#HPM Tweet Chat 1:18:12

#hpm - Healthcare Social Media Transcript
6/27/12 12:54 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Jan 18 18:00:00 PST 2012 Wed Jan 18 19:15:00 PST 2012 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project
CompAndChoices
It's time for #hpm tweetchat! Join us! #hpm

Wed Jan 18 18:00:45 PST 2012
rfberry
RT @CompAndChoices: Its time for #hpm tweetchat! Join us! #hpm

Wed Jan 18 18:01:40 PST 2012
nursefriendly
RT @KathyKastner: Thank you all for fab convo. Passion, compassion, motivation always inspiring. Over to #hpm while listening to Nancy Finn. #S4PM
Wed Jan 18 18:02:06 PST 2012
SheyontheBay
Hello all, I'm RN, CHPN in NY- advocating for advance care planning #hpm
Wed Jan 18 18:03:17 PST 2012
rfberry
--> Rene Berry here, healthcare background, hospice volunteer, ED Navigation, Geriatric Outpatient Services, currently @goBeMoRe love: #hpm
Wed Jan 18 18:03:25 PST 2012
CompAndChoices
T1 coming up in just a moment.... #hpm

Wed Jan 18 18:03:36 PST 2012
KathyKastner
Hot off #S4PM - where I honest to goodness tried to talk about #hpm :)
Page 1 of 26
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=01-18-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:54 PM
Wed Jan 18 18:04:06 PST 2012
JenMarsh2
Hi all, Jen here - therapist and community educator for a hospice in California #hpm
Wed Jan 18 18:04:15 PST 2012
CompAndChoices
@rfberry Yay! welcome! So glad to "see" you. :) #hpm

Wed Jan 18 18:04:23 PST 2012
CompAndChoices
@SheyontheBay Hey there! How's your week going? #hpm

Wed Jan 18 18:04:38 PST 2012
rfberry
cool! RT @KathyKastner: Hot off #S4PM - where I honest to goodness tried to talk about #hpm :) #hpm
Wed Jan 18 18:04:46 PST 2012
NatriceR
RT @KathyKastner: Thank you all for fab convo. Passion, compassion, motivation always inspiring. Over to #hpm while listening to Nancy Finn. #S4PM
Wed Jan 18 18:04:50 PST 2012
KathyKastner
#hpm Oh yes I'm health blogger and launching beta of Best Endings: app for e-o-l decisions.
Wed Jan 18 18:04:53 PST 2012
CompAndChoices
@KathyKastner thanks so much for the great #s4pm chat. Glad to see you made it here too. Busy day for you! #hpm
Wed Jan 18 18:05:01 PST 2012
CompAndChoices
@JenMarsh2 Welcome! Glad you're here. :) #hpm

Wed Jan 18 18:05:17 PST 2012
SheyontheBay
@CompAndChoices Dreamy! I have a 3mo old granddaughter! #hpm

Wed Jan 18 18:05:49 PST 2012
KathyKastner
@CompAndChoices busy, yes, but not to busy for my fav convo!! #hpm (ps thanks for coming to S4PM :)
Wed Jan 18 18:06:06 PST 2012
JenMarsh2
Happy to see everyone here! RT @CompAndChoices: @JenMarsh2 Welcome! Glad youre here. :) #hpm
Wed Jan 18 18:06:09 PST 2012
SheyontheBay
@KathyKastner REALLY wanna hear about that! #hpm

Wed Jan 18 18:06:12 PST 2012
CompAndChoices
T1: What is the best way to encourage individuals to have end-of-life conversations with their doc & family? #hpm
Page 2 of 26
6/27/12 12:54 PM
Wed Jan 18 18:06:26 PST 2012
CompAndChoices
Oh wow! Congrats! RT @SheyontheBay: @CompAndChoices Dreamy! I have a 3mo old granddaughter! #hpm
Wed Jan 18 18:06:47 PST 2012
_lizzy_
Hi all. I'm a researcher, social worker, hospice volunteer and all around hospice enthusiast #hpm
Wed Jan 18 18:07:17 PST 2012
CompAndChoices
T1: This is something our org struggles with all the time. So much fear of death. People fear even the conversation. #hpm
Wed Jan 18 18:07:43 PST 2012
KathyKastner
Terrific. I'll put out a link to it as soon as it's launched ! RT @SheyontheBay: @KathyKastner REALLY wanna hear about that! #hpm
Wed Jan 18 18:07:54 PST 2012
CompAndChoices
@_lizzy_ Welcome! Glad you could join us. :) #hpm

Wed Jan 18 18:08:03 PST 2012
SheyontheBay
T1 ReaCh them when they're NOT in crisis....church meetings, PTAs, etc. make it fun: "it ain't gonna kill u to talk about it. Havetools #hpm
Wed Jan 18 18:08:28 PST 2012
KathyKastner
@_lizzy_ Hi Lizzy! My fav thanatologist #hpm

Wed Jan 18 18:08:36 PST 2012
SheyontheBay
@KathyKastner Thank you! #hpm

Wed Jan 18 18:08:40 PST 2012
JenMarsh2
@SheyontheBay Yes - the best time to have the conversation is before you have to have to conversation #hpm
Wed Jan 18 18:09:20 PST 2012
ShyDi47
Good evening everyone Diana from freezing Canada. #Hpm

Wed Jan 18 18:09:22 PST 2012
_lizzy_
@KathyKastner you crack me up. It's your new favorite word, isn't it? #hpm
Wed Jan 18 18:09:28 PST 2012
SheyontheBay
health fairs, too #hpm

Wed Jan 18 18:09:48 PST 2012
CompAndChoices
@SheyontheBay T1: Any thoughts on the best way to get those tools in the hands of the unwilling? LOL #hpm
Page 3 of 26
6/27/12 12:54 PM
Wed Jan 18 18:09:49 PST 2012
rfberry
RT @KathyKastner: @_lizzy_ Hi Lizzy! My fav thanatologist #hpm

Wed Jan 18 18:10:20 PST 2012
CompAndChoices
@ShyDi47 Wish I had some spiked hot chocolate to tweet your way. :) #hpm
Wed Jan 18 18:10:21 PST 2012
_lizzy_
T1 In my experience, both parties seem to be waiting for the other to start the conversation. #hpm
Wed Jan 18 18:10:42 PST 2012
SheyontheBay
@CompAndChoices Yes, give them out FREE at venue! #hpm

Wed Jan 18 18:10:43 PST 2012
AnkurB_MD
Hi All, Geri and Palliative Care fellow/academic doc at Univ Cinci. Strong advocate for PC - joining HPM chat for the next hour... #hpm
Wed Jan 18 18:10:52 PST 2012
KathyKastner
Yes it is!! RT @_lizzy_: @KathyKastner you crack me up. It's your new favorite word, isn't it? #hpm
Wed Jan 18 18:11:03 PST 2012
rfberry
RT @CompAndChoices: T1: What is the best way to encourage individuals to have endof-life conversations with their doc & family? #hpm
Wed Jan 18 18:11:12 PST 2012
SheyontheBay
@ShyDi47 If only.... #hpm

Wed Jan 18 18:11:16 PST 2012
JenMarsh2
RT @_lizzy_: T1 In my experience, both parties seem to be waiting for the other to start the conversation. #hpm
Wed Jan 18 18:11:21 PST 2012
colleen_young
hi. #hpm. Can I join in?

Wed Jan 18 18:11:37 PST 2012
ShyDi47
@CompAndChoices I have found with end of life they can be restless @ have anxiety #Hpm
Wed Jan 18 18:11:42 PST 2012
KathyKastner
I'd add tequlia to that RT @CompAndChoices: @ShyDi47 Wish I had some spiked hot chocolate to tweet your way. :) #hpm
Wed Jan 18 18:11:42 PST 2012
@AnkurB_MD Welcome. We're talking now about how to get fearful folks to have those
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=01-18-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 4 of 26
6/27/12 12:54 PM
CompAndChoices
key end-of-life conversations. #hpm

Wed Jan 18 18:11:59 PST 2012
NatriceR
RT @KathyKastner: #hpm Oh yes I'm health blogger and launching beta of Best Endings: app for e-o-l decisions.
Wed Jan 18 18:12:04 PST 2012
ShyDi47
@rfberry have a meeting with everyone that everything is in place advance directives, will @ p/a. #Hpm
Wed Jan 18 18:12:39 PST 2012
rfberry
RT @CompAndChoices: @colleen_young Absolutely. Welcome! #hpm

Wed Jan 18 18:12:51 PST 2012
KathyKastner
And the Canadian contingent grows RT @colleen_young: hi. #hpm. Can I join in?
Wed Jan 18 18:12:53 PST 2012
rfberry
RT @ShyDi47: @rfberry have a meeting with everyone that everything is in place advance directives, will @ p/a. #Hpm
Wed Jan 18 18:13:25 PST 2012
CompAndChoices
Canucks in the house tonight! #hpm

Wed Jan 18 18:13:43 PST 2012
SheyontheBay
@rfberry My tag line: say it, write it, say it again #hpm
Wed Jan 18 18:14:01 PST 2012
ShyDi47
@CompAndChoices silence works @ being sensitive to their internal feelings #Hpm

Wed Jan 18 18:14:08 PST 2012
CompAndChoices
T1: We do provide free tools--but I'm always surprised how many people are afraid of even the free stuff. #hpm
Wed Jan 18 18:14:27 PST 2012
rfberry
T1 When people don't want to talk about it, it's really hard on family. It's really helpful when clinicians can initiate the convo #hpm
Wed Jan 18 18:14:33 PST 2012
rfberry
RT @SheyontheBay: @rfberry My tag line: say it, write it, say it again #hpm
Wed Jan 18 18:14:39 PST 2012
ShahinaLakhani
I believe when we stop portraying death as defeat and change terms like DNR to AND "allow Natural death" perceptions will change #hpm
Wed Jan 18 18:14:44 PST 2012
Page 5 of 26
6/27/12 12:54 PM
_lizzy_
T1 I try to suggest that it's easier to talk about 'in theory' than in the middle of a crisis. #hpm
Wed Jan 18 18:15:07 PST 2012
ShyDi47
@rfberry having a family conference more less #Hpm

Wed Jan 18 18:15:14 PST 2012
CompAndChoices
So much wisdom here on #eol conversations. Brilliant. #hpm

Wed Jan 18 18:15:23 PST 2012
JenMarsh2
RT @CompAndChoices: T1: We do provide free tools--but Im always surprised how many people are afraid of even the free stuff. #hpm
Wed Jan 18 18:15:32 PST 2012
ShahinaLakhani
RT @CompAndChoices: So much wisdom here on #eol conversations. Brilliant. #hpm

Wed Jan 18 18:16:03 PST 2012
ShyDi47
@ShahinaLakhani death is part of life @ it should be a very peaceful @ happy event surrounded by loved ones #Hpm
Wed Jan 18 18:16:14 PST 2012
KathyKastner
#hpm I gotta say, working on Best Endings app, I get to take all kinds of opportunities to talk - often start w how CPR on TV ain't reality
Wed Jan 18 18:16:24 PST 2012
CompAndChoices
MT @ShahinaLakhani When we stop portraying death as defeat & change terms like DNR to "allow Natural death" perceptions will change #hpm
Wed Jan 18 18:16:55 PST 2012
CompAndChoices
@KathyKastner Really looking forward to seeing that app. Very excited about it for you. #hpm
Wed Jan 18 18:17:16 PST 2012
rfberry
@ShyDi47 I agree with that personally, but I think we need to be careful of pushing our preferences & telling someone what "should" be #hpm
Wed Jan 18 18:17:21 PST 2012
ShyDi47
Closure very important in EOL @ any unresolved family issues #Hpm

Wed Jan 18 18:17:31 PST 2012
KathyKastner
:)RT @CompAndChoices: @KathyKastner Really looking forward to seeing that app. Very excited about it for you. #hpm
Wed Jan 18 18:17:36 PST 2012
rfberry
RT @SheyontheBay: It's about the teachable moments, Advance care planning = in advance of crisis...not when hospice referral is made #hpm
Wed Jan 18 18:17:54 PST 2012
Page 6 of 26
6/27/12 12:54 PM
CompAndChoices
@SheyontheBay Hopefully we can guide docs to take a more proactive role in that, too. #hpm
Wed Jan 18 18:17:59 PST 2012
ShahinaLakhani
Ppl mirror the attitude of the media and clinicians. Ads on national TV will play an important role in changing perspective #hpm
Wed Jan 18 18:18:20 PST 2012
ShyDi47
@_lizzy_ yes that is where social workers can intervene #Hpm

Wed Jan 18 18:18:27 PST 2012
CompAndChoices
Next topic coming shortly, fyi. #hpm

Wed Jan 18 18:19:02 PST 2012
KathyKastner
Nicely put RT @SheyontheBay: @KathyKastner Yes, and when I teach adults, important to remember anxiety down = learning up. #hpm
Wed Jan 18 18:19:05 PST 2012
ThankTank
RT @SheyontheBay: @KathyKastner Thank you! #hpm http://t.co/pSKbnCm3

Wed Jan 18 18:19:13 PST 2012
rfberry
@KathyKastner agree, the massive difference in medical TV shows & reality with CPR is so important for education #hpm
Wed Jan 18 18:19:44 PST 2012
KathyKastner
Wed Jan 18 18:20:02 PST 2012
_lizzy_
also need to overcome myths and false beliefs about ADs - it's not about choosing to die, it's about choosing how you die. #hpm
Wed Jan 18 18:20:03 PST 2012
SheyontheBay
got to know/ read the "audience." #hpm

Wed Jan 18 18:20:13 PST 2012
AnkurB_MD
@CompAndChoices I have noticed - Getting rid of "Our Own Fears" re EOL discussions is the first most imp step! #hpm
Wed Jan 18 18:20:34 PST 2012
KathyKastner
RT @_lizzy_: also need to overcome myths and false beliefs about ADs - it's not about choosing to die, it's about choosing how you die. #hpm
Wed Jan 18 18:20:35 PST 2012
KathyKastner
AmenRT @AnkurB_MD: @CompAndChoices I have noticed - Getting rid of "Our Own
Page 7 of 26
6/27/12 12:54 PM
Fears" re EOL discussions is the first most imp step! #hpm

Wed Jan 18 18:20:58 PST 2012
ShyDi47
Pain Management, Spiritual, psycho-social, focus on the pt @ family this is what E0L is all about #Hpm
Wed Jan 18 18:21:00 PST 2012
ShahinaLakhani
Yes! RT @shydi47: @ShahinaLakhani death is part of life @ it should be a very peaceful @ happy event surrounded by loved ones #Hpm
Wed Jan 18 18:21:12 PST 2012
SheyontheBay
Community outreach education is not family meeting at hospice referral. What's the goal? #hpm
Wed Jan 18 18:21:22 PST 2012
_lizzy_
For the archives...NPR article about Wisconsin success with advanced directives http://t.co/tw4teGCP #hpm
Wed Jan 18 18:21:26 PST 2012
rfberry
RT @AnkurB_MD: @CompAndChoices I have noticed - Getting rid of "Our Own Fears" re EOL discussions is the first most imp step! #hpm
Wed Jan 18 18:22:00 PST 2012
CompAndChoices
T2: A blog post called "How Doctors Die" recently went viral. Nutshell: docs want less #eol treatment, have ADs, etc. Thoughts? #hpm
Wed Jan 18 18:22:06 PST 2012
rfberry
RT @_lizzy_: For the archives...NPR article about Wisconsin success with advanced directives http://t.co/ZBNVTgpi #hpm
Wed Jan 18 18:22:13 PST 2012
colleen_young
Nice RT @_lizzy_: For the archives...NPR article about Wisconsin success with advanced directives http://t.co/3C13mell #hpm
Wed Jan 18 18:22:28 PST 2012
KathyKastner
Reallly RT @_lizzy_: Another myth to overcome: It's important to let patients know that they can change their mind later #hpm
Wed Jan 18 18:22:31 PST 2012
CompAndChoices
T2: here's the post, for reference: http://t.co/NLb90vF6 #hpm

Wed Jan 18 18:22:37 PST 2012
ShahinaLakhani
Wed Jan 18 18:22:39 PST 2012
ShyDi47
Norms of Practise: assessment, info sharing, decision making, care planning, care delivery, confirmation. #Hpm
Wed Jan 18 18:22:53 PST 2012
Page 8 of 26
6/27/12 12:54 PM
CompAndChoices
Wed Jan 18 18:23:10 PST 2012
AnkurB_MD
MT @rfberry: T1 When people dont want to tlk about EOL its really hard on family. Its really helpful when clinicians can initiate convo #hpm
Wed Jan 18 18:23:14 PST 2012
SheyontheBay
@colleen_young And they will bring the Respecting Choices to your venue #hpm
Wed Jan 18 18:23:29 PST 2012
NatriceR
Wed Jan 18 18:23:46 PST 2012
KathyKastner
#hpm and then there's plain talking at the end of life http://t.co/1xK3F3zu gr8 approach IMO
Wed Jan 18 18:24:07 PST 2012
ShyDi47
@AnkurB_MD they can be helpful as well part of the multi disciplinary team #Hpm
Wed Jan 18 18:24:08 PST 2012
CompAndChoices
T2: It fascinates me that the people who really understand #eol care want less treatment. #hpm
Wed Jan 18 18:24:16 PST 2012
colleen_young
Wow RT @SheyontheBay: @colleen_young And they will bring the Respecting Choices to your venue #hpm
Wed Jan 18 18:24:41 PST 2012
CompAndChoices
T2: these docs obviously have the inside scoop that a lot of other folks don't have. Or so it seems. #hpm
Wed Jan 18 18:25:09 PST 2012
nursefriendly
RT @CompAndChoices: Tonight at 9PM Eastern, 6PM Pacific: #hpm tweetchat: Did you know that doctors die differently from most of the rest of us? Discuss with us!
Wed Jan 18 18:25:15 PST 2012
colleen_young
Truly fascinating. RT @CompAndChoices: T2: It fascinates me that the people who really understand #eol care want less treatment. #hpm
Wed Jan 18 18:25:18 PST 2012
nursefriendly
@CompAndChoices #hpm Hello Everyone, my daughter was in need of someone to read to her :) I'm back now.
Wed Jan 18 18:25:50 PST 2012
Page 9 of 26
6/27/12 12:54 PM
ShyDi47
The process of providing care is followed by certain steps to be met during a therapeutic relationship. #Hpm
Wed Jan 18 18:26:09 PST 2012
rfberry
T2 I think clinicians see #eol decisions as straightforward but sometimes forget most people are less exposed to health/law language #hpm
Wed Jan 18 18:26:16 PST 2012
CompAndChoices
@nursefriendly Hey there! So glad you could join us. And yeah, reading to kids DEFINITELY trumps Twitter. :) #hpm
Wed Jan 18 18:26:38 PST 2012
SheyontheBay
Bet most clinicians who've seen futile care die differently #hpm
Wed Jan 18 18:26:43 PST 2012
NatriceR
RT @CompAndChoices: Tonight at 9PM Eastern, 6PM Pacific: #hpm tweetchat: Did you know that doctors die differently from most of the rest of us? Discuss with us!
Wed Jan 18 18:27:08 PST 2012
rfberry
@CompAndChoices I think it's interesting that they tend to want less (aggressive) treatment :) #hpm
Wed Jan 18 18:27:10 PST 2012
CompAndChoices
T2: the disparity between what docs want and what non-docs want/receive seems pretty profound to me. More info=less treatment? #hpm
Wed Jan 18 18:27:32 PST 2012
JenMarsh2
RT @rfberry: T2 I think clinicians see #eol decisions as straightforward but forget most people are less exposed to health/law language #hpm
Wed Jan 18 18:27:33 PST 2012
SheyontheBay
MT@rfberry:think clinicians see #eol decisions as straightforward, sometimes forget most ppl are less exposed to health/law language #hpm
Wed Jan 18 18:27:46 PST 2012
CompAndChoices
@rfberry Yes yes...of course you're right. I'm trying to stay in 140 characters. Maybe too much brevity. :) #hpm
Wed Jan 18 18:28:04 PST 2012
nursefriendly
RT @CompAndChoices: Alright..must get ready for #hpm tweetchat! Come on over if you'd like to carry on more conversation. #s4pm
Wed Jan 18 18:28:24 PST 2012
nursefriendly
RT @CompAndChoices: It's time for #hpm tweetchat! Join us! #hpm

Wed Jan 18 18:28:44 PST 2012
ShyDi47
We can all learn from each other when it comes to caring for our PTS or loved ones. #Hpm
Page 10 of 26
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=01-18-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:54 PM
Wed Jan 18 18:28:48 PST 2012
_lizzy_
Let's not forget the human aspect to the doctor/patient relationship. It's hard to give the REAL truth of prognosis #hpm
Wed Jan 18 18:29:00 PST 2012
nursefriendly
RT @CompAndChoices: T1 coming up in just a moment.... #hpm

Wed Jan 18 18:29:21 PST 2012
visitingnurse
RT @SheyontheBay: Its about the teachable moments, Advance care planning = in advance of crisis...not when hospice referral is made #hpm
Wed Jan 18 18:29:27 PST 2012
AnkurB_MD
Good thought!MT @rfberry:T2 I think clinicians see #eol decisions as strghtfwd but forget most people r less exposed to health/law lang #hpm
Wed Jan 18 18:29:36 PST 2012
JenMarsh2
@_lizzy_ I just read an article about a website that plans to "formulate" prognosis for drs #hpm
Wed Jan 18 18:29:53 PST 2012
rfberry
more info=more informed decision making MT @CompAndChoices T2 disparity between what docs want & what non-docs want is profound to me #hpm
Wed Jan 18 18:29:53 PST 2012
rfberry
@CompAndChoices I'm actually embarrassingly/obsessively picky about futile treatment/aggressive treatment language #hpm
Wed Jan 18 18:30:28 PST 2012
ShyDi47
@_lizzy_ agree @ that is what I mentioned that is part of the therapeutic relationship which is very important #Hpm
Wed Jan 18 18:30:34 PST 2012
pamressler
Hi all...just checking in briefly tonight...sorry. #hpm

Wed Jan 18 18:30:40 PST 2012
ShahinaLakhani
@rfberry a lot of patients also buy into doctors' attitude of pursuing all RX. often unrealistic Rx is performed on well insured pts #hpm
Wed Jan 18 18:30:42 PST 2012
produceconsume
RT @rfberry: RT @_lizzy_: For the archives...NPR article about Wisconsin success with advanced directives http://t.co/ZBNVTgpi #hpm
Wed Jan 18 18:31:22 PST 2012
nursefriendly
RT @CompAndChoices: @KathyKastner thanks so much for the great #s4pm chat. Glad to see you made it here too. Busy day for you! #hpm
Wed Jan 18 18:31:32 PST 2012
Page 11 of 26
6/27/12 12:54 PM
CompAndChoices
T2: I've read that African American communities want more #eol treatment than average. Less informed? #hpm
Wed Jan 18 18:31:32 PST 2012
SheyontheBay
@rfberry I am too, don't like "futile" clinicians get it, pt/families withdraw when they hear it #hpm
Wed Jan 18 18:31:48 PST 2012
nursefriendly
Wed Jan 18 18:31:49 PST 2012
CompAndChoices
@pamressler Glad you can be here, even if it's short. :) #hpm

Wed Jan 18 18:31:52 PST 2012
JenMarsh2
@_lizzy_ I agree. Would be interesting to see what the formula would be #hpm
Wed Jan 18 18:32:12 PST 2012
_lizzy_
@JenMarsh2 old article but it really stuck with me http://t.co/adIA3HrT #hpm

Wed Jan 18 18:32:24 PST 2012
nursefriendly
@CompAndChoices #hpm T1 Start the discussion early. Normalize the conversation, work to remove, eliminate the #stigma of #dying
Wed Jan 18 18:32:36 PST 2012
CompAndChoices
@rfberry As you should be. I should be too. Sometimes brain goes faster than fingers. :) #hpm
Wed Jan 18 18:32:52 PST 2012
JenMarsh2
@CompAndChoices I think cultural preferences play a huge part in accessing and utilizing eol services #hpm
Wed Jan 18 18:32:54 PST 2012
SheyontheBay
@CompAndChoices suggested more distrustful of health industry #hpm

Wed Jan 18 18:33:05 PST 2012
JenMarsh2
@_lizzy_ Thank you! #hpm

Wed Jan 18 18:33:05 PST 2012
CompAndChoices
@_lizzy_ LOVE Jane Brody. She in so insightful and informative. #hpm

Wed Jan 18 18:33:34 PST 2012
visitingnurse
RT @ShahinaLakhani: RT @ShyDi47: Pain Management, Spiritual, psycho-social, focus on the pt @ family this is what E0L is all about #hpm
Page 12 of 26
6/27/12 12:54 PM
Wed Jan 18 18:33:50 PST 2012
SheyontheBay
MT@nursefriendly: #hpm T1 Start the discussion early. Normalize the conversation, work to remove, eliminate the #stigma of dying #hpm
Wed Jan 18 18:33:59 PST 2012
rfberry
@ShahinaLakhani I'm not sure about 'unrealistic' treatment, some people may want aggressive treatment for as long as they can have it #hpm
Wed Jan 18 18:33:59 PST 2012
CompAndChoices
@JenMarsh2 Yes. I agree. I think it's more than just being informed. The cultural thing is huge. #hpm
Wed Jan 18 18:34:05 PST 2012
pamressler
Yes, research supports this MT @JenMarsh2: @CompAndChoices cultural preferences play a huge part in accessing + utilizing eol services #hpm
Wed Jan 18 18:34:32 PST 2012
JenMarsh2
Absolutely RT @CompAndChoices: @JenMarsh2 Yes. I agree. I think its more than just being informed. The cultural thing is huge. #hpm
Wed Jan 18 18:34:42 PST 2012
rfberry
I understand though, it is more common for aggressive treatment to be provided as options vs('stopping treatment' ->language pet peeve) #hpm
Wed Jan 18 18:35:21 PST 2012
CompAndChoices
@JenMarsh2 Have spent some time with friends in this community--mistrust of medicine is a real issue here. #hpm
Wed Jan 18 18:35:35 PST 2012
Kammy_CS
Wed Jan 18 18:35:41 PST 2012
ShyDi47
Culture has a big part in EOL @ respecting their culture @ how they want their loved one to die, etc. #Hpm
Wed Jan 18 18:35:43 PST 2012
KathyKastner
RT @ShyDi47: Culture has a big part in EOL @ respecting their culture @ how they want their loved one to die, etc. #Hpm
Wed Jan 18 18:35:54 PST 2012
JenMarsh2
@rfberry :-) I have that language pet peeve too! #hpm

Wed Jan 18 18:36:07 PST 2012
visitingnurse
@nursefriendly start with advance care planning--user-friendly document like Five Wishes. Get them thinking about wishes not lost hope #hpm
Wed Jan 18 18:36:07 PST 2012
Page 13 of 26
6/27/12 12:54 PM
CompAndChoices
T2: Wonder if docs in Afr. Amer. community could play bigger role in #eol conversations? Or if it's clergy? #hpm
Wed Jan 18 18:36:24 PST 2012
nursefriendly
@CompAndChoices #hpm T1 Ask your #parents, how their parents, siblings died. Make it acceptable to discuss at the #kitchentable
Wed Jan 18 18:36:33 PST 2012
ShyDi47
@rfberry seen treatment stop when they r very, very, close to death I had to do it many times #Hpm
Wed Jan 18 18:36:37 PST 2012
rfberry
@ShahinaLakhani I'm not exactly getting to what I mean, struggling with 140 I guess, sorry #hpm
Wed Jan 18 18:36:48 PST 2012
nursefriendly
@CompAndChoices #hpm When going with the #elderly to #doctors appointments, ask the #doctor about @#livingwills #advancedirectives
Wed Jan 18 18:37:15 PST 2012
CompAndChoices
@rfberry Sometimes 140 just isn't enough. Happens to me all the time. (sigh) #hpm
Wed Jan 18 18:37:36 PST 2012
ShahinaLakhani
@rfberry I meant RX that has potential of more harm than good. Often ppl undergo RX & end up with shorter life than without RX #hpm
Wed Jan 18 18:37:46 PST 2012
ShyDi47
Bringing closure to EOL is important. The main focus should be on the pt @ making sure they r comfortable. #Hpm
Wed Jan 18 18:38:02 PST 2012
visitingnurse
@CompAndChoices Good point. Clergy is definitely key, especially in areas where there are access barriers to care. #hpm
Wed Jan 18 18:38:08 PST 2012
JenMarsh2
RT @CompAndChoices: @rfberry Sometimes 140 just isnt enough. Happens to me all the time. (sigh) #hpm
Wed Jan 18 18:38:08 PST 2012
nursefriendly
@CompAndChoices #hpm T1 Ease into the conversations about #endoflife #eolchat, do talk about them, not just at #funerals
Wed Jan 18 18:38:09 PST 2012
rfberry
@ShyDi47 why "stop treatment" I would hope for a change in goals of care & implementation of #hospice treatment #hpm
Wed Jan 18 18:38:11 PST 2012
Page 14 of 26
6/27/12 12:54 PM
SheyontheBay
MT@nursefriendly: T1 Ask your #parents, how their parents, siblings died. Make it acceptable to discuss at #kitchentable<- great idea! #hpm
Wed Jan 18 18:38:16 PST 2012
CompAndChoices
RT @visitingnurse: @CompAndChoices Good point. Clergy is definitely key, especially in areas where there are access barriers to care. #hpm
Wed Jan 18 18:38:51 PST 2012
JenMarsh2
Even the language on our current docs needs to be revised. Spent 20 mins with someone over "hasten death" #hpm
Wed Jan 18 18:38:57 PST 2012
CompAndChoices
@visitingnurse Welcome, btw. You snuck in when I wasn't looking. :) #hpm

Wed Jan 18 18:39:08 PST 2012
_lizzy_
I want to point out that on hospice doesn't necessarily mean ADs are specified (unfortunately) #hpm
Wed Jan 18 18:39:24 PST 2012
ShahinaLakhani
YEP! RT @rfberry: @ShyDi47 why "stop treatment" I would hope for a change in goals of care & implementation of #hospice treatment #hpm
Wed Jan 18 18:39:26 PST 2012
CompAndChoices
@JenMarsh2 Ugh. "Hasten death"...bleh. #hpm

Wed Jan 18 18:39:39 PST 2012
ShyDi47
@rfberry I stopped the pain meds @ of died 2 hrs later he was comfortable @ nothing else mattered #Hpm
Wed Jan 18 18:39:41 PST 2012
pamressler
Agree RT @visitingnurse: @CompAndChoices Good point. Clergy is definitely key, esp in areas where there are access barriers to care. #hpm
Wed Jan 18 18:39:47 PST 2012
CompAndChoices
Next topic coming up momentarily....although I love this one. #hpm

Wed Jan 18 18:40:00 PST 2012
rfberry
@ShahinaLakhani I mean that #hospice is Rx (It's too often looked at as 'when treatment stops, not the case) #hpm
Wed Jan 18 18:40:00 PST 2012
visitingnurse
@nursefriendly --at funerals--that seems to be the one unavoidable place to talk of death and details--partner w/ fun'l homes for info #hpm
Wed Jan 18 18:40:40 PST 2012
ShahinaLakhani
Agree RT @rfberry: @ShahinaLakhani I mean that #hospice is Rx (It's too often looked at as 'when treatment stops, not the case) #hpm
Page 15 of 26
6/27/12 12:54 PM
Wed Jan 18 18:40:51 PST 2012
ShyDi47
When the PTS PPS is 10 percent death is close. Pt was comfortable @ free from pain. #Hpm
Wed Jan 18 18:41:02 PST 2012
DeathwDignity
RT @_lizzy_: I want to point out that on hospice doesn't necessarily mean ADs are specified (unfortunately) #hpm
Wed Jan 18 18:41:27 PST 2012
CompAndChoices
T3: A new Facebook app called "If I die" allows users to leave a last message before their death. Good idea? Weird? Would you use it? #hpm
Wed Jan 18 18:41:52 PST 2012
SheyontheBay
@ShyDi47:I stopped the pain meds @ of died 2 hrs later he was comfortable,nothing else mattered <- goodthing he died a pain returned! #hpm
Wed Jan 18 18:42:02 PST 2012
ShyDi47
@CompAndChoices hard to do when their PPS is 10 meaning death is very close. Nothing more could be done. #Hpm
Wed Jan 18 18:42:20 PST 2012
visitingnurse
@CompAndChoices yes, sorry to sneak in. My computer and I were having end-of-life issues :) I'm Alex, the comms person at VNA. #hpm
Wed Jan 18 18:42:31 PST 2012
JenMarsh2
T3 I think it has the potential to bring the topic to an entirely different group - if used correctly.... #hpm
Wed Jan 18 18:42:44 PST 2012
rfberry
@CompAndChoices I think it's awesome, however I was kind of turned off by the app's video & the tone of the intro #hpm
Wed Jan 18 18:42:53 PST 2012
CompAndChoices
T3: incidentally, every article I've seen on this app refers to it as "morbid". #hpm
Wed Jan 18 18:42:56 PST 2012
nursefriendly
@CompAndChoices #hpm T1 Eliminating that #stigma will take time. Must start early on the #education, tell kids bout "grandaparents"
Wed Jan 18 18:42:56 PST 2012
ShyDi47
@SheyontheBay pt had ALS family was present a very nice @ peaceful @ pain free death #Hpm
Wed Jan 18 18:43:14 PST 2012
_lizzy_
T3 It's my goal to always be "current" and not have anything "unsaid" with any friends or family. I feel it's a bit of a FB gimmick #hpm
Page 16 of 26
6/27/12 12:54 PM
Wed Jan 18 18:43:18 PST 2012
JenMarsh2
Ditto RT @rfberry @CompAndChoices I think it's awesome, however I was kind of turned off by the app's video & the tone of the intro #hpm
Wed Jan 18 18:43:40 PST 2012
CompAndChoices
@rfberry I guess I haven't seen the video. What's the thrust? #hpm
Wed Jan 18 18:43:46 PST 2012
JenMarsh2
RT @CompAndChoices T3: incidentally, every article I've seen on this app refers to it as "morbid". #hpm
Wed Jan 18 18:44:02 PST 2012
visitingnurse
@CompAndChoices Fascinating. How frequently would you post that. Each post could be your last. #hpm
Wed Jan 18 18:44:35 PST 2012
CompAndChoices
@_lizzy_ that's a great policy. Don't let things to unsaid. Love it. #hpm
Wed Jan 18 18:44:41 PST 2012
nursefriendly
@SheyontheBay T1 #hpm About the only time people talk about #dying is when it happens. #crisis situations, not great for discussing
Wed Jan 18 18:44:52 PST 2012
SheyontheBay
@_lizzy_ Me too (FB gimmick) YouTube monitors msgs of those intneding suicide, initiates emergent intervention #hpm
Wed Jan 18 18:45:08 PST 2012
ShahinaLakhani
@nursefriendly yes, if gandparents lived at home& home care subsidized rather than just nsg homes, our conversation would be different #HPM
Wed Jan 18 18:45:30 PST 2012
JenMarsh2
T3 I can see why they did it from a business standpoint, I just wish they had someone on board with a chat like this #hpm
Wed Jan 18 18:45:34 PST 2012
visitingnurse
t3: Haven't seen the ap, but have had two friends die. Pages are still up (families didn't know pw), and friends post memorial thoughts #hpm
Wed Jan 18 18:45:45 PST 2012
CompAndChoices
@visitingnurse I think it only kicks in after there's verification that the app owner is dead. There's some kind of verification. #hpm
Wed Jan 18 18:45:46 PST 2012
rfberry
http://t.co/znMkvFJH RT @CompAndChoices @rfberry I guess I havent seen the video. Whats the thrust? #hpm
Wed Jan 18 18:45:55 PST 2012
Page 17 of 26
6/27/12 12:54 PM
DeathwDignity
T3: think it has potential to help transition Facebook profile to your chosen person if you die suddenly. #hpm
Wed Jan 18 18:46:04 PST 2012
rfberry
RT @CompAndChoices: @_lizzy_ thats a great policy. Dont let things to unsaid. Love it. #hpm
Wed Jan 18 18:46:30 PST 2012
SheyontheBay
@nursefriendly Agree. Why I like doing community outreach in addition to clinical practice #hpm
Wed Jan 18 18:46:35 PST 2012
_lizzy_
@SheyontheBay had not heard that youtube had that - pretty neat if it saves lives #hpm
Wed Jan 18 18:46:36 PST 2012
SupportForHome
RT @nursefriendly: @CompAndChoices #hpm When going with the #elderly to #doctors appointments, ask the #doctor about @#livingwills...
Wed Jan 18 18:46:38 PST 2012
CompAndChoices
T3: I love the idea of people being able to leave thoughts after they've died. I wonder if it will ever NOT be considered "morbid"? #hpm
Wed Jan 18 18:46:51 PST 2012
rfberry
RT @JenMarsh2: RT @CompAndChoices T3: incidentally, every article I've seen on this app refers to it as "morbid". #hpm
Wed Jan 18 18:46:52 PST 2012
JenMarsh2
@CompAndChoices @visitingnurse It looks like you have to choose who you trust to verify with Facebook (multiple people) #hpm
Wed Jan 18 18:46:54 PST 2012
rfberry
RT @JenMarsh2: T3 I can see why they did it from a business standpoint, I just wish they had someone on board with a chat like this #hpm
Wed Jan 18 18:47:00 PST 2012
nursefriendly
RT @JenMarsh2: RT @_lizzy_: T1 In my experience, both parties seem to be waiting for the other to start the conversation. #hpm
Wed Jan 18 18:47:37 PST 2012
_lizzy_
@CompAndChoices I have noticed a trend with dying patients starting blogs. I plan to study it #hpm
Wed Jan 18 18:47:50 PST 2012
nursefriendly
@JenMarsh2 #hpm T1 Sounds very familiar, like when a #patient is going bad, and no one wants to address code status
Wed Jan 18 18:48:16 PST 2012
Page 18 of 26
6/27/12 12:54 PM
rfberry
@CompAndChoices It may be that I tweet about hospice every week, but I don't find it morbid at all :) #hpm
Wed Jan 18 18:48:16 PST 2012
CompAndChoices
RT @DeathwDignity: T3: think it has potential to help transition Facebook profile to your chosen person if you die suddenly. #hpm
Wed Jan 18 18:48:18 PST 2012
SheyontheBay
As the world changes along with technology and SM, some tools of grief work likely will as well, ie., memorial pages #hpm
Wed Jan 18 18:48:27 PST 2012
rfberry
@_lizzy_ talk to @PamRessler she's done research on it #hpm

Wed Jan 18 18:48:47 PST 2012
rfberry
awesome RT @_lizzy_: @CompAndChoices I have noticed a trend with dying patients starting blogs. I plan to study it #hpm
Wed Jan 18 18:49:03 PST 2012
nursefriendly
@JenMarsh2 #hpm T1 Code Status - Like pulling teeth to get #comfortcare #DNR #Hospice consults #eolchat #nursefriendly
Wed Jan 18 18:49:13 PST 2012
CompAndChoices
@rfberry LOL...well, you're an above average kind of woman. :) #hpm

Wed Jan 18 18:49:15 PST 2012
ShahinaLakhani
simplest n most difficult solution is 2 revisit how we invest in the care of elderly n sick advocate n subsidize hm care=easier EOLC #hpm
Wed Jan 18 18:49:15 PST 2012
ShyDi47
We r in the baby boom generation r u prepared 2 look after your parents? #Hpm
Wed Jan 18 18:49:16 PST 2012
SheyontheBay
@rfberry :-D #hpm

Wed Jan 18 18:49:21 PST 2012
JenMarsh2
Me too RT @CompAndChoices @_lizzy_ Oh....that's cool. I'd love to follow your progress with that. #hpm
Wed Jan 18 18:49:27 PST 2012
CompAndChoices
RT @SheyontheBay: As the world changes along with technology and SM, some tools of grief work likely will as well, ie., memorial pages #hpm
Wed Jan 18 18:49:33 PST 2012
nursefriendly
RT @CompAndChoices: @AnkurB_MD Welcome. We're talking now about how to get fearful folks to have those key end-of-life conversations. #hpm
Wed Jan 18 18:49:41 PST 2012
Page 19 of 26
6/27/12 12:54 PM
_lizzy_
@rfberry Thanks, I will get in touch with her #hpm

Wed Jan 18 18:49:46 PST 2012
pamressler
Would love to chat with you @_lizzy_RT @rfberry: @_lizzy_ talk to @PamRessler shes done research on it #hpm
Wed Jan 18 18:49:50 PST 2012
nursefriendly
:) RT @CompAndChoices: @nursefriendly Hey there! So glad you could join us. And yeah, reading to kids DEFINITELY trumps Twitter. :) #hpm
Wed Jan 18 18:50:09 PST 2012
ShahinaLakhani
its a passion! RT @rfberry: @CompAndChoices It may be that I tweet about hospice every week, but I don't find it morbid at all :) #hpm
Wed Jan 18 18:50:28 PST 2012
rfberry
ha if only, more like overtweeter hospice obsessed :) RT @CompAndChoices: @rfberry LOL...well, youre an above average kind of woman #hpm
Wed Jan 18 18:50:32 PST 2012
CompAndChoices
T3: I would like to leave a message. But I'm bossy. I think my afterlife message would reflect my bossiness. LOL #hpm
Wed Jan 18 18:50:37 PST 2012
nursefriendly
@visitingnurse #hpm Yes, need to introduce them tot

Wed Jan 18 18:50:43 PST 2012
pamressler
@_lizzy_ Great! #hpm

Wed Jan 18 18:50:44 PST 2012
rfberry
I kept Pam on the phone for an hour questioning away, it was #awesome :) RT @_lizzy_: @rfberry Thanks, I will get in touch with her #hpm
Wed Jan 18 18:51:01 PST 2012
nursefriendly
@visitingnurse #hpm Need to introduce them to #FiveWishes #LivingWills #Advancedirectives early in the name, not later.
Wed Jan 18 18:51:22 PST 2012
SheyontheBay
MT @nursefriendlyT1 Code Status - Like pulling teeth to get #comfortcare #DNR #Hospice consults #eolchat #nursefriendly<- AAARRGH,Yes #hpm
Wed Jan 18 18:51:48 PST 2012
nursefriendly
@visitingnurse #hpm It is unfortunate that the topic of how to handle death comes after the fact. Many see it coming :(
Wed Jan 18 18:52:24 PST 2012
rfberry
@CompAndChoices too funny! #hpm

Page 20 of 26
6/27/12 12:54 PM
Wed Jan 18 18:52:39 PST 2012
CompAndChoices
T3: Would you use an app that would let you leave a message after your death? #hpm
Wed Jan 18 18:52:44 PST 2012
rfberry
RT @CompAndChoices: T3: I would like to leave a message. But I'm bossy. I think my afterlife message would reflect my bossiness. LOL #hpm
Wed Jan 18 18:52:48 PST 2012
pamressler
Loved it! RT @rfberry: I kept Pam on the phone for an hour questioning away, it was #awesome :) #hpm
Wed Jan 18 18:53:25 PST 2012
nursefriendly
@ShahinaLakhani #HPM How insurance pays for #endoflife care plays a pivotal role for sure. Most would prefer #dying at home
Wed Jan 18 18:53:38 PST 2012
rfberry
YES! RT @CompAndChoices T3 Would you use an app that would let you leave a message after your death? #hpm
Wed Jan 18 18:53:47 PST 2012
CompAndChoices
I'd be careful about using #FiveWishes for an advance directive. State approved ADs get the job done and are free. #hpm
Wed Jan 18 18:53:54 PST 2012
visitingnurse
T3: Just watched the ap video--creepy marketing--they need to create an FB ap that encourages end of life planning--let that go viral. #hpm
Wed Jan 18 18:54:19 PST 2012
ShahinaLakhani
RT @nursefriendly: @ShahinaLakhani #HPM How insurance pays for #endoflife care plays a pivotal role for sure. Most would prefer #dying at home
Wed Jan 18 18:54:26 PST 2012
nursefriendly
It isn't hard to start the convo :( RT @SheyontheBay: Agree. Why I like doing community outreach in addition to clinical practice #hpm
Wed Jan 18 18:54:30 PST 2012
lfettig
@CompAndChoices t3: "sorry I didn't get around to telling you and that you didn't ask. Too late now." #hpm
Wed Jan 18 18:54:31 PST 2012
DeathwDignity
RT @CompAndChoices: I'd be careful about using #FiveWishes for an advance directive. State approved ADs get the job done and are free. #hpm
Wed Jan 18 18:54:39 PST 2012
ShyDi47
I definitely would be uncomfortable leaving a message after I died what if u r not in a position to do that or simply can't. #Hpm
Wed Jan 18 18:54:54 PST 2012
Page 21 of 26
6/27/12 12:54 PM
rfberry
T3 I just wish I was a designer & could make one myself so I could implement all of my insane picky tidbits about eol language :) #hpm
Wed Jan 18 18:55:05 PST 2012
SheyontheBay
@CompAndChoices After I'm Gone Message? Like the videos hospice volunteers help pts make? #hpm
Wed Jan 18 18:55:09 PST 2012
CompAndChoices
@rfberry That video for "If I Die" is kinda crazy. I get why they went there on tone, trying to stay lighthearted. But it's too silly. #hpm
Wed Jan 18 18:55:11 PST 2012
CompAndChoices
@SheyontheBay More like the Facebook app, but the same principle. #hpm
Wed Jan 18 18:55:49 PST 2012
visitingnurse
T3: would be better to tell friends what's in your heart for them now rather than from the beyond of cyberspace. #hpm
Wed Jan 18 18:55:52 PST 2012
ShyDi47
Dying at home is the best thing we have an excellent program here in Canada by VON. #Hpm
Wed Jan 18 18:55:58 PST 2012
aliciabloom
@rfberry hospice & palliative care provide "aggressive" treatment, too-- aggressive symptom management. take back the word! #hpm
Wed Jan 18 18:56:10 PST 2012
DeathwDignity
Oh, a @nhdd opportunity! @visitingnurse T3: they need to create an FB ap that encourages end of life planning--let that go viral. #hpm
Wed Jan 18 18:56:20 PST 2012
CompAndChoices
YES MT @visitingnurse: T3: they need to create an FB ap that encourages end of life planning--let that go viral. #hpm
Wed Jan 18 18:56:39 PST 2012
nursefriendly
RT @KathyKastner: #hpm and then there's plain talking at the end of life http://t.co/1xK3F3zu gr8 approach IMO
Wed Jan 18 18:56:53 PST 2012
rfberry
@aliciabloom wooooot! #hpm

Wed Jan 18 18:56:54 PST 2012
CompAndChoices
RT @visitingnurse: T3: would be better to tell friends whats in your heart for them now rather than from the beyond of cyberspace. #hpm
Wed Jan 18 18:57:02 PST 2012
Page 22 of 26
6/27/12 12:54 PM
visitingnurse
@aliciabloom I like that "aggressive symptom management". I may need to borrow that in some materials. #hpm
Wed Jan 18 18:57:13 PST 2012
nursefriendly
People can decide :) RT @CompAndChoices: T2: It fascinates me that the people who really understand #eol care want less treatment. #hpm
Wed Jan 18 18:57:24 PST 2012
AnkurB_MD
@CompAndChoices I guess the Right Q could be:"What would be the best way to give U closure at EOL? Mess. via FB App or something else.. #hpm
Wed Jan 18 18:57:34 PST 2012
CompAndChoices
@DeathwDignity Look at you...always thinking of good ways to leverage. You're amazing. :) #hpm
Wed Jan 18 18:57:39 PST 2012
SheyontheBay
Yes, hospice videos are for what the pt wants to convey. maybe family difficulties made it hard to speak. Tell family hx too #hpm
Wed Jan 18 18:57:41 PST 2012
ShyDi47
@ShahinaLakhani letting the pt did @ home in the comfort of their own home @ their own surrounding is the best death one can ask for #Hpm
Wed Jan 18 18:57:42 PST 2012
visitingnurse
@nursefriendly problem with talking at EOL is that probably there wasn't good communication before the end was near. #hpm
Wed Jan 18 18:58:14 PST 2012
CompAndChoices
@AnkurB_MD Love that. "What would be the best way to give U closure at EOL? " #hpm
Wed Jan 18 18:58:20 PST 2012
nursefriendly
#eol #hpm T2 If we give them the information, let them make the choice of what they do, do not want at #endoflife, better quality.
Wed Jan 18 18:58:31 PST 2012
ShahinaLakhani
would luv to kno more! RT @shydi47: Dying at home is the best thing we have an excellent program here in Canada by VON. #Hpm
Wed Jan 18 18:58:37 PST 2012
SheyontheBay
Five Wishes helps start the conversation, substantiate AD #hpm

Wed Jan 18 18:58:55 PST 2012
CompAndChoices
Hey tweeps: our time is almost up. Any last thoughts? #hpm
Wed Jan 18 18:59:29 PST 2012
visitingnurse
RT @SheyontheBay: Five Wishes helps start the conversation, substantiate AD #hpm

Wed Jan 18 18:59:42 PST 2012
Page 23 of 26
6/27/12 12:54 PM
nursefriendly
@rfberry #eol #hpm T2 No, most #physicians are as uneasy discussing options as are #nurses #patients & #families - see it daily
Wed Jan 18 19:00:08 PST 2012
pamressler
RT @visitingnurse: RT @SheyontheBay: Five Wishes helps start the conversation, substantiate AD #hpm
Wed Jan 18 19:00:09 PST 2012
SheyontheBay
@ShyDi47 some families dont want that to be "the room gramma died in?" Each decides what's best for them, we can't say what's best #hpm
Wed Jan 18 19:00:23 PST 2012
rfberry
@CompAndChoices Thanks for hosting! Great to see everyone tonight! #hpm

Wed Jan 18 19:00:24 PST 2012
AnkurB_MD
@CompAndChoices Great job!! Thanks for yur insights ALL!! #hpm

Wed Jan 18 19:00:40 PST 2012
nursefriendly
Speaking personally, my #ICU #nurse wife and I will. RT @SheyontheBay: Bet most clinicians who've seen futile care die differently #hpm
Wed Jan 18 19:01:04 PST 2012
ShyDi47
@AnkurB_MD closure would be completing any unfinished business @ death management #Hpm
Wed Jan 18 19:01:04 PST 2012
SheyontheBay
G'nite all! #hpm

Wed Jan 18 19:01:18 PST 2012
KathyKastner
Sorry only in and out but agree totally RT @rfberry: @CompAndChoices Thanks for hosting! Great to see everyone tonight! #hpm
Wed Jan 18 19:01:18 PST 2012
ctsinclair
The #hpm Daily is out! http://t.co/hXekg5Al Top stories today via @_lizzy_ @jfclearywisc @villagememorial @compandchoices @palliativemedj
Wed Jan 18 19:01:18 PST 2012
DeathwDignity
@CompAndChoices TY for hosting. Sorry I missed so much of the conversation tonight. #hpm
Wed Jan 18 19:01:31 PST 2012
nursefriendly
@SheyontheBay #hpm After seeing how people have died in #hospitals #nursinghomes for decades, we know what we do, don't want.
Wed Jan 18 19:01:42 PST 2012
RT @rfberry: @CompAndChoices Thanks for hosting! Great to see everyone tonight!

http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=01-18-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 24 of 26
6/27/12 12:54 PM
_lizzy_
#hpm
Wed Jan 18 19:02:04 PST 2012
rfberry
@nursefriendly I said that in regards to completing eol documents for themselves. They are often very uneasy discussing #hpm w/patients
Wed Jan 18 19:02:04 PST 2012
CompAndChoices
@DeathwDignity Glad you could make it. :) Hope to see you again soon #hpm
Wed Jan 18 19:02:10 PST 2012
ShahinaLakhani
@compandchoices lets move our conversations to focused action! Chats are gr8 so many wonderful minds 2gether action pays off #hpm
Wed Jan 18 19:02:38 PST 2012
CompAndChoices
Thanks to everyone for your thoughtful, insightful comments. I learn so much from all of you. #hpm
Wed Jan 18 19:02:43 PST 2012
aliciabloom
@CompAndChoices Five Wishes can help ease people into discussion & the focus on quality of life w/ different medical situations is good #hpm
Wed Jan 18 19:03:02 PST 2012
pamressler
@CompAndChoices Thanks for hosting...great chat #hpm

Wed Jan 18 19:03:07 PST 2012
ShyDi47
Great chat have a great evening everyone. #Hpm

Wed Jan 18 19:03:12 PST 2012
nursefriendly
@rfberry #hpm Ok, makes more sense.They'll do their living wills in a heartbeat (like my wife & me) but hesitate to discuss for #patients
Wed Jan 18 19:03:26 PST 2012
nursefriendly
@visitingnurse #hpm Yep, the #stigma of #dying has always been there, keeping the conversation "out" of conversation :(
Wed Jan 18 19:05:07 PST 2012
ShyDi47
@SheyontheBay yet I have seen kids looking after their parents in their own right here in my own backyard #Hpm
Wed Jan 18 19:05:10 PST 2012
nursefriendly
RT @CompAndChoices: @JenMarsh2 Have spent some time with friends in this community--mistrust of medicine is a real issue here. #hpm
Wed Jan 18 19:06:00 PST 2012
nursefriendly
RT @ShyDi47: Culture has a big part in EOL @ respecting their culture @ how they want their loved one to die, etc. #Hpm
Wed Jan 18 19:06:12 PST 2012
Page 25 of 26
6/27/12 12:54 PM
SheyontheBay
@ShyDi47 As we all have. Each chooses what's best for them #hpm
Wed Jan 18 19:06:26 PST 2012
nursefriendly
Thanks for hosting :) RT @CompAndChoices: Thanks to everyone for your thoughtful, insightful comments. I learn so much from all of you. #hpm
Wed Jan 18 19:07:18 PST 2012
nursefriendly
RT @ShyDi47: Bringing closure to EOL is important. The main focus should be on the pt @ making sure they r comfortable. #Hpm
Wed Jan 18 19:08:37 PST 2012
nursefriendly
RT @JenMarsh2: Even the language on our current docs needs to be revised. Spent 20 mins with someone over "hasten death" #hpm
Wed Jan 18 19:10:23 PST 2012
ShahinaLakhani
@nursefriendly I believ death has become a 4 letter word only in last 100yrs, ppl used to believe dying was as natural as being born #hpm
Wed Jan 18 19:10:50 PST 2012
nursefriendly
@JenMarsh2 #hpm How much of that is anxiety of the topic of conversation vs #healthlit, interesting question.
Wed Jan 18 19:11:15 PST 2012
nursefriendly
How do you mean? RT @_lizzy_: I want to point out that on hospice doesn't necessarily mean ADs are specified (unfortunately) #hpm
Wed Jan 18 19:11:52 PST 2012
nursefriendly
@_lizzy_ #hpm Most #hospice #patients I have are automatically #DNR #DNI #DNH #Comfortcare
Wed Jan 18 19:12:45 PST 2012
nursefriendly
@CompAndChoices #hpm T3 Me? No, No & Hell No! The current generation of #Millenials? Probably. Go figure.
Wed Jan 18 19:14:40 PST 2012
Page 26 of 26

#HPM Tweet Chat 1:18:12

Uploaded by

Document Information

Original Title

Copyright

Available Formats

Share this document

Share or Embed Document

Sharing Options

Did you find this document useful?

Is this content inappropriate?

Copyright:

Available Formats

#HPM Tweet Chat 1:18:12

Uploaded by

Copyright:

Available Formats

#hpm - Healthcare Social Media Transcript

It's time for #hpm tweetchat! Join us! #hpm

RT @CompAndChoices: Its time for #hpm tweetchat! Join us! #hpm

T1 coming up in just a moment.... #hpm

#hpm - Healthcare Social Media Transcript

Wed Jan 18 18:04:06 PST 2012

@rfberry Yay! welcome! So glad to "see" you. :) #hpm

@SheyontheBay Hey there! How's your week going? #hpm

@JenMarsh2 Welcome! Glad you're here. :) #hpm

@CompAndChoices Dreamy! I have a 3mo old granddaughter! #hpm

@KathyKastner REALLY wanna hear about that! #hpm

#hpm - Healthcare Social Media Transcript

Wed Jan 18 18:06:26 PST 2012

@_lizzy_ Welcome! Glad you could join us. :) #hpm

@_lizzy_ Hi Lizzy! My fav thanatologist #hpm

@KathyKastner Thank you! #hpm

Good evening everyone Diana from freezing Canada. #Hpm

health fairs, too #hpm

#hpm - Healthcare Social Media Transcript

Wed Jan 18 18:09:49 PST 2012

RT @KathyKastner: @_lizzy_ Hi Lizzy! My fav thanatologist #hpm

@CompAndChoices Yes, give them out FREE at venue! #hpm

@ShyDi47 If only.... #hpm

hi. #hpm. Can I join in?

#hpm - Healthcare Social Media Transcript

key end-of-life conversations. #hpm

RT @CompAndChoices: @colleen_young Absolutely. Welcome! #hpm

Canucks in the house tonight! #hpm

@CompAndChoices silence works @ being sensitive to their internal feelings #Hpm

#hpm - Healthcare Social Media Transcript

@rfberry having a family conference more less #Hpm

So much wisdom here on #eol conversations. Brilliant. #hpm

RT @CompAndChoices: So much wisdom here on #eol conversations. Brilliant. #hpm

Closure very important in EOL @ any unresolved family issues #Hpm

#hpm - Healthcare Social Media Transcript

@_lizzy_ yes that is where social workers can intervene #Hpm

Next topic coming shortly, fyi. #hpm

RT @SheyontheBay: @KathyKastner Thank you! #hpm http://t.co/pSKbnCm3

got to know/ read the "audience." #hpm

AmenRT @AnkurB_MD: @CompAndChoices I have noticed - Getting rid of "Our Own

#hpm - Healthcare Social Media Transcript

Fears" re EOL discussions is the first most imp step! #hpm

T2: here's the post, for reference: http://t.co/NLb90vF6 #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

RT @CompAndChoices: It's time for #hpm tweetchat! Join us! #hpm

#hpm - Healthcare Social Media Transcript

Wed Jan 18 18:28:48 PST 2012

RT @CompAndChoices: T1 coming up in just a moment.... #hpm

Hi all...just checking in briefly tonight...sorry. #hpm

#hpm - Healthcare Social Media Transcript

@pamressler Glad you can be here, even if it's short. :) #hpm

@JenMarsh2 old article but it really stuck with me http://t.co/adIA3HrT #hpm

@CompAndChoices suggested more distrustful of health industry #hpm

@_lizzy_ Thank you! #hpm

@_lizzy_ LOVE Jane Brody. She in so insightful and informative. #hpm

#hpm - Healthcare Social Media Transcript

Wed Jan 18 18:33:50 PST 2012

@rfberry :-) I have that language pet peeve too! #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@visitingnurse Welcome, btw. You snuck in when I wasn't looking. :) #hpm

@JenMarsh2 Ugh. "Hasten death"...bleh. #hpm