Living healthy lives
,ETlS GET PHYSICAL
by Jessica Mahy and Dr Nora Shields
School of Physiotherapy, La Trobe University Melbourne
!DULTS WITH $OWN SYNDROME OFTEN NEED ENCOURAGEMENT AND SUPPORT TO
GET THE PHYSICAL ACTIVITY THEY NEED TO STAY üT AND HEALTHY
2EGULAR PHYSICAL ACTIVITY IS A VERY IMPORTANT PART 7E FOUND THAT PEOPLE WITH $OWN SYNDROME WERE
OF A HEALTHY LIFE "EING ACTIVE IS OBVIOUSLY GOOD FOR MORE LIKELY TO TAKE PART IN ACTIVITY WHEN THEY HAD
EVERYONE INCLUDING PEOPLE WITH $OWN SYNDROME )T CARER SUPPORT THE EXERCISE THEY WERE DOING WAS FUN
CAN HELP PREVENT US FROM DEVELOPING SERIOUS HEALTH OR HAD AN INTERESTING PURPOSE AND THE ACTIVITY WAS
CONDITIONS SUCH AS HEART DISEASE AND OSTEOPOROSIS PART OF THEIR ROUTINE OR FAMILIAR TO THEM
AND HELP CONTROL OUR WEIGHT
)N MANY CASES IT WAS THE CARERSl DECISION FOR THE
-ANY ADULTS WITH $OWN SYNDROME OFTEN DONlT GET PERSON WITH $OWN SYNDROME TO EXERCISE THEREFORE
ENOUGH EXERCISE AND IT IS THOUGHT THAT LESS THAN THE ENCOURAGEMENT AND SUPPORT OF A CARER WAS
PER CENT TAKE PART IN THE RECOMMENDED MINUTES IMPORTANT TO HELP THE ADULT WITH $OWN SYNDROME
OF MODERATE LEVEL ACTIVITY AT LEAST THREE DAYS A WEEK TO EXERCISE )F THE CARER PARENT OR DAY PROGRAM
2ESEARCHERS DID NOT KNOW MUCH ABOUT WHY ADULTS STAFF THOUGHT EXERCISE WAS IMPORTANT AND WERE IN
WITH $OWN SYNDROME DONlT EXERCISE SO WE DID A TERESTED AND ENTHUSIASTIC ABOUT EXERCISE THIS HELPED
STUDY TO üND OUT /UR AIM WAS TO üND WHAT SORT OF THE PERSON WITH $OWN SYNDROME TO BE ACTIVE !
THINGS HELP OR HINDER PEOPLE WITH $OWN SYNDROME PERSON WITH $OWN SYNDROME WAS FAR MORE LIKELY
FROM TAKING PART IN EXERCISE SO WE CAN üND WAYS TO EXERCISE AND TO CONTINUE EXERCISING IF THEIR CARER
TO MAKE PARTICIPATION IN ACTIVITY EASIER AND HELP JOINED IN THE ACTIVITY WITH THEM
IMPROVE THEIR HEALTH AND üTNESS
0EOPLE WITH $OWN SYNDROME WERE MORE LIKELY
7E INTERVIEWED PEOPLE SIX PEOPLE WITH $OWN TO EXERCISE IF THE ACTIVITY WAS FUN OR IF IT HAD AN
SYNDROME FOUR PARENTS OF PEOPLE WITH $OWN INTERESTING PURPOSE OR GOAL 4HE PARTICIPANTS
SYNDROME AND EIGHT PEOPLE WHO WORK WITH PEOPLE IDENTIüED CREATIVITY THEMES STORIES NOVELTY GROUP
WITH $OWN SYNDROME !LL PARTICIPANTS WERE RE
ACTIVITY SOCIALISING REWARDS USING MUSIC INCENTIVES
CRUITED THROUGH THE "ALANCE 0ROGRAM AT )NTERCHANGE AND UTILISING THE PASSIONS OF THE PERSON WITH $OWN
/UTER %AST AND -ARRIOTT (OUSE 7E ASKED THE SYNDROME AS WAYS OF ENCOURAGING ACTIVITY 2EWARDS
PARTICIPANTS TO TELL US ABOUT THEIR EXERCISE EXPERI
FOR COMPLETING EXERCISE SUCH AS TROPHIES WATCHING
ENCES WHAT HELPED THEM TO GET MORE EXERCISE AND $6$S AND HAVING COFFEE WITH FRIENDS WERE TALKED
WHAT WERE SOME REASONS WHY THEY DIDNlT EXERCISE ABOUT BY PARTICIPANTS )NCORPORATING A SOCIAL ASPECT
OR WHAT MADE IT HARDER FOR THEM TO EXERCISE IN THE ACTIVITY WAS MENTIONED BY OUT OF PAR
TICIPANTS AS A GOOD WAY TO INCREASE ACTIVITY 0EOPLE
12 Voice Autumn 2008. Down Syndrome Victoria members journal
Living healthy lives
WITH $OWN SYNDROME WERE MORE LIKELY TO EXERCISE THAT REQUIRED PHYSICAL EFFORT /THERS TALKED ABOUT
IF THEIR FRIENDS WERE EXERCISING THE ENJOYMENT THEY MEDICAL BARRIERS TO PARTICIPATION IN ACTIVITY SUCH AS
RECEIVED FROM BEING WITH FRIENDS WAS A REWARD IN ASTHMA CONGENITAL HEART ABNORMALITIES AND GOUT
ITSELF AND A REASON TO CHOOSE TO BE ACTIVE -ANY QUESTIONED WHETHER IT WAS SAFE FOR AN ADULT
WITH $OWN SYNDROME TO EXERCISE 4HE NEED FOR
(AVING EXERCISE AS PART OF THEIR ROUTINE WAS IM
PROFESSIONAL ADVICE CONCERNING THE TYPE OF EXERCISE
PORTANT FOR PEOPLE WITH $OWN SYNDROME AS WAS
SUITABLE FOR PEOPLE WITH THE MEDICAL CONDITIONS
REPEATING THE ACTIVITY REGULARLY "Y BEING CONSISTENT A
RELATED TO $OWN SYNDROME WAS IDENTIüED
FAMILIAR AND COMFORTABLE ENVIRONMENT COULD BE CRE
ATED 4HIS WAS FURTHER HELPED IF THE DURATION OF THE 4HE DIFFERENCES THAT COULD BE IDENTIüED AS UNIQUE
ACTIVITY WAS TO MINUTES AS THIS ALLOWED GOOD TO ADULTS WITH $OWN SYNDROME CAN BE ATTRIBUTED
COOPERATION AND GOOD EFFORT DURING THE ACTIVITY TO THE INTELLECTUAL DISABILITY AND MEDICAL CONDITIONS
THAT ARE CHARACTERISTIC OF THE SYNDROME "ECAUSE
4HINGS THAT MADE IT DIFüCULT FOR ADULTS WITH $OWN
OF THESE UNIQUE FACTORS THE CARER OF AN ADULT WITH
SYNDROME TO TAKE PART IN PHYSICAL ACTIVITY WERE THE
$OWN SYNDROME IS EXTREMELY IMPORTANT IN FACILITAT
NEED FOR SUPPORT TO EXERCISE MEDICAL AND PHYSI
ING THEIR PARTICIPATION IN PHYSICAL ACTIVITY
OLOGICAL REASONS THAT MAKE IT HARDER TO EXERCISE AND
THAT THEY OFTEN DO NOT WANT TO EXERCISE &ROM OUR üNDINGS WE SUGGEST EXERCISE PROGRAMS
FOR PEOPLE WITH $OWN SYNDROME SHOULD INCLUDE
-OST PEOPLE WITH $OWN SYNDROME NEEDED THE
A SOCIAL COMPONENT OR GROUP ACTIVITY WITH FRIENDS
SUPPORT OF ANOTHER PERSON TO EXERCISE OFTEN DUE TO
GOALS OR REWARDS BE FUN CREATIVE AND NOVEL AND THAT
A LACK OF INDEPENDENCE OR THEIR INTELLECTUAL DISABILITY
THE ACTIVITIES SHOULD FOCUS ON SOMETHING OTHER THAN
4HIS SUPPORT INCLUDED SUPERVISION TO INITIATE EXER
EXERCISE ITSELF /F COURSE MOTIVATION AND ENCOUR
CISE EMOTIONAL SUPPORT TO HELP MOTIVATE THEM TO
AGEMENT FROM CARERS IS VITAL 4HE ACTIVITY SHOULD BE
CONTINUE EXERCISING AND IN SOME CASES TRANSPORT TO
KEPT SHORT TRANSPORTATION SHOULD BE ORGANISED BY
AN ACTIVITY 0ARENTS AND DAY PROGRAM STAFF IDENTIüED
THE ACTIVITY PROMOTERS COSTS SHOULD BE MINIMAL THE
MANY ADDITIONAL BARRIERS SUCH AS LACK OF TIME PER
ACTIVITY SHOULD BECOME PART OF THE PERSONlS ROUTINE
SONAL AND FAMILY COMMITMENTS TRANSPORTATION AND
AND ANY MEDICAL CONDITIONS SHOULD BE ADDRESSED BY
LACK OF KNOWLEDGE OF WHAT PROGRAMS AND SERVICES
HEALTH PROFESSIONALS )T IS ALSO ADVISABLE THAT ADULTS
WERE AVAILABLE A LACK OF COMMUNITY AWARENESS AND
WITH $OWN SYNDROME SHOULD BE SUPERVISED TO
ACCEPTANCE OF ADULTS WITH INTELLECTUAL DISABILITIES
ASSIST IN INCREASING MOTIVATION ENSURING THE ACTIVITY IS
AND A LACK OF UNDERSTANDING AND EDUCATION ABOUT
DONE CORRECTLY AND TO ENSURE THE PERSON CONTINUES
DISABILITY
THE ACTIVITY FOR THE RECOMMENDED AMOUNT OF TIME
!NOTHER THEME THAT EMERGED WAS THAT ADULTS WITH
3IMPLE WAYS TO INCREASE THE LEVEL OF ACTIVITY FOR
$OWN SYNDROME OFTEN DO NOT LIKE EXERCISING AND IF
PEOPLE WITH $OWN SYNDROME ARE TO INCREASE THE
GIVEN THE CHOICE WOULD NOT ENGAGE IN PHYSICAL ACTIV
AMOUNT OF INCIDENTAL ACTIVITY THEY DO EVERYDAY &OR
ITY #ONTRIBUTING FACTORS TO THIS INCLUDED A LACK OF
EXAMPLE WALKING TO THEIR DAY PLACEMENT WALK
MOTIVATION POOR CONCENTRATION AND ATTENTION SPAN
ING TO THE LOCAL COFFEE SHOP WALKING THE DOG AN
OR A NEGATIVE ATTITUDE AND GENERAL DISLIKE OF EXERCISE
EXCURSION TO THE LOCAL SHOPPING CENTRE TAKING THE
-OST OF THE CARERS WHO WERE INTERVIEWED FELT THE
STAIRS INSTEAD OF THE ELEVATOR OR DANCING AT A PARTY
MAIN REASON FOR AN ADULT WITH $OWN SYNDROME NOT
7E HOPE THAT OUR üNDINGS WILL PROVE HELPFUL WHEN
EXERCISING WAS BECAUSE THEY LACKED THE MOTIVATION
DEVELOPING SUCCESSFUL ACTIVITY PROGRAMS FOR ADULTS
TO DO SO BECAUSE THEY DID NOT ENJOY ACTIVITIES
WITH $OWN SYNDROME
Voice Autumn 2008. Down Syndrome Victoria members journal 13
Living healthy lives
!CTIVITY IDEAS FOR INDIVIDUALS
WITH $OWN SYNDROME
Reproduced with permission from
The Down Syndrome Nutrition Handbook
by Joan E. Guthrie Medlen
!GES BIRTH TO THREE SWIMMING GOLF !GES SIXTEEN PLUS
HIKING 3PECIAL /LYMPICS
SWIMMING WALKING
HORSEBACK RIDING üSHING
CRAWLING BIKE OR SCOOTER
DANCING OR BALLET CAMPING
CLIMBING EXERCISE MACHINES
YOGA SNOW SKIING
CREEPING KARATE
GYMNASTICS
SCOOTER !GES THIRTEEN TO üFTEEN SWIMMING
MINI TRAMPOLINE
DANCING DANCING
WALKING
WALKING !GES NINE TO TWELVE HIKING
BIKE OR SCOOTER
KICKING A BALL 4AE KWON DO
WALKING EXERCISE MACHINES
HORSEBACK RIDING
!GES THREE TO üVE PLAYGROUND PLAY KARATE
YOGA
CLIMBING TREES AND SWIMMING
SWIMMING LESSONS GYMNASTICS
STRUCTURES DANCING
DANCING JOGGING
BIKE OR SCOOTER HIKING
GYMNASTICS AEROBICS
SWIMMING HORSEBACK RIDING
MINI TRAMPOLINE WATER AEROBICS
HIKING YOGA
RIDE ON TOYS WEIGHT LIFTING
HORSEBACK RIDING GYMNASTICS
INDOOR PLAYGROUND WORKING OUT AT A GYM
DANCING OR BALLET 4AE KWON DO
BACKYARD PLAY ROLLER BLADING OR
YOGA JOGGING
SWINGING SKATING
GYMNASTICS AEROBICS
SLIDING OBSTACLE COURSES
JOGGING WEIGHT LIFTING
BASKETBALL BASEBALL OR SOFTBALL
AEROBICS ROLLER BLADING OR
MINIATURE GOLF SOCCER
WEIGHT LIFTING SKATING
!GES üVE TO EIGHT FOOTBALL
ROLLER BLADING OR OBSTACLE COURSES
BASKETBALL
WALKING SKATING BASEBALL OR SOFTBALL
KICKBALL
SOCCER 4AE KWON DO SOCCER
BOWLING
BASKETBALL TRAMPOLINE FOOTBALL
üSHING
BOWLINGLAWN BOWLING JUMPING ROPE BASKETBALL
GOLF
CROQUET BASEBALL KICKBALL
SNOW SKIING
BADMINTON SOCCER BOWLING
TENNIS
üSHING BASKETBALL üSHING
BADMINTON
PLAYING CATCH BOWLINGLAWN BOWLING SNOW SKIING
BOWLINGLAWN BOWLING
MINIATURE GOLF CROQUET GOLF
3PECIAL /LYMPICS
PLAYGROUND PLAY BADMINTON 3PECIAL /LYMPICS
TABLE TENNIS
RIDING A BIKE TENNIS
&RISBEE
TRAINING WHEELS
14 Voice Autumn 2008. Down Syndrome Victoria members journal
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