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Patient advocacy:

a concept analysis
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Patient advocacy:
a concept analysis Moyra A Baldwin RGN, RCNT,
Baldwin MA (2003) Patient advocacy: a concept analysis. Nursing Standard. RNT, Cert Ed, Diploma in
17, 21, 33-39. Date of acceptance: October 8 2002. Advanced Nursing Studies, DipN,
BSc(Hons), MMedSci, Member of
Institute for Learning and
Abstract Literature review Teaching in Higher Education, is
Aim To clarify the ill-defined concept of Concepts are labels to describe phenomena that Senior Lecturer, Chester College
patient advocacy and develop a model. provide a ‘concise summary of thoughts’ (Meleis of Higher Education, School of
Method An eclectic concept analysis was 1991). A problem with advocacy, however, is the Nursing and Midwifery, Arrowe
used in the study. myriad of definitions and explanations. Descriptions Park Hospital, Wirral.
Results Results of the analysis reveal that range from counsellor, watchdog and representa- Email: m.baldwin@chester.ac.uk
advocacy has three essential attributes:
tive (Abrams 1978) to potential whistleblower (Ahern
valuing, apprising and interceding.
Antecedents to advocacy include a and McDonald 2002, Andersen 1990). There does
vulnerable population and a nurse willing to appear to be a consensus that advocacy involves
take on the responsibility for advocacy. The one person representing another (Allmark and
consequences of acting as a patient Klarzynski 1992, Konke 1982a, 1982b, Morrison
advocate can be potentially negative or 1991). However, for Copp (1986), it means more
positive for patient and nurse. On their own, than speaking for another as it involves interven-
the attributes are one of a number of tion for ‘vulnerable’ people who require it.
helping strategies. There are a number of models of advocacy. Fowler Online archive
Conclusion Advocacy is a contemporary
(1989) has suggested four:
nursing issue comprising three essential
attributes. Individually, each of the attributes is ■ Guardian of patients’ rights. For related articles visit our
a helping strategy used in nursing. Only when ■ Preservation of patient values. online archive at:
all three attributes are present can advocacy ■ Champion of social justice in the provision of www.nursing-standard.co.uk
be said to be realised. health care. and search using the key
■ Conservator of patients’ best interests. words below.
The first and second models are concerned with

T
HE TERM advocacy has appeared in nursing patients’ legal rights to health care and treatment,
literature for almost two decades (Hewitt with the second also encompassing individual val- Key words
2002, Mallik 1997). Much of the literature ues. The third model is based on inequalities and
has attempted to legitimise and encompass patient inconsistencies in healthcare provision. The final ■ Patients: empowerment
advocacy in the role of the nurse. However, reser- model demands that the nurse has autonomy to
vations about the suitability of the nurse to act as empower patients. It is with this model that the ■ Research methods
patient advocate have also been expressed (Allmark codes of professional conduct (NMC 2002, UKCC
and Klarzynski 1992, Copp 1986, Walsh 1985). 1992) are concerned. Conservator of patients’ best
Advocacy first appeared in the Project 2000 nurs- interests is particularly evident in clause 2.4 of the These key words are based
ing curriculum (UKCC 1988). Codes of conduct NMC (2002) code, which states that the nurse ‘must on the subject headings from
and guidelines for professional practice provide evi- promote the interests of patients and clients’. the British Nursing Index. This
dence that advocacy is a condition of contempo- Mallik (1997), however, states that advocacy mod- article has been subject to
rary professional nursing practice (NMC 2002, UKCC els are inconclusive and that there is a need for clar- double-blind review.
1992, 1996). ification. Indeed, the increasing literature advancing

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advocacy as a nursing activity led Snowball (1996) icised, however, for simplifying complex concepts
Box 1. Concept analysis to suggest that advocacy is just a buzzword: a ‘con- (Morse 1995). Rodgers (1989) considered that
methods
venient label for diverse activities’ (Snowball 1996). Wilson’s (1971) method represented a static view
Conceptual clarity is required to provide the evi- of concepts and was a reductionist approach. Her
■ Concept development dence base for advocacy in nursing. philosophical examination of the foundations of con-
cept analysis revealed two distinct views of concepts,
■ Concept delineation
namely entity and dispositional (Rodgers 1989). The
Aim
first focuses on the concept as an entity in itself, and
■ Concept comparison
The aim of this research was to clarify the concept therefore removes the meaning of the concept from
■ Concept clarification of advocacy and to develop a model of advocacy. context. Both Wilson’s (1971) and Walker and Avant’s
(1983) approaches provide an entity view. In con-
■ Concept correction trast the dispositional view emphasises an individ-
Method
ual’s ability to perform specific behaviours as a result
■ Concept identification Concept analysis is a method of enquiry that elicits of being clear about the concept in question. Here
clarification, identification and meaning of words the concern is with the use of concepts in reality and
(Morse 1995)
(Norris 1982, Walker and Avant 1988, 1995). Several it can be seen to be relevant to exploration of con-
methods of concept analysis exist to aid clarifica- cepts relating to the practice of nursing.
tion and there is considerable reference to Wilson’s In an attempt to address her criticism of Wilson’s
logical positivist approach (1971). Logical positivism, (1971) approach, Rodgers (1994) advanced an evo-
in philosophy, is concerned with analysis of propo- lutionary cycle of concept development, which
sitions in an attempt to show that it is possible to acknowledged that concepts are influenced by ‘sig-
‘know’ something for certain (Russell 1984). Walker nificance’, ‘use’ and ‘application’. Her method
and Avant (1983) adapted this method for the brought about analysis that is practice related, as it
study of nursing concepts and much of the litera- focused on application of a concept in practice. This
ture in which the purpose of the study is to exam- hybrid model, along with that of Wilson (1971) and
ine a specific concept has used this approach. that of Walker and Avant (1983), however, was
Burnside and Haight (1992) elucidated the differ- rejected by Morse (1995) in favour of an alterna-
ence between the concepts of reminiscence and tive: an interpretative approach that used qualita-
life review. Gilje (1992) clarified the concept of tive research methods to establish a concept’s maturity.
‘presence’ as a phenomenon in nursing, and Jacobs Using qualitative methodology and drawing on
(1993) and Mairis (1994) clarified grief and dignity, Bolton’s (1977) ‘rules of relation’, Morse (1995)
respectively. Holcomb et al’s (2002) report on the proposed analysis of primary and secondary data
concept of nursing productivity used this method. to determine whether the object of enquiry could
Wilson’s (1971) and Walker and Avant’s (1983) be considered a concept. The rules of relation are
approaches to conceptual analysis have been crit- fivefold, concepts are:

Table 1. The stages for concept analysis

Stages for concept analysis Authors supporting

Identify the concept of interest Walker and Avant (1983)


Rodgers (1994)
(implied by Wilson 1971)

Determine the aims or purpose Walker and Avant (1983)


of the analysis Rodgers (1993)

Identify and select an appropriate realm Rodgers (1993, 1994)


or sample for data collection

Identify attributes, antecedents Walker and Avant (1983)


and consequences of the concept Rodgers (1989, 1993)
Morse (1995) – concept development

Identify a model case of the concept, Wilson (1971)


if appropriate Rodgers (1994)

Identify implications for further Rodgers (1993)


development of the concept

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Table 2. Attributes of advocacy

Attributes Valuing Apprising Interceding

Definition A therapeutic relationship Promoting and protecting Acting as an intermediary


in which to secure patients’ patients’ rights to be involved between patients and:
freedom and self-determination in decision-making and – family
informed consent – significant others
– healthcare providers

Evidence Curtin 1979, 1983 Barton 1991 Conway-Rutkowski 1982


Gadow 1980 Chamorro and Applebaum 1988 Copp 1986
Konke 1982a, 1982b, 1982c Konke 1982b Curtin 1979
Robinson 1985 Marshall 1991
Salladay and McDonnell 1989 Sines 1993
Smith 1979 Winslow 1984

■ The expressions of the ways in which an indi- apprising and interceding, and inherent in each is
vidual’s experience are organised. the nurse who is proactive as well as reactive.
■ The result of particular experiences becoming Evidence to support the defining attributes and
general. their definition is shown in Table 2.
■ The result of co-ordination of elements. Valuing Analysis of the literature demonstrates that
■ Used to organise events and must be capable of valuing is one attribute of advocacy. It is an essen-
being applied to new ones. tial attribute of a therapeutic nurse-patient rela-
■ Formed by examining the correlation between tionship that secures patients’ freedom and
application of a rule to a particular situation and self-determination. Valuing is that which the advo-
its results. cate holds dear, prizes or cherishes. Valuing has
Having identified that a concept exists, application two components: valuing patients’ individuality and
of the ‘rules of relation’ clarifies which of Morse’s valuing self. The patient advocate is one who, while
(1995) six concept analysis approaches is the best providing expert care, maintains ‘individualization
framework for a particular concept analysis (Box 1). and humanity’ (Smith 1979). Gadow (1980)
While Morse’s (1995) approach is comprehensive, expressed valuing as: ‘the nurse is in the ideal posi-
it is also more complex to a novice concept ana- tion among healthcare providers to experience the
lyst. The method for the analysis and clarification patient as a unique human being with individual
of the concept advocacy used in the author’s study strengths and complexities’.
was an eclectic one based on Wilson’s (1971), Similarly, Curtin’s (1979) concept of advocacy is
Walker and Avant’s (1983) and Rodgers’s (1989) based on the common humanity between nurse
methods. Morse’s (1995) work on concept devel- and patient for she maintained that: ‘we are human
opment and qualitative thematic analysis has also beings, our patients or clients are human beings,
influenced the approach to this study. The stages and it is this shared humanity that should form the
and evidence to support their inclusion are shown basis of the relationship between us’.
in Table 1. Data sources include nursing, research Gadow (1980) placed valuing the patient’s indi-
and scholarly literature. viduality at the core of her philosophical founda-
tion for nursing. She contended that the right to
determine meaning for oneself was the most
Results
supreme human freedom, a freedom subsumed
Attributes of patient advocacy The defining within the right to self-determination. Gadow (1980)
attributes, that is, those consistently occurring char- wrote of the nurse advocate helping patients to
acteristics throughout the literature included the ‘authentically’ exercise their freedom of self-deter-
following: mination. By this she meant a way in which one
■ A therapeutic nurse-patient relationship in which reaches decisions that are absolutely one’s own.
to secure patients’ freedom and self-determination. Valuing self - Konke (1982a) claimed that the advo-
■ Promoting and protecting patients’ rights to be cacy role was action filled and suggested that it
involved in decision-making and informed consent. had risks. While supporting patients’ decisions the
■ Acting as an intermediary between patients and nurse risks being labelled an informer and precip-
their families or significant others, and between itating anger in others. The best antidote to these
them and healthcare providers. risks and ‘hidden hazards’ was open-mindedness,
The attributes identified are summarised as valuing, which included knowledge of oneself and an

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understanding of one’s own attitudes, values and was identified by Marshall (1991) and Sines (1993)
beliefs. She believed that knowledge dispelled the as an advocate’s role. Both authors included medi-
myths of advocacy and, like advocacy, began with ating between parties as one of the advocate’s
the self. Knowledge affords the advocate the infor- functions. Copp (1986) identified interceding in
mation necessary to inform patients, and self-know- respect of vulnerable people. As hospitalisation ren-
ledge enables the advocate to support patients in ders patients vulnerable, there is a need for an
their decisions. advocate who is able and willing to intercede on
Robinson (1985) argued that advocacy involved their behalf.
enabling patients to make decisions freely without Most literature pertains to interceding between
pressure and encouraging patients to make informed patients and healthcare providers. Some identifies
decisions. The advocate takes responsibility for that the patient’s advocate intercedes between
ensuring goals and priorities are client-centred. A patients and family or significant others (Conway-
successful patient advocate is a nurse ‘who is first Rutkowski 1982).
able and willing to set aside personal agendas and
unit politics’ (Salladay and McDonnell 1989). To do
Antecedents and consequences
this the nurse needs to know his or her own val-
ues, beliefs and opinions. Antecedents and consequences are stages of con-
Apprising The second attribute is apprising, which cept analysis that are often ignored (Walker and
is a combination of informing, advising and edu- Avant 1995), yet they enrich an analysis by plac-
cating. Konke (1982b) claimed that informing and ing the concept in context. The analysis reveals that
supporting were at the heart of patient advocacy. there are two parties involved in patient advocacy
Advocacy involves enabling patients to make their – the nurse and the patient. Therefore, there are
own decisions regarding health care, which will antecedents and consequences for both parties
encourage the likelihood of them obtaining the (Figure 1).
health care of their choice. However, advocacy goes Antecedents Antecedents are events that must
beyond merely assisting patients with their decisions. occur before the concept (Walker and Avant 1995).
It involves helping them to reason and deliberate The analysis has shown that the nature of the sit-
(Barton 1991). This requires that the patient is knowl- uation preceding patient advocacy is twofold. First
edgeable, before making the decision, about the impli- there is the context of vulnerability whereby the
cations, consequences and alternative options on offer. patient, simply by being a patient, is vulnerable.
Thus the advocate acts as a ‘sounding board’ so that The patient in his or her vulnerable state might be
patients can arrive at the right decision aware of the facing conflict or in a situation that requires a deci-
ramifications of their decisions. sion. Second, there is a need for the nurse, who is
Chamorro and Applebaum (1988) enriched the to act as the patient’s advocate, to take responsi-
apprising component by arguing that advocacy bility for assisting the patient.
involved not only disclosing the consequences of Patient – Much of the literature analysed referred
proposed treatment plans but also the conse- to patient vulnerability. Abrams (1978) clearly
quences of foregoing the treatment. This second described how on becoming a patient there was
attribute demands the skills of informing and advis- a need for an advocate. On entering hospital the
ing so that the advocate can promote and protect patient experiences loss of control over his or her
patients’ rights to be involved in decision-making life, and loss of identity and initiative. Being hos-
and informed consent. pitalised removes one from the family and the
Interceding The final attribute is interceding. It natural supportive network families provide. The
means coming between parties and intervening or patient faces a strange environment with potential
mediating where necessary. Patient advocacy worries about health problems as well as concerns
demands that the nurse helps patients to overcome about separation from family (Abrams 1978, Jenny
barriers to meeting their needs (Curtin 1979, Winslow 1979). Recent government publications provide
1984). Reference to transcending barriers is sup- evidence that patient vulnerability remains an issue
ported in the literature, which recognises nursing’s in the 21st century, for example, publications guid-
role in re-humanising and re-personalising patients’ ing patients through the network of health services
experiences of healthcare services. (DoH 2001).
Bureaucratic hospital systems and the power In addition to being vulnerable, patients face con-
ascribed to healthcare professionals render the flicts and situations demanding decision-making.
patient population vulnerable and impotent, as Barton (1991) identified this antecedent when she
does the disease process (Curtin 1979). Kahn et al claimed that advocacy was a vehicle for enabling
(1972) asserted that: ‘advocacy has existed for as patients to refuse treatment. Citing a case study
long as there have been powerless groups in need of a patient who refused chemotherapy twice, on
of a champion’. In their position of powerlessness, the grounds of wishing to secure herself a ‘quality
patients require someone to speak for them, and of life’, Barton (1991) demonstrated how a vul-
in some cases mediate on their behalf. Interceding nerable patient faced conflict. The case study

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Figure 1. Attributes, antecedents and consequences of patient advocacy

Antecedents

Patient – vulnerability Nurse – willingness


– conflict – responsibility

Attributes

Valuing

Advocacy

Apprising Interceding

Consequences
Positive Negative
Patient – self-determination Patient – discomfort
Nurse – satisfaction Nurse – risk

demonstrated the first antecedent of vulnerability advocate. There was no nurse willing to take
in that the patient (who had a cancer diagnosis) responsibility to continue to assist her with her deci-
was experiencing a certain degree of persuasion sion and she was persuaded on the third occasion
from medical personnel as well as her family. There to consent to chemotherapy. Ahern and McDonald’s
is evidence also that in this vulnerable state the (2002) survey of nurses’ beliefs relating to whistle-
patient was in a situation causing her conflict as blowing and advocacy supported the existence of
she was refusing treatment. Brett (1998) likewise the two antecedents: nurses who reported mis-
noted how conflict and vulnerability were inherent conduct believed in patient advocacy and felt they
in the experience of the hospitalised older person. had a responsibility to patients.
The strange environment and protocols may make Consequences Consequences are those events that
older patients adopt a subordinate role where they occur as a result of the concept (Walker and Avant
find themselves agreeing with powerful healthcare 1995). As with antecedents there are positive and
professionals and feel a need to comply with rather negative consequences for both patient and nurse.
than refuse treatment (Brett 1998). Patient – A positive consequence for the patient is that
Nurse – Willingness and responsibility are the two his or her autonomy is secured (Barton 1991, Graham
antecedents pertaining to the nurse. Fay (1978), 1992, Konke 1982a). Literature addressing nursing
recognising that education would promote the ethics also notes that patient advocacy is supported
advocacy role, assigned students course work that by the principle of autonomy because the nurse is
explicitly encouraged them to take responsibility obliged to enable patients to be self-determining.
for, and to become, patient advocates during clin- Teasdale’s (1998) advocacy flow chart, based on an
ical experience. In Barton’s (1991) case study, the analysis of 150 critical incidents, ended with patient
patient did not benefit from the services of an empowerment which supports self-determination.

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explicitly by Andersen (1990), namely whistle-
Box 2. Advocacy: a model case blowing. Other authors less forthright than
Andersen (1990) also support the notion that
A 55-year-old woman with a diagnosis of inoperable pancreatic cancer was offered advocacy is a risky business (Abrams 1978, Copp
the opportunity of participating in a randomised controlled trial (RCT) involving 1986, Fay 1978). Graham Pink was a charge nurse
cytotoxic chemotherapy. The patient confided to the nurse involved in her care that working in care of the older person’s wards on
she was having difficulty deciding whether or not to participate in the trial. The GP
night duty at Stockport. After unsuccessfully rais-
and the patient’s family were supportive of the trial. Participating in an RCT meant
ing concerns with his managers over a period
that she had no control over whether she would have to remain in hospital: one of
the treatments involved being an inpatient. The patient asked the nurse to help her of two years, he decided to publicly report how
find out more information about the specific drug. understaffing was causing inadequate care. Pink
The nurse, with the support of the patient’s family, contacted a national was dismissed. However, his employers said that
organisation’s helpline and obtained written information about the nature of the it was not because of whistleblowing. They took
cancer and the drug to be trialled. She also contacted the oncologist who provided action when a patient’s relatives complained that
additional information about the drug. Stating that the patient had a poor prognosis, the information supplied to the press had been
the oncologist hoped that the trial might be able to offer some ‘quality of life’, sufficient for them to identify who was being
although what this involved could not be specified. written about and this had caused them distress.
The patient, in possession of the information the nurse had provided, decided not Further examples of these risks are evident in
to enter the trial.
Hunt’s (1995) whistleblowing survey results.

Table 3. Advocacy Model case

A model case taken from practice rather than cre-


Implications for practice
ated, as Wilson (1971) suggested, follows Walker
and Avant’s (1995) next stage of concept analysis.
Assessment Antecedents This is shown in Box 2.
Consequences
The attributes of advocacy have been identified
Own advocacy skills
as valuing, apprising and interceding. For this prac-
Planning Patient participation tice incident to qualify as a model case then all three
Decision-making strategies needed to be present. The nurse demonstrated valu-
ing in that her actions were aimed at gaining more
Advocating Using relationship building skills information for the patient so that she could make
Promoting and protecting patients’ rights to be an informed decision. Apprising and interceding
involved in decision-making and informed consent were also present through the nurse’s use of vari-
Mediating, informing and supporting ous sources to inform the patient. She was engaged
in interceding when she took responsibility for ‘com-
Evaluating Criteria of effectiveness – consequences ing between’ two parties: the patient and oncolo-
gist, and the patient and national helpline.
A negative consequence that was implied in the
literature, however, is patient discomfort. Discomfort
Discussion
appears more apparent when there is competition
for the role of advocacy between professionals The attributes of advocacy elicited from analysis of
(Copp 1986). Konke (1982b) provided the most nursing, research and scholarly literature are valu-
tangible evidence for the less desirable aspect of ing, apprising and interceding. While each has been
advocacy from the patient’s perspective. She claimed addressed individually, in reality they overlap. Concept
that it was a human trait to want to blame others analysis reveals that patient advocacy is a combina-
in situations where the decision made turns out tion of three essential helping strategies. Only when
not to be the best one. all three attributes are combined is advocacy realised.
Nurse – A positive consequence for the nurse is job The deliberate, logical and systematic approach
satisfaction; however, the negative aspect relates of assessment (Table 3) is required to determine
to perceived and actual risk in terms of career. those situations in which advocacy is appropriate
Literature pertaining to the nurse’s role clearly and possible. Identifying patients who are vul-
identifies advocacy as an ideal which, in turn, is a nerable and who require an advocate is essential.
means to self-actualisation and a positive conse- Additionally the potential advocate needs to observe
quence of advocacy (Henderson 1961, NMC 2002). for other situations in which to advocate for
From Henderson’s early writing to current codes of patients. The advocate needs to be aware of the
professional conduct, being an advocate can help antecedents so as not to miss opportunities that
the nurse to fulfil his or her role and is thus a pos- may be less apparent than merely being a mem-
itive influence. It is grounded in the caring ethic ber of, or stereotyped into, a vulnerable group.
(Curtin 1979). While assessing for situations of advocacy the
A negative consequence, however, is advanced advocate needs also to consider the consequences.

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This will include weighing the benefits against the
Conclusion
costs to the nurse and patient. It is possible fol-
lowing one negative experience that an advocate The results from the analysis of the concept of
may assess the consequences in novel situations to advocacy reveal that it is a combination of three
be too great to implement advocacy. essential helping strategies. Only when valuing,
Patient participation is required. The fact that the apprising and interceding are combined can advo-
antecedents for advocacy include vulnerable patients cacy be realised. From the discussion, exploring
who may also be experiencing conflict in making implications for practice, along with the identifi-
decisions serves to illustrate the importance of their cation of antecedents and consequences, it can Smith J (Ed) Models, Theories and
involvement in the process. As the purpose of advo- be concluded that advocacy is an essential and Concepts. Oxford, Blackwell
cating has been demonstrated as enabling patients necessary requisite of nursing Scientific Publications.
Rodgers B (1993) Concept analysis: an
to exercise their right to freedom and self-deter- evolutionary view. In Rodgers B,
mination, their active involvement is fundamental. Knafl K (Eds) Concept Development
Instruments of evaluation are not readily available in Nursing: Foundation, Techniques
Implications of practice and Applications. Philadelphia, PA,
for advocacy, however, the author suggests that WB Saunders Company.
the consequences of advocacy may be useful cri- Rodgers B (1989) Concepts, analysis
teria to determine effectiveness. ■ Patient advocacy is a combination of and the development of nursing
valuing, apprising and interceding knowledge: the evolutionary cycle.
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and interceding are required if they are to engage ■ Antecedents to advocacy include a 330-335.
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