Professional Documents
Culture Documents
ANXIETY
feel different from their peers and develop negative thoughts about
their life, a sense of guilt, increased anxiety, and low selfesteem; their
behavioral profile is similar to normal individuals, but many of them
may develop severe psychosocial problems because of difficulties in
complying with the painful chelation
concerns for the future of a thalassemic child may contribute to
worsening of relationships among members, and to increase
marginalization and isolation
DEPRESSION
quality of life (QoL), which is defined as an individual's perception of
their position in life in the context of the culture and value systems in
which they live, and in relation to their goals, and expectations, is often
limited by the chronic illness
PARENTS
ANXIETY
unavailability of the blood, life and health of the child, and financing for
the treatment
concern about their children’s’ marriage
DISTRESSED
grieved to see their upset child
they expressed concern about birth of next children with thalassemia
too
Fearing from birth of a thalassemia child, some of the mothers
underwent tubal ligations surgery which led to separation and divorce
in a number of families.
have to spend more time for a sick child, the quality of their social,
professional and familial roles may be greatly affected
SIBLINGS
SOLITUDE
siblings to be more inclined to internalize, rather than externalize their
feelings
do not always ask for parental attention as much as they really want to
keep their feelings to themselves to hide them from their already
overburdened parents
REFERENCES
https://journals.lww.com/mecpsychiatry/Fulltext/2011/10000/Psychological_m
anifestations_in_adolescents_with.9.aspx
https://www.omicsonline.org/open-access/the-burden-of-care-experiences-of-
parents-of-children-with-thalassemia-2167-1168-1000389.php?aid=88199
https://academic.oup.com/jpepsy/article/37/2/166/1746321