Professional Documents
Culture Documents
FEBRUARY 2011
2011 Shavathon
The Cancer Association of South Africa (CANSA) turns 80 years old this year and their eighth
Shavathon event takes place 3 – 5 March 2011. Last year’s Shavathon was a resounding success
thanks to the thousands of South Africans who showed solidarity with cancer survivors at their
schools, work places and shopping venues countrywide.
In response to the overwhelming support in 2010, Shavathon 2011 will have an extra corporate
Shavathon day on Thursday the 3rd of March, followed by Friday the 4th. The public can partici-
pate on Saturday the 5th at their nearest shopping mall.
To add an extra fun touch to hair colour-spraying stencils, introduced last year, are again avail-
able and can be purchased at R12 for a pack. The stencil designs available are a star, butterfly,
flower, soccer ball, lightning bolt and the word “warrior”. Stencils are supplied in packs of six –
one of each design.
South Africans from all over the country, family and friends, workplace staff, visitors, clients and
suppliers can shave or spray in a multitude of colours and show solidarity with a cancer survivor
for a R50 donation, children under 12 pay R25. Pledges can also be collected from family and
World Cancer Day
friends to help raise funds for CANSA’s wide-reaching services. A cancer survivor lights a candle in
remembrance of patients who have
The first CANSA Shavathon was held in the Eastern Cape as a way to show solidarity or support succumbed to the disease at a ceremony
for cancer patients as losing one’s hair is a common side effect of chemotherapy. Since then the to mark World Cancer Day held at
event has gone national and included spraying as an alternative for people not willing or able to CANSA Johannesburg on February 4.
shave their heads.
CANCER DECLARATION
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VISION, FEBRUARY 2011
THE VIEW FROM THE OTHER SIDE - ing. Her unease only grew as I probed her smoking and dietary
habits. Her family tried to reassure her.
Familiarity I crossed the room to begin the examination. As I checked her skin, I
noticed that she had a faint sunburn. Maybe there was a story there.
“So tell me,” I asked with a smile, “how was your weekend?”
We say we exchange words when we Her face lit up. As I continued the examination, she told me about how
meet.What we exchange is souls. Saturday had been spent outdoors watching her grandchildren play
soccer, taking them both to the park, and then stopping for ice cream.
-Minot J. Savage
Sunday had started with church and then a quiet afternoon with an
old and dear friend. By the time she finished, she had visibly relaxed
It was Monday evening. The shelves in the electronics department and I had a context through which to understand how her upcoming
overflowed with different styles, prices, and brands of headphones, treatment would affect her, her family, and her close friends.
all displayed in sealed plastic cases. I was in the mood to buy but I suppose it was presumptuous of me to ask about my patient’s
was baffled by the array of options in front of me. This was not weekend. I had, after all, bristled at the notion that the young sales-
going to be as simple as I had thought. person considered it his right to ask about mine. Occasionally, a
patient will let me know that I have crossed a boundary when I
A young salesperson broke off his conversation and sauntered casu-
steer the discussion toward the more personal.
ally to where I was struggling. Grinning impishly, he leaned on the
display. “Hey,” he wanted to know, “how was your weekend?” Most of the time, though, my patients are very willing to share their
stories. From my perspective, there are practical reasons to understand
“How was my weekend?” I repeated silently to myself. I neither social contexts and relationships; what they choose to share often
looked up nor answered.What kind of question was that? Was this points to the people and things that are most important to them.
some new technique he had learned guaranteed to increase the
likelihood of a sale? I’m here looking at headphones and he wants Months from now, when the fear of the disease has been mastered
to know about my weekend? and she finally sees her life as pre-cancer and post-cancer, it is very
possible that my patient will turn to me with a smile and ask about
I put down the package I was examining and glanced up at him. “It my weekend. As I happily summarise my time away from work,
was busy but I doubt anything that happened would be of much maybe I will throw in the tale about how I was so rude to the young
interest to you.” My desire to spend money at that store had evapo- salesperson. I suspect we will laugh at both his ingratiating tactic
rated. As I headed toward the door, he called after me to wish me a and my overly sensitive reaction. After all, when I tell it correctly, it
nice day. I can only imagine his facial expression as he did so. really does make for a great story.
The next morning, I was in the office seeing a newly diagnosed can- Dr Bruce Campbell is a head and neck cancer surgeon (otolaryngologist) at
cer patient. Each question about her cancer and its symptoms elicit- Froedtert & the Medical College ofWisconsin. Read his blog at
ed more anxiety. She nearly shook as she related the problems she http://www.froedtert.com/HealthResources/
had experienced: worsening pain, trouble swallowing, difficulty talk- ReadingRoom/HealthBlogs/Reflections.htm
The CPA gives good guidance as to what providers (e.g. doctors and ! You are entitled to get a quotation, or a fixed price, for health
hospitals) and suppliers (e.g. pharmaceutical- and medical device services up front. Ask for a quotation of what treatment will cost,
companies) should do, or not do, when selling their services and/or and ask that the quotation point out the factors that will influ-
products and interacting with customers in the healthcare setting. ence the quotation (i.e. make it higher or lower). This is your
right in terms of the CPA.
From a patient perspective, patients should take note of the
! Note that there is a separate relationship between you and your
following:
medical scheme. They do, however, also have to comply with this
! Make sure you understand what treatment options are available Act and communicate to you clearly on your benefits, limita-
to you, and make sure you exercise an informed choice in that tions to benefits and exactly what they will, or will not pay for,
regard. Note that many influences may play in on you, such as and what they require from you (e.g. to register your condition
the doctors’ preferred treatment option, your medical scheme’s with them, or to provide a doctor’s motivation letter). Note that
views on whether they would pay, and then the views of family you can always lodge a complaint at the Council for Medical
members, friends and even other cancer survivors or patients. Schemes if you are not happy with how things are turning out:
You have the right to choose, and the right to not be unduly complaints@medicalschemes.com.
pressurised into making any specific decision.
! Lastly, if you are uncertain about anything, ask.You can also
! Ask for information in an understandable format, and ask for always ask for a second opinion, or a third.
things to be re-explained if needed. Ask the doctor or nurse not
to use medical terms and to explain to you in particular what Elsabé Klinck is a B.Iuris, LL.B graduate,
the risks and warnings are in relation to each treatment option who also completed a degree in
and medicines they will use. Also ask them to explain what is Psychology for Applied Professional
expected from you, the patient, i.e. what should, or should you Contexts and an Honours Degree in
not be doing to optimise the treatment outcomes. German.
! Providers have to correct any misunderstanding a patient may She started her career in the Department
express. Be open and honest with the doctor, and share what of Constitutional Law at the Free State
you have read or heard with him or her. They are under a legal University, where she also worked for the
duty to correct you if the information is wrong or provided out Centre for Human Rights Studies, manag-
of context, so do not feel offended if they differ from the things ing amongst others, voter education and
you have heard. paralegal training projects.
! Note that, in healthcare, there are very few guarantees in terms Elsabé has been working in the health sector since 2001, gaining
of success of treatment. Products and treatment often fail, not valuable experience dealing with medical practitioners and phar-
because the product is defective, but because of the nature of maceutical issues, as well being a key contributor to a prominent
the illness or disease, the progression or the way in which your health care consulting company.
own body reacts, or does not react, to treatment.
She has extensive knowledge and practical experience in health
! The CPA makes it a legal duty for warnings to be made and risks care/medical practice issues, medical schemes, medicines, medical
of serious harm or death be pointed out to you – do not be devices and patient rights and a background in constitutional/
alarmed, as all healthcare interventions carry some risk, and the human rights law.
risk may be remote in some cases, and more frequent in others.
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VISION, FEBRUARY 2011
News from C a n S u r v i v e
around the world CANCER SUPPORT GROUP
The Group is run by members of the
Johannesburg Branch of People Living
With Cancer in association with the
Pre-surgical stress management for Wits Donald Gordon Medical Centre
prostate cancer patients and is open to any patient or caregiver.
They invited fifty patients to attend at no cost, and then they put chemotherapy drugs are highly effective in treating a wide range of
the talk that Society for Participatory Medicine (SPM) president Dr. tumours, they can also cause irreversible damage to the heart. This
Danny Sands and e-patient Dave deBronkart delivered on patient means that doctors are restricted in the doses they can administer
engagement at the top of the agenda - right after the opening to patients. In recent years, scientists have been searching for new
speech by IHI president Maureen Bisognano. drugs to prevent these side-effects.
Thanks to the IHI for their commitment to patient engagement. Article URL:
Conference organizers everywhere, join us – it’s a new world! http://www.medicalnewstoday.com/articles/216249.php
The video can be seen at: http://epatientdave.com/videos/#IHI
Cancer Coping Kit crying till later so that good work can be done. It does my
patients absolutely no good if I am too busy sobbing for them to
The multi-lingual Cancer Coping Kit helps cancer patients cope be able to hook up a syringe full of pressor and save them from
with their journey to recovery, thanks to a grant from the their own shock. I also serve them ill, however, if I feel nothing for
National Lottery Distribution Trust Fund (NLDTF). them whatsoever.
The Cancer Coping Kit is available in English, Afrikaans, isiZulu So to any patients or future patients out there: please don't
and seSotho. It provides knowledge and understanding for peo- judge physicians and nurses for staying calm while your life is
ple diagnosed with cancer. The kit also provides family members falling apart or your loved one is in agony. As long as they are
and caregivers with information and coping techniques. Patients
calm without being cold, caring without falling apart, and doing
or caregivers can obtain the kit from:
the right thing for your safety, they are serving you as best they
Bev du Toit: 073 235 1571 can. When the time is right, and the work is done, they will allow
People Living With Cancer: 073 975 1452 time and space for that ache in their heart to remind them of
The Breast Health Foundation: 076 479 0400 you, and of why they strove to be there for you in the first place.
CANSA: 011 648 2340 T, Anaesthesiologist
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VISION, FEBRUARY 2011