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Digital Marketing

The rise of e-health: Current


trends and topics on online
health communications
Received (in revised form): 5th September, 2007

Renata Schiavo
is a Senior Health Communications Consultant and the Founder of Strategic Communication ResourcesSM, which provides
strategic health communications counselling, training and programme evaluation only to nonprofit health organisations and
foundations. She is also Adjunct Assistant Professor of Public Health at New York University, Steinhardt School, Department
of Nutrition, Food Studies and Public Health where she is on the faculty of the MPH programmes. She is the author of a
book on Health Communication: From Theory to Practice (San Francisco: Jossey-Bass, 2007).

Keywords e-health, interactive health communications, internet, health


communication, online health communications, e-communications

Abstract The increasing reliance on the internet by the healthcare community at large
has been shaping the practice of health communication by opening ‘the way to the use
of interactive health communications tools (for example, Web sites, Internet-based
games, online press rooms, disease symptoms simulations, opinion polls, seminars,
etc.), which are often designed as part of larger health communication interventions’.1
Professional and personal blogs, podcasts, chat rooms and forums have also become
a prominent source of health information among different kinds of audiences. E-health
emerged as a general buzzword after 1999 and is defined as ‘a field in the intersection
of medical informatics, public health and business, referring to health services and
information delivered or enhanced through the Internet and related technologies’.1,2
Ultimately, the internet is increasingly being perceived as an important communication
channel and is functioning as some of the more established channels. This review of
current trends and topics related to online health communication aims to highlight key
factors that may affect the quality, use and audience-specific perception of online health
communications as well as to providing examples of common internet uses by different
kinds of health organisations. It also argues that internet-based interventions should still
rely on the key mantras of strategic health communication and be part of an integrated
approach with other communication areas and activities.
Journal of Medical Marketing (2008) 8, 9–18. doi:10.1057/palgrave.jmm.5050132

Renata Schiavo
INTRODUCTION: WHY A 2007 survey showed that ‘71% of
Strategic Communication
E-COMMUNICATIONS? American adults use the Internet’.3 Half
ResourcesSM
166 Bank Street Suite 5B Over the last few years, internet use has of new users subscribe to broadband
New York
NY 10014 dramatically increased worldwide. In the reflecting the overall consumer desire
United States
Tel: + 1 646 486 9485 United States, new internet users grew to take full advantage of the internet
e-mail: renata@
renataschiavo.com from 66 to 73 per cent in 2006.3 potential as well as new technologies.4

© 2008 Palgrave Macmillan Ltd 1745-7904 $30.00 Vol. 8, 1 9–18 Journal of Medical Marketing 9
www.palgrave-journals.com/jmm
Schiavo

Similarly, around 75 per cent of Canadians communication technology to access or


have a computer in their home and spend transmit health information or to receive
an average of 13.5 hours per week online.5 guidance and support on a health-related
While the United States is still the issue’.11 While IHC include also the
country in the world with the highest use of other technologies, such as the
number of internet users, a few European telephone and computer programs, the
countries and Australia have the highest internet has rapidly become one of
internet penetration (percentage of the the most important IHC channels.
population who use the internet).6 While this is indeed a technological
Instead, Asia is the leading world region revolution in health communication,
for internet usage.6 Africa and the this paper observes that the internet is
Middle East still behind but several increasingly acting as more established
local and international initiatives have media and remains one of the many
been focusing on eliminating the digital strategic channels used to reach different
divide.7 kinds of audiences. Undoubtedly, ‘for those
These statistics and many other similar who have regular access to it, the Internet
data have made a compelling case for the has contributed to the merging of cultural
inclusion of e-communications as part perspectives and the understanding of
of comprehensive interventions aimed at many diseases’.1 However, the fact that
behavioural or social change. This is many interactions are mediated by
especially important in the healthcare field technology has been shaping ‘the quality
where an increasing number of ordinary and implications of communication by
people, professionals and organisations are depriving it of nonverbal expressions
relying on the internet for information (eg, facial expressions, gestures) and other
and other purposes. In fact, 80 per cent influences (eg, the potential impact of
of US internet users look for health and different venues — formal versus informal
medical information online.3 Ninety-eight venues — on healthcare or business
per cent of US physicians are online8 and conversations) that are normally common
‘spend at least 50 minutes per night online in face-to-face encounters’1 or other kinds
researching disease information, drug of communications. Obviously, this
information, and to a lesser degree, observation also applies to other kinds of
Continuing Medical Education (CME) media, such as print media. Several features
information’.9 Similarly, searching for of internet-based tools are, however, better
medical or health-related information is positioned than those of more traditional
‘the third most popular use after e-mail media channels to compensate — at least
and general browsing’ among internet in part — for some of the attributes of
users in Canadian households.10 Use interpersonal communication channels.
of sophisticated and visually appealing Awareness and use of such features —
websites, podcasts, webinars, chat forums including audio and video files, animation,
and other interactive tools has become virtual support groups, audience feedback
widespread among different kinds of mechanisms, disease simulators and
health organisations. Interactive health others — as well as the quality of the
communications (IHC) is a well- information being posted and the source
established area of health communication credibility are essential to creating the
and has been defined as the ‘interaction feeling of connectedness the internet may
of an individual — consumer, patient, elicit among many of its users. As for
caregiver or professional — with or other kinds of mass media channels, the
through an electronic device or internet is not intended to replace the

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human touch of interpersonal KEY ISSUES IN ONLINE


communications but for some of its HEALTH COMMUNICATIONS
applications (eg virtual support groups, The internet has become a widely used
professional and consumer blogs, virtual media for a number of social tasks.
rallies, etc), it is well positioned to build ‘In health care, technology-mediated
and maintain communities and groups communications have provided a private
that share similar values and interests forum to discuss sensitive matters, connect
and whose members feel connected to with others who may have experienced
each other. similar health issues, network, and learn
Still, the process of communicating
about new medical solutions, among
about health and illness — whether online
others. They have also affected provider–
or offline should continue to rely on
patient relationships. For example, some
evidence-based and audience-centred
physicians may complain about the
strategic health communication models,
number of unnecessary questions and
which should inspire the development
concerns that patients may raise because
of tailored communication strategies,
of non-credible medical facts found on
messages, activities and tools and aim to
the Internet. Yet the Internet and other
individual or social behavioural change or
technology advances have improved the
to serving specific organisational goals. If
ability of patients and the general public
adequately used, the internet can play a
significant role in the process of changing to participate in personal and public health
health behaviour or motivating the decisions’.1 Results of a 2006 survey of
adoption and use of new health services healthcare professionals describe that about
and products. Yet, its effectiveness may be 23–31 per cent of study participants
maximised when internet-based strategies reported ‘more than 80% interaction with
are used as part of an integrated approach web informed patients in their daily
to communication, which relies on practice’.12
different strategic areas (eg, interpersonal As for other media the internet
communications, public relations, cannot substitute the feelings of
community mobilisation, professional closeness and social rapport elicited by
medical communications, etc) and tools.1 face-to-face encounters and other
The past decade has been witnessing the forms of interpersonal communications,
integration of new technologies with old which are ‘distinct in their usage’.13
mantras of health communication, which Still, the dynamics and principles of
are all based on the importance of interpersonal behaviour should still
understanding situations, constituencies, inform and shape all online health
audiences and needs. communications.1 This may help
This paper reviews key factors and compensate — at least in part — for
topics that may influence the quality the lack of nonverbal clues or the
and implications of internet-mediated potential influence of specific kinds of
communications and outlines how venues that are instead important factors
audience and disease-specific issues may in interpersonal communications.1
affect the perception and use of online Overall, intended audiences need to
health communications interventions. understand and share common
It also reviews common trends on meanings with the information source
internet applications and uses by as well as trust its credibility regardless
professional, patient and advocacy of whether communication takes place
organisations. online or offline.

© 2008 Palgrave Macmillan Ltd 1745-7904 $30.00 Vol. 8, 1 9–18 Journal of Medical Marketing 11
Schiavo

Other key issues in online health showed that ‘conversation features of the
communication are common to other Internet align with mediated interpersonal
strategic communications areas1 and technology (the telephone and electronic
include: mail)’.13 Similarly, internet use for giving
and retrieving information is widespread.
• A true understanding of situations and needs Information-related features are often used
as well as audience characteristics and health in ways that are similar to more traditional
literacy levels.1 mass media channels, including print,
• The quality and scientific resonance of the
broadcast and books.13
information being presented.
• The development of well-defined goals
Still, the influence of the internet and
and objectives for the online health other related technologies ‘varies from
communication intervention. population to population and group to
• ‘A behaviour-oriented mindset’,1 which group. It is related to media access as well
should prompt consideration for the kind as specific media uses and preferences
of behaviour online communications seek among members of intended audiences’.1
to influence. The accuracy and quality of the
• The information’s graphic appeal — Showing information retrieved or exchanged on
instead of telling is a good practice in most the internet is a key issue that may affect
forms of communications and, in the case perception of the overall field of online
of internet-based communications, it is health communications as well as its use
both an obvious opportunity and a strategic
among some audiences. Table 1 includes
imperative. Somewhat, this may have a
different weight for internet uses that seek to
examples of some of the key factors that
expand the circulation of print materials or influence online communications quality
create online access to specific information in the healthcare field. These features and
(eg online libraries, e-journals, e-books, etc) many others that may be specific to a
but it is a prominent factor for all other given health issue or audience should be
internet applications. considered in evaluating the quality of
• The cultural competence of online online health communications. The table
information and tools, which should be draws upon the author’s professional
designed to reach across cultural boundaries experience as well as a review of some of
and intended audiences’ ideas of health and the existing literature on the subject.1,14–18
illness.1 Internet use has also raised concerns
Increasingly, the internet is acting and about the issues of patient privacy, equal
being used as more traditional media. Data access to information and the increasing
from a study by Flanagin and Metgzer digital divide between different generations

Table 1: Features influencing online communications quality

• Evidence-based, referenced and regularly updated information


• Peer review or professional authorship process
• Transparency about information source and/or health organisation’s history, mission, activities and goals
• Information endorsement by key opinion leaders (KOLs) and other health organisations
• Source accreditation by reputable accrediting institutions
• Grant and conflict of interest disclosure
• Clarity on intended use of personal data
• Reputable and/or community-based sources and spokespeople
• Culturally competent format that translates into visual and graphic appeal, and adequate use of language
• Easy navigation
• Audience-driven resources and tools, including audience feedback mechanisms
• Inclusion of design features and tools that help create bridges among different key audiences
• Integration with services and other health communication interventions

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and cultures, developed and developing related to level of concern about privacy
countries, and, in the US and other issues, prior experiences and the ability to
developed countries, ‘those who can take discern among different sources of online
advantage of this additional resource and information. Not surprisingly, among
those who cannot’.1 Internet access and consumers ‘most trusted sources of online
computer skills, or the lack of thereof, health information include the personal
are becoming key factors in determining doctor’, medical universities and federal
health literacy levels among different government websites.19 Physician
kinds of audiences.1 Finally, internet preferences for online information sources
use has presented the field of health may vary according to physician specialty
communication ‘with an opportunity to and task specificity. For example, Drezner
contribute to public awareness and policy reports that physicians treating HIV
efforts that can expand access to this patients regarded the free Medline searches
channel for health information as well as of MedScape and the National Library of
limit the potential harm to individual Medicine as the most useful features of
and public health that may derive from these websites.20 A study conducted to
inaccurate Internet-based sources’.1 evaluate internet practice patterns of
radiologists shows that Google is the most
FACTORS IN THE used search engine to identify radiologic
information.21 The same study highlights
PERCEPTION AND USE that while ‘45% of participants use
OF ONLINE HEALTH the Web for CME’, ‘most practicing
COMMUNICATIONS radiologists still prefer traditional
The use and acceptance of many educational resources for radiologic
communication channels including online, information and radiology education’.21
are influenced by common audience- These include ‘institutionally run courses’
specific factors that affect how messages are which are regarded as a very effective
digested, and behaviour change adopted by and efficient method of CME.21
intended audiences. These include: In planning online health
communication interventions, practitioners
• The frequency of audience exposure to should be aware of and contribute to
online health messages and more in general removing existing barriers to the use of
to the internet
internet-based tools and communications.
• Health literacy levels
• Cultural, individual, motivational,
For example, in the public health sector,
socioeconomic, age, language and positive perceptions and enthusiasm about
gender-specific factors the internet potential ‘still outspace actual
• The health issue’s relevance among intended utilisation’.22 As shown by reports of
audiences and the level of priority they assign surveys administered to public health
to it professionals or providers at county health
• The ability of internet-based communications departments, limited knowledge or access
to elicit feelings of self-efficacy and to new technologies such as high-speed
empowerment and effectively involve connection, lack of staff training or
intended audience in seeking the change that organisational constraints are among the
would lead to new health behaviours1 and/or barriers to a much more widespread
compliance to prevention and treatment
utilisation of online health
strategies.
communications.22
Moreover, perception and use of the Audience and disease-specific factors
internet among different audiences may be should be taken into account to tailor

© 2008 Palgrave Macmillan Ltd 1745-7904 $30.00 Vol. 8, 1 9–18 Journal of Medical Marketing 13
Schiavo

communications to specific needs organisational publicity phase is usually


and situations and use the internet marked by the development and launch of
appropriately. For example, Reeves reports a website that establishes the organisation’s
that people coping with HIV infection web presence and includes information on
regard the internet as a source of its mission, goals, strategic areas of focus,
empowerment since it helps increase activities, advisory board and key contacts.
social support and makes possible to help Depending on the organisation’s size and
others.23 Conversely, a study by Bernhardt budget, this initial website can be very
and others showed that African Americans simple or already include interactive
and European Americans who participated features and more sophisticated internet
in a study on internet communications tools that are characteristics of the phase
on human genetics were interested in defined as interactive exchange of health
the internet potential but expressed information. As the organisations progresses
concern on the credibility and accuracy in its growth and develops further
of online information.24 Study participants activities and insights in the health field
also reported lack of trust in many of interest, interactive features such as
websites and feared a lost of privacy.24 discussion forums, disease simulators, audio
Finally, internet use and effectiveness and video files, virtual support groups,
is always enhanced by the inclusion of member-only webpages, online surveys,
e-communications interventions as blogs, podcasts, advocacy tools, audience-
part of an integrated approach to health feedback mechanisms and other interactive
communication where other kinds of tools are developed to create an online
media and channels are used to communicate community of users as well as to publicise
and reinforce health messages, mobilise with them offline events such as
and engage communities and provide fundraisers, conferences and other kinds of
relevant services. Other authors also meetings. Gilbert makes somewhat similar
support the importance of integrating observations about different phases of
internet use with services18 and other internet use by environmental
communication approaches, which is organisations.26,27
consistent with current models1,25 for A review of the web presence of ten
strategic health communications. US-based health organisations28–37 —
including five professional medical
organisations and five voluntary and/or
INTERNET USE BY patient/advocacy health organisations —
PROFESSIONAL, PATIENT revealed some common patterns on
AND ADVOCACY internet use. Table 2 summarises some
ORGANISATIONS of the most common uses highlighted
Use of the internet by health organisations by this review.
of different sizes tends to go through Of notice, fundraising pages and
distinct phases, which can be defined as volunteer opportunities were more
ongoing communications and research phase, prominently displayed on patient and
organisational publicity and interactive exchange consumer organisations webpages while
of health information. In the ongoing progress reports or calls to action on
communications and research phase, the health advocacy issues tended to be more
internet is primarily used to research evidently showcased by professional health
health information as well as to organisations. Media relations or news
communicate with others via e-mail sections were prominently displayed on
or share files and documents. The the homepage of most of the organisations

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Table 2: Most common uses of the internet by health organisations


Professional health organisations Voluntary, patient and advocacy organisations

Organisational visibility Organisational visibility


Advocacy Advocacy
Continuing medical education (CME) Virtual support groups for patients and family caregivers
Disease-specific resources Fundraising
Professional networking Volunteer recruitment
Media/press relations Disease profiling/risk assessment tools
Dissemination of new health policies/ Media relations
standards of care
Online publications and reports Disease-specific materials and reports
Fundraising Publicity of ongoing activities/programmes/events
(online and offline)
Publicity of ongoing activities/programmes/
events (online and offline)

reviewed. This reflects an increasingly tasks and audiences. For example, podcasts
reported trend according to which 75.9 (audio/media shows or episodes that are
per cent of journalists in recent studies broadcast over the internet and can be
view the internet as a serious journalistic downloaded for use in digital media
tool and 68.5 per cent are logged on all players or iPod) have emerged as ‘a
the times.38 convenient CME option’ that enables
Regardless of their level of prominence, users to take their CME ‘to go’.40 Online
all internet uses highlighted in Table 2 tours of websites are used to introduce
match common uses of other kinds of new web features, launch new websites
communication channels such as print, and help users become familiar with the
broadcast, publications, interpersonal site’s navigation.29
communication channels, community Obviously, the most sophisticated online
mobilisation events and activities, as tools are only within the reach of large
well as more traditional approaches to organisations that can dedicate significant
professional medical communications. budgets to the development of their
Moreover, as Brainard observes there may online presence. Much smaller or budget-
be some differences between the use of concerned organisations are still in the
the internet by mainstream and more ongoing communications and research or
traditional health organisations and their organisational publicity phases and have
newer counterparts. ‘Traditional groups a much more modest web presence that
use the Internet for organizational does not include interactive tools. Several
maintenance whereas newer groups use it initiatives and organisations both in
for more radical pursuits of empowerment, developed and developing countries have
advocacy, and the provision of solidary been funding different aspects of internet
benefits’.39 Overall, this observation can access, connection and interactivity to
also apply to the use of other kinds of increase its use by smaller nonprofit
communication channels. health organisations.
Podcasts, other kinds of audio and video For example, the National Library
files, blogs, disease simulators, discussion of Medicine funds organisations in
forums and other interactive tools were underserved or rural areas of the United
selectively used to match the specificity of States ‘to initiate access’ or ‘expand the

© 2008 Palgrave Macmillan Ltd 1745-7904 $30.00 Vol. 8, 1 9–18 Journal of Medical Marketing 15
Schiavo

bandwidth of their existing services’.41 expressions such as theatre and poetry, as


Publishers, foundations and different kinds well as informal conversations in barber
of companies are collaborating with the shops, churches, restaurants, markets or
World Health Organization or other other public places’.1,50 Health
institutions to fund access to the internet, communication plans ‘should reflect this
create global libraries or enable its use in diversity of communication approaches
school-based curricula and other public and channels to match how
health interventions in the developing communication actually takes place’.1
world.42–45 Women Connect!, a project The increasing use of the internet by
of the Pacific Institute for Women’s different audiences in the healthcare field
Health and the Annenberg Center for makes a compelling case for the inclusion
Communications of the University of of e-communications as part of all health
Southern California, helped women’s communications and public health
health organisation in different African interventions in those regions of the
countries to connect to the internet.45 world where access to this technology is
Many other similar initiatives are widespread among intended audiences.
attempting to address the existing digital The internet is increasingly acting and
divide between different audiences and being used as more established media
countries as well as issues of privacy, pointing to the fact that we are witnessing
internet literacy and credibility of online a technology-based revolution more than
information. a revolution in the theory and practice of
Still, while the impact of the internet health communication. As in other areas
is starting to be well documented in of health communication, behavioural
regard to areas such as provider–patient and social outcomes should inspire and
communications46,47 and access to health motivate the design of internet-based
information during times of disease and interventions and be measured by future
health crises,48 evaluation of the impact studies. In fact, most of the factors that
of the internet on health behaviours is are discussed in this review and affect
still relatively new49 and requires further perception and use of the internet among
disease- and audience-specific exploration. different audiences are common to other
kinds of health-related interventions and
CONCLUSIONS may also affect the impact of online health
The internet is undoubtedly one of the communications.
biggest social revolutions of our times and Health communication can play a
has a great potential to contribute to fundamental role in helping advocate for
improving worldwide health outcomes by expanded internet literacy and access; raise
increasing health literacy and access to awareness of different online tools and
information. Still — as for all other health their use; increase understanding of general
communication channels — the internet criteria to assess source credibility as well
is not a magic bullet and should be as help address issues of information
always considered and used as part privacy and impact evaluation. Finally,
of an integrated approach to health when using the internet or ‘any form of
communication. ‘Communication, and technology to communicate about health
more specifically health communication, is matters, it is important to remember and
a common part of social exchanges and apply all general principles and values that
contexts, from personal and professional pertain to interpersonal communications.
encounters to the mass media [including Gender, age, and cultural, ethnic, and
the Internet] and traditional forms of geographical factors as well as literacy

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All lengthy quotations from R. Schiavo, Res. 27(1), 153–181.
Health Communication: From Theory to 14 Jitaru, E. I. & Moisil Jitaru, M. C. (1999). Criteria
for evaluating the quality of health related sites on
Practice, San Francisco: Jossey-Bass, April internet, A Presentation at 22nd Romanian
2007, have been used by permission. The Conference on Medical Informatics Towards the
author wishes to thank Andy Pasternack Millennium Information Technology for A Better
Health, MEDINF’99, Sibiu, 1999, 14th–16th
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