Juvenile-HD
Alcohol-Parent's Guide
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SECTION 1 - AT RISK
Age & Probability Chart
At Risk For HD-What Next?
At-Risk Checklist
Best Interest of Child?
Crystal Ball?
Food For Thought
Parent Hasn't Tested?
Q&A On Risk of Inheriting JHD
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SECTION 2 - GENETIC TESTING
Genetic Disorders & Birth Defects
Genetic Testing for HD
Genetic Counseling-In General
Psychological Impact
Intro: Genetics/Genetic Testing
Prenatal & Preimplanation
Prenatal Testing-In General
o Genetic Testing Resources
o Personal Stories
SECTION 3 - JHD
Coping With The Early Years
Age of HD Appearance
Age of Onset-Historical
Family-HD Underestimated
Children of Parents With HD
Child~Parent Ill
Clinical Description JHD
HD - What Kids Are Saying
HD & Me
JHD-Duration of Illness
JHD-Clinical and Research
JHD Symptoms
Parenting With HD
Patients/Families Coping
Talking With Children About HD
INDEX Page
www.KidsHealth.org
"Not my kid. He'd never drink." If that's what you're thinking, you might be in for a
surprise. Children see drinking around them all the time, and it's not unusual for them to
experiment with alcohol themselves. The question is, what can parents do about it?
"It's very commonplace for kids to have a drink," says Mandell Much, PhD. "Experimental
use is very popular, especially with adolescents."
Although experimentation with alcohol may be common among kids, it's not safe or legal.
Read on to find out how to tell if your child is drinking and what you can do about it.
Kids and Alcohol Don't Mix
Alcohol interferes with our perception of reality and our ability to make good decisions.
This is problematic for adults, and even worse for adolescents and children who have less
problem-solving and decision-making experience.
According to the National Clearinghouse for Alcohol and Drug Information, the short-term
effects of drinking include:
distorted vision, hearing, and coordination
altered perceptions and emotions
impaired judgment
bad breath
hangovers
The long-term effects include:
cirrhosis and cancer of the liver
loss of appetite
serious vitamin deficiencies
stomach ailments
heart and central nervous system damage
memory loss
an increased risk of impotence
The possibility of overdosing on alcohol is significant, says Paco Cummings, MHS, CCDC,
CCS, an addictions specialist. Alcohol first sedates the mind, he explains, and then
attacks the vital functions. Even withdrawing from alcohol use can be deadly. "The actual
withdrawal from alcohol is more dangerous than the withdrawal from heroin," Cummings
says.
The short-term effects of alcohol abuse can also lead to homicides, suicides, and serious
injuries. Over 38% of drownings, for example, are alcohol-related. Drinking also lowers
inhibitions, which can lead teens to practice risky behaviors. Some risky behaviors, such
as practicing unsafe sex, increase the chance of contracting sexually transmitted
diseases. Other risky behaviors practiced while drinking, such as drunk driving or drug
use, put teens at risk for immediate and possibly deadly consequences.
Recognizing the Signs
Despite your efforts, your child may still use - and abuse - alcohol. How can you tell? The
National Council on Alcoholism and Drug Dependence (NCADD) offers these warning signs:
the odor of alcohol
sudden change in mood or attitude
change in attendance or performance at school
loss of interest in school, sports, or other activities
discipline problems at school
withdrawal from family and friends
secrecy
association with a new group of friends and reluctance to introduce them to you
Any of the above signs could indicate a problem with alcohol.
Girl drinking
Obviously, being caught possessing alcohol or being under the
influence of alcohol is a "glaring red flags," Dr. Much says. Further,
alcohol disappearing from your home may indicate that your child is
involved with drinking. Some warning signs may indicate problems
other than drinking, such as depression, developmental difficulties,
eating disorders, or adolescent adjustment problems. It is important
not to jump to conclusions based on only one or two signs.

5 Stages of HD
JHD Resources
SECTION 4 - SYMPTOM
RECOGNITION
Parent Resources
8 Fears of A Chronic Illness
Anxiety/Apathy/Irritability~HD
Anxiety, Fears & Phobias
Apathy-Physician's Guide
Ataxia
Attention-Perceptual/Unawareness
Physician's Guide
Bed/Pressure Sores
Bed/Pressure Ulcer Guideline
Behavior Management
Bi-Polar Disorders
Botulinum toxin therapy
Bradykinesia
Caring Tips
Child Abuse-Reconizing Signs
Chorea-Physician's Guide
Chorea
Cognitive/Decision Making/Impulsivity
Cognitive-Short Tips
Contractures~Joints Locking
Dehydration-Physician's Guide
Dehydration
Delirium
Denial of HD
Depression~Physician's Guide
Depression-Understanding It
Depression-How To Help
Depression - Treatment Resistant
Patient
Depression-Other Resources
-Read If Your Child Is On
Antidepressant
Disgust - Impaired Recognition in HD
Dissociative disorders
Driving - Physician's Guide
Dyslexia
Dyslexia Resources
Dystonia
Dystonia/Rigidity & Spasticity
Physician's Guide
Dystonia-Predominant Adult-Onset
HD
Epileptic Seizures and Epilepsy
Epilepsy-Seizures~PG
-Seizures ~Special Populations
Falling~Safety
Falling - Subdural Hematoma Risk
Fevers - Unexplained
Fevers, sweating & menstural cycles
in HD
GERD (Stomach)
HD Principle Treatments
Hallucinations/Psychosis~PGHD
Hand muscle reflexes in HD
Hypothalamus - A Personal Theory
Insomia ~Physician's Guide
Irritability~Temper Outburst
Physician's Guide
Learning Disability
Mania/OCD~Physician's Guide
Mood Disorder Rate In HD
Myoclonus (Movements)
Nails-What To Look For
Girl drinking
not to jump to conclusions based on only one or two signs.
Adolescence is a time of change - physically, socially, emotionally,
and intellectually. This can lead to erratic behavior and mood
changes as children try to cope with the changes of adolescence.
"The rule of thumb," Cummings says, "is whether there's a 'cluster
of behavior' - changes in friends, behavior, dress, attitude, mood,
sleep patterns, grades, interests, and so on. If you see a number of changes, certainly
look for all explanations by talking to and questioning your kids, but don't overlook
substance abuse as a possibility."
What if I Think My Child Is Drinking?
According to Dr. Much, by the time your child is 12 years old, he should be aware of
issues such as why people drink, the risks of alcohol use (especially for children and
teens), and how to handle situations where his friends or classmates may pressure him to
drink. It's essential that parents begin communicating with children about alcohol at an
early age and continue this dialogue throughout adolescence.
"Even if alcohol use is not part of your family's life," Dr. Much says, "somewhere in your
child's circle he is going to have the opportunity to drink. You should work with him to
provide strategies on how to avoid these situations or extricate himself from them once
he's already in them."
For children between the ages of 4 and 7, Cummings recommends calmly explaining the
reasons why it's dangerous to drink. "Be well-versed in the kinds of pressure that kids are
faced with today so that you can counter that with real information."
For children between the ages of 8 and 11, continue to explain the risks of alcohol use,
but also tie your discussions to real events discussed in newspaper articles or television
shows. "If you see a story about someone suffering the consequences of drinking, use
that as an opportunity to talk about the dangers," Cummings suggests.
For adolescents between the ages of 12 and 17, Cummings advocates a zero tolerance
approach. In fact, parents may want to stop drinking until the kids are grown and out of
the house. Children need positive role models more than ever in this tumultuous period of
development.
Dr. Much adds that no matter how old your child, if you suspect that he's drinking, it's
time to sit down and talk. "Try to get some honest information from your child," he says.
"Was it just one incident or is it frequent?" This may lead to a frank discussion between
you and your child where you have the opportunity to set ground rules concerning alcohol
use in your family. If you're not comfortable discussing the subject, there are a number of
resources available that can help get you started. You may also want to consult an
addictions counselor, Dr. Much says, even if only for advice or guidance.
Tips for Parents
Some parents may have a tendency to think that once their children reach adolescence,
parenting is no longer needed. "Not true," Dr. Much asserts. "The world is more complex
today. There are more challenges, more vulnerabilities, and more predatory behaviors
toward children." Much emphasizes the importance of conveying to your children that you
are there to support and protect them through adolescence into adulthood.
Here are some other tips you may want to try:
Keep tabs on where your child goes.
Talk to the parents of your child's friends.
Always make sure you have a phone number where you can reach your child.
Have your child check in regularly when he's away from home.
Don't allow your child to spend an extended length of time away from you without a
phone call or stopping at home.
For teens, especially those old enough to drive, David Ebaugh, MA, CPC, CCDC, a
substance abuse counselor, suggests negotiating and signing a behavioral contract with
your child. This contract should spell out expected behaviors and state the consequences if
your teen drives under the influence. "Follow through and take the keys away, if
necessary," Ebaugh says. "Negotiating a behavioral agreement is one of the best options
parents have to counteract negative peer pressure."
Ebaugh recommends always being a good role model. Make a deal with your teen that
says that you and the rest of your family also agree never to drink and drive. You should
also encourage responsible behaviors, Ebaugh says, such as planning for a designated
driver, or calling an adult for help rather than driving under the influence.
Even if your child isn't driving yet, Cummings also advocates the use of behavioral
contracts. Keep the dialogue open and keep the expectations reasonable. Tying
responsible actions to freedoms such as a later curfew or a driver's license acts as a
powerful motivator. Teach your child that freedom only comes with responsibility - a
lesson that should last a lifetime.
 Nails-What To Look For
Updated and reviewed by: Kim Rutherford, MD
Night Terrors
Date reviewed: September 2001
Obsessive Compulsive OCD Originally reviewed by: Steve Dowshen, MD, and Mandell Much, PhD
Panic Disorder
Personality disorders
Source: KidsHealth www.KidsHealth.com is a project of The Nemours Foundation which is dedicated to improving
Pneumonia the health and spirit of children. Today, as part of its continuing mission, the Foundation supports the operation of a
number of renowned children's health facilities throughout the nation, including the Alfred I. duPont Hospital for
Pneumonia-Advanced Stages Children in Wilmington, Delaware, and the Nemours Children's Clinics throughout Florida. Visit The Nemours
Pneumonia - Aspirated (Inhaled) Foundation to find out more about them and its health facilities for children http://www.nemours.org/no/
Prosody - Social Impairment
Sexuality~Physician's Guide ====================================================
The National Alliance for the Mentally Ill (NAMI) is a nonprofit, grassroots, self-help,
Skins Sensitivity
support and advocacy organization of consumers, families, and friends of people with
Sleep Disorders severe mental illnesses, such as schizophrenia, major depression, bipolar disorder,
Smoking-Physician's Guide obsessive-compulsive disorder, and anxiety disorders.
Spasticity URL: http://www.nami.org/illness/
Stress
Dual Diagnosis in Adolescence - Reference guide to adolescents with both l mental illness
Tremors
and substance abuse.
Why Certain Symptoms Occur
Symptom & Treatment Resources
SECTION 5 - COMMUNICATION
Communication Resources
Communication Problems
Communication Strategies For
HD~Jeff Searle
SECTION 6 -
EATING/SWALLOWING/NUITRITION
Hints For Weight Loss in HD
HD & Diet~HSA Fact Sheet 7
Nutrients: Some Possible Deficiency
Symptoms
Nutrition and HD~Anna Gaba
(Recipes)
Nutrition Information In HD~Naomi
Lundeen
Speech & Swallowing~Lynn Rhodes
Swallowing & Nutrition Physician's
Guide To HD
Swallowing & Nuitrition Resources
Swallowing Warning Signs
5 Swallowing Problems
Taste changes in HD
Weight Gain
Resources-Drinks/Shakes
-Feeding Tubes~Advanced Stages of
HD
-Feeding Tube~Jean Miller
-Feeding Tubes: One More Word
~Jean Miller
-Feeding Tubes & Baby Foods
-Feeding Tube~Dental Care
-Feeding Tube Instructions~Jean
Miller
-Feeding Tube Resources
SECTION 7 - THERAPIES
Finding a Therapist - Behavoir
What Is A Physiotherapist?
Physical Therapy In HD
Speech-Language Therapy
Therapy Descriptions
Therapy Resources- Easter Seal
Therapy Resources
SECTION 8 - MEDICATIONS
HD Treatments
Medications-Movement Disorders
Medication/Emergency Info Forms
Cutting Prescriptions
Drugs-Look 'Em Up
-Adolescents Under 25
-Antidepressant Adverse Effects
 -Anti-psychotic
-Anxiety-Antidepressant
A-Z Mental Health Drugs
-Creatine
-EPA~Fish Oil
-Haldol/Haloperidol - Clinical Sheet
-Haldol~Clinician Description
-Haldol & HD
-Haldol/HD Patient Experiences
-Haldol~ Patient Handout
-Mood Stabilizers: ASK 3 Questions
-Neuroleptic Malignant Synd
WARNING
-Olanzipine-Risperidone/blood tests
-Celexa/Luvox/Paxil/Prozac/Zoloft
-Psychiatric Drugs & Children
Sertraline ~Zoloft
-Spasticity Meds/Treatments
-SSRI Medications
-Tardive Dyskinesia WARNING
-Weight Gain Medications
-Sites/Help the Medicine Go Down
-Vitamin & Mineral Deficiencies
SECTION 9 - SURGERIES
Surgery-Movement Disorders
o Surgery Resources
SECTION 10 - PROCEDURES
Clinic Visits-How To Prepare
CT Scans, MRI's etc.
Swallowing Tests
Tests Commonly Used
o Procedures Resources
SECTION 11- ALCOHOL/DRUGS
Alcohol-Parent's Guide
Alcohol-Talking To Your Child
Drugs-What To Do?
Drugs-Talking To Your Child
Disciplining-Ages 0-13 & Up
SECTION 12- SUICIDE
Straight Talk On Suicide
Teen Suicide-You Need To Know
o Suicide Resources
SECTION 13 - DIVORCE
Divorce & Child Stress
Tips For Divorcing Parents
SECTION 14 - DISABILITY ISSUES
Guides To Disability Issues
Caring-Child & Medical Technology
Caring for a Seriously Ill Child
Child Long Term Illness
Disability-Special Education Plan
IFSP Early Intervention Process
Disability Resources
Financial Planning
Wishes Can Come True-Children's
Wish Foundations
Special Needs Resources
Special Needs Camp - About
Special Needs Camp - Finding One
SECTION 15 - ASSISTIVE
TECHNOLOGY
Child Assistive Technology
Adaptive Equipment Resources
Products
SECTION 16 - EMOTIONAL ISSUES
Signs of Unhealthy Self-Esteem
 Emotional Behavior Links
o Emotional Support Resources
SECTION 17 - GRIEF
Helping Child Deal With Death
o Grief Addtional Resources
SECTION 18 - ADD/ADHD
ADD & Teens
Conduct Disorders
FAQS & Related Info
Understanding AD/HD
What Is AD/HD?
Research Articles
Resources
SECTION 19 - HD SUPPORT
GROUPS
HD Support Groups
National Youth Association
SECTION 20 - HD LINKS
HD Links
Related Resources
Tips For Friends
SECTION 21 -
BENEFITS/INSURNACE
HD Disability
Benefits Check UP - See What You
Can Get
Medical Insurance Bureau's Facts On
You!
Medicare-Medicaid
Medicare Rights-Home Health &
Hospice
Medicare Rights Center Resources
No Insurance? Try This!
Prescription Drug Cards Part I
Prescription Drug Cards Part II
Social Security-Children With
Disabilities
SECTION 22 - ARTICLES/JHD
JHD and ADD
SECTION 23 - CAREGIVING
Articles-Resources
Caregiver Self-Assessment
Caregiver's Handbook
"First Shift With A Person With HD"
Getting Respite Care/Help At Home
Helpful Forms-Info
Home Emergency Preparations
Symptom Management
Ten Tips
Useful Tools
SECTION 24 - BIO
Our Personal Experience
Coping At The End
Kelly E. Miller
Song & Verse
Letter From My Heart
GUESTBOOK