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5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
ORIGINAL ARTICLE
HEALTH INFORMATION TECHNOLOGY IN YOUNG PEOPLE WITH
OSTEOSARCOMA
TECNOLOGIA DA INFORMAÇÃO EM SAÚDE EM JOVENS COM OSTEOSSARCOMA
TECNOLOGÍA DE LA INFORMACIÓN EN SALUD EN JÓVENES CON OSTEOSARCOMA
Alexsandro Santos Crespo da Silva1, Eliane Pereira Ramos2, Rose Mary Rosa Costa Andrade Silva3
ABSTRACT
Objective: to register the receptivity of patients with osteosarcoma in using the interactive virtual
application. Method: it is a quantitative, descriptive, exploratory study, with the empirical incursion among
20 patients with osteosarcoma. The questionnaire was used as a data collection instrument. The data was
presented in two stages: the profile of patients with osteosarcoma assisted in the INCA II in the first and
second with reference to the acceptance of IT as a tool for the practice of health education in the health-
disease process. Results: it was observed that the analysis resulted in the agreement of patients with
osteosarcoma to use a virtual application for the practice of health education. Conclusion: it was found that
the acceptance of content ideas for the application established that the patients demonstrated the existence
of a vast field for the practice of health education at the informational level to confront osteosarcoma. It is
seen, therefore, that the application of information technology was effective in health education and this
study brings contributions to future discussions and research in the area. Descriptors: Osteosarcoma;
Information Technology; Health Education; Biomedical Tecnology; Comunication; Neoplasm.
RESUMO
Objetivo: registrar a receptividade dos pacientes com osteossarcoma em usar o aplicativo virtual interativo.
Método: trata-se de estudo quantitativo, descritivo, exploratório, com a incursão empírica junto a 20
pacientes com osteossarcoma. Usou-se o questionário como instrumento de coleta de dados. Apresentaram-se
os dados em duas etapas: perfil dos pacientes com osteossarcoma assistidos no INCA II na primeira e a segunda
com referência à aceitação da TI enquanto ferramenta para a prática da educação em saúde no processo
saúde-doença. Resultados: observou-se que a análise resultou no assentimento dos pacientes com
osteossarcoma em usar um aplicativo virtual para a prática da educação em saúde. Conclusão: constatou-se,
ao se estabelecer a aceitação de ideias de conteúdos para o aplicativo, que os pacientes demonstraram a
existência de um campo vasto para a prática da educação em saúde no âmbito informacional para o
enfrentamento do osteossarcoma. Vê-se, assim, que a aplicação de tecnologia da informação teve efetividade
na educação em saúde e este estudo traz contribuições para futuras discussões e pesquisas na área.
Descritores: Osteossarcoma; Tecnologia da Informação; Educação em Saúde; Tecnologia Biomédica;
Comunicação; Neoplasia.
RESUMEN
Objetivo: registrar la receptividad de los pacientes con osteosarcoma en usar la aplicación virtual interactiva.
Método: se trata de estudio cuantitativo, descriptivo, exploratorio, habiendo incursión empírica junto a 20
pacientes con osteosarcoma. Se utilizó el cuestionario como instrumento de recolección de datos. Se
presentaron los datos en dos etapas: perfil de los pacientes con osteosarcoma asistidos en el INCA II y la
segunda con referencia a la aceptación de la TI como herramienta para la práctica de la educación en salud
en el proceso salud-enfermedad. Resultados: se observó que el análisis resultó en el asentimiento de los
pacientes con osteosarcoma en usar una aplicación virtual para la práctica de la educación en salud.
Conclusión: se constató, al establecerse aceptación de ideas de contenidos para aplicación, que los pacientes
demostraron la existencia de un campo vasto para la práctica de la educación en salud en el ámbito
informativo para el enfrentamiento del osteosarcoma. Se ve así, que la aplicación de tecnología de la
información tuvo efectividad en la educación en salud y este estudio trae contribuciones para futuras
discusiones e investigaciones en el área. Descriptores: Osteosarcoma; Tecnología de la Informacíon;
Educación en Salud; Tecnología Biomédica; Comunicación; Neoplasía.
1
Masters student, Fluminense Federal University/ UFF. Niterói (RJ), Brazil. E-mail: sandercrespo@gmail.com ORCID iD:
https://www.orcid.org/0000-0002-8067-7411; 2PhD, Fluminense Federal University / UFF. Niterói (RJ), Brazil. E-mail:
elianeramos.uff@gmail.com ORCID iD: https://www.orcid.org/0000-0002-6381-3979 3PhD, Fluminense Federal University / UFF. Niterói
(RJ), Brazil. E-mail: roserosauff@gmail.com ORCID iD: https://www.orcid.org/0000-0002-4310-8711
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2717
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2718
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
OBJECTIVE
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2721
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2722
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Table 2. Positions of the patients of the sample. Rio de Janeiro (RJ), Brazil,
2017.
Positions n (20) %
What is your need for information about your
disease (osteosarcoma)?
I do not know anything and I want to continue 0 -
without knowing
I do not know anything, but I would like to learn 1 5%
about the disease.
I know something, but I would like to learn more 19 95%
about the disease.
I know a lot and I have no doubts. 0 -
Do you believe that having extensive knowledge
about your disease (osteosarcoma) can help
you?
Yes, because I learn to live with the effects of
chemotherapy, with post-surgical limitations or 20 100%
with the possibility of relapse
No, I lack interest to know more, I just follow the
guidelines of health professionals 0 -
What is your primary source of information
about the disease (osteosarcoma)?
Nurses 9 45%
Doctors 4 20%
Internet related sources 7 35%
Printed matter (newspapers, magazines, scientific 0 -
articles etc.)
Do you feel safer about receiving information
about the disease directly from health
professionals (doctors and nurses)?
Yes 20 100%
No 0 -
If there was a mobile application related to
osteosarcoma, what would be more important in
it?
A synthesis of questions and answers on key 1 5%
information about the disease
A social network type tool for the exchange of 19 95%
information (educational and personal) with
health professionals (nurses and doctors) and
other patients using text, photo, video
A WhatsApp-type tool for direct communication 0 -
with health professionals and other patients
A three-hour alert to remind me to feed myself 0 -
If you used a osteosarcoma-related mobile
application, what would be its appeal?
Interaction with health professionals (nurses and 0 -
doctors)
Interaction with health professionals (nurses and
doctors) and other patients 8 40%
Only query information on how to deal with the
disease without interactivity 0 -
Interaction with cured patients, spiritual and 12 60%
religious support group
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2723
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Primary School and 15%, High School and none considered that the interaction with cured
of the sample has Higher Education. patients and religious groups is attractive for
It is also evidenced that the profile of the the cellular application, ie: patients wish to
sample highlights that the treatment is interact with professionals and other patients
delayed: 65% of the sample are being treated to not only promote health education, but
at INCA between two and three years; 50% also , create an environment of emotional
doing chemotherapy; 40%, chemotherapy and support. It stands out because the treatment
surgery and 10%, surgery. It was checked that of osteosarcoma creates an instability in the
55% of the sample made use of orthopedic emotional balance of the patient being a
prosthesis due to limb amputation during the severe process that involves chemotherapy,
treatment. It is emphasized that such surgery, amputation and surveillance to
statistical positions share with the control relapses.5,13,19
3,5
explanations of some authors. It is added that osteosarcoma, in addition
It was observed that, in the context of the to being associated with severe treatment, is
health education settings, the patients in the also a disease related to death, and both
sample are interested in learning about factors that affect the patient's emotional
osteosarcoma. It is reported that 95% of the balance and can lead to depression and
sample, even knowing something about the anxiety, as explained.13,15,18 It is, if emotional
disease, wish to learn more, meaning support complements health education.
receptivity to receive messages about the It is thus believed that a cellular
disease. application aimed at providing information
Knowledge is valued by the sample as a about osteosarcoma and the emotional
product for the search for well-being and support of the patient can transform their life
quality of life in the course of coping with posture by strengthening it in coping with the
osteosarcoma, where 100% of the sample disease and improving their quality of life.3,7-
8,16-7
emphasizes that learning about the disease
can assist in coping with the effects of
CONCLUSION
chemotherapy, surgical limitations and
possibilities of relapses. It should be noted Through the study undertaken, the
that 45% of the sample places nurses as the possibility of using IT in the process of health
main source of information collection and education within the scope of osteosarcoma
100% of the sample emphasize that they feel was explored. It was pointed out that, in
more secure in receiving information from addition to their desire to improve their
health professionals. It is observed that, based knowledge about osteosarcoma, patients want
on the propensity for social transformation of an IT pathway that allows for emotional and
health education, patients can benefit from religious support. It is confirmed that the use
learning, as explained.1,2,6,8 of a mobile application can be the right
It opens up a possibility for the creation of interactive tool to offer the ambiance for
a dynamic health education environment, both. It is concluded that there is, on the part
which would allow the development and of the patients in INCA treatment, the
personal discoveries for the well-being and receptivity to the use of a virtual application
quality of life of the patients, as explained.1 It for the exchange of knowledge about the
is possible to increase this dynamism through disease.
the use of IT by covering different formats in
REFERENCES
the approach of health education, from
writing to audiovisual, as highlighted.2 1. Pitta AMR. Saúde e comunicação:
Considering that 35% of the sample uses the visibilidades e silêncios. São Paulo: Hucitec;
internet as source to capture information 1995.
about osteosarcoma, the use of software 2. Cavalcante MTL, Vasconcellos MM.
engineering can be a viable way to explore Information technology for health
health education, 10 being already a reality the education: two revisions and a proposal. Ciênc
use of cellular applications to advise health as Saúde Coletiva. 2007 May/June; 12(3):611-22.
they stand out.5,11 Doi: http://dx.doi.org/10.1590/S1413-
The study sample was based on the use of a 81232007000300011.
mobile application related to osteosarcoma 3. World Health Organization.
subjects, 95% of the sample favoring the Noncommunicable diseases country profiles
creation of a social network type mobile 2014. Geneva: WHO; 2014.
application to exchange information with
4. Ministério da Saúde (BR), Instituto Nacional
health professionals and others patients. It
do Câncer José Alencar Gomes da Silva.
was emphasized that 60% of the sample
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2724
ISSN: 1981-8963 https://doi.org/10.5205/1981-8963-v12i10a237462p2717-2726-2018
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Silva ASC da, Ramos EP, Silva RMRCA et al. Health information technology in young...
Submission: 2018/07/19
Accepted: 2018/08/13
Publishing: 2018/10/01
Corresponding Address
Alexsandro Santos Crespo da Silva
Av. Presidente Roosevelt, 900
São Francisco
CEP: 24360-066 − Niterói (RJ), Brazil
English/Portuguese
J Nurs UFPE online., Recife, 12(10):2717-26, Oct., 2018 2726