROLYSIS AWARENESS Lara Iskander, LE, CPE
Lara Iskander, a woman with PCOS and a licensed and
certified electrologist, discusses hair removal options for
women with PCOS.
PCOS.tv/pcos-hair-removal-options
Serves: 6
INGREDIENTS
1 Tablespoon olive oil
3 cloves garlic, minced
3 jalapeos, seeded and finely
chopped
1 and cups vegetable broth
1 (14.5 oz) can diced tomatoes,
with juices
1 cup uncooked quinoa
1 can or 1 and cups black
beans, drained and rinsed
1 cup frozen corn
teaspoon salt
1 teaspoon chili powder
teaspoon cumin
cup fresh cilantro, chopped
1 quarter of a lime, juiced
Toppings as desired:
Shredded cheese
Avocado, cubed
Green onions, sliced
INSTRUCTIONS
NUTRITION INFORMATION
1. Heat olive oil over medium-high heat in a (not including cheese or avocado garnish)
Dutch oven or medium saucepan.
Per serving
2. Add garlic and jalapeos to the pan and saut
Calories 229 cal
until fragrant; about 2-3 minutes.
Carbs 39 g 66 %
3. Stir in the vegetable broth, diced tomatoes,
Protein 9g 16 %
quinoa, black beans, and frozen corn.
Fat 5g 18 %
4. Add salt, chili powder, and cumin. Bring to a
Saturated Fat 1g
boil. Reduce heat to medium-low and simmer
for 30-35 minutes, or until the liquid is fully Cholesterol 0 mg
absorbed. 33 g /
Fiber 8g
1000 cal
5. Stir in the cilantro and lime juice. Serve with
desired toppings such as shredded cheese, Sodium 438 mg
avocado and green onions.
LIVE EDUCATION
ADDRESSES GAPS RELATED TO CARE AND TREATMENT
Helps provide vital live educational programs for over 1,000
patients and healthcare professionals across the U.S. each
year. These programs address seven identified education
and healthcare practice gaps adversely impacting millions
of women and girls with PCOS.
HEALTH SCREENINGS
HELPS SAVE LIVES
Women with PCOS constitute the largest group of women
at risk for type 2 diabetes and cardiovascular disease.
Your support helps provide health screenings to identify
and reduce PCOS patients risk of type 2 diabetes,
cardiovascular disease and stroke.
40,000
MEMBERS
STRONG