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Panelist
Vojtech Huser, Panel Moderator
Assistant Clinical Investigator, Laboratory for Informatics Development, National Institutes of Health, Clinical Center
Vikrant Deshmukh
Senior Data Warehouse Architect, U of Utah Hospital
Adam Wilcox
Assistant Professor at Columbia University and Director of the Clinical Databases, Information Services, New York Presbyterian Hospital
Henry Lowe
Director of the Center for Clinical Informatics, Stanford University
Vojtech Huser
Background
Growth of data warehousing
CTSA IDR surveys in 2007,2008,2010
Topics
So you have your cohort estimate: now what? 1. self-service search tools 2. human-expert-assisted search 3. prospective, computer-assisted cohort recruitment
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Vojtech Huser
Vojtech Huser
Factors
User factor
Zero training system
vs. intro video vs. advanced training
System factor
Underlying warehouse (data model, search engine) User interface metaphor
Vojtech Huser Beyond Cohort Discovery 6
Limits
Self service query tool
Average user limit Power user limit User interface/tool limit
Human-assisted search
Request form complexity limit Assigned analyst limit Analyst preferred query technology limit
(BI, SQL)
Next steps
Cohort estimation
Feasibility review vs. full IRB approval
Import/Export
within single platform sharing among users within organization
New inferred concepts in IDR
2. Human-assisted search
DEFINITION: Ability of data requestors to ask for custom queries performed by human analyst Level of integration
No such option Designated analyst (within department) Data warehouse analyst (differing availability) Institutionalized entity with charge-back model
Response time, request submission (web-form with ticket # vs. informal request)
Vojtech Huser
10
Factors
Data+Requestor Data+Analyst+Requestor
Misunderstanding Quality control (is this exactly the criteria requestor needed)
Limits
Self service query tool
Average user limit Power user limit User interface limit
Human-assisted search
Request form complexity limit (attachment) Assigned analyst limit Analyst preferred query technology limit
(SQL, Proc SQL, SAS, Xpath, SPARQL)
Parameters:
report title, reason, data criteria (attachment), desired columns, output (SAS, Excel), report frequency link to similar prior requests
2. human-assisted search
Limited degree (no elaborate financial model) Can also be limited to assistance with the query tool Provided to inform improvements within the self-service platform
3. prospective recruitment
Not fully applicable to Clinical Center as research hospital
Not within EHR Studies compete for participants ability to search on 12 parameters generate a list of phone numbers
Vojtech Huser
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